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I forget what DAN stand for, but it's doctors that specifically treat autism, I

think.

Celiac Disease is an allergy to wheat, barley, oats and rye. We think is

celiac instead of autistic. I had him on a gluten free diet for 10 months. The

wheat, oats, barley and rye have gluten in them, and gluten is a protein that I

guess they can't digest. I had to make bread for out of rice flour,

potato starch flour and tapioca flour and add guar gum (because the gluten is

what makes bread hold together when the yeast rises). It's a tough diet to

start, but you get used to it. I've heard of some kids actually being allergic

to all grains, that would include rice and corn. On a gluten free diet, rice

and corn is all can have.

Loriann

Wife to Dewight

Mom to , 10 years, Down Syndrome and ?

, 17 months and Strong Willed

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I forget what DAN stand for, but it's doctors that specifically treat autism, I

think.

Celiac Disease is an allergy to wheat, barley, oats and rye. We think is

celiac instead of autistic. I had him on a gluten free diet for 10 months. The

wheat, oats, barley and rye have gluten in them, and gluten is a protein that I

guess they can't digest. I had to make bread for out of rice flour,

potato starch flour and tapioca flour and add guar gum (because the gluten is

what makes bread hold together when the yeast rises). It's a tough diet to

start, but you get used to it. I've heard of some kids actually being allergic

to all grains, that would include rice and corn. On a gluten free diet, rice

and corn is all can have.

Loriann

Wife to Dewight

Mom to , 10 years, Down Syndrome and ?

, 17 months and Strong Willed

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  • 2 years later...

I've been following the DAN Protocol since 1998. It's very effective and one

of the few options available that could actually " recover " our kids. There

is nothing mysterious about it, it's just good medical/common sense. If you

get a chance to attend a DAN Conference, do it, you'll come back with so much

great info on what to do and it gives you a lot of hope

In a message dated 12/12/2002 10:49:27 AM Eastern Standard Time,

pepsters@... writes:

> have any of you had your child see a " DAN " doctor and go through the

> DAN protocol? (www.autism.com/ari)

>

> I am going to take my son (3 y.o.) to one in March and I think it

> should be interesting to see if there is a link between yeasts and

> enzyme deficiencies and all that stuff with the autism. I think that

> it is important to keep our minds open to all possibilities and

> options in dealing with autism because there is so little known about

> it. if anyone has done this protocol, i'd love to hear about it.

> thanks,

>

> clara

>

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Does anyone have a list of DAN doctors in the Pittsburgh area....??????

Thank you.......Debbie in Pa

" clara alevy " wrote:

> have any of you had your child see a " DAN " doctor and go through the

> DAN protocol? (www.autism.com/ari)

>

> I am going to take my son (3 y.o.) to one in March and I think it

> should be interesting to see if there is a link between yeasts and

> enzyme deficiencies and all that stuff with the autism. I think that

> it is important to keep our minds open to all possibilities and

> options in dealing with autism because there is so little known about

> it. if anyone has done this protocol, i'd love to hear about it.

> thanks,

>

> clara

>

>

>

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  • 6 months later...
Guest guest

Jack,

Where are you?? I'm in Houston and we see a very good doctor who is

a certified nutritionist and practices natural medicine...he is very

up on all yeast/diet issues.

Sheri

> Would like information on Dr Block (DAN doctor) and The Block

Center

> in Hurst. Would like to know procedures, prices, opinions of,

etc.

> My son (PDDNOS) has diet problems, yeast problems, etc. I believe

> changing his diet could help him tremendously. However, in the

past

> it seems he would starve to death before eating anything other than

> Cheerios, cheetoes, cheese crackers, and milk.

>

> Any info would be greatly appreciated.

>

> Thanks,

> Jack

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Guest guest

Jack,

Where are you?? I'm in Houston and we see a very good doctor who is

a certified nutritionist and practices natural medicine...he is very

up on all yeast/diet issues.

Sheri

> Would like information on Dr Block (DAN doctor) and The Block

Center

> in Hurst. Would like to know procedures, prices, opinions of,

etc.

> My son (PDDNOS) has diet problems, yeast problems, etc. I believe

> changing his diet could help him tremendously. However, in the

past

> it seems he would starve to death before eating anything other than

> Cheerios, cheetoes, cheese crackers, and milk.

>

> Any info would be greatly appreciated.

>

> Thanks,

> Jack

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Guest guest

Sheri,

Thanks for the reply. I live in Burleson (just south of Fort

Worth). As I said, I believe changing my son's diet would help him

tremendously. Nevertheless, he just will not eat anything other than

what I mentioned. On good days I can talk him into eating bites of

different foods but most of the time he regurgitates the food. I am

at my wits end.

