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Re: Vit D & apraxia?

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My son (now 5 1/2) was found Vitamin D deficient (part of a battery of tests)

and we have been supplementing him with Vitamin D drops as a result.  He

continues to make progress with a combination of supplements and therapy.  I

would definitely request testing of your child's Vtiamin D, iron, zinc and

carnitine levels.  My son had deficiencies in all 4 at one time or another. 

Best of luck.

________________________________

From: rimamason <rimamason@...>

Sent: Sun, February 27, 2011 11:04:59 AM

Subject: [ ] Vit D & apraxia?

 

Hi Everyone,

I think i've seen posts on here about this before, but i was wondering if

there's any data about Vit D and apraxia? or if anyone's had an experience

regarding Vit D and apraxia? any info would be appreciated.

thanks,

Rima

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My son was also very D deficient. I start supplimenting, we then went

to Cabo for 2 weeks. I swear my small underdeveloped boy grew an inch!

We live in cold dark Canada, my whole family is now on D!

Sent from my iPhone

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Thanks Bernadette. I was wondering b/c i was reading the posts about Vit E & K

overages and it dawned on me that my dad takes extra K to balance the HUGE

amounts of D he takes due to an endocrine issue. So if too much K (and/or E)

can cause regressions and there's a relationship b/t K & D, then maybe the extra

K diminishes the effects of D in the body, thereby causing the regression.

This is somewhat indirect, but i was focussing on the vit D b/c of my family

history.

Thanks again,

Rima

>

> My son (now 5 1/2) was found Vitamin D deficient (part of a battery of tests)

> and we have been supplementing him with Vitamin D drops as a result.  He

> continues to make progress with a combination of supplements and therapy.  I

> would definitely request testing of your child's Vtiamin D, iron, zinc and

> carnitine levels.  My son had deficiencies in all 4 at one time or

another. 

> Best of luck.

>

>

>

>

> ________________________________

> From: rimamason <rimamason@...>

>

> Sent: Sun, February 27, 2011 11:04:59 AM

> Subject: [ ] Vit D & apraxia?

>

>  

> Hi Everyone,

>

> I think i've seen posts on here about this before, but i was wondering if

> there's any data about Vit D and apraxia? or if anyone's had an experience

> regarding Vit D and apraxia? any info would be appreciated.

>

> thanks,

> Rima

>

>

>

>

>

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I dont know if it has been said..but the MORE vit E a person takes..the MORE Vit

D they will need to balance it..i read it in some chicken study thenother day :)

Vit E inhibits vitamin K, so more K may be given when more vit E is taken.

> > >

> > > My son (now 5 1/2) was found Vitamin D deficient (part of a battery of

> > tests)

> > > and we have been supplementing him with Vitamin D drops as a result. He

> >

> > > continues to make progress with a combination of supplements and

> > therapy. I

> > > would definitely request testing of your child's Vtiamin D, iron,

> > zinc and

> > > carnitine levels. My son had deficiencies in all 4 at one time or

> > another.Â

> > > Best of luck.

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: rimamason <rimamason@>

> >

> > >

> > > Sent: Sun, February 27, 2011 11:04:59 AM

> > > Subject: [ ] Vit D & apraxia?

> > >

> > > Â

> > > Hi Everyone,

> > >

> > > I think i've seen posts on here about this before, but i was wondering if

> >

> > > there's any data about Vit D and apraxia? or if anyone's had an

> > experience

> > > regarding Vit D and apraxia? any info would be appreciated.

> > >

> > > thanks,

> > > Rima

> > >

> > >

> > >

> > >

> > >

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Yes, my dad discovered his D deficiency in his early 30s when his hip broke.

for him, it's a hyper-parathyroid that burns up the D before it can be used so

he takes A LOT of D to compensate and then extra K to balance the D.

>

> My Asa (6) is also Vit D deficient. He had orthopedic issues on top of the

neuro ones as a result

>

> Becky

> Sent from my Verizon Wireless BlackBerry

>

> [ ] Re: Vit D & apraxia?

