nutritionist

[Guest guest]

Some people have gone to a nutritionist, but in my opinion you would

spend all your time telling them what you can or can't eat. As

symptoms get worse I don't think they can help. It is more a matter

of just getting calories of any kinds into your body.

In my experience you mostly go with high fat foods. I could eat for

instance nachos with a lot of cheese, but couldn't eat tortilla

chips. Until symptoms get pretty bad I could get salad down, but

only with oil and vinegar dressing.

I think most of us know somewhat good nutrition. I didn't really get

help from blending food as we can all chew, didn't seem like it made

a difference if it was well chewed or not to me. Liquids for many of

us are harder than water. Personally Ensure or any dairy based

liquid was dreadful. Same with V-8 unless you added melted butter.

Try carbonation, sparkling water, really. Eat first, use carbonation

to push it all down. It might hurt a little but the carbonation may

push open the sphincter. Seems like once it is open you have a

window of opportunity to shove food in.

About teeth... I wouldn't think your teeth would deteriorate because

it is still just saliva and food that comes back. It shouldn't be

like bulimics because there isn't stomach acid mixed with it, but

that is my common sense, hadn't really thought of it before. Could

be poor nutrition, especially calcium, or even just getting older.

As we get older my dentist has told me my fillings need to be

replaced, they only last about 20 years.

To all of you with doctor appointments this week.... good luck. This

is a dreadful disease. However as many things in life happen to us

there is good with the bad. We are all tougher, wiser and more

appreciative of things in some way. These obstacles in our life make

us strong. When the next obstacles come we can handle them because

we made it through this. If it is another health issue, I don't

think many of us are going to just say yes to procedures and

doctors. I think we have made good friends, even though strangers on

this board, and as soon as I clean my house you can come visit.

One last thought, I can't stand it. To Charmaine and husband---Seems

like jobs are the answer to your problem. Forgive me if you have

said why you didn't work and I hope it isn't disability or something

serious. Again forgive me for bluntness. I too don't understand why

you need to go to Australia from the UK. Perhaps I missed some

posting about your situation. And to all the nice people here who

aren't so blunt, am I the only one, am I missing something? You

can't all be so quiet can you?

Sandy in So Cal.

> > Has any one tried a Nutritionist ??????????? My husband has

been

> bugging me to go to one He claims they might help me with my diet

I

> try to tell him Sometimes I cant' drink water Your

thoughts .........

> ..............from Cold Nasty NJ

> >

> >

[Guest guest]

Well said Sandy, with regard to our support for one another. Thanks for the

good

thoughts as I head to Cedars Sinai this week for manometry and surgeon

appointment.

With regard to nutrition -- how true -- I love greens and fruits, but alas, not

much in this

area goes down at this point. High fat, high sugar and then whatever nutrition

is possible.

My dentist also mentioned that acid is not a problem with this disorder -- it

would be

bulimia. I was worried and asked about it.

Peggy

> > > Has any one tried a Nutritionist ??????????? My husband has

> been

> > bugging me to go to one He claims they might help me with my diet

> I

> > try to tell him Sometimes I cant' drink water Your

> thoughts .........

> > ..............from Cold Nasty NJ

> > >

> > >

[Guest guest]

Well , if you can't drink water sometimes then I am not sure how

a nutritionist would work. My dr put me on a low bulk diet because I

now suffer from problems with my stomach emptying. It finally gets into

my stomach and then stays in there a LONG TIME. Alot of times when my

stomach empties really slow then I really experience problems

swallowing. (had open heller '93)

So I am not really sure if a nutritionist would fully understand. Maybe

I know nothing, but from experience a lot of dr.'s that don't deal

with achalasia on a day to day basis don't even fully understand this

disease. So again,...I'm just not sure this would help. But checking it

out doesn't hurt. Good luck.

Dawn in Ohio

> Has any one tried a Nutritionist ??????????? My husband has been

bugging me to go to one He claims they might help me with my diet I

try to tell him Sometimes I cant' drink water Your thoughts .........

..............from Cold Nasty NJ

>

>

[Guest guest]

honestly Nutritionists have little idea of what achalasia is about.

My contact with them has never been happy. You must simply eat what you can

when you can and don't worry too much about it. If you can eat more protein

then do - soup made from ground meat and strained or blended to a soft this

soup is great. Try and have a liquid (kiddies vitamin syrup) vitamins if

you can or you may even find a powder - what ever goes down best.

Hugs,

Joan

Nutritionist

>

> Has any one tried a Nutritionist ??????????? My husband has been

> bugging me to go to one He claims they might help me with my diet I try

> to tell him Sometimes I cant' drink water Your thoughts .........

> ..............from Cold Nasty NJ

>

>

[Guest guest]

>

> I have started with a nutritionist here in the uk , that was before i came

across your site , i am on the diet and trying to take the antifungals which are

proving rather more symptoms so she adviced me to cut it down to 1/4 and slowly

build up, my symptoms are dizzy fuuzzy head ears full like sinus, and

constipation, this diet is ooo so hard but i soo want to get better

+++Hi there. Is your name Anne? Did you have a question my friend?

The best, Bee

[Guest guest]

re- ferritin

check out:

http://www.thewayup.com/newsletters/081504.htm

http://www.thewayup.com/products/0136.cfm

You can mail Dr Slagle - she may give her opinion on this, she's very

knowledgable i think.

http://www.thewayup.com/askdrslagle.htm

>

> She said that if I was unable to tolerate ferrous sulphate or Gentle Iron then

it is obvious that my body does not need it, although she does concede that my

levels at 18/19 are very low.

