Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 > > Hi, > I'm new to the group too. My name is Sara and I have 6 and 4 year old > sons and a 2 year old daughter. My 6 year old Sam hasn't formally > been diagnosed with AS, but both his teacher and social worker at his > school have talked to me about getting him evaluated. I have known > for some time that something isn't right. He just doesn't seem to fit > in socially with his peers and seems to get really depressed at the > fact that he doesn't make friends easily. I guess, lucky for him he is > great at any sort of electronic game and that has helped brings kids > to our house to play. He is such a neat kid and it breaks my heart, > like it does all of you for your kids, that he feels like an oddball. > I am so thankful though that he has a really great teacher this year, > one who previous to teaching 1st grade, taught special ed for 14 years. > > I'm sure that I am going to be on here alot. Even though I had a > feeling about it, it's still really hard. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 Sara, Glad to meet you It's really hard, when your gut tells you something but you don't know if it's right. We've struggled since Trev was small to figure out what was going on. When he was a baby/toddler, they told me he had " autistic tendencies " but not enough to qualify a diagnosis. Instead, he was put into Early Intervention (which helped immensely). That carried us through preschool (a really trying time---I think I spent more time there than at home!) but when he started kindergarten, I asked for a MultiFactored Evaluation (an MFE) and scheduled an appt. with an autism unit near us for an evaluation. Watching him with other children, I couldn't ignore my gut feelings. At that point, I was told that he could have PDD-NOS but they were again hesitant to put a label on him (good in some ways, not so good when it comes to explaining to teachers and a school that he's not a bad kid, just quirky). I've always known, down deep, that Trevor marched to his own drummer, that he was wired differently. It was just a matter of finding out what exactly was going on. That's not an easy task, sometimes! And it's continued to break my heart because I want my son to be happy. If you ever need to talk, feel free to email me Nikki > > Hi, > I'm new to the group too. My name is Sara and I have 6 and 4 year old > sons and a 2 year old daughter. My 6 year old Sam hasn't formally > been diagnosed with AS, but both his teacher and social worker at his > school have talked to me about getting him evaluated. I have known > for some time that something isn't right. He just doesn't seem to fit > in socially with his peers and seems to get really depressed at the > fact that he doesn't make friends easily. I guess, lucky for him he is > great at any sort of electronic game and that has helped brings kids > to our house to play. He is such a neat kid and it breaks my heart, > like it does all of you for your kids, that he feels like an oddball. > I am so thankful though that he has a really great teacher this year, > one who previous to teaching 1st grade, taught special ed for 14 years. > > I'm sure that I am going to be on here alot. Even though I had a > feeling about it, it's still really hard. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 Thanks for the warm welcome, Nikki > > > > Hello everyone! I'm new to the group, just wanted to say hi and > give a > > quick intro. > > I'm Nikki, 31, married and living in a small college town in Ohio. > I > > have 3 boys--- (12), Trevor (10) and (9). Trev was > finally > > diagnosed this July with Asperger's. While it wasn't a huge > surprise > > (he's always been my quirky boy), it was an adjustment for us, in > > terms of finally being able to get the school to recognize > > his " quirks " and work with them, etc. Plus, he's heading into > > his 'tween years and I'm a little nervous as to how to handle some > of > > the situations that arise with this stage and Asperger's. > > At any rate, I'm looking forward to getting to know everyone and > > learning more about all of you > > Nikki > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Hello, My name is Margaret Romanowitch I've just signed onto this group, after reading Defelice's Enzyme book. I have an 18 yo son who is disabled by chronic poor health (leaky gut, MCS, " environmental illness " , asthma, chronic bronchitis, allergies, sensory issues) and neurological issues. (I'm sure he is " on the spectrum " somewhere, but at this point can't get a dx because we have no " official " medical history due to my son's inability to tolerate the treatment protocols of physicians. (ie complete intolerance of any px or over-the-counter medications since his anaphyllactic reactions at 4yo to high and continuous doses of antibiotics, asthma medications and experimental drugs to control what looked like the symptoms of CF. (he tested negative, postive-variant, negative and no one knew what the heck to do with him) I have a background as an RN, and have also spent all his life researching and working on the issues that he have impacted his life. We have tried many different non-drug treatments in the last 14 years, with varying degrees of success, but none of them have made my son well enough to have any resemblence of a " normal " life. (ie even being able to attend school part-time for more than 50% of the time seems an impossible dream at this time) Years ago, I gave my son digestive enzymes from Enrich for three months (all we could afford; we didn't then have credit to buy necessities) after a particularly difficult year when he was incapacitated with migraines on a regular basis. The digestive enzymes " broke the cycle " . (later on, Enrich stopped that particular formulation and the enzymes from the health food store didn't make any difference) Before that, we (my 2 sons, myself and my husband-we all have " challenges " ) were on a special restricted diet for 7 years, to try to control some of the most severe health problems. For my oldest son, the list of OK foods was very small. And every time the neighbours sprayed pesticides, he'd " lose " more foods. All my searching kept taking me back to the research into issues impacting the autistic spectrum population. There seems to be a lot of commonalities between autistic spectrum issues with those of environmental issues and AD/HD. In particular, gluten and dairy intolerances, and whatever is causing that " brain fog " (my son was prone to hallucinations when sick; as he was sick a LOT he had a lot of hallucinations. As I child, I had the same problem so the theory of the opiate effect of proteins passing the brain barrier caught my eye. 