new to the group

[Guest guest]

> I was wondering if anyone here had any experience with No-Fenol or

> could recommend another supplement for phenol sensitivity?

No-Fenol worked very well for my family. There are other ideas for

phenol issues here

http://www.danasview.net/phenol.htm

Dana

[Guest guest]

Hi Pam,

Only have a moment now. But generally I think parents should go with

their gut feeling about what seems to apply (Aspergers?) to their

children.

When reading your post, anxiety certainly came across as applying to

Jake. Also depression. You mentioned those of course. (Depression

could play a part in the hygiene problem.) " Obsessive-Compulsive

Disorder " (OCD) could be playing a role in some ways. I'm not ruling

out Aspergers, but thought I'd add that OCD might be in there

somewhere. You can read about it at the OCD Foundation website.

Autism does have some obsessive OCD type behaviors but that's

different (meaning you can have both - my 18 yr old son does).

Anyway, I agree there's more to Jake than being a defiant teenager.

I can see why bipolar comes to mind if there is a family member with

it since it seems to run in families. I think professionals will

sometimes go with that if there are problems and they find

out " bipolar " is in the family history somewhere.

Go with your gut, with your knowledge of diagnoses with your other

children/family and from what you read, and you're the one who knows

him best, raised him, your instinct is probably right.

Quick thoughts,

>

> Hi. I'm new to this group so I'm not sure what I should say, so I

guess I'll

> tell you a little about my situation. My son, Jake, is 16 years old

and is for

> the most part undiagnosed. He has the diagnosis right now of

Bipolar and

> severe anxiety. To me he exhibits more signs of Asperger than

anything else. Here

> are some of the things going on with him at the present time: He is

obsessed

> with the army.....things like the guns (he knows them inside and

out), tanks

> (he knows all kinds), he has very monotone speech, it never

[Guest guest]

Pam, how old is your son? I had the same problem with my son during his last year of high school (the last semester). He out and out refused to go. We worked out a compromise that he would go and sit in the reception area and read a book for an hour every day. This was a private school (that he went to on public dollars), so they did a lot of thinking outside the box/creative problem solving. I really worried about how he would do in college. The first semester was hard, but the second semester, he really shone. Now he's starting his sophomore year. He's very depressed, so once again, I'm worried about how he'll do. sigh.LizOn Sep 3, 2007, at 10:44 PM, pjrd67@... wrote:Hi. I'm new to this group so I'm not sure what I should say, so I guess I'll tell you a little about my situation. My son, Jake, is 16 years old and is for the most part undiagnosed. He has the diagnosis right now of Bipolar and severe anxiety. To me he exhibits more signs of Asperger than anything else. Here are some of the things going on with him at the present time: He is obsessed with the army.....things like the guns (he knows them inside and out), tanks (he knows all kinds), he has very monotone speech, it never changes. He is auditory and visually dyslexic, he doesn't have the social skills to make or keep friends, he does not care about fashion trends (he would wear the same clothes for weeks if I let him), he doesn't like to cut his nails, hygene is a BIG issue around here. He is oblivious as to when he needs a shower. He has to have everything in a routine. If you change anything, he freaks out. He barely reads and writing is pretty much impossible for him. (r ight now he is running around 6 years behind) He does not like loud noises or bright lights. He is very clumsy and awkward on his feet, and school is extremely hard for him. He has extreme anxiety. Some days he can't leave the house. When he is nervous or upset, he talks a mile a minute. His speech is slurred a lot of the time and he mumbles. He does not sleep much at all and has a hard time falling asleep. He takes Abilify and Tegretal for his anxiety as well as Neurontin. Without the Neurontin Jake self mutilates badly.  Right now he is in a residential placement because the state felt he would be better off there because I couldn't get him to go to school. High school was impossible for Jake. He lost his counselor of three years, he lost his teacher of three years, he lost his classmates, and the whole school day was different than before. He could not handle this and he fell apart. The anxiety got so bad that he threw up every morning when I tried to get h im to school. He gets depressed at times and has been hopitalized for this as well. I have mentioned Asperger to the place he is staying but they say no and that he is just being a defiant teenager. I strongly disagree. If you look past his issues, Jake is a great kid. He is 6' 2" and has a smile that would melt your heart. )  If he doesn't shave for a couple of days he has a 2" beard!All three of my kids are special needs one way or another. Jake's brother is 14 and has Bipolar, Tourette Syndrome, ODD, ADHD, and a severe processing disorder. Jake's sister is 9 and has Rett Syndrome, and Cerebral Palsey. So my house is pretty busy.... I look forward to hearing from people who have been living with Asperger and could send some helpful suggestions my way..............Thanks for listening,Pampjrd67@... Get a sneak peek of the all-new AOL.com.

