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  • 3 months later...
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Kay, very interesting suggestions........good luck! Does your triplets

eat together? and Tara do, I put them tray to tray in their high

chairs for all three meals, that has helped Tara with eating different

foods and using a spoon and drinking, although has the dreaded

" sippy cup " and Tara has one with a straw. I have seen Tara look at

and do the same thing while eating, amazing, I think, cause I could try

to get her do something, and she won't, but if is doing it, she'll

copy him..........just thought that might help ? Also, speech is mad

that I'm not giving Tara a regular cup to drink out of, I know I should

be practicing more in that department with her, but I just don't seem to

have the time, or, I forget, she drinks so well out of a straw, I

figure, at least the tongue is back and lips are perched for that,

right?

Gail.........BObby 7, Jillian 4 1/2, and Tara{Ds} 25 months

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Kay,

The suggestions given to you by the nutritionist are not the first

that I have heard, there is a member in my multiples club who twins

were born at 26 weeks (twin to twin transfusion), anyway she has been

doing what your nutritionist suggested and then some. She even has to

add rice cereal to her daughters bottle of milk. She adds oil to

soup and other food right before she gets ready to serve it to the one

that needs it. Tyler's special ed teacher and the counties speech

therapist have suggested adding spices to the food, some children with

downs syndrome eat better with spicery food. It appears that low tone

can effect even the taste buds.

As far as pink eye goes it is considered very contagious (sp?),

however, everytime gets it the others do not. Pink eye can

develop just from a kid rubbing there face with a running nose and

getting some of the drainage into there eye. 's might be worse

just due to the small tear ducts. Tyler gets what looks like pink

eye however, it is usually just clogged tear ducts. Keep the eye

ointment around for you at a later date, one they start preschool you

might have more cases of it.

Katy

mom to 4yrs and twins and Tyler(DS) 18 months

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Kay,

I was wondering, with eating so little, how much does she weigh?

Sometimes I think I have the littlest baby around --at 18 months weighs only 17 pounds and is 28 inches! She eats pretty well though, she just wants to be tiny I guess. . . . Has always been a "lite" eater, or is this new? I'm glad the nutritionist had good ideas. They remind me of the ones I was given when trying to put on weight during my pregnancy (when I went on bed rest at 25 weeks, I had only gained 18 pounds).

Casey, mom to (DS) and , 18 mo.

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At 25 months, Tara is only 23 lbs! is 26 lbs, and has 3+ inches on

her! Guess he always will..........

Gail.........Bobby 7, Jillian 4 1/2, and Tara{Ds} 25 months

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  • 4 months later...

Dear ,

Anything you take should be passed by your doctors. While I am not saying one way or the other, I believe these doctors went to school for some reason and that is why they have the degrees and pay insurance in case they make a mistake. If these treatments offered by non professionals were of any value, the medical community would be using them.

Just my two cents worth...

Cheryl & Randy

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In a message dated 10/4/01 6:57:27 AM Pacific Daylight Time, stephwilcher@... writes:

Vitamins won't be harmful to me like herbs would be right.

Excessive intake of some vitamins (and minerals), in supplements and food, can be extremely harmful. This is especially true for people with liver disease. I've listed some examples of problems that can result from excessive vitamin use. Vitamin D and calcium supplements are generally advised for people with liver disease, but they can be damaging in excess. You might like to have Dr. Palmer's book, Hepatitis and Liver Disease handy as a reference.

A nutritionist can be extremely helpful, but he or she has been trained to see disease through the lens of that specialty. Therefore, no matter how well meaning the nutritionist is, he or she will have a certain ingrained predisposition to see vitamin therapy has The Answer. Listen carefully to the nutritionist, and then check with your doctor. You absolutely must tell your doctor everything you're taking, or even if you're eating large amounts of a certain food. When I first began taking prednisone, I developed a craving for non-fat yogurt and was eating a great deal of it in addition to taking my prescribed calcium/vitamin D tablets. I happened to mention this to my doctor, who pointed out the very serious damage I could be doing to my kidneys through excessive total calcium intake.