Thanks again Sheri,

Jack

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Guest guest

Sheri,

Thanks for the reply. I live in Burleson (just south of Fort

Worth). As I said, I believe changing my son's diet would help him

tremendously. Nevertheless, he just will not eat anything other than

what I mentioned. On good days I can talk him into eating bites of

different foods but most of the time he regurgitates the food. I am

at my wits end.

Thanks again Sheri,

Jack

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Guest guest

Sheri,

We're in Houston. Just curious who your doctor is and where he's located.

We're in the Spring area.

Thanks,

a

Re: DAN doctors

Jack,

Where are you?? I'm in Houston and we see a very good doctor who is

a certified nutritionist and practices natural medicine...he is very

up on all yeast/diet issues.

Sheri

> Would like information on Dr Block (DAN doctor) and The Block

Center

> in Hurst. Would like to know procedures, prices, opinions of,

etc.

> My son (PDDNOS) has diet problems, yeast problems, etc. I believe

> changing his diet could help him tremendously. However, in the

past

> it seems he would starve to death before eating anything other than

> Cheerios, cheetoes, cheese crackers, and milk.

>

> Any info would be greatly appreciated.

>

> Thanks,

> Jack

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Guest guest

Sheri,

We're in Houston. Just curious who your doctor is and where he's located.

We're in the Spring area.

Thanks,

a

Re: DAN doctors

Jack,

Where are you?? I'm in Houston and we see a very good doctor who is

a certified nutritionist and practices natural medicine...he is very

up on all yeast/diet issues.

Sheri

> Would like information on Dr Block (DAN doctor) and The Block

Center

> in Hurst. Would like to know procedures, prices, opinions of,

etc.

> My son (PDDNOS) has diet problems, yeast problems, etc. I believe

> changing his diet could help him tremendously. However, in the

past

> it seems he would starve to death before eating anything other than

> Cheerios, cheetoes, cheese crackers, and milk.

>

> Any info would be greatly appreciated.

>

> Thanks,

> Jack

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  • 1 month later...

Try http://drvolpe.com/. He is in Houston.

DAN doctors

> Does anyone out there have any experience with any of the following

> DAN physicians?

>

> Abby Kurth, M.P.H., M.S.

> San , TX

>

> Carmen N. Otero-Arroyo, M.D.

> San , TX

>

> Somerville, M.D.

> Harlingen, TX

>

> I live in , TX and am willing to travel to find a qualified

> DAN physician. I believe my daughter to be the victim of Mercury

> poisoning, but need to find a qualified doctor to help me test for

> it. And, if it comes back positive, I am looking at using chelation

> for mercury detoxification. So, anyone with info here would be

> greatly appreciated!

>

> Thank you so much for any and all info!

>

> Brandee Simmang

> Mom to Hannah, 29 months (regressed after 18 month vaccinations)

>

>

>

>

> Unlocking Autism

> www.UnlockingAutism.org

>

> Autism-Awareness-Action

> Worldwide internet group for parents who have a

> child with AUTISM.

>

> Schafer Autism Report

> News and information on Autism

> To Subscribe http://home.sprynet.com/~schafer/index.html

> Healing Autism: No Finer Cause on the Planet

>

>

>

>

>

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Try http://drvolpe.com/. He is in Houston.

DAN doctors

> Does anyone out there have any experience with any of the following

> DAN physicians?

>

> Abby Kurth, M.P.H., M.S.

> San , TX

>

> Carmen N. Otero-Arroyo, M.D.

> San , TX

>

> Somerville, M.D.

> Harlingen, TX

>

> I live in , TX and am willing to travel to find a qualified

> DAN physician. I believe my daughter to be the victim of Mercury

> poisoning, but need to find a qualified doctor to help me test for

> it. And, if it comes back positive, I am looking at using chelation

> for mercury detoxification. So, anyone with info here would be

> greatly appreciated!

>

> Thank you so much for any and all info!

>

> Brandee Simmang

> Mom to Hannah, 29 months (regressed after 18 month vaccinations)

>

>

>

>

> Unlocking Autism

> www.UnlockingAutism.org

>

> Autism-Awareness-Action

> Worldwide internet group for parents who have a

> child with AUTISM.

>

> Schafer Autism Report

> News and information on Autism

> To Subscribe http://home.sprynet.com/~schafer/index.html

> Healing Autism: No Finer Cause on the Planet

>

>

>

>

>

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Hi ,

Thanks for the reply. I actually have an appointment set up with Dr.

