Re: Regression from pharma omega SPEAK?

February 26, 2011

Oh Ivy!!! I'm so sorry!!! Now it all makes sense -I was so confused before and

now it makes sense!!!

My son who was way 11 years old -way older than yours. in less than 2 weeks (so

half the time you had your child on pharma omega speak) regressed to where he

couldn't say ANYTHING on this same product and it took 7 months to be anywhere

back to normal. I still get a knot in my stomach thinking of the poor little

guy standing in our driveway when he opened his mouth to say something and

nothing at all came out -and the look of horror on his face -he regressed back

from 11 years old all the way to before he was on fish oils at 2. I have gone

into detail about this as I've outlined my son's severe regression many times

here and how I had to go to his school where he was doing so incredible and

speak to the entire school -teachers, students, head of school all there about

Tanner-with Tanner there. It had gotten around that I put Tanner on an

" exploratory drug " and nobody could figure out why Tanner had trouble saying

even simple words -when prior to pharma omega speak -this is how he was speaking

http://www.debtsmart.net/talk/tanner.html In addition to Tanner's horrific

regression in speech- Tanner's grade PLUMMETED from mainly As and a few Bs to Ds

-he suddenly found the school work difficult that he was able to do prior. This

was after again less than 2 weeks on pharma omega speak. Tanner wasn't put on

NV until about 2 years after pharma omega speak and all that know Tanner

-family, friends and professionals credit NV for not only bringing Tanner back

-but he's so beyond where he was prior -he's excelling beyond the norm in so

many areas now!

While I (or you for that matter) don't know if there were seizures from this

product unless you witnessed it or tested for it, quite a few parents reported

that their children had seizures from this product pharma omega speak that never

had seizures prior. We have used fish oils of all dosages in this group for

over ten years -myself included -at one point Tanner was up to 9 capsules and

Dakota (my ADHD son) up to 10 fish oil capsules a day- and doing great as you

can tell from the recordings of Tanner above. By the way the other thing Tanner

developed after being on pharma omega speak was severe headaches. Do you know

if your child gets headaches? There is a list of side effects in this group and

I believe here as well

http://www.facebook.com/topic.php?uid=115029735601 & topic=7363

I personally am shocked that pharma omega speak is still on the market and it

sickens me to my stomach when I think that (to me) I poisoned my son with

vitamin E and K. You may want to again read the following page

http://www.facebook.com/topic.php?uid=115029735601 & topic=7363

And to read all the reports compiled from this group after trying pharma omega

speak which was overwhelmingly negative you may want to read this from our link

section

/links/Pharma_Omega_Spea\

k_reports_from_group_001224703760/

PLEASE don't take your child off NV Ivy!!!!! Again now that you shared this.

Now it all makes sense to me where I was clearly so confused before! That's

what I was trying to find out -why did your son regress it just didn't make

sense!

You absolutely need to take all the information above to your child's doctors

and have your child tested to see if there are any signs of neuro damage since

being on pharmaomega speak.

Look up the words " hypervitaminosis E " and check the meta analysis which shows

vitamin e toxicity and links to giving even an adult 400 IU of vitamin E

increase death for various reasons. Please check the " upper tolerable level "

here at this NIH site and you'll see your child should not have any more than

300 IU of vitamin E http://ods.od.nih.gov/factsheets/vitamine/ Each speak

capsule from what I can remember has 200 IU of alpha vitamin E and 100 IU of

gamma vitamin E. Your child got at least double over the amount of vitamin E.