's explanation of Methylation/Sulphation also interested me. Especially as I had just discovered that vitamin B6 and B12 tested really good (we do muscle testing, which has proved to save us a lot of grief) for my 2 sons and myself (I thought I couldn't tolerate any B vitamins; certainly not in complex and not B3) (as an aside, my younger son used the epson salts baths for an allergic reaction lately and was impressed with how fast the reaction subsided.) I'm going to try Houston's enzymes as a trial (to see if they are tolerable) but really would like to be able to buy the enzyme compoments separately, as we (my older son and I in particular) seem to react to supplements partly because of their fillers. In 's book, she mentioned that there are sources for the " pure " enzymes. If anyone knows where I could buy them, I'd be grateful if they would let me know. I'm hoping that this discussion board will help me to learn from other people's experience as I try the enzyme therapy. Because my son (and some of the rest of my immediate and extended family) have issues with some forms of gluten (particularly wheat gluten), I'm not sure if there is a celiac problem or not. I thought perhaps it might be good to use the ZimePrime along with the Peptizide, and somehow also the No Phenol. (as phenols are a problem) Any suggestions as to how I fit all this in? And should Peptize be given as capsules so they dissolve in the duodenum, are should they be given as powder. (ie for " grazing " ) Or both? My husband " looks like " an overmethylator; he doesn't have the chemical sensitivities, he is ADHD with the hyper-impulsivity. He spent years with ulcerative colititis (calmed down to " irritable bowel " ). I hope to use enzymes for him, not just for his food issues, but because nothing is helping his memory, poor judgement, impulsivity, etc and it is really affecting our life. BTW, one of the most promising neurodevelopmental work that is being done for people on the spectrum is by Judith Bluestone and the trained people in her organization. (the HANDLE institute - www.handle.org) She herself is autistic, but you wouldn't know it " from the outside " Her holistic approach, especially in helping to stengthen and calm the neurological system, is more than impressive. Her approach is Gentle! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I am responding to the information on HANDLE. I have been a member of the Enzymes and Autism group for over a year and find the information here to be invaluable. Its a pleasure to participate with an amazing group of parents. I have been a HANDLE screener for over two years, working with people with various neurodevelopmental issues. I discovered HANDLE when my son was 3 yo (he is now 8). The HANDLE approach proved to be such an important aspect to his healing that I went on to be trained in the modality. Judith Bluestone's book " The Fabric of Autism " is a unique and insightful look into the complex and multi-layered issues of autism. Her personal story is inspiring and offers hope to all of us dealing with these issues. I believe that the information shared here is vital to the recovery of our loved ones and I also believe Judith's unique approach is equally important. In the next couple of weeks, HANDLE and Judith will be begin a series of radio shows at AutismOne.org. This series of shows promises to be enlightening and I encourage you to tune in. If anyone has questions about HANDLE, you may contact me off-line or visit their website at www.handle.org. best, Suzanne > > Hello, > My name is Margaret Romanowitch > I've just signed onto this group, after reading > Defelice's Enzyme book. > > BTW, one of the most promising neurodevelopmental work > that is being done for people on the spectrum is by > Judith Bluestone and the trained people in her > organization. (the HANDLE institute - www.handle.org) > She herself is autistic, but you wouldn't know it > " from the outside " Her holistic approach, especially > in helping to stengthen and calm the neurological > system, is more than impressive. Her approach is > Gentle! > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 If he is rigid with rules, why not make it a rule that at specific times throughout his day he MUST go use the bathroom. Usually with our children, you cannot leave it up to them to use their judgement, it needs to be a rule. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 Why not have the teacher privately tell him there has been a rule change? ( ) new to the group My 9 year old son with AS/HFA is so rigid about rules at school ( really anywhere) that he will wet his pants a school because " we are not allowed to go to the bathroom during .....) I have begged him to just get up and go to the bathroom when he needs to go and I would take care of the teacher later. I've been to his teachers and they agree that he can go at anytime. I'm at my wits end. He has no idea that he should even be embarassed. I guess that is God's way of protecting his feelings. Any suggestions? We do a bio medical approach with supplements and diet. And really he does well with friends but I am afraid that if this continues the older he gets that the kids will tease him if they don't already. