Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Agreed.SPEAK is Not good for most (if not all) kids. Warmest wishes, Barbara Barbara A. , M.S., CCC-SLP CEO/ Help Me Speak, LLC <http://www.helpmespeak.com/> http://www.helpmespeak.com (o) 410-442-9791 (f) 410-442-9783 2500 Wallington Way; Suite 103 Marriottsville, MD 21104 From: [mailto: ] On Behalf Of Alberta Sent: Friday, March 11, 2011 4:45 AM Subject: Re: [ ] nutritionist I know a mom who uses Speak and swears by it but I hate it. When I looked up what it was, I was thinking, " Is she nuts??? " I don't like Speak for a lot of reasons but the #1 reason why is because it has soy. The high levels of Vit E in Speak is all soy. All soy in North America is GMO. Soy has been linked so far to breast cancer and soy also has enzyme inhibitors, so if your child has any pre-existing digestive issues, soy will exacerbate it. If your child has any issues with milk, the molecular structure of the soy protein is so similar to milk that the body cannot tell the difference and the effect of soy will mimick the milk protein. One might think that Vit E is a good thing but at those levels...personally, I feel it's playing with fire. Vit E toxicity for a child who may or may not have Vit E associated metabolic issues (and therefore elevated levels of Vit E before starting any supplement) can have dire consequences. If you look up what Vit E toxicity does to adults, you'll find that one of the things it does cause is a hemorrahagic stroke. What will it do to kids with pre-existing elevated levels of E due to metabolic issues? They would reach toxicity levels much sooner than even a child with no metabolic issues. I'm not saying whether or not Speak is bad for *everyone* because all our kids have different issues and we do what we need to do as parents but...putting aside the fact that it contains soy (I personaly really hate soy), even if it were synthetic Vit E or ones (rarely) derived from other sources like sunflower, suitable candidates for Speak would be kids who have very major Vit E deficiencies. If you're unsure whether or not your child has severe Vit E deficiencies, I wouldn't do it. And even if your child has severe Vit E deficiencies, I would choose an alternate Vit E source other than soy. Sometimes the inability to verbalize is not even associated with Vit E and I would raise Vit E levels very cautiously when supplementing Vit E separately, too. There is a relationship between Vit E, Zinc, and Carnosine. That's already two other variables that Speak will not address because Speak works under the assumption that there are no carnosine or zinc deficiencies (which is a very broad assumption to make). Or it could be a methylation issue, in which case you're totally barking up the wrong tree and Speak will not resolve it. Then we could talk about viruses, parasites...so many variables -- and Speak will DEFINITELY not address any of these. It's a product with a very narrow scope. I won't even get into the issue of possible pre-existing metabolic issues with Vit K -- another source of possible complications that can arise from using Speak. I don't know what people were thinking when they designed this supplement. Insanely high sources of Vit K and Vit E. Stupid. > > Oh Ivy!!! I'm so sorry!!! Now it all makes sense -I was so confused before and now it makes sense!!! > > My son who was way 11 years old -way older than yours. in less than 2 weeks (so half the time you had your child on pharma omega speak) regressed to where he couldn't say ANYTHING on this same product and it took 7 months to be anywhere back to normal. I still get a knot in my stomach thinking of the poor little guy standing in our driveway when he opened his mouth to say something and nothing at all came out -and the look of horror on his face -he regressed back from 11 years old all the way to before he was on fish oils at 2. I have gone into detail about this as I've outlined my son's severe regression many times here and how I had to go to his school where he was doing so incredible and speak to the entire school -teachers, students, head of school all there about Tanner-with Tanner there. It had gotten around that I put Tanner on an " exploratory drug " and nobody could figure out why Tanner had trouble saying even simple words -when prior to pharma omega speak -this is how he was speaking http://www.debtsmart.net/talk/tanner.html In addition to Tanner's horrific regression in speech- Tanner's grade PLUMMETED from mainly As and a few Bs to Ds -he suddenly found the school work difficult that he was able to do prior. This was after again less than 2 weeks on pharma omega speak. Tanner wasn't put on NV until about 2 years