Before you told me this, as I wrote in the one email, I would have agreed with

that one doctor to stop NV as nothing has made a difference with all the

therapies, therapists, alternative treatments...it all didn't make sense- but

again now it does- and please don't stop NV now that I know!!! Ivy NV is the

only thing that brought my son Tanner back to where he was prior to that being

put on that (in my opinion and yes I'm going to scream it!!!) CRAP!!!!! And

my son was only on it for less than 2 weeks. Not only did NV bring him back but

I thank God every day that he's had such tremendous surges in areas that were

above and beyond from before. Tanner just happened to be in the same school

with the same professionals -one of them highly respected in education in my

area of Florida (Tanner's school was one of the 2 from Florida invited to the

inauguration no matter who became president) It was this head of school after

Tanner was on NV for one week that called me up in shock over the changes in

Tanner in speech and academics -specifically reading non stop and being alert

and focused and participating in class- noticed by all in the school -sudden

dramatic change. Also Tanner effortlessly normalized in weight very quickly -he

lost 6 pounds in 5 days where he never lost a pound prior and 9 pounds in 2

weeks -then he shot up -at one point he grew taller and had lost 15 pounds- he's

now slightly over 6 foot tall at 14 years old and around 180 pounds. he's

become I'd say even graceful in playing basketball and football- he's a

different person. He's independent -all the areas of surge I have here

http://pursuitofresearch.org/pursuit-of-research/

I believe that pharma omega speak created both neurodamage and damage to my

child's metabolic system. THAT is the reason I put my son on NV to begin with

for those that wonder " who in the world would put their child on a product that

was formulated for weight management in adults? " My son was 5 7 and 162 at 13

years old -2 years after that product and no matter how well he ate and how much

he exercised he just kept gaining weight. I have this in the history here

http://pursuitofresearch.org/the-history-why-nutriiveda-for-therapeutic-use-for-\

autism-apraxia-etc/

And for those reading this -if your child has a growth disorder, failure to

thrive and is put on NV -read the reports that the same child will have growth

in height and weight/muscle. These are all the conditions that have not just

parental but professionals anecdotal feedback of positive surges once on NV

Autism Spectrum Disorder, Apraxia, Dyspraxia, Dysarthria, Undiagnosed Speech

Delay, Language Disorder, Asperger Syndrome, ADHD, CAPD, Traumatic Brain

Injury, Seizure Disorders, Epilepsy, Metabolic Disorder, Delayed Myelinazation,

Cerebral Palsy, Tic Disorders, Growth Disorders, Failure To Thrive, Hypotonia,

Mild Periventricular Leukomalacia, Genetic Syndrome, Chromosomal Abnormalities,

Sensory Integration Dysfunction, Cognitive Impairment, Mental Retardation,

Congenital Insensitivity To Pain With Anhidrosis (CIPA) Rare Genetic Disorder,

Agenesis Of Corpus Callosum (Congenital Disorder) Global Delays and even in

Alzheimerâ€™s Disease

And we even in our survey have have reports of surges in those children with

undiagnosed speech delays http://pursuitofresearch.org/survey/

The other thing that is very interesting is the high number of older children,

teens and even young adults. It does not appear to matter what age you start NV

to see results -Clearly Teri's 89 year old father who suffered from Alzheimer's

for 9 years is a clear indication of that too!!

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-diseases-of-the-elderly/

In this past year based on my son and SO many others, and based on research on

the foods in NV, I now believe that NV both supports the metabolic system and

creates neuro repair. In regards to the metabolic system - who's 5 and

a half year old son's remarkable surge from severe profound to mild moderate

apraxic in 3 months (yes you read that right -THREE months!!) documented by the

child's SLP and neurologist from Kent University as " must be a combination of

therapy and Nutriiveda " and what will tell you is that her son was

getting 2 days a week of therapy at Kent University and after being put on NV

the therapy was cut to once a week -and yet he still had that surge!

Well another update is that this same child's neurologist did blood testing

since being on NV and now all nutritional levels that were low before are

normalized and this one test which had a range say of 4 to 11 or something - any

higher being really bad -well her son was one below the lowest number. So the

mom asked the neurologist what that meant...and you ready?? The neurologist

said " that just means your child's metabolism is working better than the average

person " She is mailing me the entire report so I can take out names and put

that up here on the same page where her child's professional anecdotal report

from Kent University of the remarkable surge from basically profound to mild

apraxia in 3 months is

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/

Please email me in private- lisa@... I would like to talk to you to help

you help your child. I want to talk to you a bit more about dosage considering

the situation so you can talk to your child's doctor. Oh and by the way -the

study that Jeanne just posted here yesterday about serotonin links to autism -I

updated our page which talks about this one essential amino acid

http://pursuitofresearch.org/2010/11/24/dont-let-the-turkeys-get-you-down-becaus\

