Cod liver oil

[Guest guest]

, I have babesia only and I noticed the cod liver gels made my symptoms

worse. I stopped it a year ago. I take fish oil gelcaps and feel fine. Doug

> From: <canefan18@...>

> Subject: [ ] Cod Liver Oil

>

> Date: Monday, November 8, 2010, 4:37 PM

> I'm ordering soon and would like to

> hear some experiences with this supplement.

>

> Is the liquid prefered over the capsules?

>

> Does the liquid cause a Bartonella flare up? (I know some

> people don't do well with sweets or oils... wasn't sure if

> Cod Liver Oil fit the bill)

>

>

>

>

>

> ------------------------------------

>

> Buy Healing Lyme: Natural Healing And Prevention of Lyme

> Borreliosis And Its Coinfections by Buhner at one of

> these locations:

> http://tinyurl.com/3bgm5d

>

>

[Guest guest]

>

> Hello Bee

>

> You recommend several oils of which blue ice is one. The oil is fermented and

is much more nutrient dense than others and the high cost may not be so high if

you compare the cost per mm of each nutrient/product.

>

> I've read that vitamins and minerals are very hard for the body to absorb

regardless of dosage and that sometimes only 25% are absorbed. Do you know if

the body would absorb more of the vitamin a for example in clo if fermented vs

not being fermented? looking for the best product best cost.

+++Hi there. Is your name Norma?

First, all nutrients work together including fats, proteins, vitamins, minerals,

etc.

Minerals need the combination of fats I recommend in order to be absorbed, along

with acids which is why I recommend cal/mag in citrate form.

Vitamin A, D & E are oil soluble vitamins and they work together with other fats

and oils along 2 processing pathways in the body, i.e. omega 3 and omega 6

pathways.

However B and C vitamins are water soluble so they are easily absorbed.

I don't believe the fermented CLO provides more benefits than what I recommend,

and Dave Wenzel who makes it cannot provide any consistent measurement of omega

3 or vitamins A or D in it, so I don't recommend it. Fermenting plant foods

makes sense, however fermenting oils doesn't, since they are so easily absorbed.

I recommend Garden of Life CLO plus 1 capsule of a liver oil. The combination I

recommend is also much less expensive. This combination is obviously helping

people too!

All the best, Bee

[Guest guest]

Geez Bee, The only good thing about candida is that I can always blame it for

forgetting to sign my name. I said that in jest but it's probably true. I am

Norm.

Thanks for the garden of life info. Itlooked good to me in the first place but

the blue ice fermentation thing worked on my mind probably since I make and love

sauerkraut so much.

Norm

> >

> > Hello Bee

> >

> > You recommend several oils of which blue ice is one. The oil is fermented

and is much more nutrient dense than others and the high cost may not be so high

if you compare the cost per mm of each nutrient/product.

> >

> > I've read that vitamins and minerals are very hard for the body to absorb

regardless of dosage and that sometimes only 25% are absorbed. Do you know if

the body would absorb more of the vitamin a for example in clo if fermented vs

not being fermented? looking for the best product best cost.

>

> +++Hi there. Is your name Norma?

>

> First, all nutrients work together including fats, proteins, vitamins,

minerals, etc.

>

> Minerals need the combination of fats I recommend in order to be absorbed,

along with acids which is why I recommend cal/mag in citrate form.

>

> Vitamin A, D & E are oil soluble vitamins and they work together with other

fats and oils along 2 processing pathways in the body, i.e. omega 3 and omega 6

pathways.

>

> However B and C vitamins are water soluble so they are easily absorbed.

>

> I don't believe the fermented CLO provides more benefits than what I

recommend, and Dave Wenzel who makes it cannot provide any consistent

measurement of omega 3 or vitamins A or D in it, so I don't recommend it.

Fermenting plant foods makes sense, however fermenting oils doesn't, since they

are so easily absorbed.

>

> I recommend Garden of Life CLO plus 1 capsule of a liver oil. The combination

I recommend is also much less expensive. This combination is obviously helping

people too!

