Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Hi Everyone, I am now ready to report on my daughter's progress with Nutriiveda. My darling E. has severe apraxia (all 3 forms) with SPD and hypotonia. At three she was " Profound " with no ability to imitate, speak, chew etc. (the diagnoses we received were frightening). We have been very aggressive in every way possible with her treatment over the years -- thousands of hours of behavioral, OT, speech (with an Apraxia specialist - 4 hours a week). She is in a Gen Ed Kinder class with a full time behaviorist. Full DAN! protocol -- more than 60 Hyperbaric treatments, GF/CF/No Soy for two years. She has improved significantly over the years and is now a happy girl most of the time -- but her communication delays and related social awkwardness continue to vex her and us. As a side note, finding CHERUB and reading " The Late Talker " was a Godsend. For the first time I knew exactly what was going on with my beautiful daughter. I've literally bought more than 20 copies to give to every doctor, therapist and teacher that works with her. Last January we started on 2 scoops a day of Nutriiveda. For the first few weeks it was a bit hit and miss getting the dosage in. Then, in early February, she got an ear infection (she is prone to ear problems) and was on and off antibiotics for a few weeks. Finally, in early March, we got a system going to get the 2 scoops a day in her, which she has had for over 6 weeks now. The first change I noted was a couple of weeks in, E. was open to trying new foods. She wanted to eat strawberries. If I cooked them in egg, she'd eat cauliflower and broccoli. If you knew her food history you'd know how HUGE this is -- she never ate anything solid until 4 years old, and then just very easily to chew stuff like pasta -- nothing with any texture to speak of (and yes, total terrible history of GI issues, especially constipation). Last night she ate regular cauliflower. Her entire diet has improved wonderfully -- she is nearly eating everything her triplet (she's a triplet and identical twin -- 2 months preemie, born at 3 pounds) sisters eat now. And she's pooped nearly every day for a week! Woo hoo! Next was the drawing -- she's had so much trouble with her motor systems that she never drew, never did playdough -- she started drawing like mad. Going through tons of white board markers and loads of paper. Animals, people, lessons from school [me] " what's that? " , [E.], " the wind. " Okay, but about speech. My SLP is BLOWN AWAY, as are we. HUGE HUGE gains over the last month. Like nothing we've ever seen. She is making spontaneous comments. We can understand virtually everything she says (from less than half a couple of months ago). E. is trying to tell me what happened at school. Most recently, with a little prodding on my part, we sat for nearly two hours while I asked her questions about things she liked and she asked me back the questions. Her eye contact was laser beam good the whole time. It's important to note that this conversation happened AFTER we spent time in the pool -- so her sensory stuff was better under control and she could access her language. " I'll drink it later. " (avoiding fish oil juice). " She do not understand " (about a rather clueless nanny). " The Little Mermaid " , " The Cow Book " , " Chicken Nuggets " , " the computer " , (etc.) answers to " favorites " questions -- she also mentioned all of them in the middle of the night last night when she got up to go to the bathroom -- she wanted to start the discussion about favorites again. (Funny how E. has always been partial to Ariel too -- sleeps with that doll every night for past 4 years). Honestly, E. still has a long road ahead -- when you go 6.5 years without being able to communicate with the world, you have a lot of catching up to do. But, we are more hopeful than ever that she will make it all the way. E. is really smart -- though most people look at her and don't think so. She memorizes everything (she knows every state capitol) I think in part because she can access memorized information easier. I really recommend the Nutriiveda. I am having a blast getting to " know " my daughter better. There's something in this stuff that's working. I'll post again later. Thanks! Quote Link to comment Share on other sites More sharing options...
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