Vitamin A: 25,000-50,000 total intake of Vitamin A (from food sources and supplements combined) can lead to a liver disease that can cause cirrhosis. For this reason, Dr. Palmer's book says that people with advanced liver disease should not use Accutane and Retin-A (acne/wrinkle creams), as they are based on Vitamin A.

Vitamin D: Very important to people with liver disease, but excessive amounts can cause dangerous deposits of calcium in the kidneys, heart, and blood vessels.

Vitamin B3, niacin: In excess, damages the liver.

Vitamin B6, pyridoxine: In excess, leads to nerve damage.

Folate: In excess, blocks absorption of other vitamins.

Harper (AIH 5/00)

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In a message dated 10/4/01 7:26:29 AM Pacific Daylight Time, stephwilcher@... writes:

It's worth a shot to me to have my body healthy with vitamins rather than taking drugs that I hate and have awful side effects and that can be bad in the long run.

At this risk of offending you, I want to be absolutely sure that you understand that VITAMINS WILL NOT SUBSTITUTE FOR DRUGS. This is a serious disease. People die from it if they don't follow the proper therapy, and that means Prednisone/Imuran or similar drugs. If your nutritionist tells you otherwise, she should not be treating anyone for anything. I'm sorry, but this is reality. I don't mean to sound rude, but it's terribly important that you understand this. You can't afford to make mistakes with this disease.

Harper

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Hi Cheryl,

I do believe that about the doctors. But she is licensed in what she does.

She feels that doctors don't have any training in what the nutritionists do,

which makes sense. They're taught to stop something from happening with

drugs because they work with the drug companies and insurance companies.

They always suppress things to keep other stuff from happening, but never

work on repairing what's actually wrong. And a lot of what's going on in

our bodies is caused by a lack of certain things which can be put back into

our bodies through vitamins. I sounded very interesting and believable. I

figure I'll try it for a few months (she said I should see results in 1-2

months), and if it doesn't work, oh well. It's worth a shot to me to have

my body healthy with vitamins rather than taking drugs that I hate and have

awful side effects and that can be bad in the long run. Just my thinking,

but I'd like to hear what everyone thinks!! Thanks!!

Philadelphia, PA

>From: cheryl722@...

>Reply-

>

>Subject: Re: [ ] Nutritionist

>Date: Thu, 4 Oct 2001 10:08:35 EDT

>

>Dear ,

>

>Anything you take should be passed by your doctors. While I am not saying

>one way or the other, I believe these doctors went to school for some

>reason

>and that is why they have the degrees and pay insurance in case they make a

>mistake. If these treatments offered by non professionals were of any

>value,

>the medical community would be using them.

>

>Just my two cents worth...

>

>Cheryl & Randy

>

_________________________________________________________________

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, at the conference here in Las Vegas - we were warned by a

nutritionist about megadoses of vitamins and told of some vitamins that

could be detrimental to the liver in increased amounts. I don't have my

notes here at work, but we were warned about heavy doses of Vitamin C and a

few others. I still take modest supplements and a physician approved herb

schizandra. I formerly followed a serious supplement and herbal regimen

which I believe saved my life from a viral infection that is not considered

survivable. However, shortly after I was diagnosed with AIH. My herbalists,

Ron Teaguardins Dragon Herbs (perhaps the most knowledgeable and reputable

in the country) will no longer prescribe for me while I am on my present

drugs imuran, urso, coumoudin/warfarin, prilosec, etc. They say it is too

dangerous with the drugs. Unfortunately, physicians and most nutritionists

are very limited in their education and understanding. But I agree we are

suffering from dis-ease and the real goal should be to make our systems

work properly - not try to stop, shut down or poison the problem.

Be well.