[Guest guest]

Duh. You said right in your second sentence t hat he is 16! I'm in a crowded coffee shop, and my brains have curdled.LizOn Sep 4, 2007, at 11:58 AM, Liz Bohn wrote:Pam, how old is your son? I had the same problem with my son during his last year of high school (the last semester). He out and out refused to go. We worked out a compromise that he would go and sit in the reception area and read a book for an hour every day. This was a private school (that he went to on public dollars), so they did a lot of thinking outside the box/creative problem solving. I really worried about how he would do in college. The first semester was hard, but the second semester, he really shone. Now he's starting his sophomore year. He's very depressed, so once again, I'm worried about how he'll do. sigh.LizOn Sep 3, 2007, at 10:44 PM, pjrd67@... wrote:Hi. I'm new to this group so I'm not sure what I should say, so I guess I'll tell you a little about my situation. My son, Jake, is 16 years old and is for the most part undiagnosed. He has the diagnosis right now of Bipolar and severe anxiety. To me he exhibits more signs of Asperger than anything else. Here are some of the things going on with him at the present time: He is obsessed with the army.....things like the guns (he knows them inside and out), tanks (he knows all kinds), he has very monotone speech, it never changes. He is auditory and visually dyslexic, he doesn't have the social skills to make or keep friends, he does not care about fashion trends (he would wear the same clothes for weeks if I let him), he doesn't like to cut his nails, hygene is a BIG issue around here. He is oblivious as to when he needs a shower. He has to have everything in a routine. If you change anything, he freaks out. He barely reads and writing is pretty much impossible for him. (r ight now he is running around 6 years behind) He does not like loud noises or bright lights. He is very clumsy and awkward on his feet, and school is extremely hard for him. He has extreme anxiety. Some days he can't leave the house. When he is nervous or upset, he talks a mile a minute. His speech is slurred a lot of the time and he mumbles. He does not sleep much at all and has a hard time falling asleep. He takes Abilify and Tegretal for his anxiety as well as Neurontin. Without the Neurontin Jake self mutilates badly.  Right now he is in a residential placement because the state felt he would be better off there because I couldn't get him to go to school. High school was impossible for Jake. He lost his counselor of three years, he lost his teacher of three years, he lost his classmates, and the whole school day was different than before. He could not handle this and he fell apart. The anxiety got so bad that he threw up every morning when I tried to get h im to school. He gets depressed at times and has been hopitalized for this as well. I have mentioned Asperger to the place he is staying but they say no and that he is just being a defiant teenager. I strongly disagree. If you look past his issues, Jake is a great kid. He is 6' 2" and has a smile that would melt your heart. )  If he doesn't shave for a couple of days he has a 2" beard!All three of my kids are special needs one way or another. Jake's brother is 14 and has Bipolar, Tourette Syndrome, ODD, ADHD, and a severe processing disorder. Jake's sister is 9 and has Rett Syndrome, and Cerebral Palsey. So my house is pretty busy.... I look forward to hearing from people who have been living with Asperger and could send some helpful suggestions my way..............Thanks for listening,Pampjrd67@... Get a sneak peek of the all-new AOL.com.