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 I have had similar issues. I want you to know my son is now 10 and is still in a self contained classroom. The teacher is very supportive and we had a group meeting letting them all know in front of my son.. Chase that he was allowed to go any time he needed to. Also this seems to be an issue because he doesn't recognize the clues he is getting from his body that he has to go. I whole heartily suggest that you get pull ups.. YES This is a serious social concern.. And any kids who remember him as Mr PEE PEE Pants.. Will surely throw it in his face later. The pull ups were a godsend for myself and my son. Along with a change of clothes ( same colored pants etc.. So no one noticed the change.) Take care Hon You aren't alone.. And it hasn't happened this year for my son yet.. At school that is LOL home.. Is another matter. -- ( ) new to the group My 9 year old son with AS/HFA is so rigid about rules at school ( really anywhere) that he will wet his pants a school because " we are not allowed to go to the bathroom during .....) I have begged him to just get up and go to the bathroom when he needs to go and I would take care of the teacher later. I've been to his teachers and they agree that he can go at anytime. I'm at my wits end. He has no idea that he should even be embarassed. I guess that is God's way of protecting his feelings. Any suggestions? We do a bio medical approach with supplements and diet. And really he does well with friends but I am afraid that if this continues the older he gets that the kids will tease him if they don't already. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 Pam you really do have great advice LOL why didn't I think of that! -- Re: ( ) new to the group If he is rigid with rules, why not make it a rule that at specific times throughout his day he MUST go use the bathroom. Usually with our children, you cannot leave it up to them to use their judgement, it needs to be a rule. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 Why didn't I think of that!!!!! Sometimes when I'm caught up in the moment I can't see the forest for the trees. Thank you all so much. All the best, Jill " He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. " Is. 40:29-31 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 In a message dated 10/25/2006 8:08:58 AM Eastern Standard Time, excop32@... writes: Hi Excop32, You need to contact your local parent information training center. Here is the contact information: Tell them you need help navigating the special education process and would also like information about filing formal complaints. Has the school done an FBA (Functional Behavior Assessment) and subsequent Behavior Plan for your son? Pam Jan LaBelle, Executive Director Family Network on Disabilties of Florida, INC. 2735 Whitney Road Clearwater, FL 33760 (813) 523-1130 (800) 825-5736 _fnd@..._ (mailto:fnd@...) _http://www.gate.net/~fnd_ (http://www.gate.net/~fnd) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Hi Excop32, This was in my newsletter today and thought I'd pass it on to you. Also if you haven't visited this site before, I think it's the " yellow pages for kids " (look at very top of page) that is good for searching for advocacy, etc. http://www.wrightslaw.com/info/discipl.kids.arrest.pw.htm Sorry your family is going through this! It really is soooo obvious the school isn't accommodating your son's needs and is causing his behavior by not...well, by being dumb about autism! And in general by letting the teasing/harassment go on. I think it was this group that I recently posted a few links regarding harassment/bullying, etc. Do a search through the archives. Keep us updated on the outcome if you can! single mom, 3 sons , 17, with OCD, dysgraphia and Aspergers > > Hello all, my wife and I are the proud parents of a 12 year old boy > afflicted w/autism ASPERGER's SYNDROME, is the center of our > life, is our joy and our world. We learned of 's affliction > when was 3 the date was April 1, 1999 that was the day I > believed my world ended so I thought. You see in May 20 1999 our Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 I don't have any great advice to give but I just want to say it sounds like you are doing such a great job in protecting your son and being actively involved. <excop32@...> wrote: Hello all, my wife and I are the proud parents of a 12 year old boy afflicted w/autism ASPERGER's SYNDROME, is the center of our life, is our joy and our world. We learned of 's affliction when was 3 the date was April 1, 1999 that was the day I believed my world ended so I thought. You see in May 20 1999 our 5th wedding anniversary my mother was diagnosed w/teminal lung cancer and passed on Sept 27 1999, so the rest of my year existed in a bottle and fog. I stopped drinking on December 24 of that year when came to me and said " Daddy you are the best DADDY on the world " something I will never forget. Being a former police officer I could not understand why was having difficulty w/learning and understanding the simpilest things then we recieved that diagnosis. My wife and I knew loved the water so we moved to Florida and let him swim his heart out, he was in a great school up until he started middle school, he developed a much more serious problem as the children in his ESE class began to ridicule harrass and cause him such pain that he was lashing out at them as well as the teacher so much so that he was suspended. Now at his IEP meeting the SRO Student Resource Officer informed me that in the event of an outburst he would arrested, cuff and transprot to a juvenile detention center. I advised this SRO that in no uncertain terms would that occur if HE did not want to see himself in the in ER or morgue,now in his IEP a note from his DR clearly states that none of this is to occur and if an outbursy does occur or if does get anxious he shall call Dad or Mom and we will come get him no time out rooms nothing like that, well on September 28 2006 the proverbial hit the fan and had his fill w/the taunting ridicule and harassment and he did suffer an outburst and the " professional educator " tried to physically out in a time out room when he pulled away, she tried to grab him again and a natural reaction was to swing at the hand, he did strike her, she lead him to the office and filed a complaint against indicating she was in fear of her safety. Now when I see this woman I see an Amazon being from Illinois I have never heard of a complaint being filed against an individual in a school setting where the " educators " are aware of the existing possibility of this type of response/reaction. The lack of juvenile laws in FL amaze me and the lack of education on the part