>

> All the best, Bee

>

[Guest guest]

My mother used to FORCE me to swallow a teaspoon of cod liver oil every morning when I was a kid.  She said it was so my hair would shine...  I NEVER made my kid take that stuff!On Wed, Dec 15, 2010 at 8:31 PM, Christ <ludichrist2000@...> wrote:

 

Hi Gloria

I remember when I was young - 'cod liver oil' was what my folks gave me.

All my brothers and sisters hated it, but I found it yummy.

Now I take it in the form of capsules called Omega 3 from the Health Food store.

 

From Wikipedia:

Cod liver oil is a nutritional supplement derived from liver of cod fish. It has high levels of the omega-3 fatty acids, EPA and DHA, and very high levels of vitamin A and vitamin D. It is widely taken to ease the symptoms of arthritis and for other health benefits. It was once

commonly given to children, because the high levels of vitamin D in cod liver oil have been shown to prevent rickets.

http://en.wikipedia.org/wiki/Cod_liver_oil

 

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=cod%20liver%20oil & type=

 

Hepatitis C and cod liver oil:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

 

From HealthyHepper:

VITAMINS THAT CAN BE HAZARDOUS TO ANYONE WITH HCV

If you have a liver disease, it is recommended that you do not take a dose of over 10,000 international units of vitamin A or any amount of cod liver oil. However, according to F Balch. Mathhew Dolan (author of The Hepatitis C Handbook)says no more than 25,000 IU’s of vitamin A should be taken daily. Apparently, the opinion varies. Most multivitamin complexes do not exceed this amount. My gastro doctor seems to be confident that vitamin A would not be harmful unless taken in “mega doses”, that no multivitamin is close to approaching.

http://www.healthyhepper.com/vitamins.htm

 

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

Use of Omega-3 Fatty Acids (Fish Oil) in Patients With Chronic Hepatitis C Infection

http://clinicaltrials.gov/ct2/show/NCT00547716

love

don in ks

 

 

[Guest guest]

Ya; but, at least in comes in capsule form now!! As long as you don't burp while it is still in the upper stomach that is.

My mother used to FORCE me to swallow a teaspoon of cod liver oil every morning when I was a kid. She said it was so my hair would shine... I NEVER made my kid take that stuff!On Wed, Dec 15, 2010 at 8:31 PM, Christ <ludichrist2000@...> wrote:

Hi Gloria

I remember when I was young - 'cod liver oil' was what my folks gave me.

All my brothers and sisters hated it, but I found it yummy.

Now I take it in the form of capsules called Omega 3 from the Health Food store.

From Wikipedia:

Cod liver oil is a nutritional supplement derived from liver of cod fish. It has high levels of the omega-3 fatty acids, EPA and DHA, and very high levels of vitamin A and vitamin D. It is widely taken to ease the symptoms of arthritis and for other health benefits. It was once

commonly given to children, because the high levels of vitamin D in cod liver oil have been shown to prevent rickets.

http://en.wikipedia.org/wiki/Cod_liver_oil

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=cod%20liver%20oil & type=

Hepatitis C and cod liver oil:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

From HealthyHepper:

VITAMINS THAT CAN BE HAZARDOUS TO ANYONE WITH HCV

If you have a liver disease, it is recommended that you do not take a dose of over 10,000 international units of vitamin A or any amount of cod liver oil. However, according to F Balch. Mathhew Dolan (author of The Hepatitis C Handbook)says no more than 25,000 IU’s of vitamin A should be taken daily. Apparently, the opinion varies. Most multivitamin complexes do not exceed this amount. My gastro doctor seems to be confident that vitamin A would not be harmful unless taken in “mega dosesâ€, that no multivitamin is close to approaching.

http://www.healthyhepper.com/vitamins.htm

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

Use of Omega-3 Fatty Acids (Fish Oil) in Patients With Chronic Hepatitis C Infection

http://clinicaltrials.gov/ct2/show/NCT00547716

love

don in ks

[Guest guest]

I get the chills just thinking about it...  that was torture.  On Wed, Dec 15, 2010 at 9:59 PM, Gloria <gadamscan@...> wrote:

 

Ya; but, at least in comes in capsule form now!!  As long as you don't burp while it is still in the upper stomach that is.

