Re: Homepathic remedies for Apraxia--Sharon

February 16, 2011

Hi Sharon,

My daughter could have been at any point diagnosed ASD--PDDNOS---a Stanford SLP

who found her impossible to work with (SLP was trying to do picture pointing and

augumentive communication-even though I had explicitly told her I was there for

a second opinion for her apraxia diagnosis and my daughter was very angry at not

being able to just grab as she was used to and having to go through the whole

song and dance of pointing to object in plexi glass container, then to object

pictured--before she could actually get the object). This SLP was trained in

Augumentive Communication--told me my child will most likely never speak and I

better get with it to give her an alternate way to communicate and that signing

which we were doing was too complicated for these kids and the outside world

didn't sign but could look at and understand pictures--valid point there--but I

knew in my heart that my child could speak--if only I did my research and

identified what was

preventing her verbal language from developing. She was signign just fine and

she was able to vocalize--just not put sounds together to make words

consistently or at will. " Wa " for water --was a great victory--we worked on it

for months--even though bthe signing was piucked up on the spot--and it did

help--she was doing both at some point.

This most uninformed Stanford Luciel Packard Children's Hospital SLP also said

" There's a lot more wrong with your child than just speech " --and wrote that she

needs to be evaluated by the Stanford Development and Behavior Unit--where we

did go--but were none too impressed. They had nothign to add-- but at least they

did not push the ASD diagnosis and said apraxia was it--but were not sure of her

cognitive development at that point-- but then what could they really tell from

examining a nonverbal 3.5 year old for a few minutes--since msot of the time was

spent talking to the parents.

We also went to a neurologist who was equally stuck on giving me an ASD

diagnosis even though she didn't quite fit the profile socially (he kept telling

me about his ASD brother and everythign I was telling him to show she shows

signs that she is cognitively where she should be but just can't speak--he was

twisting around to prove that it was typical ASD behavior--that her unkany

ability to identify patterns and remember places or recognize them from a

totally different direction etc was just part of her diagnosis. I didn't buy

it. She is still my little GPS though, and this makes sense that if verbally you

cannot express things, other parts of the brain may develop more to help you

compensate, but once a doctor gets stuck on a certain diagnosis....it's hard to

change ntheir mind. So yes there's a lot of misdiagnosis with ASD--but in my

opinionm it really doesn't amtter--not for the argument that we really do not

have one in 68 bos ASD in CA--that they

ar ejust overdiagnosed. Well, that may be--but those kids who are misdiagnosed

and add to the ASD numbers are still NOT neurotypical kids--they still ahve

developmental issues to dela with--they will still need therpaies and special

ed, and they will most likely end up with soem learnign disability--and become

on of the 1 in 6 children with a learnign disability--which currently is the

data straight from the public school records. So 1 in 6 or really more liek 1

in 4 kids with a neurological problem--since this is what a learnign disability

is--it's way more than we ebver had when i was growing up-so this whole parnetal

awareness and overdiagnosis thign gets me very ticked off. it is a neurologicla

disorder continnum we're looking at--these ar enOT just brain abnormaiities--the

brain does NOT exist in a vacuum. We are dealing with an epidemic of metabolic,

immune and neurological problems caused by factors in the environment that were

not present to

this extent a few decades ago. No matter how you look at it and slice it--this

is the relaity.

My daughter really missed the ASD diagnsois because was was a lot more social

with peers than adults-- (who were always trying to get her to do things she

didn't want, so now wonder)-- and was very much wanting to communicate in

whatever ways she could--even when she was non-verbal--by dragging, pulling,

grunting, using non-sensivcal jargon and so on--she always got her point

across. But anyway--they would have happily given me an ASD diagnosis " for more

services at least " --they siad. I refused to take it--becuase more services

doesn't mean better services for her specific needs--whatever the diagnosis is.

