Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 In a message dated 12/08/2006 04:19:41 GMT Daylight Time, mysuperteach@... writes: Dear listmates,Below is an update on our recent HBOT experience. Once again, I'd like to say that I'm glad to be back (and happy to have findished wading through hundreds of posts I missed: is the pace picking up here or is it just me?)HBOT update (written August 8, 2006):We did a total of 42 one hour dives at 100% oxygen and 1.5 ATA over a period of 4.5 weeks. For 4 of the 5 days of the week, we would dive twice. On Wednesdays, we dove only once. My son, who is 3.5, hated the hood. With one certain technician, who listened to my instructions and was extraordinarily attentive, placing and removing the hood went quite smoothly. This wasn't always the case with the other technicians, who were less understanding of the needs of an autistic child. This part was frustrating, but once my son was in the chamber, he was generally calm and would focus on the movie playing outside the chamber.I chose to chelate during HBOT. Urine and fecal tests showed pretty impressive pulls. My son weighs 35 pounds and I was dosing 12 mg of ALA and 8 mg of DMSA every 3 hours. With that, we pulled aluminum and nickel in the red; platinum, antimony, and lead in the yellow; cadmium and bismuth in the very high green. Lead, at 18, was almost 7 times higher than any other pull in the past. Prior to HBOT we'd chelated about 37 rounds. I also chose to run a very low dose viral protocol during HBOT. I was using only 2 Virastop a day and 2 scoops of Lauricidin a day. For about a 4 day period, my son had what appeared to be a viral rash around his mouth. The changes we saw were subtle. The first noticeable change was improved sleep. My son began to sleep deeply and more. So did I, for that matter. At the beginning, it wasn't uncommon for him to fall asleep in the carseat after a dive, even if it was much too early for his regular nap. We also saw improvements in his bowels; however, these improvements would not last. Bowels would be good Wednesday through Saturday, but the struggles would start again Sunday and generally last until Tuesday. As I write this, it has been 3 days since our last dive and the same problems have returned. This has been an ongoing struggle for us. Our earlier viral protocol helped, as have visits to the chiropractor, but nothing helps permanently. My son seems to have had a bit of a growth spurt. He hasn't put on weight, but grew a bit more than ½ an inch during the four weeks of HBOT. Even his therapists commented on how much bigger he was getting. We had one sudden and amazing day of language around dive 30. For the first time, my son chose to carry around a soft toy animal and when I told him it was a giraffe (a word he used to know but would use only when playing computer) he looked at it carefully and said "guvaff". He then said it again, less tentatively, and ran to me for a hug, which seemed to communicate his understanding of what had just transpired. It was as if he really understood for the first time that he could label something. That same day he uttered about 7 or 8 other words. This burst lasted only the one day, but we are seeing some little bit of language each day now, including a sentence: "Car……go" when he wanted to leave a park. Also, today, he signed his first sign, something we've been working on since a couple weeks before HBOT. "More" was the sign. His receptive language seems improved also, and he can understand a couple simple signs like "shoes" and "snack".We've seen more affection towards us and today he hugged his SLP for the first time. We've also seen much greater ability to deal with frustration and a few new signs of humour. Therapy sessions with the SLP and OT, which started just a few weeks prior to HBOT, are going very well—a credit to the therapists and HBOT. I was more nervous about starting HBOT than any other intervention I've tried. Something about having to trust someone else, I think. But, I am very happy that we chose to go ahead with it. As all parents, we were obviously hoping to see miracles but actually got something more commonplace: subtle but very inspiring and MUCH appreciated changes that we hope will continue. I intend to start HBOT again in early September (40 dives over 4 weeks) in an effort to build on what we've seen so far. I plan to chelate again as I did before (3.5 on/3.5 off) and run a low dose viral protocol for the duration, as these two interventions seem to be appropriate for my son during HBOT. Added August 11: We continue to see small improvements. Today my son helped dh put a tricyle away. This has never happened before. We're also seeing some pretty good face contact and a greater awareness of hand gestures. I should mention that we're on a kind of supplement break for now, awaiting ION test results. I'm not sure how this drastic reduction in supping is impacting things, other than making life much easier :-)Anita Dear listmates, Below is an update on our recent HBOT experience. Once again, I'd like to say that I'm glad to be back (and happy to have findished wading through hundreds of posts I missed: is the pace picking up here or is it just me?) HBOT update (written August 8, 2006): We did a total of 42 one hour dives at 100% oxygen and 1.5 ATA over a period of 4.5 weeks. For 4 of the 5 days of the week, we would dive twice. On Wednesdays, we