 

My mother used to FORCE me to swallow a teaspoon of cod liver oil every morning when I was a kid.  She said it was so my hair would shine...  I NEVER made my kid take that stuff!

On Wed, Dec 15, 2010 at 8:31 PM, Christ <ludichrist2000@...> wrote:

 

Hi Gloria

I remember when I was young - 'cod liver oil' was what my folks gave me.

All my brothers and sisters hated it, but I found it yummy.

Now I take it in the form of capsules called Omega 3 from the Health Food store.

 

From Wikipedia:

Cod liver oil is a nutritional supplement derived from liver of cod fish. It has high levels of the omega-3 fatty acids, EPA and DHA, and very high levels of vitamin A and vitamin D. It is widely taken to ease the symptoms of arthritis and for other health benefits. It was once

commonly given to children, because the high levels of vitamin D in cod liver oil have been shown to prevent rickets.

http://en.wikipedia.org/wiki/Cod_liver_oil

 

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=cod%20liver%20oil & type=

 

Hepatitis C and cod liver oil:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

 

From HealthyHepper:

VITAMINS THAT CAN BE HAZARDOUS TO ANYONE WITH HCV

If you have a liver disease, it is recommended that you do not take a dose of over 10,000 international units of vitamin A or any amount of cod liver oil. However, according to F Balch. Mathhew Dolan (author of The Hepatitis C Handbook)says no more than 25,000 IU’s of vitamin A should be taken daily. Apparently, the opinion varies. Most multivitamin complexes do not exceed this amount. My gastro doctor seems to be confident that vitamin A would not be harmful unless taken in “mega doses”, that no multivitamin is close to approaching.

http://www.healthyhepper.com/vitamins.htm

 

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

Use of Omega-3 Fatty Acids (Fish Oil) in Patients With Chronic Hepatitis C Infection

http://clinicaltrials.gov/ct2/show/NCT00547716

love

don in ks

 

 

[Guest guest]

Then I'll bet that you just love Buckley's! LOL Whole trouble is - it does work. At least if you can swallow it.

I get the chills just thinking about it... that was torture. On Wed, Dec 15, 2010 at 9:59 PM, Gloria <gadamscan@...> wrote:

Ya; but, at least in comes in capsule form now!! As long as you don't burp while it is still in the upper stomach that is.

My mother used to FORCE me to swallow a teaspoon of cod liver oil every morning when I was a kid. She said it was so my hair would shine... I NEVER made my kid take that stuff!

On Wed, Dec 15, 2010 at 8:31 PM, Christ <ludichrist2000@...> wrote:

Hi Gloria

I remember when I was young - 'cod liver oil' was what my folks gave me.

All my brothers and sisters hated it, but I found it yummy.

Now I take it in the form of capsules called Omega 3 from the Health Food store.

From Wikipedia:

Cod liver oil is a nutritional supplement derived from liver of cod fish. It has high levels of the omega-3 fatty acids, EPA and DHA, and very high levels of vitamin A and vitamin D. It is widely taken to ease the symptoms of arthritis and for other health benefits. It was once

commonly given to children, because the high levels of vitamin D in cod liver oil have been shown to prevent rickets.

http://en.wikipedia.org/wiki/Cod_liver_oil

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=cod%20liver%20oil & type=

Hepatitis C and cod liver oil:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

From HealthyHepper:

VITAMINS THAT CAN BE HAZARDOUS TO ANYONE WITH HCV

If you have a liver disease, it is recommended that you do not take a dose of over 10,000 international units of vitamin A or any amount of cod liver oil. However, according to F Balch. Mathhew Dolan (author of The Hepatitis C Handbook)says no more than 25,000 IU’s of vitamin A should be taken daily. Apparently, the opinion varies. Most multivitamin complexes do not exceed this amount. My gastro doctor seems to be confident that vitamin A would not be harmful unless taken in “mega dosesâ€, that no multivitamin is close to approaching.

http://www.healthyhepper.com/vitamins.htm

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

Use of Omega-3 Fatty Acids (Fish Oil) in Patients With Chronic Hepatitis C Infection

http://clinicaltrials.gov/ct2/show/NCT00547716

love

don in ks

[Guest guest]

At the risk of sounding dumb...  which I am willing to risk....  What is Buckley's?Hugs,TeriOn Thu, Dec 16, 2010 at 12:14 AM, Gloria <gadamscan@...> wrote:

 

Then I'll bet that you just love Buckley's!  LOL   Whole trouble is - it does work.  At least if you can swallow it.

