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Re: Re: Vit D & apraxia?

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I am certainly not an expert in vitamin levels….I would always defer to the

doctor…BUT would recommend that whomever is supplementing with extra

vitamins should have their nutrient levels checked periodically (with a

blood test) to make sure the levels are not too high or low---since there

may be problems with either. With an adult, the amount needed to reach

hypervitaminosis for any vitamin is usually higher than for a

child---usually levels depend on weight, as well as other factors.

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From:

[mailto: ] On Behalf Of rimamason

Sent: Tuesday, March 01, 2011 10:20 AM

Subject: [ ] Re: Vit D & apraxia?

Thanks Bernadette. I was wondering b/c i was reading the posts about Vit E &

K overages and it dawned on me that my dad takes extra K to balance the HUGE

amounts of D he takes due to an endocrine issue. So if too much K (and/or E)

can cause regressions and there's a relationship b/t K & D, then maybe the

extra K diminishes the effects of D in the body, thereby causing the

regression.

This is somewhat indirect, but i was focussing on the vit D b/c of my family

history.

Thanks again,

Rima

>

> My son (now 5 1/2) was found Vitamin D deficient (part of a battery of

tests)

> and we have been supplementing him with Vitamin D drops as a result. He

> continues to make progress with a combination of supplements and therapy.Â

I

> would definitely request testing of your child's Vtiamin D, iron, zincÂ

and

> carnitine levels. My son had deficiencies in all 4 at one time or

another.Â

> Best of luck.

>

>

>

>

> ________________________________

> From: rimamason <rimamason@...>

>

<mailto: %40>

> Sent: Sun, February 27, 2011 11:04:59 AM

> Subject: [ ] Vit D & apraxia?

>

> Â

> Hi Everyone,

>

> I think i've seen posts on here about this before, but i was wondering if

> there's any data about Vit D and apraxia? or if anyone's had an experience

> regarding Vit D and apraxia? any info would be appreciated.

>

> thanks,

> Rima

>

>

>

>

>

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My Asa (6) is also Vit D deficient. He had orthopedic issues on top of the neuro

ones as a result

Becky

Sent from my Verizon Wireless BlackBerry

[ ] Re: Vit D & apraxia?

My son was also very D deficient. I start supplimenting, we then went

to Cabo for 2 weeks. I swear my small underdeveloped boy grew an inch!

We live in cold dark Canada, my whole family is now on D!

Sent from my iPhone

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We are waiting on blood work to check my son's mineral and vitamin levels

and other things but he does take the Coromega with added Vitamin D. We give

that packet to him several times a week and the regular the other days.

On Tue, Mar 1, 2011 at 10:43 AM, <tbniesh@...> wrote:

>

>

> My Asa (6) is also Vit D deficient. He had orthopedic issues on top of the

> neuro ones as a result

>

> Becky

> Sent from my Verizon Wireless BlackBerry

>

>

> [ ] Re: Vit D & apraxia?

>

> My son was also very D deficient. I start supplimenting, we then went

> to Cabo for 2 weeks. I swear my small underdeveloped boy grew an inch!

> We live in cold dark Canada, my whole family is now on D!

>

> Sent from my iPhone

>

>

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That's really interesting to know, Rima. For a long time, I've been

suspecting and noticing that my daughter reacts strongly to any foods with

high amounts of Vit E. Like when she eats an avocado, it's like her system

just rejects it...things like olive oil, too. All nuts pose a problem but I

also think that she can't digest nuts because of oxalate issues so we're

doing the LOD and holy cow, her system's been dumping oxalate crystals like

crazy. There are about 20 foods that are high in Vit E that cause

regressions with her. And she has apraxia and autism.

I'm just curious, how much Vit D do you guys supplement for your kids in

treating apraxia? I was doing 1000 UI/day but I think that may not be

enough. Rima, is there a relationship with Vit E and D that you know of?

This is the first I've come across the Vit K and D relationship.

Fascinating! I'm going to go search the archives now and see if I can find

those posts that relate to Vit E and K overages.