after pharma omega speak and all that know Tanner -family, friends and professionals credit NV for not only bringing Tanner back -but he's so beyond where he was prior -he's excelling beyond the norm in so many areas now! > > While I (or you for that matter) don't know if there were seizures from this product unless you witnessed it or tested for it, quite a few parents reported that their children had seizures from this product pharma omega speak that never had seizures prior. We have used fish oils of all dosages in this group for over ten years -myself included -at one point Tanner was up to 9 capsules and Dakota (my ADHD son) up to 10 fish oil capsules a day- and doing great as you can tell from the recordings of Tanner above. By the way the other thing Tanner developed after being on pharma omega speak was severe headaches. Do you know if your child gets headaches? There is a list of side effects in this group and I believe here as well http://www.facebook.com/topic.php?uid=115029735601 <http://www.facebook.com/topic.php?uid=115029735601 & topic=7363> & topic=7363 > > I personally am shocked that pharma omega speak is still on the market and it sickens me to my stomach when I think that (to me) I poisoned my son with vitamin E and K. You may want to again read the following page > http://www.facebook.com/topic.php?uid=115029735601 <http://www.facebook.com/topic.php?uid=115029735601 & topic=7363> & topic=7363 > > And to read all the reports compiled from this group after trying pharma omega speak which was overwhelmingly negative you may want to read this from our link section /links/Pharma_Omega_ Speak_reports_from_group_001224703760/ > > PLEASE don't take your child off NV Ivy!!!!! Again now that you shared this. Now it all makes sense to me where I was clearly so confused before! That's what I was trying to find out -why did your son regress it just didn't make sense! > > You absolutely need to take all the information above to your child's doctors and have your child tested to see if there are any signs of neuro damage since being on pharmaomega speak. > > Look up the words " hypervitaminosis E " and check the meta analysis which shows vitamin e toxicity and links to giving even an adult 400 IU of vitamin E increase death for various reasons. Please check the " upper tolerable level " here at this NIH site and you'll see your child should not have any more than 300 IU of vitamin E http://ods.od.nih.gov/factsheets/vitamine/ Each speak capsule from what I can remember has 200 IU of alpha vitamin E and 100 IU of gamma vitamin E. Your child got at least double over the amount of vitamin E. > > Before you told me this, as I wrote in the one email, I would have agreed with that one doctor to stop NV as nothing has made a difference with all the therapies, therapists, alternative treatments...it all didn't make sense- but again now it does- and please don't stop NV now that I know!!! Ivy NV is the only thing that brought my son Tanner back to where he was prior to that being put on that (in my opinion and yes I'm going to scream it!!!) CRAP!!!!! And my son was only on it for less than 2 weeks. Not only did NV bring him back but I thank God every day that he's had such tremendous surges in areas that were above and beyond from before. Tanner just happened to be in the same school with the same professionals -one of them highly respected in education in my area of Florida (Tanner's school was one of the 2 from Florida invited to the inauguration no matter who became president) It was this head of school after Tanner was on NV for one week that called me up in shock over the changes in Tanner in speech and academics -specifically reading non stop and being alert and focused and participating in class- noticed by all in the school -sudden dramatic change. Also Tanner effortlessly normalized in weight very quickly -he lost 6 pounds in 5 days where he never lost a pound prior and 9 pounds in 2 weeks -then he shot up -at one point he grew taller and had lost 15 pounds- he's now slightly over 6 foot tall at 14 years old and around 180 pounds. he's become I'd say even graceful in playing basketball and football- he's a different person. He's independent -all the areas of surge I have here http://pursuitofresearch.org/pursuit-of-research/ > > I believe that pharma omega speak created both neurodamage and damage to my child's metabolic system. THAT is the reason I put my son on NV to begin with for those that wonder " who in the world would put their child on a product that was formulated for weight management in adults? " My son was 5 7 and 162 at 13 years old -2 years after that product and no matter how well he ate and how much he exercised