Sylvia - AIH - Las Vegas, NV

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Hi

it really is best if you show the list to your DR and ask him/her if any or

all are not a good idea. things vary case by case,what is ok for someone may

be very bad for you,only your dr can tell you what is going to adversely

effect your particular case.It is a good thing to exxplore options,but they

should always be put to your Dr for the final decision.The fact is orthodox

medicine is what gives us transplants etc. if your dr says its not

appropriate then thats the way it is,alternative therapies can be wonderful

as a supplement,they are not replacements.When the dr prescribes meds,we all

know that you do not take someone elses meds because they have helped them

with a similar problem,its coomon sense,just as you can take the name of the

drug and ask your dr if it could be an option for you,it i the same with

this type of treatment

>From: " Wilcher " <stephwilcher@...>

>Reply-

>

>Subject: [ ] Nutritionist

>Date: Thu, 04 Oct 2001 14:26:27 -0400

>

>I want to thank everyone for their input on this. I just felt like I

>wanted

>to try something. I'll probably see what happens after the first couple

>months. I'm going to tell you the list of vitamins that she gave me.

>

>Pancreatrophin - 2 pills 2 times a day

>Drenamin - 3 pills 3 times a day

>For-Til B12 - 2 pills 2 times a day

>Immuplex - 2 to 4 pills a day

>Livton - 1 pill 3 times a day

>Livaplex - 1 pill 3 times a day

>Hepatrophan PMG - 2 pills 3 times a day

>Cellfood - 5 drops 2 times a day in water

>

>Increase my water intake to half my body weight in ounces.

>

>Please let me know if any of these don't sound good!! Thank you!!

>

>

>

>Philadelphia, PA

>

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

_________________________________________________________________

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I will be showing the list to my doctor. I don't want to replace the

Prednisone with these vitamins. My doctor's goal is to bring me gradually

off the prednisone if he can. So if these vitamins balance things out in my

body, then that would make it easier for me to come gradually of the

prednisone, which is what the doctors are trying to achieve anyway. But I

will get in contact with my doctor. Thanks!!

Philadelphia, PA

>From: " Amber ..???.. " <karjah@...>

>Reply-

>

>Subject: Re: [ ] Nutritionist

>Date: Thu, 04 Oct 2001 18:38:36 +0000

>

>

>Hi

>it really is best if you show the list to your DR and ask him/her if any or

>all are not a good idea. things vary case by case,what is ok for someone

>may

>be very bad for you,only your dr can tell you what is going to adversely

>effect your particular case.It is a good thing to exxplore options,but they

>should always be put to your Dr for the final decision.The fact is orthodox

>medicine is what gives us transplants etc. if your dr says its not

>appropriate then thats the way it is,alternative therapies can be wonderful

>as a supplement,they are not replacements.When the dr prescribes meds,we

>all

>know that you do not take someone elses meds because they have helped them

>with a similar problem,its coomon sense,just as you can take the name of

>the

>drug and ask your dr if it could be an option for you,it i the same with

>this type of treatment

_________________________________________________________________

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In a message dated 10/4/01 11:28:43 AM Pacific Daylight Time, stephwilcher@... writes:

I want to thank everyone for their input on this. I just felt like I wanted to try something. I'll probably see what happens after the first couple months. I'm going to tell you the list of vitamins that she gave me.

Pancreatrophin - 2 pills 2 times a day

Drenamin - 3 pills 3 times a day

For-Til B12 - 2 pills 2 times a day

Immuplex - 2 to 4 pills a day

Livton - 1 pill 3 times a day

Livaplex - 1 pill 3 times a day

Hepatrophan PMG - 2 pills 3 times a day

Cellfood - 5 drops 2 times a day in water

Increase my water intake to half my body weight in ounces.

Please let me know if any of these don't sound good!! Thank you!!

Philadelphia, PA

Just be sure to tell your doctor what you're taking, okay?

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Hi ; I'm on a vitamin from a naturopath and it has made a big

difference on my daily life. He told me I was running on adrenalin, not

nutrition. It's called UltraInflamogen in the States, a MetaGenics product.