>

> My son was also very D deficient. I start supplimenting, we then went

> to Cabo for 2 weeks. I swear my small underdeveloped boy grew an inch!

> We live in cold dark Canada, my whole family is now on D!

>

> Sent from my iPhone

>

>

>

>

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Hi Alberta,

I really don't know any more than what i've posted in my original message. I

have no idea about a relationship b/t E & D. I'm not even sure about how the D

& K interact, I just know what my dad told me about what he takes.

presently i don't give my son extra D. I would want to do more research,

consult my doctor, and get his levels tested before messing around with

supplements. I'm new to this group and the whole apraxia thing (my son is 17

months old and to date has not been diagnosed w/apraxia, although he shows MANY

of the signs) so i'm proceeding cautiously...

please keep me (us) posted with whatever you find out!

good luck!

-Rima

> > >

> > > My son (now 5 1/2) was found Vitamin D deficient (part of a battery of

> > tests)

> > > and we have been supplementing him with Vitamin D drops as a result. He

> >

> > > continues to make progress with a combination of supplements and

> > therapy. I

> > > would definitely request testing of your child's Vtiamin D, iron,

> > zinc and

> > > carnitine levels. My son had deficiencies in all 4 at one time or

> > another.Â

> > > Best of luck.

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: rimamason <rimamason@>

> >

> > >

> > > Sent: Sun, February 27, 2011 11:04:59 AM

> > > Subject: [ ] Vit D & apraxia?

> > >

> > > Â

> > > Hi Everyone,

> > >

> > > I think i've seen posts on here about this before, but i was wondering if

> >

> > > there's any data about Vit D and apraxia? or if anyone's had an

> > experience

> > > regarding Vit D and apraxia? any info would be appreciated.

> > >

> > > thanks,

> > > Rima

> > >

> > >

> > >

> > >

> > >

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My 9yo apraxic daughter was seeing a Pediatric Endocrinologist a couple years

ago. He tested her levels of all the good stuff and said she's Vit D deficient.

She also has a bone deformtity issue. he suggested a dose of 800-1000mg for HER!

We found a rasberry chewable 1000 mg at Whole Foods. He said its usually

difficult to find a chewable one that the kids will take, when I told him we

found one she loves, he couldnt wait to tell his other patient parents where to

find the good ones. He did also say that a lof of people are Vit D deficient,

that we can see here! My husband found out that he's also Vit D defient so we

all try to take it. The Ped Endo has said that they're not really sure what a

safe level of Vit D should be for people in general. In winter, most people are

found to have low levels when those of us here in NY are not out in the sun, not

when it snows 2x a week!!

Maureen

> >

> > My Asa (6) is also Vit D deficient. He had orthopedic issues on top of the

neuro ones as a result

> >

> > Becky

> > Sent from my Verizon Wireless BlackBerry

> >

> > [ ] Re: Vit D & apraxia?

> >

> > My son was also very D deficient. I start supplimenting, we then went

> > to Cabo for 2 weeks. I swear my small underdeveloped boy grew an inch!

> > We live in cold dark Canada, my whole family is now on D!

> >

> > Sent from my iPhone

> >

> >

> >

> >

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I'm not a pharmacist or a doctor so I dont know how dosage works. The caplets

that my husband takes are 1000ui (is that the same as 1mg??) but the dosage the

ped endo told me to get for my daughter is 800-1000 mg. He was not treating her

bone issues when he gave me that dosage for her. As long as 1000ui is the dosage

you were directed to give your child, than it must be ok??

>

> Wow. 800 to 1000 mg is a lot (although you did say your dd has another

> issue which requires more Vit D). I was giving 1000 ui (or 1 mg) and we

> live in Canada, as well, and we don't get as much exposure to sun as we

> should -- particularly in the winter. I was thinking that we should kick up

> the Vit D some. I was going to try the Kirkmans or Labs one. I

> really like the Labs MB12 drops we do at our house.

>

>

>

>

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