[Guest guest]

Pam, I also have a 16 year old with Asperger's. We have had many ups and downs with him (especially while he was prepubertal). He is now in 11th grade and seems to have turned a corner. He is extremely challenging and parenting him is not at all what I thought it would be. I have learned to be extremely flexible and pick my battles. Pam :)See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

>>However it is obvious that communication is one area where her

development

> shows delay.

> I would like to know if enzymes could be good for her.

It is very possible, yes.

> If yes, how do we start and how do we get the enzymes ? Are there

specific stores where we

> can buy them how do use them?

Info and links here

http://www.danasview.net/parent3.htm#supplements

Dana

[Guest guest]

Thank you, Helen, for that wonderful report. LDN has truly given you your life

back!

Here is an LDN-related site you may find of interest:

http://tinyurl.com/2boot2

With best wishes,

Dudley Delany

dudley_delany

[low dose naltrexone] New to the group

Hi,I am a 55 yr. old gal with multiple auto-immune diseases. It

started out when I was in my 20's when I was first ill but it took

until 1987 before someone was sharp enough to figure me out.

The first to show it'self was the IBD, and sort of snowballed into

R.A., Sjogrens, Cushings, also diabetes. All cross over each other and

I have so many that even I forget what all I have. There may be

somethings not verified but at this point I don't care as they all

make me have muscle and joint pain. I amnot to take steriods anymore

as am big as a house with 20 yrs. of lb. gain. I have been on

Methotrexate, Asacol, you name it. Just lots of other

drugs for many years. I started on Naltrexone about 8 months now. For

me it was a slow process. I catch myself doing things that a year ago

I just could not do. My sister told me that last Easter I had to lean

on the counter to peel potatoes, I did not notice and I was like, wow

I don't do that now...really ???? Also I was on a cane and now walk

just fine and ride a bike. No way would I be doing that before. People

around me notice the changes also. So am sticking with it. I have a

hospital 100 miles from me that compounds the capsules and even mails

them for free which is so nice of them. For anyone in the U.P. of

Michigan. Call the Marquette General Hospital Pharmacy and they

will help you. They are just so good about it. So happy to be talking

to others. Am very interested in what everyone has to say. One thing I

have heard however from friends is that some Dr. are so hesitant to RX

Naltrexone. No idea why. My Brother-in-law is a M.D. and he is now

Rx-ing it for some of his patients. I guess they are afraid of

anything new. It's funny when he calls me about it!!! Glad to meet you

all, Regards, Helen

[Guest guest]

Hiya Helen

Welcome to the group. I am from Michigan, too.

What is your brother-in-law's name and where does he practice? Please send this info to me directly rather than to this whole group.

Do your health issues include rheumatoid arthritis and asthma or allergies? Have you seen relief from these, too?

How did you first learn about LDN and who prescribed it for you?

Thanks, mjh

PS I went to Michigan Tech.... sort of down the road a piece from Marquette.

Posted by: "jinxman111" jinxman111@... jinxman111

Mon Oct 22, 2007 3:34 pm (PST)

Hi,I am a 55 yr. old gal with multiple auto-immune diseases. Itstarted out when I was in my 20's when I was first ill but it tookuntil 1987 before someone was sharp enough to figure me out.The first to show it'self was the IBD, and sort of snowballed intoR.A., Sjogrens, Cushings, also diabetes. All cross over each other andI have so many that even I forget what all I have.

There may besomethings not verified but at this point I don't care as they allmake me have muscle and joint pain. I amnot to take steriods anymoreas am big as a house with 20 yrs. of lb. gain.

I have been onMethotrexate, Asacol, you name it. Just lots of otherdrugs for many years. I started on Naltrexone about 8 months now. Forme it was a slow process. I catch myself doing things that a year agoI just could not do. My sister told me that last Easter I had to leanon the counter to peel potatoes, I did not notice and I was like, wowI don't do that now...really ????