[Guest guest]

That looks interesting Chris. I have now had my personalised report from this

woman. She has not delivered what I was expecting and I get the impression she

is basically putting me on a high protein low carb diet. She has made a

specific recommendation that i should eat lots of broccoli, which I find

slightly strange...

I am not happy. I found the journey yesterday very stressful and have such

brain fog today that I really cant get my head round it all.

D

> >

> > She said that if I was unable to tolerate ferrous sulphate or Gentle Iron

then it is obvious that my body does not need it, although she does concede that

my levels at 18/19 are very low.

>

[Guest guest]

http://standing1.home.mindspring.com/thyroid/badfood.html

" " Certain foods contain chemicals which block the production of thyroid hormone,

particularly cabbage, ***broccoli, rutabaga, cauliflower, kale, Brussels

sprouts, watercress, and peanuts. Cooking partially inactivates the interfering

chemical, known medically as a goitrogen.**** Thus, in most cases it is wise to

eat these foods cooked. Raw peanuts or soybeans should never be eaten.

Fortunately, peanut butter is heated to a high enough degree that the goitrogens

are destroyed. "

what are her qualifications, why are you supposed to eat broccoli

>

> She has made a specific recommendation that i should eat lots of broccoli,

which I find slightly strange...

[Guest guest]

> >

> > She has made a specific recommendation that i should eat lots of broccoli,

which I find slightly strange...

>

[Guest guest]

well you don't have to do what she says; you may have a gut problem in addition

to other things, but doesn't mean you can't research and look at what exactly

she thinks is wrong? gut inflammation apparently causes adrenal probelms as it

takes alot of cortiso to suppress

there are other srouces of vitamn c - 'normal vitamin c', buffered vitamin c

(biocare), acerola cherry, ester c - u don't have to follow her recommendations

she may have a point about the gut but it may be a part of a wider issue and may

not be a cuase but a symptom of other things, or a cause of other things, but

it's hard to know isn't it (i'm not qualfied). i'd ask exactly what she thinks

is wrong. 'the stress effect' book talks about gut inflammation.

i have seen an ION person before, even attended a talk wiht patrick holford and

met him, they are good generally, but i do not think they have the full picture

or consider the full picture, in my opinion they fail to address some issues (eg

they talk about undermethylation in their books and recommend things like high

dose b vitamins, sam-e) but they don't consider over methylation, you could

pretty much make an over methylated person very ill on their protocol.

chris

>

>

[Guest guest]

I may indeed have a gut problem, although no-one in mainstream medicine has

suggested it, but I'm struggling to understand how I can have when for the first

time in 30 years I am symptom free and have been for 18 months. I had IBS from

1979 to 2008 following a nasty food poisoning. I had all the investigations for

UC, but IBS was the diagnosis they gave me.

When my metabolism started to slow down, weight gain happened,TSH started to

rise and the daily diarrhoea stopped and so far has not come back.

For the first few months of the IBS I took codeine phosphate, but then my GP

said I could get addicted and would not give me another prescription, so for the

other 28 years I managed without medication, which left me housebound at times.

Now I'm symptom free and suddenly I have a gut problem. You see my dilemma?

Still trying with the diet but feeling absolutely awful. Headache, exhasuted,

muscle and joint pains, can't sleep, bloated, blood sugar spiking all over the

place and very very hungry. Have told OH I will give it a week.

D

> >

> >

>

[Guest guest]

what was different in those 18 months? Were you on adrenal support or

something, or did you change your diet?

Gluten's linked to UC and IBS, i read?

what's the point of this diet, is it weight loss or something? perhaps it is

linked to thyroid somehow, but i don't know the mechanisms but don't know

anymore sorry

Chris

>

> I may indeed have a gut problem, although no-one in mainstream medicine has

suggested it, but I'm struggling to understand how I can have when for the first

time in 30 years I am symptom free and have been for 18 months. I had IBS from

1979 to 2008 following a nasty food poisoning. I had all the investigations for

UC, but IBS was the diagnosis they gave me.

>

> When my metabolism started to slow down, weight gain happened,TSH started to

rise and the daily diarrhoea stopped and so far has not co

[Guest guest]

MODERATED TO REMOVE MESSAGES ALREADY READ (INCLUDING YOUR PREVIOUS MESSAGE).

PLEASE LEAVE JUST A PORTION OF WHAT YOU ARE RESPONDING TO. LUV - SHEILA

____________________________________

In those 18 months my TSH started to rise, along with my weight, and at the same

time my IBS symptoms, mainly diarrohea, ceased. There was no change in my diet

and until I started taking B12 last June I was taking no supplements.

I have had the coeliac test and that was negative.

The point of this diet seems to be to regulate my blood sugar, which also

actually stablised during this time and to enable me to lose some weight after

all else has failed.

Gotta be worth a try, but nothing happening on that front so far.

D

>

> what was different in those 18 months? Were you on adrenal support or

something, or did you change your diet?

>

> Gluten's linked to UC and IBS, i read?

[Guest guest]

This nutritionist is keen for me to make a follow up appointment.

I emailed her today to say that after ten days on her high protein low carb diet

I am sleeping badly, I have spots, I have a permanent headache, I have my first

sinus infection for nearly two years and a particularly nasty mouth infection,

the first for four years AND I AM NOT LOSING ANY WEIGHT...