of the police and " educators " outright floors me. What I hope to find out is that do any of you parents of these angles know of an advocate in the Sarasota/Tampa area? I feel this school system needs a lesson for I was speaking to the assistant principal this day and asked if she was aware of 's IEP, her response was I don't need to know about his IEP, well according to the IDEA she does, then according to a counselor at the school I was advised the school was not ready for , BUT, according to meetings we had in March 2005, May 2006 and again August 2006 the school was ready. I feel the school board as well as the school failed and we need to look further into some type of disciplinary actions against the school system, since they can discipline my son and not follow federal law, their actions indicate arrogance, pompousity and an attitude that needs adjusting, they obvioulsy need a lesson in due process the IDEA. So my friends, please, forward any advise, comments, anything you might feel advantageous in my attempt to seek justice for my son. God bless, Excop32 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 An IEP should be based on needs and not on dx. So you should be getting her help at the school regardless of any dx she has or doesn't have. Roxanna ( ) New to the group I am a mother of two beautiful, smart children, and girl and a boy. They both have A.D.H.D. and the school system (and myself also) thinks that my daughter has many of the symptoms of Asperger's. I have had her tested at a clinic and they say that she does not meet " their " cryteria for asperger's. (It seemed to me that they were only looking for childern with moderate autisum for the " study and test " factor. I'm getting really frustrated. I don't want my daughter " labeled " with Asperger's, but I can't get any help for her with out the " label " . Has anyone else had this problem, and if so how did you deal with it. Vicky ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.14.7/537 - Release Date: 11/17/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Welcome . This is a nice group. My Grandson is 14 dx'd with Asperger/Bipolar. I just take it as it comes....one day at a time. Take care,Betty widoherty6 <widoherty6@...> wrote: Hello everyone, I am and I have a 12 year old son that was just diagnoised with Aspergers with ADHD. I also have 3 daughters, 14, 10, 3. My husband is a special education teacher, so while the IEP stuff is not new to us, everything else is. It is a relief to know what is going on with but at the same time it is so frustrating to know that it isn't something he will outgrow. He is having a really hard time right now, I don't know if it is because of the holidays and the added noise and stuff at school or what. I just feel so helpless sometimes as how to help him. I have my stack of Aspergers book on my bedside table and am slowly working my way through them. Some days just seems so overwhelming especially when you add our hormonal daughters to the mix. So any advice on how you cope day to day and keep going would be great. --------------------------------- Any questions? Get answers on any topic at Answers. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 : Remember that the Aspergers is a " part " of your son not all of him. The goal of your family should be to integrate him into your family, not the family into him. This is a typical common mistake that families make. They accomodate and modify the person on the spectrum so much that they must walk on eggshells around him in order to not deal with the issues. However this does the person on the spectrum no good since society and any place outside of his/her home and family will not let him/her have his way the entire time but the opposite is true that he must accomodate to society. This means that you and your family must equip your son with the essential tools to be able to intergrate himself into your family and society to the best of his ability. Connie Ajay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Welcome to the list. How's his attention span at home, when he's doing something he likes? Give us some ideas as to why you're wondering if he has behavioral problems...Is he hitting, scratching, kicking, biting, pulling hair himself or others, or throwing things? Or is he wandering away from circle time, disrupting class, or acting bored, etc. Is he particularly active or loud when they want everybody quiet and still? What the classroom like? Noisy, too much stimulation, fluorescent lighting? Do the teachers/aides wear perfume/cologne? What's his diet like? Does he get artificial colors and flavors, junk food, lots of sugar or artificial sweeteners? Is he on any supplements? S S --- On Sun 12/31, jenniferbennettmitchell < jenniferbennettmitchell@... <p>just wanted to introduce myself - i have 5 year old son with PDD and <br> am just looking for advice on anything and everything about <br> determining if my child has an attention or behavioral problem. his <br> teachers are concerned that his 3-5 second attention span is very <br> inconsistent - sometimes more like 10 minutes but they don't know <br> why. we do know that earlier in the morning is better - but who <br> isn't. HELP!!<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Thank you, He is in a special needs class @ private school (kindergarten). His behavior in school is not an issue. His behavior at home is very different from the classroom. Never acts up in class, just with me and sometimes his father, but worse with me (the mom). His teacher posed the question " is he ADHD or is it behavioral " . We believe it is behavioral and he chooses when not to listen, but we can not be sure. Even though he is making progress in school the pace is slow. The teacher has to spend much of the time getting him focused and back on task. He needs more one on one than other kids. We chelated him using oral DMSA from Aug. 2005-May 2006. He has not been on any supplements, other than multi-vitamins, since May. We were using a contemporary medicine doctor and followed her protocol. He is not on any special diet. We tried gf/cf diet but did not see any results. He eats as well as a typical 5 year old. We just started using