ABA would have been a disaster for a child who it turns out was only apraxic

with the " neurological soft signs'--toe walking on and off, minor SID--low upper

trunk tone, etc. This is where the overlap with ASD is and of course many ASD

kids are also apraxic--but not treated becuase everyone just focuses on their

most obvious differneces--the lack of

social interest and stimming--which she never had --so I knew she wasn't

ASD--but not that it matters. She has other things --tics' you might call

them--nail biting, hair twirling--but these are socially acceptable--more so

than flapping hands or spinning wheels--but they are the same more or less in my

book--an need for sensory experiences that most of us do not have--not to the

same degree anyway.

So Yes, for us the carnatine helpped--and the Metametrix fatty acid test

explains why--she has obvious fatty acid malabsorptions at cellular

level--becuase there is a lot of free floating fatty aicds in her

blood--basically they oxidize and turn toxic because the cells cannot absorb and

use them--so we've had to tweak the oils a little--more EPA, more GLA

especially---and both L Carnitine and Acetyl carnitine as they serve different

functions. But the most spectacular difference in her case was made by the MB12

shots--that was the turning point in her attention/focus and speech. that was

when she began putting the sounds together consistently to form words. before

she could only do it sporadically--almost randomly--so she had no control over

her speech. Looking back--many of her tests-the fatty acids in particular

suggested clearly that she was deficient in b12 and Folate--we added both--workd

miraculously for her---which suggests her methylation

pathways were severly impaired.

So yes, every little bit helped-- the Co Q10, the extra E and D--she was and

still is severly dficient in D--even with supplementaiton she barely makes it to

the very bottom of the normal range---many of ther tests--the ones that are more

commonly given by pediatricians liek the CBC--and others were not off by

much--so if you just look at each result it-s more or less within normal

range--but if you look at the whole clinical profile and at the results as a

cluster-knowing what the results of a child with that clinicla profile look like

and why--you begin to understand that even minor differences in certain areas

mean somethign specific that she is malabsorbing. So her tests are pretty

typical of a gluten intolerant person---and all the supplemnts that help

optimize metabolic and neruologicla functioning have helpped her--with specific

things we are still trying--but we've got a good protocol now--we'll only tweak

it as needed or if future tests show

soemthign different.

The therapies also helped--not taking any credit away from them at all--just

saying that without the biomed interventions and soem homeopathic ones-my child

may not have succeeded in building a consistent verbal communication system--no

matter how much therapy she goot--everythign she was finally being able to say

in therapy with a lot of PROMPT--was NOT carrying over into her life--she simply

hd no control over her speech aparatus--and was very discouraged. eye contact

just wasn't giving her the feedback that it gives Neurotypical kids--so she

wasn't engaging in it--that was the thing that almost got her the ASd diagnosis.

now a good apraxia ASD expert would have never made that mistake-but who says

neurologists or all speech therapists know the difference. Definately

pediatricians do not-they have virtually no training in speech--in a book I

bought to prepare for my daughter's neurological examination--and it was called

just that pediatric Neurological

Examinations--because I wanted to know what to expect---there were only a few

pages that covered speech--and mostly in the context of other genetic

syndromes---apraxia wasn't even mentioned as a possibility. Everythign

else--vision, hearing, movement reflexes etc was covered in ggreat detail--but

not speech because speech in this population is pretty much the exclusive domain

of Speech Pathologists and even they do not all get the training needed to

assess and treat an apraxic child.

So we've coem a long way Sharon--i feel so blessed--but we have a while to go as

now we are still dealing with sentance structure and her ability to put into

words what she thinks, or saw or experienced, and to sound intellegible while

motor planning that; also reading and writing are challenges--we suspect

additional visual language processing problems--a mild form of Dyslexia--ewhich

means that just becuase she cna memorize the short words and read them well she

may not get identified until 3rd or 5th grade if I leave it up to the schol

system--and thsi would be really bad for her developing a love of books and

learnign--i have to pretty much take that on myself--to rule out or diagnose and

address any dyslexic tendencies. there are about 9 different types of dyslexia

BTW--and different degrees within--so the schools do NOT typically catch or

address these problems until later grades and not even then because by then the

kids develop nsuch a poor

attitude toward school that they are labeled lazyy, trouble makers etc.