e-they-cant/

When you supplement you only get a fraction of the nutrient -perhaps 10 to 30

percent...when you get that same nutrient in food you absorb typically 100

percent. That in itself may be why NV is helping our kids -the essential amino

acid it contains from food are linked to neuro repair

http://pursuitofresearch.org/2010/10/15/two-new-studies-choice-is-diet-or-drugs-\

to-help-tbitraumatic-brain-injury-research-amino-acids/ and the entire product

was formulated by world renowned medical doctors

http://pursuitofresearch.org/endorsed-by-the-chopra-center/ to support the

metabolic system- and as I wrote above we know that's working the way it

should!!

I am so sorry I didn't know your child was ever on pharma omega speak...again I

was so confused but now it all makes sense to me!! And yes I do believe there

is hope Ivy -based on what I have seen in my son Tanner, and now that I know

what your child is dealing with - I so believe that!!!

Hugs,

=====

February 26, 2011

Oh my gosh! Thank you for this message back to me. I am so sickened with anger

and disgust, and cannot believe I gave that product to him. I am so concerned

now, and have much to look into. The doctor (we don't see currently) who

approved us using it, my son was little and underwt last year, saw the amt of E

and K in it and said " go ahead " . Wow, and my little guy did all four caps

weighing about 26lbs.

I know that my son did awful on the SPEAK product, yet I never made the

connection that his regression was cause by it. He didn't go totally silent

after that oil, but definately lost all gains in speech and never could get back

up. IF it had been a dead-stop halt on everything or such bad groping coming out

of his mouth, it would have been much clearer to me.

Disgusted is what i am now. Also, maybe have a direction to seek help going

forward..so many unanswered questions as to his regression have been drilling my

head. Thank you again for shedding light on this. I see Tanner took 7 months to

get back to where he was before SPEAK. My son is 13 months since..and not

getting better. NV, yes, will put him back on this AM. BTW i think i never

answered you when you asked what else my son was on when he did the NV trial..he

was only on a homeopathic remedy, which doesnt matter now..since we may have

answer to this whole situation.

I never saw seizures. Yet i should look up the date when he started rubbing his

forehead..since he doesnt sign " pain/owie " and doesnt point to painful

areas..what if he HAS been getting headaches? He is a kind gemtle child,

cooperative..yet somedays he throws toys outta nowhere and i always attributed

it as yeast/bacteria. (we are having a stool test done this next week because of

all of the symptoms i mentioned). Homeopathy has gotten him to come running to

me with semi-disturbed tears when hurt or to complain about his brother..that

area has improved!

My son never really feels pain as much as other kiddos..and when he is hurt, he

shows pain for a fraction of time..much less than other kids. He feels it, but

gets over it fast. WHAT if he has headaches and doesnt attribute the pain,

discomfort, to tnat and acts out? I cannot give a reason to the head rub he

does.

How do i know if he has headaches?

How long to heal from effects of that nasty oil?

WHAT else do I do to help him? EEG to check for seizures? How do i fix and check

for " hypervitaminosis " ? And is it only the vit E..what about the K..how do I

check..especially since so long ago taken?

Okay going to read up on stuff. Scared a bit at what happened to him..all

possibly because of that product.

Thanks for shedding light,

Ivy

>

> Oh Ivy!!! I'm so sorry!!! Now it all makes sense -I was so confused before

and now it makes sense!!!

>

> My son who was way 11 years old -way older than yours. in less than 2 weeks

(so half the time you had your child on pharma omega speak) regressed to where

he couldn't say ANYTHING on this same product and it took 7 months to be

anywhere back to normal. I still get a knot in my stomach thinking of the poor

little guy standing in our driveway when he opened his mouth to say something

and nothing at all came out -and the look of horror on his face -he regressed

back from 11 years old all the way to before he was on fish oils at 2. I have

gone into detail about this as I've outlined my son's severe regression many

times here and how I had to go to his school where he was doing so incredible

and speak to the entire school -teachers, students, head of school all there

about Tanner-with Tanner there. It had gotten around that I put Tanner on an