Incredible update from Robin -please read and share!

[Guest guest]

(If you have a child on nutriiveda and seizure medication, please contact me

lisa@... There are doctors now that want to study what you are about to

read)

Nutriiveda…a life saver!

Robin Ketchum called me from the ICU at a Georgia hospital today. " Our 26 year

old `Real Life Little Mermaid' Mel is in intensive care right this moment and

she almost died yesterday. " Before I go on I want each one reading this to stop

and please say a prayer for that she is out of the hospital and home

well soon.

Robin was not supposed to be using her cell phone but felt it was that important

to reach out to me to update Mel's blog due to what is going on with Mel and

NutriiVeda …and seizures. This is a profound update and one to be taken

seriously by anyone who has a child on seizure medication and nutriiveda.

's doctor is now totally convinced based on what he is seeing that

nutriiveda is " healing 's brain " I'll now explain a bit more in detail

and hope that and her loving family are home from the hospital soon and

Robin can update again herself!

As you may know from reading Mel's blog, who was 25 yeas old when

starting NutriiVeda; went from being almost catatonic, unable to dress, bathe,

feed herself with almost no way to communicate, blank stares into within days

and weeks on nutriiveda a vibrant young woman; eager to catch up on all the

time lost, to talk, play, explore life! as you'll read in her blog has

had profound global apraxia and TBI that went undiagnosed for most of her life

which led to lack of any appropriate therapy. And due to misdiagnosis of mental

retardation and autism and the ABA therapy that came with the autism

misdiagnosis, Mel developed severe post traumatic stress syndrome.

Like most parents with a child today with autism or similar disorders, 's

parents tried everything they could to help their daughter over the past two

decades, and took her from professional to professional. Various treatments,

therapies and even what some today are exploring that I'm not a fan of: off

label medications for autism –in Mel's case the drug for Alzheimer's called

Namenda was tried as well with no success. As Robin puts it most professionals

gave up on –but I never did. How would any of us be if all our life we

were misdiagnosed and treated as if we were mentally retarded and provided with

therapy that was completely inappropriate for us? As bad as that is, Mel's

story got worse. Sometime in 's early 20s in addition to everything

else developed seizures that were life threatening, was in the hospital

twice near death, and had to be put on " high " levels of the seizure medication

Depakote.

If you need to know the details of what happened from day ONE on nutriiveda up

till before the story I'm going to share please read 's entire blog at

http://littlemermaidmelanie.wordpress.com/about What I'm going to share today

is another story of misdiagnosis and another near death moment for - but

this time the story is tied into one of hope and miracles!

As Robin left off on her last messages as anyone can tell – is on her way

to being a normal young woman. Suddenly aware of herself as a woman, other

people around her, and wanting to participate in life's fun and activity every

moment. Robin who was 's primary care giver went from being house bound

to watching 's every moment fearful of another life threatening seizure,

not being able to take to stores or just about anywhere, or a doctor's

appointment at times without sedation, to one who all of a sudden could enjoy

life with her daughters and husband! Life was good and that's where we left

off. Due to the lack of any seizure activity at all Mel's seizure meds were

reduced a few times. There were no seizures and no more " episodes of post

traumatic stress syndrome " that the Ketchum family feared. Mel was working with

a new Prompt speech pathologist named Martha and was scheduled for a new

occupational therapy appointment. She was talking not just to people she knew

but to people she didn't. And…at a recent chiropractic office it appears

even flirted a bit with the young handsome doctor who told her how

beautiful she was and told her that she " reminded him of an actress " …so yes,

things were on their way!

But about a week ago appeared to regress in all areas. She was once

again unable to feed herself and was not verbal. In addition she was acting

very unusual. At first the belief was that 's seizures were back as well

as the post traumatic stress syndrome. Immediately 's Depakote

medication which had been reduced was ordered back up to the original dosage and

Mel was brought to the hospital. Tests were run but just like history –things

were missed, and misdiagnosed. One thing that was discovered immediately is

that did not have any seizure activity at all. The team of doctors did

want to stay on Nutriiveda because it appeared to be helping her and in

addition it was the only thing that would eat. is up to 6

scoops a day for therapeutic reasons and she has it mixed into apple sauce.

was not getting any better however. One neurologist ran a series of

seizure tests on and attempted to trigger a seizure with lights, pain

(!!!) everything, even walking for 30 hours-but no seizures at all.