Also I was on a cane and now walkjust fine and ride a bike. No way would I be doing that before. Peoplearound me notice the changes also. So am sticking with it. I have ahospital 100 miles from me that compounds the capsules and even mailsthem for free which is so nice of them.

For anyone in the U.P. of Michigan. Call the Marquette General Hospital Pharmacy and theywill help you. They are just so good about it. So happy to be talkingto others. Am very interested in what everyone has to say. One thing Ihave heard however from friends is that some Dr. are so hesitant to RXNaltrexone. No idea why.

My Brother-in-law is a M.D. and he is nowRx-ing it for some of his patients. I guess they are afraid ofanything new. It's funny when he calls me about it!!! Glad to meet youall, Regards, HelenSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Wonderful news you are doing so well on LDN, Helen, and welcome

to this big LDN group.

May now you will be able to lose some of that extra poundage.

Has LDN decreased your appetite at all, at least for junk? (Of course

with exercise you need to eat sufficient good foods to maintain your

lean

body mass. Don't wanna lose that at our age if we possibly can avoid it;

I am 57. )

LDN has decreased my appetite but not so certain about my husband's,

who is severely overweight and trying to lose since his heart surgery.

Best health,

Jo

LDN for mild arthritis, mod allergies, and strengthening immune system

jinxman111 wrote:

Hi,I am a 55 yr. old gal with multiple auto-immune diseases. It

started out when I was in my 20's ...

The first to show it'self was the IBD, and sort of snowballed into

R.A., Sjogrens, Cushings, also diabetes. ...I amnot to take steriods

anymore

as am big as a house with 20 yrs. of lb. gain. I have been on

Methotrexate, Asacol, you name it. ...I started on Naltrexone about 8

months now. For me it was a slow process. I catch myself doing things

that a year ago

I just could not do. My sister told me that last Easter I had to lean

on the counter to peel potatoes, I did not notice and I was like, wow

I don't do that now...really ???? Also I was on a cane and now walk

just fine and ride a bike. No way would I be doing that before....

Messages in this topic (0)

Reply (via web post) | Start a new topic

..

[Guest guest]

Hi Helen,

Welcome to the group!

You will love it here -

this is a really helpful, positive, supportive, non-judgemental group.

If I may ask, which form of IBD do you have?

I have UC. I am hoping any day now there will be a protocol for

getting off 6MP and Remicade, and onto LDN.

Sounds like the LDN has really improved your life.

Alana

>

> Hi,I am a 55 yr. old gal with multiple auto-immune diseases. It

> started out when I was in my 20's when I was first ill but it took

> until 1987 before someone was sharp enough to figure me out.

> The first to show it'self was the IBD, and sort of snowballed into

> R.A., Sjogrens, Cushings, also diabetes. All cross over each other

and

> I have so many that even I forget what all I have. There may be

> somethings not verified but at this point I don't care as they all

> make me have muscle and joint pain. I amnot to take steriods anymore

> as am big as a house with 20 yrs. of lb. gain. I have been on

> Methotrexate, Asacol, you name it. Just lots of other

> drugs for many years. I started on Naltrexone about 8 months now.

For

> me it was a slow process. I catch myself doing things that a year

ago

> I just could not do. My sister told me that last Easter I had to

lean

> on the counter to peel potatoes, I did not notice and I was like,

wow

> I don't do that now...really ???? Also I was on a cane and now walk

> just fine and ride a bike. No way would I be doing that before.