Anyway--there's a lot of work ahead. but without biomed--i fear we'd still be

grasping straws trying to find the ideal therapy or therapist to work with her

and make a difference. We've been lucky to find that too---we have 3 great

therapists we go to--and each has a different strength and approach--but

agian--optimizing neurological functioning via diet/supplements has been the

key--i can't imagine where we'd be if we hadn't stumbled across the biomed

approach--sort of accidentally becuase we were trying to resolve her scalp

psoriasis and eczemas so we sought a homeopathic/biomed trained pediatrician-who

opened our eyes to the reality that all these autoimmune/neurological/metabolic

issues are connected.

i feel so blessed to have found this--that i really try hard to tell other

parents too--I know soem just can't go beyond what their pediatrician tells

them--but I urge all parents of special needs kids to keep an open mind--we owe

it to them to understand what makes it into clinical practice--and it takes

decades or more for the current neuroscience and microbiology research to reach

regualr pediatricians--even if they read about it--thir job is to follow

guidelines not try soemthign they read about in neuroscience journals even if

they are NIH research studies or wahtever. So yes, decades.... and for that

research to even begin to get soem clinical applications some drug manufacturer

must get a patent on soemthing and push it into the guidelines--but see biomed

is a totally new approach--highly individualized and since no patented products

are used --NV and others being an exception--it is very hard for drug

manufacturers to capitalize on it. And

again--it is all aboout diet and supplements--none of these--even when patneted

and not exactly cheap, bring the truck load of money that drugs do--so

pediatricians are really at a great disadvantage--they may never really learn

the truth, unelss they take it upon themselves to step outside the mainstream

box and get additional biomed/homeopathic training to better serve their

patients.

More and more of them are doing this--but it is soemthing that has to come from

within---because after all the schooling doctors do and all the debt they have

--telling them they got it wrong and need to brush up and get extra training on

their own--and maybe not follow current APA guidelness in some respects--and

risk mallpractice lawsuits for prescribing things that are not in the APA

guidleines etc etc...you see that most doctors are not too keen on taking all

this biomed and natural stuff on. They are just busy running their practice and

they can't be bothered with taking on all the extra training and

responsibilities that come with doing things different than APA guidelines. The

system is very constrained and while it claims to do this for protecting the

patients--it is in fact geared to protect drug manufacturer's interests and

profits--and the doctors do not have much choice in the matter if they want to

keep on practicing without hassles.

It is all highly politicized and the doctors who are brave enough to take this

on have my full respect--even if they don't aleways get it right-- and that's

the other problem--there are nto absolute truths here, or anywhere for that

matter--mainstream medicne doesn't ahve the absolute truths by any means--but

they act like they do and they ahve the so called " ressearch backing " ---but

independent researchers ahve often proven that the drug companies carry out

bogus research and very little of their " findings " can actually be taken for what

it is--Look at the Viox incident and amny other swhere they knew abotu the

negative side effects, decided to hide them, paid a famous doctor to write his

name of the bogus research, and all was well until the people started dropping

like flies from hear attacks and stroke--and when it all cam eout they tried to

cover it up once again--and this happens repeatedly with many drugs-and would

happen even more if the patients

were monitored longer. You get my point and I probablyy do not even need to

make it.

But this biomed is a new field and in soem respects it is no different than the

mainstream field where doctors are wowed by the drug manufacturer's marketing

and " carefully planned to prove their point " -kind of research--and so the DANs

are wowed by supplement manufacturers and their marketing and selective

research--this is why parents need to stay on top of it too--it is all trial and

error for the most part--but then so are the drugs doctors recommend- they try

this--and if the child's reaction is to strong--they lower the dose or try

soemthign else----it's just that they have the pharmaceutical in house research

that gets pushed in to the APA guidleines to protect them if the child's health

deteriorates or worse.

But that's another topic. Its just that it exaplins why homeopathy and biomed

interventions do not have more popularity--why regular pediatricians are

clueless about these things--and why parents need to learn all they can before

trusting any doctor --the parents realy need to accept full responsibility and

be in control--the doctors are only there for guidence.