She has responded by recommending the following supplements to support my

thyroid:

Biotics Research

GTA Forte I1 Take 1 capsule, twice daily – at breakfast and lunch. Thyroid

glandular to help relieve symptoms of low thyroid function.

Biotics Research Liquid Iodine Forte Take 10 drops per day on the tongue.

Increase to this gradually and monitor symptoms. To support production of T4.

Allergy Research L-Tyrosine Take 2 capsules at 11am and 2 at 3pm. Tyrosine is a

precursor to T4 and may help relieve symptoms of low thyroid function.

I thought iodine was a no/no for thyroidy people. Me currently TSH rising and

T4 low in range.

Any comment on the others?

Thanks

D

[Guest guest]

if you feel bad, i woudln't follow her recommendations. Can't you consult

someone who knows what they're doing, like Dr P? I haven't found the ION people

to be any good at treating hormonal problems, they may be ok for obesity etc,

but not so sure about hormone issues.

C

>

> This nutritionist is keen for me to make a follow up appointment.

[Guest guest]

I think one needs to be healthily sceptical about all nutritionists, but I would

put my faith warily in those who advise moderate protein and high fat.

Hans

.... I emailed [my nutritionist] today to say that after ten days on her high

protein low carb diet I am sleeping badly, I have spots, I have a permanent

headache...

[Guest guest]

Hello Dolly -

I was guided through my treatment last year by a nutritional therapist who had

been through everything we're all going through. She did not however recommend

anything for my thyroid except a replacement such as Armour rather than

supplements.

Are you sure that the mouth infection isn't thrush? I found out I had candida

which caused carb cravings, weight gain and bad stomach problems - the exclusion

diet (high protein, low or no carb) was to make sure the candida died off. It

wasn't easy - and it certainly took more than ten days to start losing weight.

I was also recommended lots of supplements to get my adrenals and everything

else working - without those adrenal supplements the Armour would in all

likelihood not have been as effective when I did start taking it.

I know there are articles on this site about adrenal fatigue and candida - would

it be worth you reading those to see if you recognise any of the symptoms you

were suffering - and whether what you're going through now is the start of the

cleansing of your system?

I can provide details of the lady I consulted with - she was a patient of Dr

Peatfield and was featured in his book.

Good luck with your continued treatment - hopefully you're now on the road to

recovery!

[Guest guest]

Sorry this reply is late! I just noticed it in my zillion tabs that I keep

forgetting to close!

I wouldn't be so quick to dismiss a low carb or high fat diet, I have heaps of

experience with it. If you're still having trouble sleeping my suggestion would

be to try some carbs at night to help boost serotonin levels. Something such as

a mix of dried fruit, nuts and seeds which contain both carbs and high trytophan

should do the trick. Just a small handful should do.

However, if you have a candida problem the fruit and nuts would be a no no.

>

> Hello Dolly -

>

> I was guided through my treatment last year by a nutritional therapist who had

been through everything we're all going through. She did not however recommend

anything for my thyroid except a replacement such as Armour rather than

supplements.

>

> Are you sure that the mouth infection isn't thrush? I found out I had candida

which caused carb cravings, weight gain and bad stomach problems - the exclusion

diet (high protein, low or no carb) was to make sure the candida died off. It

wasn't easy - and it certainly took more than ten days to start losing weight.

>

> I was also recommended lots of supplements to get my adrenals and everything

else working - without those adrenal supplements the Armour would in all

likelihood not have been as effective when I did start taking it.

>

> I know there are articles on this site about adrenal fatigue and candida -

would it be worth you reading those to see if you recognise any of the symptoms

you were suffering - and whether what you're going through now is the start of

the cleansing of your system?

>

> I can provide details of the lady I consulted with - she was a patient of Dr

Peatfield and was featured in his book.

>

> Good luck with your continued treatment - hopefully you're now on the road to

recovery!

>

[Guest guest]

Hi, I would be interested to hear more about your anti-candida program.

How long does it take to get rid of it? Have you tried sodium biocarbonate

treatment?

Thanks Alla

>

> Sorry this reply is late! I just noticed it in my zillion tabs that I keep

forgetting to close!

>

> I wouldn't be so quick to dismiss a low carb or high fat diet, I have heaps of

experience with it. If you're still having trouble sleeping my suggestion would

be to try some carbs at night to help boost serotonin levels. Something such as

a mix of dried fruit, nuts and seeds which contain both carbs and high trytophan

should do the trick. Just a small handful should do.

>

> However, if you have a candida problem the fruit and nuts would be a no no.

[Ed]

[Guest guest]

Anyone heard of Dorfman- nutritionist? She has been highly recommended to

me by 2 people. Would she know about NV? She's based out of MD near s

Hopkins.

[Guest guest]

Yes I've heard of her but would not recommend her since she recommends

SPEAK-which is horrible. I don't know if she'd be familiar with NV.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

CEO,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Mar 7, 2011, at 5:26 PM, marie drury <marie_drury@...> wrote:

>

> Anyone heard of Dorfman- nutritionist? She has been highly recommended

to

> me by 2 people. Would she know about NV? She's based out of MD near s

> Hopkins.

>

>

[Guest guest]

I just looked up SPEAK. I've never heard about it. Why is it so horrible? Also,

I've read posts on here that say that Vitamin E is toxic and awful, yet others

seem to say it's key in dealing with dyspraxia/apraxia b/c these kids often are

not getting enough. Confused.