Marilyn

[ ] Nutritionist

> I just went to a nutritionist last night. She gave me a bunch of vitamins

> to take that I have a lack of in my body. She really feels strongly that

> these vitamins will help bring my immune system, etc. stable so that my

> liver enzymes go back to normal and then my doctor will be able to start

> weening me off the Prednisone again. She has helped people with cancer,

> luekemia, and other liver problems to the point where they've gone into

> remission and could stop taking the drugs. She really feels very

confident

> that she can help me. Does anyone know anything about this? Vitamins

won't

> be harmful to me like herbs would be right. I'm pretty sure they're two

> different things. Any advice would be helpful!! Thanks!!

>

>

> Philadelphia, PA

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

>

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I will, thanks for all the information!

Philadelphia, PA

>From: flatcat9@...

>Reply-

>

>Subject: Re: [ ] Nutritionist

>Date: Thu, 4 Oct 2001 19:42:11 EDT

>

>In a message dated 10/4/01 11:28:43 AM Pacific Daylight Time,

>stephwilcher@... writes:

>

>

> > I want to thank everyone for their input on this. I just felt like I

>wanted

> > to try something. I'll probably see what happens after the first couple

> > months. I'm going to tell you the list of vitamins that she gave me.

> >

> > Pancreatrophin - 2 pills 2 times a day

> > Drenamin - 3 pills 3 times a day

> > For-Til B12 - 2 pills 2 times a day

> > Immuplex - 2 to 4 pills a day

> > Livton - 1 pill 3 times a day

> > Livaplex - 1 pill 3 times a day

> > Hepatrophan PMG - 2 pills 3 times a day

> > Cellfood - 5 drops 2 times a day in water

> >

> > Increase my water intake to half my body weight in ounces.

> >

> > Please let me know if any of these don't sound good!! Thank you!!

> >

> >

> >

> > Philadelphia, PA

> >

>

>Just be sure to tell your doctor what you're taking, okay?

_________________________________________________________________

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Debby, I'm sorry to hear about your father's death in 1996. The circumstances must have made it especially hard for all of you.

Remember that most people with AIH, if treated with what's now considered conventional therapy, have normal life spans. Better treatments may come along someday with fewer side effects.

Harper (AIH 5/00)

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In a message dated 10/5/01 11:11:54 AM Pacific Daylight Time, tdcc2000@... writes:

Like Harper or someone earlier wrote, indeed there IS toxicity with some vitamins.

It's not that the vitamins are inherently toxic, but excessive amounts of some vitamins (and minerals) can be toxic, especially for people who are ill and/or taking certain medications.

Harper

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Harper, I hate to say this......but you are making me understand more and more how serious this stuff all is! I never thought I would say it, but I am beginning to agree more and more with you!

But what is even more frightening, is that I SHOULD be totally adamant against taking ANY h erbs, for it was all of the "herbal supplemnets" that killed my father. He was on blood thinners and kept ordering the herbs that would help with his memory, his life, everything....you name it....he took it.

THen, August 18, 1996, he literally bled to death in his brain! We watched him die in 4 short hours...nothing could stop it. It was an accumulation of all of the drugs and herbs that killed him....AND THE FRIGHTENING THING WAS THAT WE DIDN'T EVEN KNOW UNTIL WE STARTING CLEANING OUT HIS CLOSET AFTER HE HAD DIED!

So, that is why I am thinking that since I am on all of this prednisone and Imuran, that perhaps I DO need to be more cautious. Thanks everyone for helping me to be more aware!

debby

Re: [ ] Nutritionist

In a message dated 10/4/01 7:26:29 AM Pacific Daylight Time, stephwilcher@... writes:

It's worth a shot to me to have my body healthy with vitamins rather than taking drugs that I hate and have awful side effects and that can be bad in the long run. At this risk of offending you, I want to be absolutely sure that you understand that VITAMINS WILL NOT SUBSTITUTE FOR DRUGS. This is a serious disease. People die from it if they don't follow the proper therapy, and that means Prednisone/Imuran or similar drugs. If your nutritionist tells you otherwise, she should not be treating anyone for anything. I'm sorry, but this is reality. I don't mean to sound rude, but it's terribly important that you understand this. You can't afford to make mistakes with this disease. Harper

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Wow, that's awful! Aren't herbs different that vitamins?? Please someone

tell me if I am wrong!