candex this week to get his yeast under control. > > > Welcome to the list. How's his attention span at home, when he's doing something he likes? Give us some ideas as to why you're wondering if he has behavioral problems...Is he hitting, scratching, kicking, biting, pulling hair himself or others, or throwing things? Or is he wandering away from circle time, disrupting class, or acting bored, etc. Is he particularly active or loud when they want everybody quiet and still? What the classroom like? Noisy, too much stimulation, fluorescent lighting? Do the teachers/aides wear perfume/cologne? > > What's his diet like? Does he get artificial colors and flavors, junk food, lots of sugar or artificial sweeteners? Is he on any supplements? > S S > > > > --- On Sun 12/31, jenniferbennettmitchell < jenniferbennettmitchell@... > <p>just wanted to introduce myself - i have 5 year old son with PDD and <br> > am just looking for advice on anything and everything about <br> > determining if my child has an attention or behavioral problem. his <br> > teachers are concerned that his 3-5 second attention span is very <br> > inconsistent - sometimes more like 10 minutes but they don't know <br> > why. we do know that earlier in the morning is better - but who <br> > isn't. HELP!!<br> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 > > just wanted to introduce myself - i have 5 year old son with PDD and > am just looking for advice on anything and everything about > determining if my child has an attention or behavioral problem. his > teachers are concerned that his 3-5 second attention span is very > inconsistent - sometimes more like 10 minutes but they don't know > why. we do know that earlier in the morning is better - but who > isn't. HELP!! > Suggestion: get a Doctor's Data " hair elements " test. Wee what it says. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Comments interspersed. S S Thank you,<br> <br> He is in a special needs class @ private school (kindergarten)<wbr>. His <br> behavior in school is not an issue. His behavior at home is very <br> different from the classroom. *Was this the case before he started school? Never acts up in class, just with me <br> and sometimes his father, but worse with me (the mom). *Both at home and in the community? Do you wear perfume or use other scented products? Is there a smoker in the home (even if they only smoke outside)? Is the acting up at specific times, ie. mealtimes, transition times, when you're on the phone, etc? Are there siblings? His teacher <br> posed the question " is he ADHD or is it behavioral " . We believe it <br> is behavioral and he chooses when not to listen, but we can not be <br> sure. Even though he is making progress in school the pace is <br> slow. The teacher has to spend much of the time getting him focused <br> and back on task. He needs more one on one than other kids. <br> <br> We chelated him using oral DMSA from Aug. 2005-May 2006. *Did you see improvements? Did you do any hair tests? What did they show? FWIW, DMSA chelates mercury (from the body) and lead (lead takes a very long time to chelate). ALA chelates mercury (from the body and brain) and arsenic. If you're dealing with mercury he stills has some in his brain. He has not <br> been on any supplements, other than multi-vitamins, since May. We <br> were using a contemporary medicine doctor and followed her <br> protocol. *Yikes! :-( Consider AC protocol. Please read the FAQs of this list for details. He is not on any special diet. We tried gf/cf diet but <br> did not see any results. He eats as well as a typical 5 year old. <br> We just started using candex this week to get his yeast under <br> control. <br> <br> <br> ><br> > <br> > Welcome to the list. How's his attention span at home, when he's <br> doing something he likes? Give us some ideas as to why you're <br> wondering if he has behavioral problems...Is he hitting, scratching, <br> kicking, biting, pulling hair himself or others, or throwing <br> things? Or is he wandering away from circle time, disrupting class, <br> or acting bored, etc. Is he particularly active or loud when they <br> want everybody quiet and still? What the classroom like? Noisy, <br> too much stimulation, fluorescent lighting? Do the teachers/aides <br> wear perfume/cologne?<br> > <br> > What's his diet like? Does he get artificial colors and flavors, <br> junk food, lots of sugar or artificial sweeteners? Is he on any <br> supplements? <br> > S S<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 We believe it is behavioral and he chooses when not to listen, but we can not be sure. ****Since his behavior is better in school, try going to school and observing, sitting " outside " the classroom and just listening is best for this. I do this before I ever enter a classroom when I consult on a child's case to get a feel for the classroom, amazing what you can learn, sometimes I even leave at this point because I have heard all I need to know. Teachers cannot spank or take away the video games so the really good ones have developed a lot of effective techniques for dealing with kids. Mostly moms " talk " too much and too long. Teachers normally use short, even toned, well-understood sentences that cannot be misunderstood. Moms also (sometimes) use either a condescending tone (because we are exasperated at having said the same thing a million times) or raise their voice, all of these things can cause a child to tune out to what is being said. Not surprising as even we non ADD adults would learn to tune out with this approach. Sometimes just placing a tape recorder in your home and listening to how we talk to kids is very illuminating. A way to test to see if he is just not listening is to give a little time after a request and when you see the child is distracted or not complying try asking in a very nonthreatening way what it was you asked him to do. A true ADD child will often have a look of bewilderment when you ask, a child who is simply not complying will often just go do what you have asked or answer with the correct request that was given. This is still corrective, without any harsh consequences when they realize you are just going to redirect and it doesn't get them out of doing something. Expect compliance, attitude is everything. Our little one reacts totally differently to her mom, to me and to her teacher. The trick is to learn from anyone who has anything that works and not take it personally. Also, suggesting the possibility he may need " more chelation " . Sounds as if he is still ADD if both you and the teacher are spending a larger than normal portion of time getting him focused. It does sometimes appear as if an ADD kid is just " not listening " but you have to find out if the not listening is purposeful or he just can't. Auditory processing problems are just as frustrating, maybe more so for those people/kids who have them, they want to comply, but can't, the brain fog is just too severe.