Sorry, I'm long winded soemtinmes--but it helps to think how far we've come and

to truly understand why. i am really hoping other parents can keep an open mind

and trust their instincts and thei ability to research this medicla treatment

aspect the way they do the educational and the therapeutic one--this should NOT

just be left up to the pediatrician/neurologist--their trainitng in this area is

extremly limited and it just so happens that what reaches the brain in terms of

nutrients is the most important piece of neurological development--and the

educational and therapeutic improvements will follow if the brain is optimized

to function as normal as possible for that child.

Best of health,

Elena

From: Sharon <ssmith0306@...>

Subject: Re: [ ] Homepathic remedies for Apraxia

" " < >

Date: Wednesday, February 16, 2011, 7:55 AM

Elena,

Thanks for your story. We also use homeopathy and I love hearing and seeing the

non verbal kids talking. My son 4.2 is also non verbal however now we are

focusing on apraxia that a year ago we were still being told it was autism.

Such huge steps have been made and now apraxia is our main issue.

Off topic did carnitine show a lot of improvement in the speech?

------------------------------------

February 16, 2011

Great e-mail Elena

Â

Thanks,

Demi

From: Sharon <ssmith0306@...>

Subject: Re: [ ] Homepathic remedies for Apraxia

" " < >

Date: Wednesday, February 16, 2011, 7:55 AM

Elena,

Thanks for your story.Â We also use homeopathy and I love hearing and seeing

the non verbal kids talking. My son 4.2 is also non verbal however now we are

focusing on apraxia that a year ago we were still being told it was autism.Â

Such huge steps have been made and now apraxia is our main issue.

Off topic did carnitine show a lot of improvement in the speech?

------------------------------------

February 16, 2011

Hi Elena, our journeys have been similar in many ways. I'm sure that there

are thousands of Moms out there trying to figure this out for our kids. You

are committed as I am -- and that is the best hope of all for your daughter.

God Bless and keep up the good work!

On Wed, Feb 16, 2011 at 11:16 AM, Elena Danaila <edanaila@...> wrote:

>

> Hi Sharon,

>

> My daughter could have been at any point diagnosed ASD--PDDNOS---a Stanford

> SLP who found her impossible to work with (SLP was trying to do picture

> pointing and augumentive communication-even though I had explicitly told her

> I was there for a second opinion for her apraxia diagnosis and my daughter

> was very angry at not being able to just grab as she was used to and having

> to go through the whole song and dance of pointing to object in plexi glass

> container, then to object pictured--before she could actually get the

> object). This SLP was trained in Augumentive Communication--told me my child

> will most likely never speak and I better get with it to give her an

> alternate way to communicate and that signing which we were doing was too

> complicated for these kids and the outside world didn't sign but could look

> at and understand pictures--valid point there--but I knew in my heart that

> my child could speak--if only I did my research and identified what was

> preventing her verbal language from developing. She was signign just fine

> and she was able to vocalize--just not put sounds together to make words

> consistently or at will. " Wa " for water --was a great victory--we worked on

> it for months--even though bthe signing was piucked up on the spot--and it

> did help--she was doing both at some point.

>

> This most uninformed Stanford Luciel Packard Children's Hospital SLP also

> said " There's a lot more wrong with your child than just speech " --and wrote

> that she needs to be evaluated by the Stanford Development and Behavior

> Unit--where we did go--but were none too impressed. They had nothign to

> add-- but at least they did not push the ASD diagnosis and said apraxia was

> it--but were not sure of her cognitive development at that point-- but then

> what could they really tell from examining a nonverbal 3.5 year old for a

> few minutes--since msot of the time was spent talking to the parents.