Volpe, but not until mid October. I knwo it's not that far away, I

was just checking about these other doctors in the meantime.

Regarding Dr. Volpe: Do you use him? If so can you share some of

your experience with me about his treatment philosophy?

Anything would be appreciated!

Thanks,

Brandee

> Try http://drvolpe.com/. He is in Houston.

>

>

> DAN doctors

>

>

> > Does anyone out there have any experience with any of the

following

> > DAN physicians?

> >

> > Abby Kurth, M.P.H., M.S.

> > San , TX

> >

> > Carmen N. Otero-Arroyo, M.D.

> > San , TX

> >

> > Somerville, M.D.

> > Harlingen, TX

> >

> > I live in , TX and am willing to travel to find a

qualified

> > DAN physician. I believe my daughter to be the victim of Mercury

> > poisoning, but need to find a qualified doctor to help me test for

> > it. And, if it comes back positive, I am looking at using

chelation

> > for mercury detoxification. So, anyone with info here would be

> > greatly appreciated!

> >

> > Thank you so much for any and all info!

> >

> > Brandee Simmang

> > Mom to Hannah, 29 months (regressed after 18 month vaccinations)

> >

> >

> >

> >

> > Unlocking Autism

> > www.UnlockingAutism.org

> >

> > Autism-Awareness-Action

> > Worldwide internet group for parents who have a

> > child with AUTISM.

> >

> > Schafer Autism Report

> > News and information on Autism

> > To Subscribe http://home.sprynet.com/~schafer/index.html

> > Healing Autism: No Finer Cause on the Planet

> >

> >

> >

> >

> >

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Hi ,

Thanks for the reply. I actually have an appointment set up with Dr.

Volpe, but not until mid October. I knwo it's not that far away, I

was just checking about these other doctors in the meantime.

Regarding Dr. Volpe: Do you use him? If so can you share some of

your experience with me about his treatment philosophy?

Anything would be appreciated!

Thanks,

Brandee

> Try http://drvolpe.com/. He is in Houston.

>

>

> DAN doctors

>

>

> > Does anyone out there have any experience with any of the

following

> > DAN physicians?

> >

> > Abby Kurth, M.P.H., M.S.

> > San , TX

> >

> > Carmen N. Otero-Arroyo, M.D.

> > San , TX

> >

> > Somerville, M.D.

> > Harlingen, TX

> >

> > I live in , TX and am willing to travel to find a

qualified

> > DAN physician. I believe my daughter to be the victim of Mercury

> > poisoning, but need to find a qualified doctor to help me test for

> > it. And, if it comes back positive, I am looking at using

chelation

> > for mercury detoxification. So, anyone with info here would be

> > greatly appreciated!

> >

> > Thank you so much for any and all info!

> >

> > Brandee Simmang

> > Mom to Hannah, 29 months (regressed after 18 month vaccinations)

> >

> >

> >

> >

> > Unlocking Autism

> > www.UnlockingAutism.org

> >

> > Autism-Awareness-Action

> > Worldwide internet group for parents who have a

> > child with AUTISM.

> >

> > Schafer Autism Report

> > News and information on Autism

> > To Subscribe http://home.sprynet.com/~schafer/index.html

> > Healing Autism: No Finer Cause on the Planet

> >

> >

> >

> >

> >

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The only DAN! anything we have within 300 mi of here is Harlan ,

located in Lubbock TX. If anyone has seen this person PLEASE contact me and

give me

the scoop.

TY!

Val

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  • 1 year later...
Guest guest

Jim:

We use Dr. son-Lippitt, who we

like fine. You really have to go in educated, though, so read " Children

With Starving Brains " by McAndless, if you haven't already.

Also, go to the group " AutismBiomedGA " for lots of

good previous discussion about each of the doctors.

" Jim " <jgs3@...>

Sent by: autism

06/03/2005 12:12 AM

Please respond to

autism

To

autism

cc

Subject

DAN doctors

Hey Folks,

We are ready to get connected with a DAN doctor to start working with

our girl. I have checked the file section and saw the list of DAN

docs we can try local to us(Woodstock-Marietta).

Does anybody have any experiance with Janine Romaner, N.D. or any of

the other doctors on the list (DAN Doctors.txt) that they can share

with us. Thanks.

Jim

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Guest guest

I recently looked into getting an appointment with son-Lippette

for my 11 yo. I was told that the next appointment was a year from now

and that we would have to go through the whole evaluation process again

(at great expense, I might add) before we could get to what we wanted.

H.