________________________________

From: Barbara <helpmespeak@...>

" " < >

Sent: Mon, March 7, 2011 8:23:32 PM

Subject: Re: [ ] nutritionist

Yes I've heard of her but would not recommend her since she recommends

SPEAK-which is horrible. I don't know if she'd be familiar with NV.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

CEO,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Mar 7, 2011, at 5:26 PM, marie drury <marie_drury@...> wrote:

>

> Anyone heard of Dorfman- nutritionist? She has been highly recommended

to

>

> me by 2 people. Would she know about NV? She's based out of MD near s

> Hopkins.

>

>

[Guest guest]

Marie,

Is your child on NV? If so, GREAT! Continue NV. If not, go here

http://www.pursuitofresearch.org for info. You can order through me or on the

siteand say I referred you. I'm sure will chime in on SPEAK---lots of info

in the archives too.

SPEAK has too high levels of vits K & E which could cause hypervitaminosis-and

bad

reactions were reported in many kids-including seizures and regressions.

Dorfman supported SPEAK despite the bad reactions in kids, so I am not a

fan.

Warmest wishes,

Barbara

Barbara A. , M.S., CCC-SLP

CEO/ Help Me Speak, LLC

<http://www.helpmespeak.com/> http://www.helpmespeak.com

(o) 410-442-9791 (f) 410-442-9783

2500 Wallington Way; Suite 103

Marriottsville, MD 21104

Call me with any questions about NutriiVeda!

From:

[mailto: ] On Behalf Of marie drury

Sent: Tuesday, March 08, 2011 9:43 AM

Subject: Re: [ ] nutritionist

I just looked up SPEAK. I've never heard about it. Why is it so horrible?

Also,

I've read posts on here that say that Vitamin E is toxic and awful, yet

others

seem to say it's key in dealing with dyspraxia/apraxia b/c these kids often

are

not getting enough. Confused.

________________________________

From: Barbara <helpmespeak@...

<mailto:helpmespeak%40verizon.net> >

"

<mailto: %40> "

<

<mailto: %40> >

Sent: Mon, March 7, 2011 8:23:32 PM

Subject: Re: [ ] nutritionist

Yes I've heard of her but would not recommend her since she recommends

SPEAK-which is horrible. I don't know if she'd be familiar with NV.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

CEO,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Mar 7, 2011, at 5:26 PM, marie drury <marie_drury@...

<mailto:marie_drury%40> > wrote:

>

> Anyone heard of Dorfman- nutritionist? She has been highly

recommended to

>

> me by 2 people. Would she know about NV? She's based out of MD near s

> Hopkins.

>

[Guest guest]

Marie most of us checked out NV with our child's pediatric medical doctor- you

can use the information here http://pursuitofresearch.org/find-a-professional/

There is much information about this in the archives. It's just food, all

essential nutrients are from food, so not like taking a supplement which can

have issues -thus makes it easier to approve. (kind of like approving water)

About speak- there is also much information about this in the archives-

including recently so as it's a sore spot for many here who's children had

horrific side effects on speak- we don't go into details. But please look up

hypervitaminosis in regards to the amounts of vitamin e and k in the product.

Also, this group had experience over a period of 2 years with primarily 200 to

400 IUs of vitamin e- there were to my knowledge only a handful of parents

working direct with either Dr. or Dr. Agin -Cheryl was one of them for

her daughter Shea who at 4 years old was put on (Cheryl jump in if I'm getting

the dosage wrong) but 1000 IU of vitamin e- and I don't know the exact amounts

but mega amounts of vitamin k as well. Basically Shea was put on the speak

formula but prior to speak existing and by the doctor that formulated it with

her theory of vitamin e. From the formula of speak- Cheryl's daughter started

having psychotic episodes as you can find the archives which did not cease- and

she was not progressing without regressing again until NV as is also in the

archives.

Below is a recent message from a parent of a two year old that did know about

the side effects in others from this group -but Ivy tried the one month special

from the speak company anyway -and the following is a recent topic between us.