>

> We also went to a neurologist who was equally stuck on giving me an ASD

> diagnosis even though she didn't quite fit the profile socially (he kept

> telling me about his ASD brother and everythign I was telling him to show

> she shows signs that she is cognitively where she should be but just can't

> speak--he was twisting around to prove that it was typical ASD

> behavior--that her unkany ability to identify patterns and remember places

> or recognize them from a totally different direction etc was just part of

> her diagnosis. I didn't buy it. She is still my little GPS though, and this

> makes sense that if verbally you cannot express things, other parts of the

> brain may develop more to help you compensate, but once a doctor gets stuck

> on a certain diagnosis....it's hard to change ntheir mind. So yes there's a

> lot of misdiagnosis with ASD--but in my opinionm it really doesn't

> amtter--not for the argument that we really do not have one in 68 bos ASD in

> CA--that they

> ar ejust overdiagnosed. Well, that may be--but those kids who are

> misdiagnosed and add to the ASD numbers are still NOT neurotypical

> kids--they still ahve developmental issues to dela with--they will still

> need therpaies and special ed, and they will most likely end up with soem

> learnign disability--and become on of the 1 in 6 children with a learnign

> disability--which currently is the data straight from the public school

> records. So 1 in 6 or really more liek 1 in 4 kids with a neurological

> problem--since this is what a learnign disability is--it's way more than we

> ebver had when i was growing up-so this whole parnetal awareness and

> overdiagnosis thign gets me very ticked off. it is a neurologicla disorder

> continnum we're looking at--these ar enOT just brain abnormaiities--the

> brain does NOT exist in a vacuum. We are dealing with an epidemic of

> metabolic, immune and neurological problems caused by factors in the

> environment that were not present to

> this extent a few decades ago. No matter how you look at it and slice

> it--this is the relaity.

>

> My daughter really missed the ASD diagnsois because was was a lot more

> social with peers than adults-- (who were always trying to get her to do

> things she didn't want, so now wonder)-- and was very much wanting to

> communicate in whatever ways she could--even when she was non-verbal--by

> dragging, pulling, grunting, using non-sensivcal jargon and so on--she

> always got her point across. But anyway--they would have happily given me

> an ASD diagnosis " for more services at least " --they siad. I refused to take

> it--becuase more services doesn't mean better services for her specific

> needs--whatever the diagnosis is. ABA would have been a disaster for a child

> who it turns out was only apraxic with the " neurological soft signs'--toe

> walking on and off, minor SID--low upper trunk tone, etc. This is where the

> overlap with ASD is and of course many ASD kids are also apraxic--but not

> treated becuase everyone just focuses on their most obvious differneces--the

> lack of

> social interest and stimming--which she never had --so I knew she wasn't

> ASD--but not that it matters. She has other things --tics' you might call

> them--nail biting, hair twirling--but these are socially acceptable--more so

> than flapping hands or spinning wheels--but they are the same more or less

> in my book--an need for sensory experiences that most of us do not have--not

> to the same degree anyway.

>

> So Yes, for us the carnatine helpped--and the Metametrix fatty acid test

> explains why--she has obvious fatty acid malabsorptions at cellular

> level--becuase there is a lot of free floating fatty aicds in her

> blood--basically they oxidize and turn toxic because the cells cannot absorb

> and use them--so we've had to tweak the oils a little--more EPA, more GLA

> especially---and both L Carnitine and Acetyl carnitine as they serve

> different functions. But the most spectacular difference in her case was

> made by the MB12 shots--that was the turning point in her attention/focus

> and speech. that was when she began putting the sounds together consistently

> to form words. before she could only do it sporadically--almost randomly--so

> she had no control over her speech. Looking back--many of her tests-the

> fatty acids in particular suggested clearly that she was deficient in b12

> and Folate--we added both--workd miraculously for her---which suggests her

> methylation

> pathways were severly impaired.

>

> So yes, every little bit helped-- the Co Q10, the extra E and D--she was

> and still is severly dficient in D--even with supplementaiton she barely

> makes it to the very bottom of the normal range---many of ther tests--the

> ones that are more commonly given by pediatricians liek the CBC--and others

> were not off by much--so if you just look at each result it-s more or less

> within normal range--but if you look at the whole clinical profile and at

> the results as a cluster-knowing what the results of a child with that

> clinicla profile look like and why--you begin to understand that even minor

> differences in certain areas mean somethign specific that she is

> malabsorbing. So her tests are pretty typical of a gluten intolerant

> person---and all the supplemnts that help optimize metabolic and

> neruologicla functioning have helpped her--with specific things we are still

> trying--but we've got a good protocol now--we'll only tweak it as needed or

> if future tests show

> soemthign different.