On Jun 3, 2005, at 10:30 AM, Cowen wrote:

>

> Jim:

>

> We use Dr. son-Lippitt, who we like fine.  You really have to go

> in educated, though, so read " Children With Starving Brains " by

> McAndless, if you haven't already.  Also, go to the

> group " AutismBiomedGA " for lots of good previous discussion about each

> of the doctors.

>

>

>

>

>

>

>

>

>

> " Jim " <jgs3@...>

> Sent by: autism

>

> 06/03/2005 12:12 AM

>

> Please respond to

> autism

>

>

>

> To

> autism

>

> cc

>

> Subject

> DAN doctors

>

>

>

>

>

>

>

> Hey Folks,

>

> We are ready to get connected with a DAN doctor to start working with

> our girl.  I have checked the file section and saw the list of DAN

> docs we can try local to us(Woodstock-Marietta).

>

> Does anybody have any experiance with Janine Romaner, N.D. or any of

> the other doctors on the list (DAN Doctors.txt) that they can share

> with us.  Thanks.

>

> Jim

>

>

>

>

>

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Guest guest

We use Dr. Kartzinel in Melbourne, FL. He is in

practice with Dr. Jeff Bradstreet and their wealth of

knowledge is incredible! They are researchers and

speakers and the DAN conferences. He does telephone

consultations for most of our appointments and we

drive to FL once a year for an appointment. (Not too

far to drive) My son is recovering under his

direction, so we are very pleased. Hope this info

helps. Good luck.

Cyndi Bramblett

--- Cowen <.Cowen@...> wrote:

> Jim:

>

> We use Dr. son-Lippitt, who we like fine. You

> really have to go in

> educated, though, so read " Children With Starving

> Brains " by

> McAndless, if you haven't already. Also, go to the

> group

> " AutismBiomedGA " for lots of good previous

> discussion about each of the

> doctors.

>

>

>

>

>

>

>

>

> " Jim " <jgs3@...>

> Sent by: autism

> 06/03/2005 12:12 AM

> Please respond to

> autism

>

>

> To

> autism

> cc

>

> Subject

> DAN doctors

>

>

>

>

>

>

> Hey Folks,

>

> We are ready to get connected with a DAN doctor to

> start working with

> our girl. I have checked the file section and saw

> the list of DAN

> docs we can try local to us(Woodstock-Marietta).

>

> Does anybody have any experiance with Janine

> Romaner, N.D. or any of

> the other doctors on the list (DAN Doctors.txt) that

> they can share

> with us. Thanks.

>

> Jim

>

>

>

>

>

>

>

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Guest guest

If you want the best, go to Dr. Bradstreet's practice in Melbourne, FL. We just started with his PA, , who is wonderful and isn't quite as expensive. It took about 6 weeks to get an appt. with , longer with Dr. Bradstreet or Kartzinel. We have seen 3 local doctors over the last two years and have wasted so much money. Not that some treatments weren't beneficial, they definitely were. Anyway, Dr. Bradstreet's office won't steer you wrong. I think it's the best thing yet I've done for my child and wish I would've went there in the beginning. Go to www.icdrc.org for more info and to download the patient intake forms. Good luck!

mom to Owen, 4, ASD, & Jordyn 18 months

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Guest guest

-----Original Message-----From: autism [mailto:autism ]On Behalf Of jkbradl@...Sent: Monday, June 06, 2005 5:57 AMautism Subject: Re: DAN doctors

If you want the best, go to Dr. Bradstreet's practice in Melbourne, FL. We just started with his PA, , who is wonderful and isn't quite as expensive. It took about 6 weeks to get an appt. with , longer with Dr. Bradstreet or Kartzinel. We have seen 3 local doctors over the last two years and have wasted so much money. Not that some treatments weren't beneficial, they definitely were. Anyway, Dr. Bradstreet's office won't steer you wrong. I think it's the best thing yet I've done for my child and wish I would've went there in the beginning. Go to www.icdrc.org for more info and to download the patient intake forms. Good luck!

mom to Owen, 4, ASD, & Jordyn 18 months

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  • 4 weeks later...
Guest guest

Does anybody have a list of DAN doctors they recommend in New Jersey??

-----Original Message-----From: autism [mailto:autism ] On Behalf Of Lake260@...Sent: Tuesday, July 05, 2005 1:02 AMautism Subject: Re: Help me please :\'(

Have you had him checked out by a DAN Doctor? If not I suggest you do, there are many tests they do to find out what's not working right in the body and things that can be done to correct it (via supplements, chelation, yeast treatment, seizure control, food allergies etc). It's info you won't get from "mainstream" medicine/ You can find a doctor in your area from the autism research website = http://www.autism.com/ari/ click on the dan link.

