RE: An article about Jeanne Buesser's new book 'He Talk...

[Guest guest]

yayyyy JEanne!!!!

In a message dated 3/24/2011 1:26:54 P.M. Eastern Daylight Time,

kiddietalk@... writes:

Yay Jeanne- more awareness! Congratulations and for those that don't know

you can buy Jeanne's book on Amazon.

Speaking loudly on talking ‘funny’

Thursday, March 24, 2011

BY BRYAN WASSEL

Town News

STAFF WRITER

With much of the media's time devoted to covering " hot topic " medical

news, some lesser-known disorders may not receive the coverage they deserve,

leaving parents without the knowledge they need to help their children with

special needs.

Paramus resident Jeanne Buesser, author of the book " He Talks Funny, " has

devoted her time to spreading the word about apraxia after one of her sons

was diagnosed the little-known neurological disorder.

Apraxia prevents a person from making the correct sounds, in turn making

it difficult for them to articulate their speech. Buesser described it as

" like having a loose wire or connection in the brain, " as affected people

possess the correct structures in and around their mouth that produce speech,

but faulty connections to the brain prevent their words from coming out

clearly.

" He Talks Funny " is part of Buesser's most recent efforts to inform the

public about apraxia, and tells the story of a child with the disorder and

how he and his mother teach his day camp about the issue, helping them accept

him. The book also contains a list of early warning signs that a child may

have the communication disorder, as well as additional resources parents

can access online.

When her second son, Adam, was diagnosed with apraxia more than a decade

ago, Buesser soon discovered that there was little information about or help

for the disorder available to the public.

" I didn't know what it was until he was diagnosed from early

intervention, " Buesser said. " Once he was diagnosed, I realized there was no

support. "

She soon discovered the Cherab Foundation, a support organization founded

by her friend in Union County, and began attending support meetings.

However, she remained concerned about the lack of such an organization to

inform

and aid parents of children with apraxia in northern New Jersey.

Using her own money and the assistance of a helpful IRS employee, Buesser

researched creating her own non-profit organization and formed the Apraxia

Network of Bergen County, a grassroots organization that offers help to

parents of children with this disorder both locally and across the country.

" If you don't necessarily know about apraxia, and you don't know where to

go or get help it's very frustrating, because the parents themselves feel

isolated, " Buesser said. " They have no support; they don't know where to go. "

One of the challenges Buesser has dealt with is making sure apraxia and

its own differing levels of severity are diagnosed separately. After being

invited to a Social Security Administration meeting several years ago, she

found that professionals wanted to add apraxia to the Diagnostic and

Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) under the

autism

label.

" You can't do that, " Buesser said. " You have children with different

diagnoses, different behaviors or symptoms. Some have more behaviors than

others. Some do not have any behaviors, so you can't put them all into the same

melting pot. "

Treating a child with apraxia the same way as one would treat a child with

autism will just lead to frustration, according to Buesser. As a

completely different disorder it requires different therapy, and putting it

under

the autism blanket could impair parents who don't understand the speech

disorder and can inadvertently lead to false conclusions.

" One of the interesting things I've found over the years is that if people

don't understand something but they see it, [they think] that it must be

right, " Buesser said. " But it's not. "

Diagnosis and therapy needs to start early, between birth and 5 years old,

according to Buesser.

" One of the basic problems that I've found, about that outreach, is a lot

of people don't know about apraxia, they may have never heard about it, "

she said. " They don't know where to go for evaluations, if there's a problem

where to go for help, because a lot of people don't always know about it. "

The potential signs of apraxia include if a baby doesn't babble or enjoy

imitating sounds, and seems to be on the late side of speech development,

according to Buesser. Speech is often neglected during routine checkups, so

it is important for parents to keep an eye out for any warning signs

stemming from an unusually quiet child, she said.

The Apraxia Network of Bergen County meets from 7 to 8:30 p.m. on

Wednesdays at Temple Sholom, 385 Howland Ave. in River Edge. Contact Buesser at

_jbmistletoe@..._ (mailto:jbmistletoe@...) for more

information about the network, or _jbmistletoe@..._

(mailto:jbmistletoe@...) for more information about " He Talks Funny. "

_http://www.northjersey.com/news/118556039_Speaking_loudly_on_talking__funny

__.html_

(http://www.northjersey.com/news/118556039_Speaking_loudly_on_talking__funny__.h\

tml)

=====

Geng

President CHERAB Foundation

Communication Help, Education, Research, Apraxia Base

_http://www.cherab.org/_ (http://www.cherab.org/)

_http://www.pursuitofresearch.org_ (http://www.pursuitofresearch.org/)

_http://www.apraxia.org/_ (http://www.apraxia.org/)

_http://twitter.com/TheLateTalker_ (http://twitter.com/TheLateTalker)

772-335-5135

" Help give our cherubs a smile and a voice "

[Guest guest]

You should be very proud! You have accomplished so much!