he just kept gaining weight. I have this in the history here http://pursuitofresearch.org/the-history-why-nutriiveda-for-therapeutic-use- for-autism-apraxia-etc/ > > And for those reading this -if your child has a growth disorder, failure to thrive and is put on NV -read the reports that the same child will have growth in height and weight/muscle. These are all the conditions that have not just parental but professionals anecdotal feedback of positive surges once on NV Autism Spectrum Disorder, Apraxia, Dyspraxia, Dysarthria, Undiagnosed Speech Delay, Language Disorder, Asperger Syndrome, ADHD, CAPD, Traumatic Brain Injury, Seizure Disorders, Epilepsy, Metabolic Disorder, Delayed Myelinazation, Cerebral Palsy, Tic Disorders, Growth Disorders, Failure To Thrive, Hypotonia, Mild Periventricular Leukomalacia, Genetic Syndrome, Chromosomal Abnormalities, Sensory Integration Dysfunction, Cognitive Impairment, Mental Retardation, Congenital Insensitivity To Pain With Anhidrosis (CIPA) Rare Genetic Disorder, Agenesis Of Corpus Callosum (Congenital Disorder) Global Delays and even in Alzheimer's Disease > > And we even in our survey have have reports of surges in those children with undiagnosed speech delays http://pursuitofresearch.org/survey/ > > The other thing that is very interesting is the high number of older children, teens and even young adults. It does not appear to matter what age you start NV to see results -Clearly Teri's 89 year old father who suffered from Alzheimer's for 9 years is a clear indication of that too!! http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-sh ift-in-diseases-of-the-elderly/ > > In this past year based on my son and SO many others, and based on research on the foods in NV, I now believe that NV both supports the metabolic system and creates neuro repair. In regards to the metabolic system - who's 5 and a half year old son's remarkable surge from severe profound to mild moderate apraxic in 3 months (yes you read that right -THREE months!!) documented by the child's SLP and neurologist from Kent University as " must be a combination of therapy and Nutriiveda " and what will tell you is that her son was getting 2 days a week of therapy at Kent University and after being put on NV the therapy was cut to once a week -and yet he still had that surge! > > Well another update is that this same child's neurologist did blood testing since being on NV and now all nutritional levels that were low before are normalized and this one test which had a range say of 4 to 11 or something - any higher being really bad -well her son was one below the lowest number. So the mom asked the neurologist what that meant...and you ready?? The neurologist said " that just means your child's metabolism is working better than the average person " She is mailing me the entire report so I can take out names and put that up here on the same page where her child's professional anecdotal report from Kent University of the remarkable surge from basically profound to mild apraxia in 3 months is http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-sh ift-in-treatment-of-speech-impairments/ > > Please email me in private- lisa@ I would like to talk to you to help you help your child. I want to talk to you a bit more about dosage considering the situation so you can talk to your child's doctor. Oh and by the way -the study that Jeanne just posted here yesterday about serotonin links to autism -I updated our page which talks about this one essential amino acid http://pursuitofresearch.org/2010/11/24/dont-let-the-turkeys-get-you-down-be cause-they-cant/ > > When you supplement you only get a fraction of the nutrient -perhaps 10 to 30 percent...when you get that same nutrient in food you absorb typically 100 percent. That in itself may be why NV is helping our kids -the essential amino acid it contains from food are linked to neuro repair http://pursuitofresearch.org/2010/10/15/two-new-studies-choice-is-diet-or-dr ugs-to-help-tbitraumatic-brain-injury-research-amino-acids/ and the entire product was formulated by world renowned medical doctors http://pursuitofresearch.org/endorsed-by-the-chopra-center/ to support the metabolic system- and as I wrote above we know that's working the way it should!! > > I am so sorry I didn't know your child was ever on pharma omega speak...again I was so confused but now it all makes sense to me!! And yes I do believe there is hope Ivy -based on what I have seen in my son Tanner, and now that I know what your child is dealing with - I so believe that!!! > > Hugs, > > > > > ===== > Quote Link to comment Share on other sites More sharing options...
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