My daughter on NV

[Guest guest]

I'm really excited about what I'm seeing on NV for my daughter. The report I

just gave was for the neurology appointment. We got the iPad last November,

and have only been on NV for about 3 weeks with stops and starts and minute

doses. We started at 1+ scoops for the first 3 days, then she refused it for

a few days. But in the first few days, she began nonstop vocalizations all

day unless she was concentrating on something. She began to answer yes/no

questions immediately with a vocalization. Usually, we would have to repeat

the question, then prompt a yes or no sign, then get an answer. It was like

she no longer had to process the information to answer. It came out

immediately. She also became aggressive.

Then she got a stomach virus and could not keep anything down for a few

days, then I was able to get in 1/2 a scoop every day for a few days. Since

she initiated the sprinkles on the peanut butter balls on Tuesday, I've been

able to get 1+ scoops into her diet again. Yesterday, she had a bad day with

a lot of hissy fits, I guess you could say. I took her out shopping and she

threw some kind of a fit in every store. Usually the fit lasts until we have

a change of scenery, i.e., leave the store. This time she listened to me,

even though she was mad at not getting her way. I was fearful about the

neurology appointment today because as I mentioned, her behavior has been

less than good at her last few appointments. I was so relieved when she

calmed down again today. Again, I know the behavior calming is related to

the NV. Even her brothers (she has 4 of them!) have noticed that she is

" nicer. "

She has seen her speech therapist (ST) twice. The first time was after the

first week. At that point, the ST noticed that she was calmer, more

cooperative, and was able to produce more sounds. By the way, it's not that

my daughter's a total wild child. She gets into moods where she is very

resistant to doing anything she doesn't want to do, and that's what these

people are noticing. Fast forward to an ST visit two weeks later and the ST

said she is producing better sounds, more sounds, and is still cooperative.

Even though the neurologist today did not see many effects of NV (she only

sees my daughter 2x per year), the iPad experience proved how severely

apraxic she is. I can't wait for the next neurology visit in 6 months and

see what NV brings then. It's obvious the NV has helped my daughter with

processing by her much-improved response time, so I'm sure it will do much

in other areas.

B.

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> you really raise an excellent point about the importance of iPads

for not just augmentative communication, but to demonstrate cognitive and

receptive ability for a school age 5 and a half years old that is completely

100% nonverbal. I know you homeschool but for those that don't, the iPad could

be in today's world an even better way of keeping verbal disabled students from

being misclassified and all from being misdiagnosed with cognitive and/or

receptive impairments.

>

> In addition to the iPad's help, it's going to be so exciting to hear the NV

updates from you as the weeks and months go on as there are so few completely

nonverbal 5 year olds in the group to hear about further surges in your daughter

in all areas. Hopefully you will be able to get her up to the full dosage -but

awesome that you are noting improvements even at half dosage.

>

> And just to clarify here I mixed up 's 5 year old daughter with her

13 year old son when I spoke about the drawing improvement -I'm sure Steph will

share when she can -it's all good!!

>

> Congratulations! I'm sure we'll be hearing even more good news from you soon!

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