Meyer

Administrative Assistant

SMC, Our Knowledge is Your Power

p: 417.865.2825 I 800.264.5293

f: 417.865.3019

From:

[mailto: ] On Behalf Of tbniesh@...

Sent: Thursday, March 24, 2011 2:06 PM

Subject: Re: [ ] An article about Jeanne Buesser's new book

'He Talk...

yayyyy JEanne!!!!

In a message dated 3/24/2011 1:26:54 P.M. Eastern Daylight Time,

kiddietalk@... <mailto:kiddietalk%40> writes:

Yay Jeanne- more awareness! Congratulations and for those that don't know

you can buy Jeanne's book on Amazon.

Speaking loudly on talking ‘funny’

Thursday, March 24, 2011

BY BRYAN WASSEL

Town News

STAFF WRITER

With much of the media's time devoted to covering " hot topic " medical

news, some lesser-known disorders may not receive the coverage they deserve,

leaving parents without the knowledge they need to help their children with

special needs.

Paramus resident Jeanne Buesser, author of the book " He Talks Funny, " has

devoted her time to spreading the word about apraxia after one of her sons

was diagnosed the little-known neurological disorder.

Apraxia prevents a person from making the correct sounds, in turn making

it difficult for them to articulate their speech. Buesser described it as

" like having a loose wire or connection in the brain, " as affected people

possess the correct structures in and around their mouth that produce speech,

but faulty connections to the brain prevent their words from coming out

clearly.

" He Talks Funny " is part of Buesser's most recent efforts to inform the

public about apraxia, and tells the story of a child with the disorder and

how he and his mother teach his day camp about the issue, helping them accept

him. The book also contains a list of early warning signs that a child may

have the communication disorder, as well as additional resources parents

can access online.

When her second son, Adam, was diagnosed with apraxia more than a decade

ago, Buesser soon discovered that there was little information about or help

for the disorder available to the public.

" I didn't know what it was until he was diagnosed from early

intervention, " Buesser said. " Once he was diagnosed, I realized there was no

support. "

She soon discovered the Cherab Foundation, a support organization founded

by her friend in Union County, and began attending support meetings.

However, she remained concerned about the lack of such an organization to inform

and aid parents of children with apraxia in northern New Jersey.

Using her own money and the assistance of a helpful IRS employee, Buesser

researched creating her own non-profit organization and formed the Apraxia

Network of Bergen County, a grassroots organization that offers help to

parents of children with this disorder both locally and across the country.

" If you don't necessarily know about apraxia, and you don't know where to

go or get help it's very frustrating, because the parents themselves feel

isolated, " Buesser said. " They have no support; they don't know where to go. "

One of the challenges Buesser has dealt with is making sure apraxia and

its own differing levels of severity are diagnosed separately. After being

invited to a Social Security Administration meeting several years ago, she

found that professionals wanted to add apraxia to the Diagnostic and

Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) under the autism

label.

" You can't do that, " Buesser said. " You have children with different

diagnoses, different behaviors or symptoms. Some have more behaviors than

others. Some do not have any behaviors, so you can't put them all into the same

melting pot. "

Treating a child with apraxia the same way as one would treat a child with

autism will just lead to frustration, according to Buesser. As a

completely different disorder it requires different therapy, and putting it

under

the autism blanket could impair parents who don't understand the speech

disorder and can inadvertently lead to false conclusions.

" One of the interesting things I've found over the years is that if people

don't understand something but they see it, [they think] that it must be

right, " Buesser said. " But it's not. "

Diagnosis and therapy needs to start early, between birth and 5 years old,

according to Buesser.

" One of the basic problems that I've found, about that outreach, is a lot

of people don't know about apraxia, they may have never heard about it, "

she said. " They don't know where to go for evaluations, if there's a problem

where to go for help, because a lot of people don't always know about it. "

The potential signs of apraxia include if a baby doesn't babble or enjoy

imitating sounds, and seems to be on the late side of speech development,

according to Buesser. Speech is often neglected during routine checkups, so

it is important for parents to keep an eye out for any warning signs

stemming from an unusually quiet child, she said.

The Apraxia Network of Bergen County meets from 7 to 8:30 p.m. on

Wednesdays at Temple Sholom, 385 Howland Ave. in River Edge. Contact Buesser at

_jbmistletoe@... <mailto:_jbmistletoe%40optonline.net> _

(mailto:jbmistletoe@... <mailto:jbmistletoe%40optonline.net> ) for

more

information about the network, or _jbmistletoe@...

<mailto:_jbmistletoe%40gmail.com> _

(mailto:jbmistletoe@... <mailto:jbmistletoe%40gmail.com> ) for more

information about " He Talks Funny. "

_http://www.northjersey.com/news/118556039_Speaking_loudly_on_talking__funny

__.html_

(http://www.northjersey.com/news/118556039_Speaking_loudly_on_talking__funny__.h\

tml)

=====