Philadelphia, PA

>From: " Tex Pueschel " <tdcc2000@...>

>Reply-

>< >

>Subject: Re: [ ] Nutritionist

>Date: Fri, 5 Oct 2001 10:28:22 -0700

>

>Harper, I hate to say this......but you are making me understand more and

>more how serious this stuff all is! I never thought I would say it, but I

>am beginning to agree more and more with you!

>

>But what is even more frightening, is that I SHOULD be totally adamant

>against taking ANY h erbs, for it was all of the " herbal supplemnets " that

>killed my father. He was on blood thinners and kept ordering the herbs

>that would help with his memory, his life, everything....you name it....he

>took it.

>

>THen, August 18, 1996, he literally bled to death in his brain! We watched

>him die in 4 short hours...nothing could stop it. It was an accumulation

>of all of the drugs and herbs that killed him....AND THE FRIGHTENING THING

>WAS THAT WE DIDN'T EVEN KNOW UNTIL WE STARTING CLEANING OUT HIS CLOSET

>AFTER HE HAD DIED!

>

>So, that is why I am thinking that since I am on all of this prednisone and

>Imuran, that perhaps I DO need to be more cautious. Thanks everyone for

>helping me to be more aware!

>debby

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I believe they are different, but they still can be toxic in certain combinations. Like Harper or someone earlier wrote, indeed there IS toxicity with some vitamins.

I guess I am just a slow learner...but more stubborn than anything!

debby

Re: [ ] Nutritionist>Date: Fri, 5 Oct 2001 10:28:22 -0700>>Harper, I hate to say this......but you are making me understand more and >more how serious this stuff all is! I never thought I would say it, but I >am beginning to agree more and more with you!>>But what is even more frightening, is that I SHOULD be totally adamant >against taking ANY h erbs, for it was all of the "herbal supplemnets" that >killed my father. He was on blood thinners and kept ordering the herbs >that would help with his memory, his life, everything....you name it....he >took it.>>THen, August 18, 1996, he literally bled to death in his brain! We watched >him die in 4 short hours...nothing could stop it. It was an accumulation >of all of the drugs and herbs that killed him....AND THE FRIGHTENING THING >WAS THAT WE DIDN'T EVEN KNOW UNTIL WE STARTING CLEANING OUT HIS CLOSET >AFTER HE HAD DIED!>>So, that is why I am thinking that since I am on all of this prednisone and >Imuran, that perhaps I DO need to be more cautious. Thanks everyone for >helping me to be more aware!>debby_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Thanks for the info!! I'm going to fax my doctor a list of the stuff the

nutritionist gave to me!! I'm just learning too and everything is so

technical and there's so many terms to learn!!

>From: " Tex Pueschel " <tdcc2000@...>

>Reply-

>< >

>Subject: Re: [ ] Nutritionist

>Date: Fri, 5 Oct 2001 11:03:28 -0700

>

>I believe they are different, but they still can be toxic in certain

>combinations. Like Harper or someone earlier wrote, indeed there IS

>toxicity with some vitamins.

>

>I guess I am just a slow learner...but more stubborn than anything!

>debby

> Re: [ ] Nutritionist

> >Date: Fri, 5 Oct 2001 10:28:22 -0700

> >

> >Harper, I hate to say this......but you are making me understand more

>and

> >more how serious this stuff all is! I never thought I would say it,

>but I

> >am beginning to agree more and more with you!

> >

> >But what is even more frightening, is that I SHOULD be totally adamant

> >against taking ANY h erbs, for it was all of the " herbal supplemnets "

>that

> >killed my father. He was on blood thinners and kept ordering the herbs

> >that would help with his memory, his life, everything....you name

>it....he

> >took it.