People

> around me notice the changes also. So am sticking with it. I have a

> hospital 100 miles from me that compounds the capsules and even

mails

> them for free which is so nice of them. For anyone in the U.P. of

> Michigan. Call the Marquette General Hospital Pharmacy and they

> will help you. They are just so good about it. So happy to be

talking

> to others. Am very interested in what everyone has to say. One

thing I

> have heard however from friends is that some Dr. are so hesitant to

RX

> Naltrexone. No idea why. My Brother-in-law is a M.D. and he is now

> Rx-ing it for some of his patients. I guess they are afraid of

> anything new. It's funny when he calls me about it!!! Glad to meet

you

> all, Regards, Helen

>

[Guest guest]

I would think that reading the book by Caryn Serrousi on Autism and PDD would

be a great place to start to think about the GFCF diet. I would think reading

the books by Defelice (I am sure I am not spelling their names right so

keep looking you'll come across these books) on Enzymes would be a great

place to start to figure out where to start on enzymes. I read both authors and

really learned a lot. They are both Parents themselves. Laurie

I was wondering if you could all give me advice on where to start in

using enzymes with my son. He is 4 1/2 and has been diagnosed with

PDD-NOS. We have been doing therapy with him since he was 2 and have

seen tremendous progress. He has pretty intense sensory needs. We

have not had any blood work done on him, so I don't know if anything

would show up on that. I don't really notice any reactions to

specific types of foods and he seems to be regular as far as bowel

movements go. I've heard so much about the GFCF diet though, that I

wonder if we should try it. He does still have the belly that sticks

out, which could be a sign of some gastro problems, but like I said,

I don't know what would be triggering it. I was looking up GFCF when

I came across a site on enzymes, which led me to research, which led

me here. I trust what other parents have to say, although I do know

that each child is different. Any advice you could all offer would be

wonderful.

I do have him on some supplements. He has seen a contact

reflexologist who has put him on RNA for brain function, and we also

give him the omega's. We have seen remarkable differences with both

supplements.

Thank you,

Addriane

************************************** See what's new at http://www.aol.com

[Guest guest]

>

> I was wondering if you could all give me advice on where to start in

> using enzymes with my son.

This site is good

http://www.enzymestuff.com/

>>He does still have the belly that sticks

> out, which could be a sign of some gastro problems, but like I said,

> I don't know what would be triggering it.

Food intolerances and/or yeast overgrowth.

http://www.danasview.net/yeast.htm

Many sensory kids have problems with milk and phenols

http://www.danasview.net/phenol.htm

Dana

[Guest guest]

The way food sensitivities work, you usually don't notice a direct

reaction with the food. The kids tend to eat gluten and casein at

every meal and have chronic symptoms. I know of a lot of kids with

sensory issues that got much better, or went away, on the GF/CF diet.

Some kids do fine on the enzymes and some kids still need the diet.

-Sierra

>

> I was wondering if you could all give me advice on where to start in

> using enzymes with my son. He is 4 1/2 and has been diagnosed with

> PDD-NOS. We have been doing therapy with him since he was 2 and have

> seen trememdous progress. He has pretty intense sensory needs. We

> have not had any blood work done on him, so I don't know if anything

> would show up on that. I don't really notice any reactions to

> specific types of foods and he seems to be regular as far as bowel

> movements go. I've heard so much about the GFCF diet though, that I

> wonder if we should try it. He does still have the belly that sticks

> out, which could be a sign of some gastro problems, but like I said,

> I don't know what would be triggering it. I was looking up GFCF when

> I came across a site on enzymes, which led me to research, which led

> me here. I trust what other parents have to say, although I do know

> that each child is different. Any advice you could all offer would be

> wonderful.

>

> I do have him on some supplements. He has seen a contact

> reflexologist who has put him on RNA for brain function, and we also

> give him the omaga's. We have seen remarkable differences with both

> supplements.