On Tue, Mar 1, 2011 at 10:20 AM, rimamason <rimamason@...> wrote:

>

>

> Thanks Bernadette. I was wondering b/c i was reading the posts about Vit E

> & K overages and it dawned on me that my dad takes extra K to balance the

> HUGE amounts of D he takes due to an endocrine issue. So if too much K

> (and/or E) can cause regressions and there's a relationship b/t K & D, then

> maybe the extra K diminishes the effects of D in the body, thereby causing

> the regression.

>

> This is somewhat indirect, but i was focussing on the vit D b/c of my

> family history.

>

> Thanks again,

> Rima

>

>

>

> >

> > My son (now 5 1/2) was found Vitamin D deficient (part of a battery of

> tests)

> > and we have been supplementing him with Vitamin D drops as a result. He

>

> > continues to make progress with a combination of supplements and

> therapy. I

> > would definitely request testing of your child's Vtiamin D, iron,

> zinc and

> > carnitine levels. My son had deficiencies in all 4 at one time or

> another.Â

> > Best of luck.

> >

> >

> >

> >

> > ________________________________

> > From: rimamason <rimamason@...>

>

> >

> > Sent: Sun, February 27, 2011 11:04:59 AM

> > Subject: [ ] Vit D & apraxia?

> >

> > Â

> > Hi Everyone,

> >

> > I think i've seen posts on here about this before, but i was wondering if

>

> > there's any data about Vit D and apraxia? or if anyone's had an

> experience

> > regarding Vit D and apraxia? any info would be appreciated.

> >

> > thanks,

> > Rima

> >

> >

> >

> >

> >

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*>> With an adult, the amount needed to reach hypervitaminosis for any

vitamin is usually higher than for a child---usually levels depend on

weight, as well as other factors. *

This applies to typical children and not for children with various metabolic

issues. The levels that some of our autistic children need is higher than

that of a typical adult because of dysfunctions in various metabolic

processes. It depends on the level of deficiency and rate of depletion

sometimes...not height/weight. And yes, you have to be aware of toxicity,

as well. Sometimes toxicity levels for our kids are at the levels that can

be acquired by foods. Some autistic children are actually calcium toxic

enough that they cannot eat foods with too much calcium -- and it also

applies to various other elements, as well. This is why a good number of

kids on the spectrum don't do well on multivitamins for typical kids. Even

the small amounts of Vit E in a multi from the grocery store would cause

problems for my little girl.

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Wow. 800 to 1000 mg is a lot (although you did say your dd has another

issue which requires more Vit D). I was giving 1000 ui (or 1 mg) and we

live in Canada, as well, and we don't get as much exposure to sun as we

should -- particularly in the winter. I was thinking that we should kick up

the Vit D some. I was going to try the Kirkmans or Labs one. I

really like the Labs MB12 drops we do at our house.

On Wed, Mar 2, 2011 at 7:08 AM, mosense <mosense@...> wrote:

>

>

> My 9yo apraxic daughter was seeing a Pediatric Endocrinologist a couple

> years ago. He tested her levels of all the good stuff and said she's Vit D

> deficient. She also has a bone deformtity issue. he suggested a dose of

> 800-1000mg for HER! We found a rasberry chewable 1000 mg at Whole Foods. He

> said its usually difficult to find a chewable one that the kids will take,

> when I told him we found one she loves, he couldnt wait to tell his other

> patient parents where to find the good ones. He did also say that a lof of

> people are Vit D deficient, that we can see here! My husband found out that

> he's also Vit D defient so we all try to take it. The Ped Endo has said that

> they're not really sure what a safe level of Vit D should be for people in

> general. In winter, most people are found to have low levels when those of

> us here in NY are not out in the sun, not when it snows 2x a week!!

> Maureen

>

>

>

> > >

> > > My Asa (6) is also Vit D deficient. He had orthopedic issues on top of

> the neuro ones as a result

> > >

> > > Becky

> > > Sent from my Verizon Wireless BlackBerry

> > >

> > > [ ] Re: Vit D & apraxia?

> > >

> > > My son was also very D deficient. I start supplimenting, we then went

> > > to Cabo for 2 weeks. I swear my small underdeveloped boy grew an inch!

> > > We live in cold dark Canada, my whole family is now on D!

> > >

> > > Sent from my iPhone

> > >

> > >

> > >

> > >

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