dove only once. My son, who is 3.5, hated the hood. With one certain technician, who listened to my instructions and was extraordinarily attentive, placing and removing the hood went quite smoothly. This wasn't always the case with the other technicians, who were less understanding of the needs of an autistic child. This part was frustrating, but once my son was in the chamber, he was generally calm and would focus on the movie playing outside the chamber. I chose to chelate during HBOT. Urine and fecal tests showed pretty impressive pulls. My son weighs 35 pounds and I was dosing 12 mg of ALA and 8 mg of DMSA every 3 hours. With that, we pulled aluminum and nickel in the red; platinum, antimony, and lead in the yellow; cadmium and bismuth in the very high green. Lead, at 18, was almost 7 times higher than any other pull in the past. Prior to HBOT we'd chelated about 37 rounds. I also chose to run a very low dose viral protocol during HBOT. I was using only 2 Virastop a day and 2 scoops of Lauricidin a day. For about a 4 day period, my son had what appeared to be a viral rash around his mouth. The changes we saw were subtle. The first noticeable change was improved sleep. My son began to sleep deeply and more. So did I, for that matter. At the beginning, it wasn't uncommon for him to fall asleep in the carseat after a dive, even if it was much too early for his regular nap. We also saw improvements in his bowels; however, these improvements would not last. Bowels would be good Wednesday through Saturday, but the struggles would start again Sunday and generally last until Tuesday. As I write this, it has been 3 days since our last dive and the same problems have returned. This has been an ongoing struggle for us. Our earlier viral protocol helped, as have visits to the chiropractor, but nothing helps permanently. My son seems to have had a bit of a growth spurt. He hasn't put on weight, but grew a bit more than ½ an inch during the four weeks of HBOT. Even his therapists commented on how much bigger he was getting. We had one sudden and amazing day of language around dive 30. For the first time, my son chose to carry around a soft toy animal and when I told him it was a giraffe (a word he used to know but would use only when playing computer) he looked at it carefully and said " guvaff " . He then said it again, less tentatively, and ran to me for a hug, which seemed to communicate his understanding of what had just transpired. It was as if he really understood for the first time that he could label something. That same day he uttered about 7 or 8 other words. This burst lasted only the one day, but we are seeing some little bit of language each day now, including a sentence: " Car……go " when he wanted to leave a park. Also, today, he signed his first sign, something we've been working on since a couple weeks before HBOT. " More " was the sign. His receptive language seems improved also, and he can understand a couple simple signs like " shoes " and " snack " . We've seen more affection towards us and today he hugged his SLP for the first time. We've also seen much greater ability to deal with frustration and a few new signs of humour. Therapy sessions with the SLP and OT, which started just a few weeks prior to HBOT, are going very well—a credit to the therapists and HBOT. I was more nervous about starting HBOT than any other intervention I've tried. Something about having to trust someone else, I think. But, I am very happy that we chose to go ahead with it. As all parents, we were obviously hoping to see miracles but actually got something more commonplace: subtle but very inspiring and MUCH appreciated changes that we hope will continue. I intend to start HBOT again in early September (40 dives over 4 weeks) in an effort to build on what we've seen so far. I plan to chelate again as I did before (3.5 on/3.5 off) and run a low dose viral protocol for the duration, as these two interventions seem to be appropriate for my son during HBOT. Added August 11: We continue to see small improvements. Today my son helped dh put a tricyle away. This has never happened before. We're also seeing some pretty good face contact and a greater awareness of hand gestures. I should mention that we're on a kind of supplement break for now, awaiting ION test results. I'm not sure how this drastic reduction in supping is impacting things, other than making life much easier :-) Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 HI, We have now had 12hours of hbot and things are going great. Jack is such a little trooper, he doesn't mind being in the chamber at all. We are starting to notice a few small changes. Usually it isn't until after 20hours that things start to noticable change. My husband said my name to me on the phone today, and Jack from the back seat yelled out " mama! " He is very alert and has much more energy. He is vocalizing more and playing with his mouth. We are still on the SCD diet however we are still taking NV. It is not SCD legal, however, he is tolerating it quite well and I feel it has helped heal his gut. Everyday is exciting, he is doing new things all the time. I know we are on a long path but I am glad to be well supported on it! Jack's doctor has him on some homeopathic drops which I beleive are also helping. Anni Quote Link to comment Share on other sites More sharing options...
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