Again much more in the archives -but I'm sure there is much in the following as

well.

~~~first message from Ivy -then me- then Ivy

Oh my gosh! Thank you for this message back to me. I am so sickened with anger

and disgust, and cannot believe I gave that product to him. I am so concerned

now, and have much to look into. The doctor (we don't see currently) who

approved us using it, my son was little and underwt last year, saw the amt of E

and K in it and said " go ahead " . Wow, and my little guy did all four caps

weighing about 26lbs.

I know that my son did awful on the SPEAK product, yet I never made the

connection that his regression was cause by it. He didn't go totally silent

after that oil, but definately lost all gains in speech and never could get back

up. IF it had been a dead-stop halt on everything or such bad groping coming out

of his mouth, it would have been much clearer to me.

Disgusted is what i am now. Also, maybe have a direction to seek help going

forward..so many unanswered questions as to his regression have been drilling my

head. Thank you again for shedding light on this. I see Tanner took 7 months to

get back to where he was before SPEAK. My son is 13 months since..and not

getting better. NV, yes, will put him back on this AM. BTW i think i never

answered you when you asked what else my son was on when he did the NV trial..he

was only on a homeopathic remedy, which doesnt matter now..since we may have

answer to this whole situation.

I never saw seizures. Yet i should look up the date when he started rubbing his

forehead..since he doesnt sign " pain/owie " and doesnt point to painful

areas..what if he HAS been getting headaches? He is a kind gemtle child,

cooperative..yet somedays he throws toys outta nowhere and i always attributed

it as yeast/bacteria. (we are having a stool test done this next week because of

all of the symptoms i mentioned). Homeopathy has gotten him to come running to

me with semi-disturbed tears when hurt or to complain about his brother..that

area has improved!

My son never really feels pain as much as other kiddos..and when he is hurt, he

shows pain for a fraction of time..much less than other kids. He feels it, but

gets over it fast. WHAT if he has headaches and doesnt attribute the pain,

discomfort, to tnat and acts out? I cannot give a reason to the head rub he

does.

How do i know if he has headaches?

How long to heal from effects of that nasty oil?

WHAT else do I do to help him? EEG to check for seizures? How do i fix and check

for " hypervitaminosis " ? And is it only the vit E..what about the K..how do I

check..especially since so long ago taken?

Okay going to read up on stuff. Scared a bit at what happened to him..all

possibly because of that product.

Thanks for shedding light,

Ivy

Oh Ivy!!! I'm so sorry!!! Now it all makes sense -I was so confused before and

now it makes sense!!!

My son who was way 11 years old -way older than yours. in less than 2 weeks (so

half the time you had your child on pharma omega speak) regressed to where he

couldn't say ANYTHING on this same product and it took 7 months to be anywhere

back to normal. I still get a knot in my stomach thinking of the poor little guy

standing in our driveway when he opened his mouth to say something and nothing

at all came out -and the look of horror on his face -he regressed back from 11

years old all the way to before he was on fish oils at 2. I have gone into

detail about this as I've outlined my son's severe regression many times here

and how I had to go to his school where he was doing so incredible and speak to

the entire school -teachers, students, head of school all there about

Tanner-with Tanner there. It had gotten around that I put Tanner on an

" exploratory drug " and nobody could figure out why Tanner had trouble saying

even simple words -when prior to pharma omega speak -this is how he was speaking

http://www.debtsmart.net/talk/tanner.html In addition to Tanner's horrific

regression in speech- Tanner's grade PLUMMETED from mainly As and a few Bs to Ds

-he suddenly found the school work difficult that he was able to do prior. This

was after again less than 2 weeks on pharma omega speak. Tanner wasn't put on NV

until about 2 years after pharma omega speak and all that know Tanner -family,

friends and professionals credit NV for not only bringing Tanner back -but he's

so beyond where he was prior -he's excelling beyond the norm in so many areas

now!

While I (or you for that matter) don't know if there were seizures from this

product unless you witnessed it or tested for it, quite a few parents reported

that their children had seizures from this product pharma omega speak that never

had seizures prior. We have used fish oils of all dosages in this group for over

ten years -myself included -at one point Tanner was up to 9 capsules and Dakota

(my ADHD son) up to 10 fish oil capsules a day- and doing great as you can tell

from the recordings of Tanner above. By the way the other thing Tanner developed

after being on pharma omega speak was severe headaches. Do you know if your

child gets headaches? There is a list of side effects in this group and I

believe here as well

http://www.facebook.com/topic.php?uid=115029735601 & topic=7363

I personally am shocked that pharma omega speak is still on the market and it

sickens me to my stomach when I think that (to me) I poisoned my son with

vitamin E and K. You may want to again read the following page

http://www.facebook.com/topic.php?uid=115029735601 & topic=7363

And to read all the reports compiled from this group after trying pharma omega

speak which was overwhelmingly negative you may want to read this from our link

section

/links/Pharma_Omega_Spea\

k_reports_from_group_001224703760/

PLEASE don't take your child off NV Ivy!!!!! Again now that you shared this. Now

it all makes sense to me where I was clearly so confused before! That's what I

was trying to find out -why did your son regress it just didn't make sense!

You absolutely need to take all the information above to your child's doctors

and have your child tested to see if there are any signs of neuro damage since

being on pharmaomega speak.

Look up the words " hypervitaminosis E " and check the meta analysis which shows

vitamin e toxicity and links to giving even an adult 400 IU of vitamin E

increase death for various reasons. Please check the " upper tolerable level "

here at this NIH site and you'll see your child should not have any more than

300 IU of vitamin E http://ods.od.nih.gov/factsheets/vitamine/ Each speak

capsule from what I can remember has 200 IU of alpha vitamin E and 100 IU of

gamma vitamin E. Your child got at least double over the amount of vitamin E.