**** Even though he is making progress in school the pace is slow. The teacher has to spend much of the time getting him focused and back on task. He needs more one on one than other kids. We chelated him using oral DMSA from Aug. 2005-May 2006. He has not been on any supplements, other than multi-vitamins, since May. We were using a contemporary medicine doctor and followed her protocol. He is not on any special diet. We tried gf/cf diet but did not see any results. He eats as well as a typical 5 year old. We just started using candex this week to get his yeast under control. > > > Welcome to the list. How's his attention span at home, when he's doing something he likes? Give us some ideas as to why you're wondering if he has behavioral problems...Is he hitting, scratching, kicking, biting, pulling hair himself or others, or throwing things? Or is he wandering away from circle time, disrupting class, or acting bored, etc. Is he particularly active or loud when they want everybody quiet and still? What the classroom like? Noisy, too much stimulation, fluorescent lighting? Do the teachers/aides wear perfume/cologne? > > What's his diet like? Does he get artificial colors and flavors, junk food, lots of sugar or artificial sweeteners? Is he on any supplements? > S S > > > > --- On Sun 12/31, jenniferbennettmitchell < jenniferbennettmitchell@... > <p>just wanted to introduce myself - i have 5 year old son with PDD and <br> > am just looking for advice on anything and everything about <br> > determining if my child has an attention or behavioral problem. his <br> > teachers are concerned that his 3-5 second attention span is very <br> > inconsistent - sometimes more like 10 minutes but they don't know <br> > why. we do know that earlier in the morning is better - but who <br> > isn't. HELP!!<br> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 Caveat: You might check in with the principal of the school before you do this or they'll think you're spying on them and they'll freak out and get defensive. Just calmly explain you have noticed his behavior is better in school and you want to find out what great techniques the teacher is using and to learn from her. You do have the right to walk into the school at anytime of the day and observe but most schools request that you make your presence known. Hopefully they won't warn the teacher ahead of time and you will have the opportunity to find out what you need to know. Re: [ ] Re: new to the group We believe it is behavioral and he chooses when not to listen, but we can not be sure. ****Since his behavior is better in school, try going to school and observing, sitting " outside " the classroom and just listening is best for this. I do this before I ever enter a classroom when I consult on a child's case to get a feel for the classroom, amazing what you can learn, sometimes I even leave at this point because I have heard all I need to know. Teachers cannot spank or take away the video games so the really good ones have developed a lot of effective techniques for dealing with kids. Mostly moms " talk " too much and too long. Teachers normally use short, even toned, well-understood sentences that cannot be misunderstood. Moms also (sometimes) use either a condescending tone (because we are exasperated at having said the same thing a million times) or raise their voice, all of these things can cause a child to tune out to what is being said. Not surprising as even we non ADD adults would learn to tune out with this approach. Sometimes just placing a tape recorder in your home and listening to how we talk to kids is very illuminating. A way to test to see if he is just not listening is to give a little time after a request and when you see the child is distracted or not complying try asking in a very nonthreatening way what it was you asked him to do. A true ADD child will often have a look of bewilderment when you ask, a child who is simply not complying will often just go do what you have asked or answer with the correct request that was given. This is still corrective, without any harsh consequences when they realize you are just going to redirect and it doesn't get them out of doing something. Expect compliance, attitude is everything. Our little one reacts totally differently to her mom, to me and to her teacher. The trick is to learn from anyone who has anything that works and not take it personally. Also, suggesting the possibility he may need " more chelation " . Sounds as if he is still ADD if both you and the teacher are spending a larger than normal portion of time getting him focused. It does sometimes appear as if an ADD kid is just " not listening " but you have to find out if the not listening is purposeful or he just can't. Auditory processing problems are just as frustrating, maybe more so for those people/kids who have them, they want to comply, but can't, the brain fog is just too severe.