Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Hi again ! Just came back to answer the rest without the name of the other shall not be named mentioned as clearly I do get emotional for what it did to my son and other children here. OK read your message again and you have a 2 year old who has not had much progress- let's look at some of the exploratory supplements and treatments you are using Cod liver oil -no shock you haven't noticed anything from that alone as it's for the vast majority the wrong formula. ProEPA isn't the right formula either to start with as that too is a pure Omega 3. Over the past decade most of us found the best success with a fish oil mixed with GLA -higher EPA to DHA, just a small amount of GLA. ProEFA with an " F " would be the formula to start with -or to get it right away and just spend a bit more as you only get 60 capsules vs 90 you can buy the commercial version at the store called Omega 369 with borage oil. Over the years Efalex and Eye Q are great formulas for success as well -and as far as pure Omega 3 Coromega is a great fish oil product because it's so high in EPA to DHA even though there is no GLA (omega 6 from either primrose or borage seed oil) Most find no difference between ProEFA and EyeQ but those formulas are better than Efalex and Coromega...in fact Efalex is typically better than Coromega. But you can always add a few drops of primrose oil to the Coromega. We did a parent feedback between ProEFA (which is in Nordic's professional line and only sold by health care professionals or online) and found little to no change with CLO and moderate to dramatic surges with just one capsule of ProEFA...and this was with a roomful of skeptics in our then NJ in person support group with about 100 members, and then repeated with the same results through ECHO of Canada which used to be an in person support group there as well. Here's a blog I wrote on EFAs http://pursuitofresearch.org/2010/12/01/therapeutic-use-of-fish-oil-for-apraxia-\ autism-and-other-communication-impairments/ As far as probiotics, vitamin D, dairy free, anti fungal...(he's not going to throw the kitchen sink at your 2 year old next is he?) All may have their place- but think you should start with the basics. Even though to me that is appropriate diagnosis and therapy will address the methods you are using first. I highly recommend you just start with the " right " formula of fish oils, and NV I can't speak highly enough about and that will in almost all cases eliminate the need for supplementation of vitamin D or anti fungals (and it is 100 percent casein free) but more is not always better. Nutrients that come from food are the purest way to get nutrients and the foods in NV are natural anti fungals, anti virals, etc. http://pursuitofresearch.org/2010/11/29/autism-antivirals-drugs-or-food/ So outside of fish oils, I find many of us have had incredible results with trying to feed our children as healthy as possible, of course fish oils and now NV, and making sure there is appropriate therapies. I was a celiac baby and had to be raised GFCF -please don't put your child through that what I consider nightmare diet unless you have to. I hated that diet and dread I'll have to be on it again as I get older -my mom is back on it again. Kids like to share lunches, eat birthday cake, have pancakes with the other kids at sleepovers etc. Probiotics can be helpful to some -they made my son regress unless I used a dairy probiotic for some reason -since you are dealing with the gut and essential fatty acids which are long chained you need to be aware that some things may short chain the long chained polyunsaturated fatty acids in the gut. There are some kids that do need probiotics and digestive enzymes (see Sandy's message below) but I'd still start without them and add after a few weeks or so as Sandy did. My son had gut issues as well but again regressed on just about every single probiotic we put him on. By your son's age and the fact there is no progression and the amount of things this person threw at your baby I would seek a second opinion. Even if he didn't recommend that other product that shall not be named (unless it has to be) Tell me more about who diagnosed your child and what type of therapy he is currently receiving. The brain responds to multiple stimuli and appropriate therapy is key. Good nutrients will help stimulate that faster from what we have seen -and in the case of NV to the point of unbelievable, ( http://pursuitofresearch.org/2011/01/19/one-year-later-a-possible-cure-through-e\ ssential-nutrition-for-autism-apraxia-etc/ )but you still want therapy too. Hope that helps and sorry if I freaked out about the one part and didn't talk about the other but I really had to step away from the computer any time I think about what could have been with my son Tanner...and so many others. We do have one member who's child is still having seizures and never had them prior to that high vitamin E product -and she too was just a peanut 2 year old when put on it...and she's right now looking into starting NV. I just pray it stops the seizures for Evoni as well since it brought me my son back -and even way beyond where he was prior. And also because of this http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\ in-treatment-of-seizures/ ===== Quote Link to comment Share on other sites More sharing options...
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