Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Hi - I live in Massachusetts and I am in the processing of applying for MassHealth. I haven't received the final decision yet but will post back once I do which should be within the next 30 days. We were rejected based on income but are being reviewed now based on my son's disability. I starting down this path to help pay for a AAC device. We shall see. From: [mailto: ] On Behalf Of mommywork11 Sent: Tuesday, March 01, 2011 11:01 AM Subject: [ ] Apraxia and SSI I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 We applied and met the income requirements, but were denied. We appealed and were again denied....my son seems to fit the criteria, but I'm done fighting it....I don't feel like going to court over it, which would be the next step. Best of luck, I have heard that some children with apraxia DO get it! -Brittany > > I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 We were approved for SSI in January. My son has Apraxia and we had no problem. Did you maybe not have the support of doctors therapist that were in agreement that he had a disability? I also made sure that on the questionnaire that I filled out I wrote that without appropriate therapy his speech will be affected long term and that I did not have the money to pay for appropriate therapy for him. I also noted his problems eating and possible sensory problems. The only thing that held up his being approved was the income. When I finally saw the papers they had an incorrect amount in our savings account. I took bank statements to my local office and he was approved in 2 weeks now we are waiting on back pay from the time that we applied. Did you apply online or at your local office, I have heard that when you do it online it gets " lost " a lot. From: Brit <spinachbreath@...> Subject: [ ] Re: Apraxia and SSI Date: Tuesday, March 1, 2011, 5:30 PM We applied and met the income requirements, but were denied. We appealed and were again denied....my son seems to fit the criteria, but I'm done fighting it....I don't feel like going to court over it, which would be the next step. Best of luck, I have heard that some children with apraxia DO get it! -Brittany > > I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 > > > > I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. > > >My daughter is apraxic also. Are there other diagnoses that your child has recieved? If the child has other disorders(my daughter is also autistic,ADHD,and behavioral issues),that would help. If you need lawyer help, there are pro-bono ssi lawyers that will help.(they get paid if you do) Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Hmmmm..there are some good stories! Maybe I should re-visit the idea! > > > > > > I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 We were very thorough on his questionnaires and all the drs/therapists were in agreement that he had apraxia. He did their SS evals and those drs. didn't give him a diagnosis, but his scores were super low, supporting our statements. I applied in office and appealed in office as well. I also detailed his sensory and ADHD issues (which ADHD in itself is said to be a possible way to receive SSI). I know that a lot of it is on who actually reads your info, which is why I appealed it with high hopes and explained his issues verrrrry thoroughly so that if the person reading didn't know anything about speech/sensory/apraxia issues, they could still get the whole picture. I'm not sure why we didn't get it (aside from their silly statement that even though it appears that he does have some delays, they seem age appropriate...huh?! I've never heard of an average 3 year old not being able to communicate), but I have heard that it's not THAT easy to get, so I'm really happy to hear that some of you HAVE gotten it! I only wish that WE could be one of those stories...we can't afford additional therapy from what the school is providing right now and the NV/fish oil takes a lot out of our money as well (we are a single income family of 5). My husband has a job interview for a higher paying job next week (not that his now is bad, we just have so many expenses!), so please keep us in your prayers!! Thanks, Brittany > > > > > > I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 I'm sorry that you had so much trouble. Are you able to apply again? maybe someone else will be assigned to your case? I feel your pain, we are also a family of 5 on 1 income. I was terribly upset when we had to stop seeing his private therapist because we couldn't afford it. She was the one who was helping him. We managed to see her for just over 3 months using our tax refund from last year to pay for it and stopped when I didn't have money left to buy food. There has been progress since but not at nearly the rate he was progressing with her. Another thing that i did was kind of talk up my doctors and therapists at every visit about hoping he would get SSD. Or therapist through school district seemed to be against it and said " do you really think it's necessary "  I told her that the reason why we are in early intervention is because the earlier my son gets help the better he will do through out his life. If he gets SSD he can receive more therapy including during the summer and that is detrimental to his improvement. I could see her attitude change after that. My pediatrician also told me that she would do/give me anything she could to help me help my son. I made sure that everyone was on my side before SS sent out their forms to my doctors and therapists. Maybe you did that as well, I am just trying to think of everything that I did to my son get approved. If you do get him approved you could also try to get back pay to the 1st time you applied. Did you question them about how he could be age appropriate and have delays? -I just remembered that I wrote a lot about how it affects our home life because he screams for hours everyday from frustration because we don't know what he wants or needs. From: Brit <spinachbreath@...> Subject: [ ] Re: Apraxia and SSI Date: Wednesday, March 2, 2011, 8:49 AM We were very thorough on his questionnaires and all the drs/therapists were in agreement that he had apraxia. He did their SS evals and those drs. didn't give him a diagnosis, but his scores were super low, supporting our statements. I applied in office and appealed in office as well. I also detailed his sensory and ADHD issues (which ADHD in itself is said to be a possible way to receive SSI). I know that a lot of it is on who actually reads your info, which is why I appealed it with high hopes and explained his issues verrrrry thoroughly so that if the person reading didn't know anything about speech/sensory/apraxia issues, they could still get the whole picture. I'm not sure why we didn't get it (aside from their silly statement that even though it appears that he does have some delays, they seem age appropriate...huh?! I've never heard of an average 3 year old not being able to communicate), but I have heard that it's not THAT easy to get, so I'm really happy to hear that some of you HAVE gotten it! I only wish that WE could be one of those stories...we can't afford additional therapy from what the school is providing right now and the NV/fish oil takes a lot out of our money as well (we are a single income family of 5). My husband has a job interview for a higher paying job next week (not that his now is bad, we just have so many expenses!), so please keep us in your prayers!! Thanks, Brittany > > > > > > I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 Janel, Thanks for the advice :-) Not much time to respond right now, but I wanted you to know I saw your message. Unfortunately, we DID do all of that...I spent countless hours filling out paperwork and going back over it and reading other people's stories online about what they did to get SSI. We did appeal once already and the next appeal would be going to court, which I am not up for. I had talked to all of his therapists and doctors and everyone was on board and several even wrote me extra letters to send in with my appeal....our ST even wrote a very detailed letter that outlined their first decision and explained why everything they said meant that he really did have a disability....still obviously didn't help....grrrrr! I spent so much time on it and he IS affected every day! Anyway, end rant. I am glad to see that others have been able to get it. -Brittany > > > > > > > > > > > > > > I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 Sounds like you did everything right. It's not right that some get approved and others don't. Try again and maybe other people will review your case...hopefully! From: Brit <spinachbreath@...> Subject: [ ] Re: Apraxia and SSI Date: Thursday, March 3, 2011, 7:50 AM  Janel, Thanks for the advice :-) Not much time to respond right now, but I wanted you to know I saw your message. Unfortunately, we DID do all of that...I spent countless hours filling out paperwork and going back over it and reading other people's stories online about what they did to get SSI. We did appeal once already and the next appeal would be going to court, which I am not up for. I had talked to all of his therapists and doctors and everyone was on board and several even wrote me extra letters to send in with my appeal....our ST even wrote a very detailed letter that outlined their first decision and explained why everything they said meant that he really did have a disability....still obviously didn't help....grrrrr! I spent so much time on it and he IS affected every day! Anyway, end rant. I am glad to see that others have been able to get it. -Brittany > > > > > > > > > > > > > > I was wondering if anyone has applied for SSI Disability for Speech Apraxia to help pay for the therapy etc. If you were successful or unsuccessful please share your experience with this. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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