Before you told me this, as I wrote in the one email, I would have agreed with

that one doctor to stop NV as nothing has made a difference with all the

therapies, therapists, alternative treatments...it all didn't make sense- but

again now it does- and please don't stop NV now that I know!!! Ivy NV is the

only thing that brought my son Tanner back to where he was prior to that being

put on that (in my opinion and yes I'm going to scream it!!!) CRAP!!!!! And my

son was only on it for less than 2 weeks. Not only did NV bring him back but I

thank God every day that he's had such tremendous surges in areas that were

above and beyond from before. Tanner just happened to be in the same school with

the same professionals -one of them highly respected in education in my area of

Florida (Tanner's school was one of the 2 from Florida invited to the

inauguration no matter who became president) It was this head of school after

Tanner was on NV for one week that called me up in shock over the changes in

Tanner in speech and academics -specifically reading non stop and being alert

and focused and participating in class- noticed by all in the school -sudden

dramatic change. Also Tanner effortlessly normalized in weight very quickly -he

lost 6 pounds in 5 days where he never lost a pound prior and 9 pounds in 2

weeks -then he shot up -at one point he grew taller and had lost 15 pounds- he's

now slightly over 6 foot tall at 14 years old and around 180 pounds. he's become

I'd say even graceful in playing basketball and football- he's a different

person. He's independent -all the areas of surge I have here

http://pursuitofresearch.org/pursuit-of-research/

I believe that pharma omega speak created both neurodamage and damage to my

child's metabolic system. THAT is the reason I put my son on NV to begin with

for those that wonder " who in the world would put their child on a product that

was formulated for weight management in adults? " My son was 5 7 and 162 at 13

years old -2 years after that product and no matter how well he ate and how much

he exercised he just kept gaining weight. I have this in the history here

http://pursuitofresearch.org/the-history-why-nutriiveda-for-therapeutic-use-for-\

autism-apraxia-etc/

And for those reading this -if your child has a growth disorder, failure to

thrive and is put on NV -read the reports that the same child will have growth

in height and weight/muscle. These are all the conditions that have not just

parental but professionals anecdotal feedback of positive surges once on NV

Autism Spectrum Disorder, Apraxia, Dyspraxia, Dysarthria, Undiagnosed Speech

Delay, Language Disorder, Asperger Syndrome, ADHD, CAPD, Traumatic Brain Injury,

Seizure Disorders, Epilepsy, Metabolic Disorder, Delayed Myelinazation, Cerebral

Palsy, Tic Disorders, Growth Disorders, Failure To Thrive, Hypotonia, Mild

Periventricular Leukomalacia, Genetic Syndrome, Chromosomal Abnormalities,

Sensory Integration Dysfunction, Cognitive Impairment, Mental Retardation,

Congenital Insensitivity To Pain With Anhidrosis (CIPA) Rare Genetic Disorder,

Agenesis Of Corpus Callosum (Congenital Disorder) Global Delays and even in

Alzheimer's Disease

And we even in our survey have have reports of surges in those children with

undiagnosed speech delays http://pursuitofresearch.org/survey/

The other thing that is very interesting is the high number of older children,

teens and even young adults. It does not appear to matter what age you start NV

to see results -Clearly Teri's 89 year old father who suffered from Alzheimer's

for 9 years is a clear indication of that too!!

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-diseases-of-the-elderly/

In this past year based on my son and SO many others, and based on research on

the foods in NV, I now believe that NV both supports the metabolic system and

creates neuro repair. In regards to the metabolic system - who's 5 and a

half year old son's remarkable surge from severe profound to mild moderate

apraxic in 3 months (yes you read that right -THREE months!!) documented by the

child's SLP and neurologist from Kent University as " must be a combination of

therapy and Nutriiveda " and what will tell you is that her son was

getting 2 days a week of therapy at Kent University and after being put on NV

the therapy was cut to once a week -and yet he still had that surge!

Well another update is that this same child's neurologist did blood testing

since being on NV and now all nutritional levels that were low before are

normalized and this one test which had a range say of 4 to 11 or something - any

higher being really bad -well her son was one below the lowest number. So the

mom asked the neurologist what that meant...and you ready?? The neurologist said

" that just means your child's metabolism is working better than the average

person " She is mailing me the entire report so I can take out names and put that

up here on the same page where her child's professional anecdotal report from

Kent University of the remarkable surge from basically profound to mild apraxia

in 3 months is

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/

Please email me in private- lisa@ I would like to talk to you to help you help

your child. I want to talk to you a bit more about dosage considering the

situation so you can talk to your child's doctor. Oh and by the way -the study

that Jeanne just posted here yesterday about serotonin links to autism -I

updated our page which talks about this one essential amino acid

http://pursuitofresearch.org/2010/11/24/dont-let-the-turkeys-get-you-down-becaus\

e-they-cant/

When you supplement you only get a fraction of the nutrient -perhaps 10 to 30

percent...when you get that same nutrient in food you absorb typically 100

percent. That in itself may be why NV is helping our kids -the essential amino

acid it contains from food are linked to neuro repair

http://pursuitofresearch.org/2010/10/15/two-new-studies-choice-is-diet-or-drugs-\

to-help-tbitraumatic-brain-injury-research-amino-acids/ and the entire product

was formulated by world renowned medical doctors

http://pursuitofresearch.org/endorsed-by-the-chopra-center/ to support the

metabolic system- and as I wrote above we know that's working the way it

should!!

I am so sorry I didn't know your child was ever on pharma omega speak...again I

was so confused but now it all makes sense to me!! And yes I do believe there is

hope Ivy -based on what I have seen in my son Tanner, and now that I know what

your child is dealing with - I so believe that!!!

Hugs,

=====

[Guest guest]

I know a mom who uses Speak and swears by it but I hate it. When I looked