>

> Thank you,

> Addriane

>

[Guest guest]

Welcome, !!!! You've come to a great place!!!Robinbrespoodles <@...> wrote: Hi,I'm the grandmother of a child that is being evaluated for aspergersnow. I am really interested in reading and learning more. We havealways known there was a problem after a Oprah show a year or so ago,I started researching more and this Spring we ask his family Dr aboutthe possibility. Since then , he has been to several Drs and stillbeing evaluated but they feel it is looking more likely that he

hasaspergers.He definitely has many characteristics of autism. I seldom get towatch him in new settings with kids he doesn;t know but yesterday wehad a Christmas dinner and there were many kids his age and he playedwith his cousin and pretended the other kids did not exist. I havewatched him react to adults he did not know but this was my first timeto watch him react to kids his age, he did not know.SO I am here is read and learn........... understand......

Never miss a thing. Make your homepage.

[Guest guest]

> Hello all! My five year old son has been diagnosed with Autism. We

> recently started going to a DAN doctor/Allergist and my son has tested

> postive for allergies to milk, gluten, yeast, soy eggs and about 20

> other foods. We are still waiting for other test results. He is

> currently on Super Thera Nu and i am considering starting enzymes, but

> i do not not how to go about this and what the best way to approach all

> of this is. If any one has any advise for a newbie I would really

> appreciate it.

This site is very informative

http://www.enzymestuff.com/

Dana

[Guest guest]

I believe you already know my story

-- LarryGC/LarryLDN LDN Info rrms

[low dose naltrexone] new to the group

hello,my name is camille. i have been diagnosed with ms for 4 years.then hypothyroid, etc. i have failed all injectables and i dont want to do tysabri (too scared) anyway i would like to hear from people using ldn and see how they are doing with it. i have read the ldn sites but i would like testimonials the good and the bad.thanks,Camille

[Guest guest]

-Kim,

thank you. i am actually good friends with my md i will give him a

call

Camille

-- In low dose naltrexone , " petessweetheart "

<petessweetheart@...> wrote:

>

>

>

> I look

> > forward to reading more from the group, especially from anyone

who

> has used

> > Betseron or Copaxone and then gone to LDN treatment.

>

> Hi, Vali. My 16 year old son was diagnosed with MS 3 1/2 years

ago.

> He used Avonex for 1 year with minimal flu like symptoms but

> continued to have exacerbations and suffered from depression while

> using it. He was then switched to Rebif for 9 months and suffered

> SEVERE depression, along with the painful injections and the

> medication just making him feel like crap in general. He started

LDN

> in June of this year, after I spent 6 months driving this bunch

crazy

> trying to find out everything I could about it!

>

> He has done wonderfully, Vali, and I would not switch him back to

the

> interferons under any circumstances. All of the symptoms that were

> contributed to MS while he was on the interferons were truly caused

> by the interferons, as far as I am concerned. If you want to know

> anything more specific than what I have told you, please feel free

to

> ask. I read the digests daily, or you can email me privately.

This

> is a great group, and you will find all the answers you need here!

I

> will warn you, though. Don't expect to get a script from your

> neuro. Try a good gp, preferably one you have known for awhile and

> who trusts your judgement. Take care!

>

> Kim

>

[Guest guest]

Hi Camille,

You can find a number of LDN-related MS testimonials at

http://tinyurl.com/2boot2

With best wishes for the New Year,

Dudley Delany

dudley_delany

[low dose naltrexone] new to the group

hello,

my name is camille. i have been diagnosed with ms for 4 years.

then hypothyroid, etc. i have failed all injectables and i dont want to

do tysabri (too scared) anyway i would like to hear from people using

ldn and see how they are doing with it. i have read the ldn sites but i

would like testimonials the good and the bad.

thanks,

Camille

[Guest guest]

Hi Camille,

I sent you quite a number of saved posts with experiences from those with MS. Those were only since November of 2007. There are plenty more if you wish me to send them along. I will also look to see what I have saved on Hypothyroid. But I am not sure I have many saved items regarding that area.

All my best

Aletha

[low dose naltrexone] new to the group

hello,my name is camille. i have been diagnosed with ms for 4 years.then hypothyroid, etc. i have failed all injectables and i dont want to do tysabri (too scared) anyway i would like to hear from people using ldn and see how they are doing with it. i have read the ldn sites but i would like testimonials the good and the bad.thanks,Camille

[Guest guest]

Hi Camille,

The casehealth.com.au database contains health success stories

attributed to LDN.

