Re: Recommendation for NY Genetic Testing?

[Guest guest]

Not sure if this is helpful but we had ours done at Hackensack Hospital, and the

doctor was wonderful. If NJ would work for you, I'll track down his name. DD

was 3 at the time.

>

> Does anyone have a recommendation in NY for Genetic Testing for an almost 3

year old? Looking for a doctor that has a kind bedside manner (with both the

child and parents) and is also very thorough. And ideally a bit of a " outside

the box " thinker? We have had some basic genetic testing done in the past but

it is time to get a more comprehensive evaluation done.

>

> Manhattan, Brooklyn or Long Island is ok.

>

> Many thanks,

> The Family

> slopefam11215@...

>

[Guest guest]

We started out at Westchester Med Center--they were fine but not reliable. We've

been taking my 8dd to Columbia/Pres for the past six years! I can assure you

they are very thorough there and the best bedside manner I've seen in many

years--my daughter hugs her doctor every time we see him and thats only once a

year! They see kids in Stanley Childrens Hosp.

http://childrensnyp.org/mschony/genetics-clinical.html

>

> Does anyone have a recommendation in NY for Genetic Testing for an almost 3

year old? Looking for a doctor that has a kind bedside manner (with both the

child and parents) and is also very thorough. And ideally a bit of a " outside

the box " thinker? We have had some basic genetic testing done in the past but

it is time to get a more comprehensive evaluation done.

>

> Manhattan, Brooklyn or Long Island is ok.

>

> Many thanks,

> The Family

> slopefam11215@...

>

[Guest guest]

I am new to all of this and my son has strange lab work - we have done basic

genetic testing and it showed nothing - what other genetic testing should we

look into?

> >

> > Does anyone have a recommendation in NY for Genetic Testing for an almost 3

year old? Looking for a doctor that has a kind bedside manner (with both the

child and parents) and is also very thorough. And ideally a bit of a " outside

the box " thinker? We have had some basic genetic testing done in the past but

it is time to get a more comprehensive evaluation done.

> >

> > Manhattan, Brooklyn or Long Island is ok.

> >

> > Many thanks,

> > The Family

> > slopefam11215@

> >

>

[Guest guest]

What do you mean by strange lab work? If you mean blood work--you might want to

follow up with a Ped Endocronologist. My daughters Endo and the NYC Genetics

doctor work very close together. Are you in NY?

>

> I am new to all of this and my son has strange lab work - we have done basic

genetic testing and it showed nothing - what other genetic testing should we

look into?

>

[Guest guest]

I am in Oklahoma. We are working with a DAN doctor in Dallas and a pediatric GI

doctor in Boston. My son stopped eating about a year ago. He has had a parasite,

major yeast overgrowth, he has high mercury, low b12, high copper, low zinc,

etc. the only thing he has developmentally is a speech delay and the not eating.

he also has reflux and suffers from almost chronic constipation. we are just

trying to figure out what all is going on. they are thinking a hyper autoimmune

response causing severe inflammation internally but not sure yet.

> >

> > I am new to all of this and my son has strange lab work - we have done basic

genetic testing and it showed nothing - what other genetic testing should we

look into?

> >

>