up what it was, I was thinking, " Is she nuts??? " I don't like Speak for a

lot of reasons but the #1 reason why is because it has soy. The high levels

of Vit E in Speak is all soy. All soy in North America is GMO. Soy has

been linked so far to breast cancer and soy also has enzyme inhibitors, so

if your child has any pre-existing digestive issues, soy will exacerbate

it. If your child has any issues with milk, the molecular structure of the

soy protein is so similar to milk that the body cannot tell the difference

and the effect of soy will mimick the milk protein.

One might think that Vit E is a good thing but at those levels...personally,

I feel it's playing with fire. Vit E toxicity for a child who may or may

not have Vit E associated metabolic issues (and therefore elevated levels of

Vit E before starting any supplement) can have dire consequences. If you

look up what Vit E toxicity does to adults, you'll find that one of the

things it does cause is a hemorrahagic stroke. What will it do to kids with

pre-existing elevated levels of E due to metabolic issues? They would reach

toxicity levels much sooner than even a child with no metabolic issues.

I'm not saying whether or not Speak is bad for *everyone* because all our

kids have different issues and we do what we need to do as parents

but...putting aside the fact that it contains soy (I personaly really hate

soy), even if it were synthetic Vit E or ones (rarely) derived from other

sources like sunflower, suitable candidates for Speak would be kids who have

very major Vit E deficiencies. If you're unsure whether or not your child

has severe Vit E deficiencies, I wouldn't do it. And even if your child has

severe Vit E deficiencies, I would choose an alternate Vit E source other

than soy. Sometimes the inability to verbalize is not even associated with

Vit E and I would raise Vit E levels very cautiously when supplementing Vit

E separately, too. There is a relationship between Vit E, Zinc, and

Carnosine. That's already two other variables that Speak will not address

because Speak works under the assumption that there are no carnosine or zinc

deficiencies (which is a very broad assumption to make). Or it could be a

methylation issue, in which case you're totally barking up the wrong tree

and Speak will not resolve it. Then we could talk about viruses,

parasites...so many variables -- and Speak will DEFINITELY not address any

of these. It's a product with a very narrow scope.

I won't even get into the issue of possible pre-existing metabolic issues

with Vit K -- another source of possible complications that can arise from

using Speak. I don't know what people were thinking when they designed this

supplement. Insanely high sources of Vit K and Vit E. Stupid.

>

> Oh Ivy!!! I'm so sorry!!! Now it all makes sense -I was so confused before and

now it makes sense!!!

>

> My son who was way 11 years old -way older than yours. in less than 2 weeks

(so half the time you had your child on pharma omega speak) regressed to where

he couldn't say ANYTHING on this same product and it took 7 months to be

anywhere back to normal. I still get a knot in my stomach thinking of the poor

little guy standing in our driveway when he opened his mouth to say something

and nothing at all came out -and the look of horror on his face -he regressed

back from 11 years old all the way to before he was on fish oils at 2. I have

gone into detail about this as I've outlined my son's severe regression many

times here and how I had to go to his school where he was doing so incredible

and speak to the entire school -teachers, students, head of school all there

about Tanner-with Tanner there. It had gotten around that I put Tanner on an

" exploratory drug " and nobody could figure out why Tanner had trouble saying

even simple words -when prior to pharma omega speak -this is how he was speaking

http://www.debtsmart.net/talk/tanner.html In addition to Tanner's horrific

regression in speech- Tanner's grade PLUMMETED from mainly As and a few Bs to Ds

-he suddenly found the school work difficult that he was able to do prior. This

was after again less than 2 weeks on pharma omega speak. Tanner wasn't put on NV

until about 2 years after pharma omega speak and all that know Tanner -family,

friends and professionals credit NV for not only bringing Tanner back -but he's

so beyond where he was prior -he's excelling beyond the norm in so many areas

now!

>

> While I (or you for that matter) don't know if there were seizures from this

product unless you witnessed it or tested for it, quite a few parents reported

that their children had seizures from this product pharma omega speak that never

had seizures prior. We have used fish oils of all dosages in this group for over

ten years -myself included -at one point Tanner was up to 9 capsules and Dakota

(my ADHD son) up to 10 fish oil capsules a day- and doing great as you can tell

from the recordings of Tanner above. By the way the other thing Tanner developed

after being on pharma omega speak was severe headaches. Do you know if your

child gets headaches? There is a list of side effects in this group and I

believe here as well

http://www.facebook.com/topic.php?uid=115029735601 & topic=7363

>

> I personally am shocked that pharma omega speak is still on the market and it

sickens me to my stomach when I think that (to me) I poisoned my son with

vitamin E and K. You may want to again read the following page

> http://www.facebook.com/topic.php?uid=115029735601 & topic=7363

>

> And to read all the reports compiled from this group after trying pharma omega

speak which was overwhelmingly negative you may want to read this from our link

section

/links/Pharma_Omega_Spea\

k_reports_from_group_001224703760/

>

> PLEASE don't take your child off NV Ivy!!!!! Again now that you shared this.

Now it all makes sense to me where I was clearly so confused before! That's what

I was trying to find out -why did your son regress it just didn't make sense!

>

> You absolutely need to take all the information above to your child's doctors

and have your child tested to see if there are any signs of neuro damage since

being on pharmaomega speak.

>

> Look up the words " hypervitaminosis E " and check the meta analysis which shows

vitamin e toxicity and links to giving even an adult 400 IU of vitamin E

increase death for various reasons. Please check the " upper tolerable level "

here at this NIH site and you'll see your child should not have any more than

300 IU of vitamin E http://ods.od.nih.gov/factsheets/vitamine/ Each speak

capsule from what I can remember has 200 IU of alpha vitamin E and 100 IU of