There's also a free booklet on the website that contains 5 MS/LDN

health success stories (extracted from the database).

If you have any trouble let me know. I can email a copy.

Kind regards,

Cris

casehealth.com.au

>

> hello,

> my name is camille. i have been diagnosed with ms for 4 years.

> then hypothyroid, etc. i have failed all injectables and i dont want

to

> do tysabri (too scared) anyway i would like to hear from people using

> ldn and see how they are doing with it. i have read the ldn sites but

i

> would like testimonials the good and the bad.

>

> thanks,

> Camille

>

[Guest guest]

Hi Aletha,

by the way, do you save posts with experiences from those with Crohns / U.C.? Do you mind sending me a copy of those?

Thanks in advance :-) Ingrid

[low dose naltrexone] new to the group

hello,my name is camille. i have been diagnosed with ms for 4 years.then hypothyroid, etc. i have failed all injectables and i dont want to do tysabri (too scared) anyway i would like to hear from people using ldn and see how they are doing with it. i have read the ldn sites but i would like testimonials the good and the bad.thanks,Camille

Never miss a thing. Make your homepage.

[Guest guest]

Doing great on LDN for MS after about 5-6 months. I had an initial increase in symptoms(scary at first since I really didn't have symptoms to start with), but no sleeping problems. I have a slight decrease in appetite which took off some weight that I didn't need to lose(not a bad thing during the holidays!). Very happy that I found this group and LDN. Most days, I don't even know I have MS. Take care, and Happy New Year.

Never miss a thing. Make your homepage.

[Guest guest]

Congratulations, . Keep up the good work!With best wishes fo the New Year,Dudley Delany

dudley_delanyFrom: B

Sent: Monday, December 31, 2007 8:40 AM

low dose naltrexone

Subject: [low dose naltrexone] Re:new to the group

Doing great on LDN for MS after about 5-6 months. I had an initial increase in symptoms(scary at first since I really didn't have symptoms to start with), but no sleeping problems. I have a slight decrease in appetite which took off some weight that I didn't need to lose(not a bad thing during the holidays!). Very happy that I found this group and LDN. Most days, I don't even know I have MS. Take care, and Happy New Year.

Never miss a thing. Make your homepage.

[Guest guest]

Hi , nice to hear about your case.

I am on LDN for 25 days now an on MS for 14 years. Doing great for 2 weeks, the 3d week I had some mild very old symptoms. They become more and more mild as the days pass but it is still a bit scary since, like you, I didn't have symptoms to start with and my case is benign. Can you tell me how long it took you to get rid of these symptoms? I don't experience any loss of appetite or weight I don't need to lose (I am underweight) but I feel I need more hours of sleep, while being very active and experiencing no fatigue.

I am new to the group and happy with it.

Happy and Healthy New Year to you and to all the other folks.

Best wishes,

Katerina

[low dose naltrexone] Re:new to the group

Doing great on LDN for MS after about 5-6 months. I had an initial increase in symptoms(scary at first since I really didn't have symptoms to start with), but no sleeping problems. I have a slight decrease in appetite which took off some weight that I didn't need to lose(not a bad thing during the holidays!). Very happy that I found this group and LDN.

Most days, I don't even know I have MS.

Take care, and Happy New Year.

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[Guest guest]

Of Course Ingrid, Anything you need!!!

They are on their way.

My best

Aletha

[low dose naltrexone] new to the group

hello,my name is camille. i have been diagnosed with ms for 4 years.then hypothyroid, etc. i have failed all injectables and i dont want to do tysabri (too scared) anyway i would like to hear from people using ldn and see how they are doing with it. i have read the ldn sites but i would like testimonials the good and the bad.thanks,Camille

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