Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 , I certainly have no debate with NV and it's healing power - I know when I take it myself (and I have been for a month now), I feel great - energetic, no cravings, clear-headed, just overall " well " and I do absolutely believe it has a unique blend of nutrients that have not been seen in a supplement that we know of to date. I just wonder if it was the correct thing to be using for my own son and for his ASD, compared to those who may choose to use it primarily for apraxia and other such brain/motor conditions. Additionally, we may certainly come back to NV at some later point when there have been more case studies on ASD children rather than a mixed population - my son is also apraxic and I want to reiterate that we did indeed see improvements in speech, but just didn't have enough information from others' reports to explain what might have been happening in terms of the other behaviours we saw - they might have been temporary, they might have symbolized some brain chemistry changes, they might have been cause for real concern... I just didn't have enough information at this time to be comfortable with it and will wait for more long term reports on NV rather than speculate what is going on. I do believe that you are on the right path with NV and the growing involvement of doctors and professionals in the research around it is inspiring. Finally, I appreciate your info about the SCD, but note that you cite someone who had UC - ulcerative colitis - who was disillusioned with the diet, not ASD. Additionally, the SCD for autism need not necessarily be forever - it is intended to be for a duration of healing and then gradually to reintroduce regular foods as they are tolerated - possibly NV will work in the same way so that at some point one wouldn't see regressions with discontinued use, but we don't know that yet. At any rate, I don't expect a " cure " from anything - not a supplement or a diet, such as SCD - what I do hope to do is to recover my son from his predominant symptoms associated with ASD so that he can have a better life. Tatyana son 4.5 with ASD/apraxia [ ] SCD vs Nutriiveda Tatyana it's great for each of us to share because that is how we learn. Are you putting your child on SCD due to food allergies? I know of no side effects of food and there are none documented for Nutriiveda -but do know there are allergies. Each ingredient in Nutriiveda is certified food by the FDA. The only side effects reported here for Nutriiveda are changes in behavior similar to what we've heard about fish oils over the years which are temporary and can be explained in the positive as wel l. With Nutriiveda we do know the all natural protein and all the essential amino acids found in the protein naturally raise the glutothione in the body which leads to detox and hydration is most important during this stage. Loweing dosage and increasing water is what is recommended. Outside of allergy to food however there are no side effects of Nutriiveda as again it is a food. All side effects of the detox stage are listed here http://pursuitofrese arch.org/faq.html I'm really not sure why you believe and state that Nuriiveda is not helping to heal the brain as from Mel's doctor's opinion it is the " only explanation " as to why her brain is healing based on extensive neuro testing after only being on it for months. After seeing my own son Tanner and even prior to hearing validation from Mel's doctor there is no doubt in my mind that Nutriiveda is helping Tanner's body to heal itself. It's not that it's a medicine or that there are any medications in it -agai n it's just food -but food he has clearly not had before and there is more and more research linking nutrition to neuro repair such as this about the importance of amino acids in neuro repair http://www.sflorg.com/comm_center/medical/p974_99.html Of course the route you are going is also dealing with food and dietary - but while Nutriiveda is highly generous in proving essential nutrients and it's easy to follow even if on e had to for life hypothetically -SCD is highly restrictive in what nutrients are allowed to be provided to the body -and difficult to follow in my opinion even for a week no less life!!! Of course you want to go with your gut, what you believe best for your child and lifestyle together with what your doctor recommends. I grew up on GFCF and as a child thought that was bad enough but know that those who choose to go the SCD diet are choosing a hard core diet which is extremely tough for even the most diligent to follow. As far as I know there is no proof that this diet will cure. I did find this one page which is quite long and it's from people who have been on the SCD diet for years... (hu ge page -I'm only putting the first post) Debate and concern about the Specific Carbohydrate Diet [3] On and off, off and on... Tue, 6 May 1997 19:39:01 GMT I am slowly coming to the conclusion that the SCD diet, which has given me my life back in many ways, controls the symptoms of UC, but won't cure me. Therefore, I am THINKING of staying on the diet, med-free for 11 months a year, then taking prednisone and asuphazaline for 1 month (or maybe only 2 weeks a year) and treating myself to daily doses of things like Pizza, Ice cream, Beer, Chocolate, bread, rice, pasta, cake, etc..... Does anyone else feel that they are never going to get fully better, and that a brief time off the diet, with the help of medication, for a short enough period so as not to screw up one's metabolism won't set them back? I base this on the fact that I've had mild relapses, and with the diet, they have sort of gone away (but never completely, except for the occasional day). I believe that I am being extremely strict in avoiding complex carbohydrates... Cirillo http://www.scdiet.org/7archives/scd024_3.html We know for life we need nutrients -it's how we choose to get them -and how our children once they grow up choose to get them. I'm even more sure now based on the last email I just sent out here that there will be research to validate Nutriiveda. Best of luck on your journey. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2010 Report Share Posted April 4, 2010 Tatyana - your post reminded me of some things that happened with my son when we started vitamin E supplementation after about 6 months of EFA supplementation. We noticed his pain response started to 'normalize'...this is a child that clocked his head on an iron baseboard heating element and just blinked a few times before getting up and going back to playing. You should have seen the knot above his eyebrow...after a few weeks of vitamin e he started saying one syllable words and crying when he got hurt... But once his pain response normalized, we realized how much constant pain he was in and life became quite unbearable for a time. Gut, head, ear - it was very rough and behaviors started appearing in this normally very, very happy go lucky (although non-verbal) child. That was 3.5 years ago. Just recently we added a new supplement that is supposed to help the cells use the fatty acids better - again we had a spike in behaviors to the point that we had to remove the supplement, address the areas of pain and then we'll try it again. I'm not saying that is what happened with your child, but something struck a chord, and I'd thought I'd take a chance and mention our experience. Much love and patience, Quote Link to comment Share on other sites More sharing options...
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