>

> The therapies also helped--not taking any credit away from them at

> all--just saying that without the biomed interventions and soem homeopathic

> ones-my child may not have succeeded in building a consistent verbal

> communication system--no matter how much therapy she goot--everythign she

> was finally being able to say in therapy with a lot of PROMPT--was NOT

> carrying over into her life--she simply hd no control over her speech

> aparatus--and was very discouraged. eye contact just wasn't giving her the

> feedback that it gives Neurotypical kids--so she wasn't engaging in it--that

> was the thing that almost got her the ASd diagnosis. now a good apraxia ASD

> expert would have never made that mistake-but who says neurologists or all

> speech therapists know the difference. Definately pediatricians do not-they

> have virtually no training in speech--in a book I bought to prepare for my

> daughter's neurological examination--and it was called just that pediatric

> Neurological

> Examinations--because I wanted to know what to expect---there were only a

> few pages that covered speech--and mostly in the context of other genetic

> syndromes---apraxia wasn't even mentioned as a possibility. Everythign

> else--vision, hearing, movement reflexes etc was covered in ggreat

> detail--but not speech because speech in this population is pretty much the

> exclusive domain of Speech Pathologists and even they do not all get the

> training needed to assess and treat an apraxic child.

>

> So we've coem a long way Sharon--i feel so blessed--but we have a while to

> go as now we are still dealing with sentance structure and her ability to

> put into words what she thinks, or saw or experienced, and to sound

> intellegible while motor planning that; also reading and writing are

> challenges--we suspect additional visual language processing problems--a

> mild form of Dyslexia--ewhich means that just becuase she cna memorize the

> short words and read them well she may not get identified until 3rd or 5th

> grade if I leave it up to the schol system--and thsi would be really bad for

> her developing a love of books and learnign--i have to pretty much take that

> on myself--to rule out or diagnose and address any dyslexic tendencies.

> there are about 9 different types of dyslexia BTW--and different degrees

> within--so the schools do NOT typically catch or address these problems

> until later grades and not even then because by then the kids develop nsuch

> a poor

> attitude toward school that they are labeled lazyy, trouble makers etc.

>

> Anyway--there's a lot of work ahead. but without biomed--i fear we'd still

> be grasping straws trying to find the ideal therapy or therapist to work

> with her and make a difference. We've been lucky to find that too---we have

> 3 great therapists we go to--and each has a different strength and

> approach--but agian--optimizing neurological functioning via

> diet/supplements has been the key--i can't imagine where we'd be if we

> hadn't stumbled across the biomed approach--sort of accidentally becuase we

> were trying to resolve her scalp psoriasis and eczemas so we sought a

> homeopathic/biomed trained pediatrician-who opened our eyes to the reality

> that all these autoimmune/neurological/metabolic issues are connected.

>

> i feel so blessed to have found this--that i really try hard to tell other

> parents too--I know soem just can't go beyond what their pediatrician tells

> them--but I urge all parents of special needs kids to keep an open mind--we

> owe it to them to understand what makes it into clinical practice--and it

> takes decades or more for the current neuroscience and microbiology research

> to reach regualr pediatricians--even if they read about it--thir job is to

> follow guidelines not try soemthign they read about in neuroscience journals

> even if they are NIH research studies or wahtever. So yes, decades.... and

> for that research to even begin to get soem clinical applications some drug

> manufacturer must get a patent on soemthing and push it into the

> guidelines--but see biomed is a totally new approach--highly individualized

> and since no patented products are used --NV and others being an

> exception--it is very hard for drug manufacturers to capitalize on it. And

> again--it is all aboout diet and supplements--none of these--even when

> patneted and not exactly cheap, bring the truck load of money that drugs

> do--so pediatricians are really at a great disadvantage--they may never

> really learn the truth, unelss they take it upon themselves to step outside

> the mainstream box and get additional biomed/homeopathic training to better

> serve their patients.

