My NV story

[Guest guest]

Hi All,

It has been a long time since I have posted. I felt that I must post now I a

lot has changed.

About a year ago I started my son on NV, he did great and was having major gains

in speech, digestion and cognition. About 2 weeks in I got an allergy report

back, it said that my son was allergic to whey. So, I took him off of NV. The

gains left us and we were back to the tedious grind stone.

I have tried everything. My little buddy is not autistic but did have some

autistic like quirks. I have done homeopathy, hyperbarics, methyl B12

injections, scd diet, everything!

We have a new DAN doc who wanted us to do a MORA allergy test. It is kind of

like a muscle test for those familiar. The lady who preformed it said I could

bring some individual items that she could test on him. I brought the NV. She

tested 3 time as she couldn't beleive it. He had a strong reaction to whey but

not NV.

I put him back on that day. That was 2 1/2 weeks ago. I am so mad that I ever

took hoim off of it!

He is doing amazing. We have crossed 3 goals off the list this week. He can

now jump with 2 feet off the bottom stair, he can kick a soccer ball and he

finger painted! (huge sensory thing, could not stand to have messy fingers)

I had an IPP meeting on Friday and all his therapists agreed that the last 2

weeks have been huge. I didn't share with them About NV. From a speech stand

point, much more vocalizations. He had been putting 3 words together befor, now

he is now doing this without prompting. He is like a little parrot as well,

trying to repeat things that I say.

The other thing I noticed was facial expression changes. He smirked the other

day? He has always had the big expressions, the big smile, the big pout but

nothing in between. OMG, as I am writing this I just remembered, we started

potty training on Monday. No problems. He is 3.5 years old. He is not great

at self initiating, but all thing considered we are pleased.

I am just so excited. He is really appearing more and more like a typical

little boy. Some things are hard to put into words, he is just different.

When we would go to his gym class before he would look around in amazement and

not focus on anything,I took him yesterday and he focused on what ever the task

was. No gazing around. He even tried to talk to another little boy!

I am so thankful for this product. I am looking forward to future gains. I am

hopeful again.

For those who haven't yet tried it, just try. You never know? For those who

tried it the past and gave up, try it again? I really feel like there is some

amazing healing properties to this product!

Thanks,

Anni

(from almost one year ago to date)

Wed Feb 10, 2010 7:16 pm

Re: OMG!!!!!

Anni thank you SO MUCH for sharing here! I also wanted to add the other things

that you shared with me as I believe all of us need to start keeping a journal

as the surges appear to be in specific areas that we are all seeing (I'll list

them below) The points you made to me that really stuck with me

1. Your Prompt therapist who is normally " quiet and controlled " not only called

you in a way that she never did before -but that she had " tears in her eyes "

when she told you!!!!

2. When I was talking to you about the increase in sense of humor being

reported you told me about how your son was crawling on your back laughing or

something but had never done that before due to his motor planning (please share

here as I probably wrote it wrong what he did!)

3. Your husband who was a skeptic (which seems to be par for the course for

most of us to start huh??) said he sees the change in him!

I believe what we need to do - what I'm going to try to start doing -is

compiling the results we are all seeing because I was told that there may be a

interest to validate what we are seeing with research...I mean we have Dr.

Chopra and Dr. Simon and all who I'm sure are just as shocked as anyone else

about what is going on. There has to be a logical explanation as to why this is

working...and so quickly. I mean a day to a few days? That's crazy right?

Crazy in a good way I mean. Anyway please everyone start sharing child's age

-diagnosis with your reports. I can put everyone together with first name and

first initial of last name and let me know if it's OK if any of the doctors

wanted to contact you.

Areas to look for surges in (in most cases multiple areas at once) Please keep

a journal to report surges in these or any other areas I may have forgotten or

missed.

SPEECH articulation, complexity and sophistication of sentence structure

LANGUAGE better understanding of written and spoken word, development of better

reading and writing skills

ACADEMICS/LEARNING reported surges in all areas of school

FINE AND GROSS MOTOR SKILLS also multi tasking

SENSE OF HUMOR both catching subtle humor and wanting to make others laugh

-joking around

AWARENESS OF SURROUNDINGS (for autism) reported following gaze and more

interactions

FACIAL EXPRESSIONS (for those with oral apraxia) instead of blank stares when

not engaged in conversation (non verbal expressions)

FOCUS on task, more willing to listen and try

MULTI TASKING (for apraxia as this is something typically not done or done well)

SOCIAL wanting to participate with others via play and communication

MOOD reported seems " happier " for a number

DEVELOPMENTAL CATCHING UP for those that never went through stages -reportedly

going through them for the first time.

http://pursuitofresearch.org/pursuit-of-research

Please fill out the survey at http://www.pursuitofresearch.org

Also please report for anyone who ISN'T seeing any surges. How many days -age

of child, diagnosis and what dosage. Also please report any negative you are

seeing (so far we know " hyper " and in one case the child had a rash on belly but

parent discontinued after 2 days so we don't know what from) I'd say to at

least give product one week to work -but most of us do notice surges in a few

days.

But please share " no change in any area " results too -the number of positive

reports seems too high -there has to be more it doesn't work for. And....please

share the positive you are seeing even if it's " only " a few days -I know many of

you don't feel comfortable as it's so new and all want to wait a few weeks prior

- but this does appear to be working in some ways in just days - and please

continue to post updates. For example I keep noticing new things in my son

Tanner to this day- and will continue to share that as well. You can write

" it's only been 2 days and I don't know if this is from the nutriiveda or not

but for the first time my son... " If we keep hearing that (as we are here and

as I am even more so in private off list or on the phone) we know as a group for

sure this works in a day or so -but for all you waiting to share -you may forget

those first little signs. We can get this validated I'm sure much easier than

just about anything else due to who is behind it.

Anni again thanks for sharing and please do continue to update all of us

and.....CONGRATULATIONS!!!!!

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