**** Even though he is making progress in school the pace is slow. The teacher has to spend much of the time getting him focused and back on task. He needs more one on one than other kids. We chelated him using oral DMSA from Aug. 2005-May 2006. He has not been on any supplements, other than multi-vitamins, since May. We were using a contemporary medicine doctor and followed her protocol. He is not on any special diet. We tried gf/cf diet but did not see any results. He eats as well as a typical 5 year old. We just started using candex this week to get his yeast under control. > > > Welcome to the list. How's his attention span at home, when he's doing something he likes? Give us some ideas as to why you're wondering if he has behavioral problems...Is he hitting, scratching, kicking, biting, pulling hair himself or others, or throwing things? Or is he wandering away from circle time, disrupting class, or acting bored, etc. Is he particularly active or loud when they want everybody quiet and still? What the classroom like? Noisy, too much stimulation, fluorescent lighting? Do the teachers/aides wear perfume/cologne? > > What's his diet like? Does he get artificial colors and flavors, junk food, lots of sugar or artificial sweeteners? Is he on any supplements? > S S > > > > --- On Sun 12/31, jenniferbennettmitchell < jenniferbennettmitchell@... > <p>just wanted to introduce myself - i have 5 year old son with PDD and <br> > am just looking for advice on anything and everything about <br> > determining if my child has an attention or behavioral problem. his <br> > teachers are concerned that his 3-5 second attention span is very <br> > inconsistent - sometimes more like 10 minutes but they don't know <br> > why. we do know that earlier in the morning is better - but who <br> > isn't. HELP!!<br> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 Sorry to keep adding, but this was an important point for me. A couple of times I did tape record myself with interactions with my dd and when I asked myself if I would want to listen to the person I heard on the tape the answer was a resounding " no " . I found it helpful to use the same tone and consideration that I would use with any friend. I know our children are not our friends but they deserve as much respect as our friends do. I found never correcting in front of anyone else to preserve her ego dignity as helpful as a respectful tone. And a CALM attitude is the most important. Children often feel powerless so they do get a little " kick " out of seeing an adult get all rattled. Once I really understood this I never raised my voice again. But getting rattled doesn't earn you any respect and makes you appear as if you don't know what you are doing. Often we don't know what we are doing but it's important always to give the impression that we really do know what is needed. Although this can be overdone, presenting a child with a couple of choices is a good technique even if it's only a choice between going to their room under their own power when small or going there after a couple of pats on their derriere as smart kids will often decide not making a choice is a good way to send an adult over the edge. They have to get that not making a choice IS actually making one and that is not going to work. Btw, I insist on this same tone of respect when a child speaks to me but feel totally justified as I have set the example. I refuse to even respond to a child who speaks to me disrectfully, this is highly effective as kids intensely dislike being ignored. This is worth all the effort as I noticed when my dd was a teenager and all my friends were complaining about how their kids never listened to anything they said, my dd did and her adolescence was calm, peaceful and nonturbulent. Re: [ ] Re: new to the group We believe it is behavioral and he chooses when not to listen, but we can not be sure. ****Since his behavior is better in school, try going to school and observing, sitting " outside " the classroom and just listening is best for this. I do this before I ever enter a classroom when I consult on a child's case to get a feel for the classroom, amazing what you can learn, sometimes I even leave at this point because I have heard all I need to know. Teachers cannot spank or take away the video games so the really good ones have developed a lot of effective techniques for dealing with kids. Mostly moms " talk " too much and too long. Teachers normally use short, even toned, well-understood sentences that cannot be misunderstood. Moms also (sometimes) use either a condescending tone (because we are exasperated at having said the same thing a million times) or raise their voice, all of these things can cause a child to tune out to what is being said. Not surprising as even we non ADD adults would learn to tune out with this approach. Sometimes just placing a tape recorder in your home and listening to how we talk to kids is very illuminating. A way to test to see if he is just not listening is to give a little time after a request and when you see the child is distracted or not complying try asking in a very nonthreatening way what it was you asked him to do. A true ADD child will often have a look of bewilderment when you ask, a child who is simply not complying will often just go do what you have asked or answer with the correct request that was given. This is still corrective, without any harsh consequences when they realize you are just going to redirect and it doesn't get them out of doing something. Expect compliance, attitude is everything. Our little one reacts totally differently to her mom, to me and to her teacher. The trick is to learn from anyone who has anything that works and not take it personally. Also, suggesting the possibility he may need " more chelation " . Sounds as if he is still ADD if both you and the teacher are spending a larger than normal portion of time getting him focused. It does sometimes appear as if an ADD kid is just " not listening " but you have to find out if the not listening is purposeful or he just can't. Auditory processing problems are just as frustrating, maybe more so for those people/kids who have them, they want to comply, but can't, the brain fog is just too severe.