>

> More and more of them are doing this--but it is soemthing that has to come

> from within---because after all the schooling doctors do and all the debt

> they have --telling them they got it wrong and need to brush up and get

> extra training on their own--and maybe not follow current APA guidelness in

> some respects--and risk mallpractice lawsuits for prescribing things that

> are not in the APA guidleines etc etc...you see that most doctors are not

> too keen on taking all this biomed and natural stuff on. They are just busy

> running their practice and they can't be bothered with taking on all the

> extra training and responsibilities that come with doing things different

> than APA guidelines. The system is very constrained and while it claims to

> do this for protecting the patients--it is in fact geared to protect drug

> manufacturer's interests and profits--and the doctors do not have much

> choice in the matter if they want to keep on practicing without hassles.

>

> It is all highly politicized and the doctors who are brave enough to take

> this on have my full respect--even if they don't aleways get it right-- and

> that's the other problem--there are nto absolute truths here, or anywhere

> for that matter--mainstream medicne doesn't ahve the absolute truths by any

> means--but they act like they do and they ahve the so called " ressearch

> backing " ---but independent researchers ahve often proven that the drug

> companies carry out bogus research and very little of their " findings " can

> actually be taken for what it is--Look at the Viox incident and amny other

> swhere they knew abotu the negative side effects, decided to hide them, paid

> a famous doctor to write his name of the bogus research, and all was well

> until the people started dropping like flies from hear attacks and

> stroke--and when it all cam eout they tried to cover it up once again--and

> this happens repeatedly with many drugs-and would happen even more if the

> patients

> were monitored longer. You get my point and I probablyy do not even need

> to make it.

>

> But this biomed is a new field and in soem respects it is no different than

> the mainstream field where doctors are wowed by the drug manufacturer's

> marketing and " carefully planned to prove their point " -kind of research--and

> so the DANs are wowed by supplement manufacturers and their marketing and

> selective research--this is why parents need to stay on top of it too--it is

> all trial and error for the most part--but then so are the drugs doctors

> recommend- they try this--and if the child's reaction is to strong--they

> lower the dose or try soemthign else----it's just that they have the

> pharmaceutical in house research that gets pushed in to the APA guidleines

> to protect them if the child's health deteriorates or worse.

>

> But that's another topic. Its just that it exaplins why homeopathy and

> biomed interventions do not have more popularity--why regular pediatricians

> are clueless about these things--and why parents need to learn all they can

> before trusting any doctor --the parents realy need to accept full

> responsibility and be in control--the doctors are only there for guidence.

>

> Sorry, I'm long winded soemtinmes--but it helps to think how far we've come

> and to truly understand why. i am really hoping other parents can keep an

> open mind and trust their instincts and thei ability to research this

> medicla treatment aspect the way they do the educational and the therapeutic

> one--this should NOT just be left up to the pediatrician/neurologist--their

> trainitng in this area is extremly limited and it just so happens that what

> reaches the brain in terms of nutrients is the most important piece of

> neurological development--and the educational and therapeutic improvements

> will follow if the brain is optimized to function as normal as possible for

> that child.

>

> Best of health,

> Elena

>

> From: Sharon <ssmith0306@...>

> Subject: Re: [ ] Homepathic remedies for Apraxia

> " " <

> >

> Date: Wednesday, February 16, 2011, 7:55 AM

>

> Elena,

>

> Thanks for your story. We also use homeopathy and I love hearing and

> seeing the non verbal kids talking. My son 4.2 is also non verbal however

> now we are focusing on apraxia that a year ago we were still being told it

> was autism. Such huge steps have been made and now apraxia is our main

> issue.

>

> Off topic did carnitine show a lot of improvement in the speech?

>

> ------------------------------------

>

February 16, 2011

Great email regarding ASD-PPS-NOS wow so much valuable information, I really

appreciate it. Thank you

From: Elena Danaila <edanaila@...>

Subject: Re: [ ] Homepathic remedies for Apraxia--Sharon

Date: Wednesday, February 16, 2011, 11:16 AM