While looking for seizures what was missed is that had somehow developed

pneumonia. Apparently most of the ICU is filled with what is being called a

communicable outbreak of pneumonia in this Georgia area. I found this online

just now when I searched for this `CDC sees sustained H1N1 activity in

Southeast' Mar 26, 2010

http://www.cidrap.umn.edu/cidrap/content/influenza/swineflu/news/mar2610fluview.\

html The strange thing is that for the first part of the week had no

symptoms at all of being sick. No fever or coughing- nothing. She did start to

complain of pain but of course that was at first thought to be headaches linked

to seizures. Apparently I've been just told by Robin that pneumonia is painful.

Due to undiagnosed pneumonia however 's brain, heart, and kidneys were

all at risk. What the doctors and Mel's family are convinced of is that " Mel

saved her kidneys " " She knew to drink lots of water to flush out her kidneys "

What is incredible about this is that when first started nutriiveda she

never liked to drink anything. It was a struggle to make sure she had enough

hydration –but due to nutriiveda learned to be more in touch with her

body's needs and knew she needed water. If she did not drink all the water she

did (she even got the cup and filled up the water on her own!!) she would have

needed a new kidney by now. Why? Apparently in addition to her body dealing

with pneumonia….her doctors discovered that the Depakote seizure medication that

had been on for the past 4 years was now at a toxic level in her body as

(I'm going to bold this on purpose) HER BODY NO LONGER NEEDED IT!!!!

Yesterday morning almost died from all that went on –but that little

trooper pulled through. A series of more tests, EEG, MRI etc were run and there

are a number of unexplainable changes in 's brain " due to NutriiVeda "

according to the doctors. From 3 years ago 's brain is " healing " and

" normal " There is no doubt that by the " end of this year will be off

all seizure medication " and that she is " not to stop taking NutriiVeda every

day "

The head charge nurse hearing all of this went to Robin to find out more

information for her mother who has suffered from seizures all her life and after

hearing more wanted NutriiVeda for her mom. Robin gave her one of her own

canisters, but the nurse refused to take it without paying J

And this brings me to why Robin felt it so important to update Mel's blog today.

For any parent who has a child with seizures on medication it is VERY important

to get frequent blood testing to measure levels. 's level when it went

toxic from Depakote seizure medication went to 145 which is toxic –the doctors

do not want it to be any higher than 50 for right now. To reiterate

they expect her to be OFF all seizure medication by the " end of this year "

(YAY!!!) Again the " only explanation " for this is that NutriiVeda is " healing

's brain " due to not only the changed reaction in the medication she was

always on –but the actual neuro tested changes in her brain!!! This is just

amazing!

The one other point I want to make is that prior to the heavy

antibiotics was talking to her nurses and asking to go home. " I am not sick.

Can I go home now please? " She was verbal and able to answer yes and no

questions as well as ask the nurses for " lunch " " to drink juice " " a movie "

and other things she wanted! But right now is no longer talking but we

just know once she is off of the antibiotics and able to get back to her 6

scoops a day of NutriiVeda she'll back to her new self! The high dosage of

antibiotics were started last night and is not allowed to eat any foods

due to choking fear so for the next day or so more she will not unfortunately be

on NutriiVeda - the incredible NutriiVeda for a few more days; the same

NutriiVeda that now more than just her family is crediting with " saving Mel's

life " We don't know if NutriiVeda kept Mel from having the symptoms of being

sick that in turn made it difficult to diagnose her accurately but we have to be

thankful that her pneumonia was diagnosed. As I write this now is

still in ICU. Robin is thankful that the hospital is letting her sleep and

shower there so that she can stay with 24/7 till she makes it through

this. The fever has broken and the hope is that can go home sometime

early next week. Please again take a moment to say a prayer for our " Real Life

Little Mermaid " Ketuchum. The poor thing has been through so much- she

needs the chance to live her life that she never had and was just beginning to

have. And…to perhaps flirt with that handsome young doctor again! J

you have all of my prayers. And Robin you are our hero! And to all the

professionals out there –please read this and remember that things are not

always how to appear. Please take the time to know that each case is not only

unique –but a life. And in this case –'s life.

Thank you.

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