**** Even though he is making progress in school the pace is slow. The teacher has to spend much of the time getting him focused and back on task. He needs more one on one than other kids. We chelated him using oral DMSA from Aug. 2005-May 2006. He has not been on any supplements, other than multi-vitamins, since May. We were using a contemporary medicine doctor and followed her protocol. He is not on any special diet. We tried gf/cf diet but did not see any results. He eats as well as a typical 5 year old. We just started using candex this week to get his yeast under control. > > > Welcome to the list. How's his attention span at home, when he's doing something he likes? Give us some ideas as to why you're wondering if he has behavioral problems...Is he hitting, scratching, kicking, biting, pulling hair himself or others, or throwing things? Or is he wandering away from circle time, disrupting class, or acting bored, etc. Is he particularly active or loud when they want everybody quiet and still? What the classroom like? Noisy, too much stimulation, fluorescent lighting? Do the teachers/aides wear perfume/cologne? > > What's his diet like? Does he get artificial colors and flavors, junk food, lots of sugar or artificial sweeteners? Is he on any supplements? > S S > > > > --- On Sun 12/31, jenniferbennettmitchell < jenniferbennettmitchell@... > <p>just wanted to introduce myself - i have 5 year old son with PDD and <br> > am just looking for advice on anything and everything about <br> > determining if my child has an attention or behavioral problem. his <br> > teachers are concerned that his 3-5 second attention span is very <br> > inconsistent - sometimes more like 10 minutes but they don't know <br> > why. we do know that earlier in the morning is better - but who <br> > isn't. HELP!!<br> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 There's an approach calle 1-2-3 Magic. Our library system has the tape, see if yours does. I have a client family using the approach with 5- and 6-year-olds with special needs. S S We believe it is behavioral and he chooses when not to listen, but we can not be sure.<br> <br> ****Since his behavior is better in school, try going to school and observing, sitting " outside " the classroom and just listening is best for this. I do this before I ever enter a classroom when I consult on a child's case to get a feel for the classroom, amazing what you can learn, sometimes I even leave at this point because I have heard all I need to know. Teachers cannot spank or take away the video games so the really good ones have developed a lot of effective techniques for dealing with kids. <br> <br> Mostly moms " talk " too much and too long. Teachers normally use short, even toned, well-understood sentences that cannot be misunderstood. Moms also (sometimes) use either a condescending tone (because we are exasperated at having said the same thing a million times) or raise their voice, all of these things can cause a child to tune out to what is being said. Not surprising as even we non ADD adults would learn to tune out with this approach. Sometimes just placing a tape recorder in your home and listening to how we talk to kids is very illuminating.<br> <br> A way to test to see if he is just not listening is to give a little time after a request and when you see the child is distracted or not complying try asking in a very nonthreatening way what it was you asked him to do. A true ADD child will often have a look of bewilderment when you ask, a child who is simply not complying will often just go do what you have asked or answer with the correct request that was given.<br> <br> This is still corrective, without any harsh consequences when they realize you are just going to redirect and it doesn't get them out of doing something. Expect compliance, attitude is everything. Our little one reacts totally differently to her mom, to me and to her teacher. The trick is to learn from anyone who has anything that works and not take it personally.<br> <br> Also, suggesting the possibility he may need " more chelation " . Sounds as if he is still ADD if both you and the teacher are spending a larger than normal portion of time getting him focused. It does sometimes appear as if an ADD kid is just " not listening " but you have to find out if the not listening is purposeful or he just can't. Auditory processing problems are just as frustrating, maybe more so for those people/kids who have them, they want to comply, but can't, the brain fog is just too severe.****<br> <br> <br> <br> Even though he is making progress in school the pace is <br> slow. The teacher has to spend much of the time getting him focused <br> and back on task. He needs more one on one than other kids. <br> <br> We chelated him using oral DMSA from Aug. 2005-May 2006. He has not <br> been on any supplements, other than multi-vitamins, since May. We <br> were using a contemporary medicine doctor and followed her <br> protocol. He is not on any special diet. We tried gf/cf diet but <br> did not see any results. He eats as well as a typical 5 year old. <br> We just started using candex this week to get his yeast under <br> control. <br> <br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 Congratulations on the newest additions in your family & welcome here. I would tell him over & over again about the children that you will soon add to the family & what fun they will have teaching them English & things that American kids like to do etc.. Make him a part of the celebration. Take care,Betty <angnjim@...> wrote: Hi Everyone, I just joined the group and am looking forward to learning from the wisdom of many of you. Our 6 year old son was just dx'd with Aspergers and it was funny because the doctor tried to " break it to us really gently " and me and my husbands reaction was more of a " ya, duh! " reaction. We had known for years something was not right and it kept getting dismissed by doctor's that didn't have to live with him. He's a very sweet and obedient son now but from 2-4 I didn't know if I would every be close to him because he was REALLY tough. He's mellowed out a lot but as I homeschool him I certainly see that he has many challenges ahead of him. Any advice on the best therapies, diets, etc. that you have had a good experience with your child? Also, He has two bio brothers ages 3 and 8 but through adoption he is about to suddenly have 3 new siblings ages 11, 9, and 2. They are from Haiti so will have trouble communicating since they speak Creole. Any suggestions on how to prepare him for this big transition? Joyfully, --------------------------------- Never Miss an Email Stay connected with on your mobile. Get started! Quote Link to comment Share on other sites More sharing options...
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