In addition to the medical, can your son's school come to the house to set up some behavior programs for you? I know there's the Starz school in California run by Partington that is great with behavior mod programs http://www.behavioranalysts.com/

Hang in there!

In a message dated 7/5/2005 12:41:36 AM Eastern Daylight Time, praiseb2him@... writes:

Hello Everybody,

This is my first time posting. It has been to crazy in my house to be able to post but I have been able to peek in on some of your chats.

I’m desperate for some wisdom. I have a son that my husband and I adopted at 17 days old who is now 12 years old. From the day we got him there were problems and it has been a long hard road. I have ADD myself. Finally about 1 1/2 years ago we got a correct diagnosis of Aspergers/HFA. We fought like dogs and thank the Lord got him placed in a private school here in San Diego called The Country School which has done wonders for him. So much so that we moved to a new school district and they are trying to tell us he doesn’t have AS/HFA because he is doing so well in school.

My cry for help is... our home and family. My son is a different person at school and with other people. But when he gets home he will not listen to anything we ask him to do. He does not respect anybodies personal space or property in the family, he is constantly in your face. His engine is always running 300 miles an hour and he will not do anything to try to regulate it to stop all the problems it creates. All he will do is watch TV and play Game cube, which we have gotten ride of. Which now no one gets to enjoy. We can’t go anywhere because he doesn’t listen to what we tell him to do and never stays with us.

Then there is my husband. God love him. But he only understands I tell you to do something and you do it and that is it! As much as he has read and talk with professionals etc. He keeps making thing worse for this boy and the situation and will not stick with a plan that we put in place. I work my tail off to put some structure in place and he screws it up. I also have an 8 year old daughter who was adopted and she is afraid of even though she loves him dearly just because he never gives her any breathing room and always threatens her that if she tells mom and dad this or that he is going to hit her. Which he doesn’t. He has hit her and she has hit him. She had a breakdown during school this year and I had to take her out and homeschool her.

I’ve looked high and low for residential homes which I don’t want to do, Camps, People to help me (of course I have no friends I’m always dealing with them). I don’t know what to do. Just a few minutes ago my husband just blew up at my son and I had to break it up I’m afraid he is going to hit him. And my son has been a royal pain but then my husband has been frustrating all day. Then my daughter went hysterical and I am already depressed because I have spent the whole day trying to find an answer and here I am while fireworks are going off in the background crying writing on a computer to who people out there I don’t know.

Well whoever took the time to read this long thing. Bless you.

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  • 7 months later...

If I could have whichever doc I wanted I'd choose Sydney Baker. (I

hope I didn't mispell his name).

Mark

>

> Hello Everyone,

>

> If I may kindly ask, who is the best DAN doctor in the country (we

> live on the east side)? What do you think of Dr. Walsh? Anybody using

> Dr. Jeff Bradstreet?

>

> I truly appreciate your answer. I want to thank you all for giving me

> a lot of hope every single day.

>

> Samar

>

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My best friend was with Sid Baker for many years but he is more 'part time'

these days and she began to question how aggressive he was being (not

aggressive enough). Her son still has a lot of gut issues. She now is

seeing Dr. Neubrander along with Dr. Krigsman.

I would ask you, what are your child's issues to deal with at hand. Many

doctors have more 'specialty' areas. IE: Dr. N is the father of mB12. I

know of other parents on another list who use Dr. Bradstreet and are seeing

wonderful results. But you almost have to know what kind of chelation

protocol you want to use, what their preferred method is and your comfort

level based on your research. Dr. McCandless is another sought after DAN!

too.

You really need to be careful. We went to see another DAN! for a second

opinion to see what (if anything) we are really missing to treat my son (who

is almost recovered). I don't need to see someone every __ amount of weeks.

We have been working with a DAN! who I saw or communicated with when I had

questions about a new protocol (researched and did what I could do on my own

with help from this wonderful group and another). I don't want to have to

see someone every __ weeks because it almost feels like we are funding their

research. Does that make sense??

Saying this, every child is different and has different needs. We were

lucky to have a child who responds to everything we implemented in a

positive way. I am not certain what your situation is.

I don't know if I was helpful or not, but felt the need to respond.

Jackie---

-------------------------------------------------------------------------

> If I could have whichever doc I wanted I'd choose Sydney Baker. (I

> hope I didn't mispell his name).

>

> Mark

-------------------------------------------------------------------------

> If I may kindly ask, who is the best DAN doctor in the country (we

> live on the east side)? What do you think of Dr. Walsh? Anybody using

> Dr. Jeff Bradstreet?

>

> I truly appreciate your answer. I want to thank you all for giving me

> a lot of hope every single day.

>

> Samar

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