gamma vitamin E. Your child got at least double over the amount of vitamin E.

>

> Before you told me this, as I wrote in the one email, I would have agreed with

that one doctor to stop NV as nothing has made a difference with all the

therapies, therapists, alternative treatments...it all didn't make sense- but

again now it does- and please don't stop NV now that I know!!! Ivy NV is the

only thing that brought my son Tanner back to where he was prior to that being

put on that (in my opinion and yes I'm going to scream it!!!) CRAP!!!!! And my

son was only on it for less than 2 weeks. Not only did NV bring him back but I

thank God every day that he's had such tremendous surges in areas that were

above and beyond from before. Tanner just happened to be in the same school with

the same professionals -one of them highly respected in education in my area of

Florida (Tanner's school was one of the 2 from Florida invited to the

inauguration no matter who became president) It was this head of school after

Tanner was on NV for one week that called me up in shock over the changes in

Tanner in speech and academics -specifically reading non stop and being alert

and focused and participating in class- noticed by all in the school -sudden

dramatic change. Also Tanner effortlessly normalized in weight very quickly -he

lost 6 pounds in 5 days where he never lost a pound prior and 9 pounds in 2

weeks -then he shot up -at one point he grew taller and had lost 15 pounds- he's

now slightly over 6 foot tall at 14 years old and around 180 pounds. he's become

I'd say even graceful in playing basketball and football- he's a different

person. He's independent -all the areas of surge I have here

http://pursuitofresearch.org/pursuit-of-research/

>

> I believe that pharma omega speak created both neurodamage and damage to my

child's metabolic system. THAT is the reason I put my son on NV to begin with

for those that wonder " who in the world would put their child on a product that

was formulated for weight management in adults? " My son was 5 7 and 162 at 13

years old -2 years after that product and no matter how well he ate and how much

he exercised he just kept gaining weight. I have this in the history here

http://pursuitofresearch.org/the-history-why-nutriiveda-for-therapeutic-use-for-\

autism-apraxia-etc/

>

> And for those reading this -if your child has a growth disorder, failure to

thrive and is put on NV -read the reports that the same child will have growth

in height and weight/muscle. These are all the conditions that have not just

parental but professionals anecdotal feedback of positive surges once on NV

Autism Spectrum Disorder, Apraxia, Dyspraxia, Dysarthria, Undiagnosed Speech

Delay, Language Disorder, Asperger Syndrome, ADHD, CAPD, Traumatic Brain Injury,

Seizure Disorders, Epilepsy, Metabolic Disorder, Delayed Myelinazation, Cerebral

Palsy, Tic Disorders, Growth Disorders, Failure To Thrive, Hypotonia, Mild

Periventricular Leukomalacia, Genetic Syndrome, Chromosomal Abnormalities,

Sensory Integration Dysfunction, Cognitive Impairment, Mental Retardation,

Congenital Insensitivity To Pain With Anhidrosis (CIPA) Rare Genetic Disorder,

Agenesis Of Corpus Callosum (Congenital Disorder) Global Delays and even in

Alzheimer's Disease

>

> And we even in our survey have have reports of surges in those children with

undiagnosed speech delays http://pursuitofresearch.org/survey/

>

> The other thing that is very interesting is the high number of older children,

teens and even young adults. It does not appear to matter what age you start NV

to see results -Clearly Teri's 89 year old father who suffered from Alzheimer's

for 9 years is a clear indication of that too!!

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-diseases-of-the-elderly/

>

> In this past year based on my son and SO many others, and based on research on

the foods in NV, I now believe that NV both supports the metabolic system and

creates neuro repair. In regards to the metabolic system - who's 5 and a

half year old son's remarkable surge from severe profound to mild moderate

apraxic in 3 months (yes you read that right -THREE months!!) documented by the

child's SLP and neurologist from Kent University as " must be a combination of

therapy and Nutriiveda " and what will tell you is that her son was

getting 2 days a week of therapy at Kent University and after being put on NV

the therapy was cut to once a week -and yet he still had that surge!

>

> Well another update is that this same child's neurologist did blood testing

since being on NV and now all nutritional levels that were low before are

normalized and this one test which had a range say of 4 to 11 or something - any

higher being really bad -well her son was one below the lowest number. So the

mom asked the neurologist what that meant...and you ready?? The neurologist said

" that just means your child's metabolism is working better than the average

person " She is mailing me the entire report so I can take out names and put that

up here on the same page where her child's professional anecdotal report from

Kent University of the remarkable surge from basically profound to mild apraxia

in 3 months is

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/

>

> Please email me in private- lisa@ I would like to talk to you to help you help

your child. I want to talk to you a bit more about dosage considering the

situation so you can talk to your child's doctor. Oh and by the way -the study

that Jeanne just posted here yesterday about serotonin links to autism -I

updated our page which talks about this one essential amino acid

http://pursuitofresearch.org/2010/11/24/dont-let-the-turkeys-get-you-down-becaus\

e-they-cant/

>

> When you supplement you only get a fraction of the nutrient -perhaps 10 to 30

percent...when you get that same nutrient in food you absorb typically 100

percent. That in itself may be why NV is helping our kids -the essential amino

acid it contains from food are linked to neuro repair

http://pursuitofresearch.org/2010/10/15/two-new-studies-choice-is-diet-or-drugs-\

to-help-tbitraumatic-brain-injury-research-amino-acids/ and the entire product

was formulated by world renowned medical doctors

http://pursuitofresearch.org/endorsed-by-the-chopra-center/ to support the

metabolic system- and as I wrote above we know that's working the way it

should!!

>

> I am so sorry I didn't know your child was ever on pharma omega speak...again

I was so confused but now it all makes sense to me!! And yes I do believe there

is hope Ivy -based on what I have seen in my son Tanner, and now that I know

what your child is dealing with - I so believe that!!!

>

> Hugs,

>

>

>

>

> =====

>