> >

> >THen, August 18, 1996, he literally bled to death in his brain! We

>watched

> >him die in 4 short hours...nothing could stop it. It was an

>accumulation

> >of all of the drugs and herbs that killed him....AND THE FRIGHTENING

>THING

> >WAS THAT WE DIDN'T EVEN KNOW UNTIL WE STARTING CLEANING OUT HIS CLOSET

> >AFTER HE HAD DIED!

> >

> >So, that is why I am thinking that since I am on all of this prednisone

>and

> >Imuran, that perhaps I DO need to be more cautious. Thanks everyone

>for

> >helping me to be more aware!

> >debby

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

>http://explorer.msn.com/intl.asp

>

>

>

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  • 11 months later...

Steph...

I am seeing a clinical nutritionist. . I don't know if I have made the

correct choice or what, but where I live there is not much choice. I would

have preferred to see a naturopath or a doctor who was into alternative

medicine, but nothing like that here . He started me off with three

different herbs, and will change them today when I go see him. My energy

level has increased to the point I don't feel sick, but the constant vaginal

burning is still there, and seems to be getting worse...His first visit and

herbs which are of liquid nature like a tincture was $101.00. I will let you

know what it is today, as he is starting me on kidney/bladder herbs today vs.

waiting till the 16th of October, which will be my second visit. Gosh, I

know where you are coming from. Wish I could be of more help.

Diane M

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  • 1 year later...
Guest guest

Hi Francine.

I'm not sure if I understand your comment on the Great Smokies test kit that

your nutritionist gave you. Did you go ahead and complete the test, and

have you had results confirming the candida? Or do you plan top just keep

the test kit until you feel your allergies are more under control, and then

submit the test for analysis?

I'm only asking, because I have been wondering about getting more tests to

eliminate the possibilities of other parasites contributing to my food

allergies. I was thinking of asking my primary doctor to order a Great

Smokies test for me.

I haven't come across the NAET/BRT. Something else for me to read about!

Kim M.

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Guest guest

Dans un e-mail daté du 26/07/2004 03:45:50 Romance Standard Time,

kimmumb@... a écrit :

> I'm not sure if I understand your comment on the Great Smokies test kit

> that

> your nutritionist gave you. Did you go ahead and complete the test, and

> have you had results confirming the candida? Or do you plan top just keep

> the test kit until you feel your allergies are more under control, and then

> submit the test for analysis?

>

> I'm only asking, because I have been wondering about getting more tests to

> eliminate the possibilities of other parasites contributing to my food

> allergies. I was thinking of asking my primary doctor to order a Great

> Smokies test for me.

>

I am going to do the test next week end: friday, saturday, sunday; you have

to take 3 different stool samples on 3 different days. Its very simple to do

and you get the results within 15 days.

Francine

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  • 8 months later...
Guest guest

Hello :

Your husband sounds like so many of my family members and friends who

cannot understand the concept of NOT having the ABILITY to swallow. I

do not think, before I had Achalasia, I could understand it either.

They honestly think they are offering constructive help, because they

are trying to make a solution for something they do not understand. I

knew everyone meant well, but some of the suggestions were

unbelievable, and really resulted in me feeling they think I did

something to cause this myself. Fortunately, with the help of my many

friends on this board, I realized that I did nothing to cause this.

Once you are able to keep food down, perhaps a nutritionist would be

a good idea ... but, in my humble opinion, I do not believe it helps

with the disease.

It is a very difficult disease and we spend our lives explaining it.

I hope things begin to go better for you.

Kathie in Pittsburgh

-- In achalasia , " Bartolino " <jfbartolino@e...>

wrote:

> Has any one tried a Nutritionist ??????????? My husband has been

bugging me to go to one He claims they might help me with my diet I

try to tell him Sometimes I cant' drink water Your thoughts .........

..............from Cold Nasty NJ

>

>

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