 

I get the chills just thinking about it...  that was torture.  On Wed, Dec 15, 2010 at 9:59 PM, Gloria <gadamscan@...> wrote:

 

Ya; but, at least in comes in capsule form now!!  As long as you don't burp while it is still in the upper stomach that is.

 

My mother used to FORCE me to swallow a teaspoon of cod liver oil every morning when I was a kid.  She said it was so my hair would shine...  I NEVER made my kid take that stuff!

On Wed, Dec 15, 2010 at 8:31 PM, Christ <ludichrist2000@...> wrote:

 

Hi Gloria

I remember when I was young - 'cod liver oil' was what my folks gave me.

All my brothers and sisters hated it, but I found it yummy.

Now I take it in the form of capsules called Omega 3 from the Health Food store.

 

From Wikipedia:

Cod liver oil is a nutritional supplement derived from liver of cod fish. It has high levels of the omega-3 fatty acids, EPA and DHA, and very high levels of vitamin A and vitamin D. It is widely taken to ease the symptoms of arthritis and for other health benefits. It was once

commonly given to children, because the high levels of vitamin D in cod liver oil have been shown to prevent rickets.

http://en.wikipedia.org/wiki/Cod_liver_oil

 

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=cod%20liver%20oil & type=

 

Hepatitis C and cod liver oil:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

 

From HealthyHepper:

VITAMINS THAT CAN BE HAZARDOUS TO ANYONE WITH HCV

If you have a liver disease, it is recommended that you do not take a dose of over 10,000 international units of vitamin A or any amount of cod liver oil. However, according to F Balch. Mathhew Dolan (author of The Hepatitis C Handbook)says no more than 25,000 IU’s of vitamin A should be taken daily. Apparently, the opinion varies. Most multivitamin complexes do not exceed this amount. My gastro doctor seems to be confident that vitamin A would not be harmful unless taken in “mega doses”, that no multivitamin is close to approaching.

http://www.healthyhepper.com/vitamins.htm

 

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

Use of Omega-3 Fatty Acids (Fish Oil) in Patients With Chronic Hepatitis C Infection

http://clinicaltrials.gov/ct2/show/NCT00547716

love

don in ks

 

 

[Guest guest]

The Buckley's cough medicine!! It tastes terrible; but, it works...

At the risk of sounding dumb... which I am willing to risk.... What is Buckley's?Hugs,TeriOn Thu, Dec 16, 2010 at 12:14 AM, Gloria <gadamscan@...> wrote:

Then I'll bet that you just love Buckley's! LOL Whole trouble is - it does work. At least if you can swallow it.

I get the chills just thinking about it... that was torture. On Wed, Dec 15, 2010 at 9:59 PM, Gloria <gadamscan@...> wrote:

Ya; but, at least in comes in capsule form now!! As long as you don't burp while it is still in the upper stomach that is.

My mother used to FORCE me to swallow a teaspoon of cod liver oil every morning when I was a kid. She said it was so my hair would shine... I NEVER made my kid take that stuff!

On Wed, Dec 15, 2010 at 8:31 PM, Christ <ludichrist2000@...> wrote:

Hi Gloria

I remember when I was young - 'cod liver oil' was what my folks gave me.

All my brothers and sisters hated it, but I found it yummy.

Now I take it in the form of capsules called Omega 3 from the Health Food store.

From Wikipedia:

Cod liver oil is a nutritional supplement derived from liver of cod fish. It has high levels of

the omega-3 fatty acids, EPA and DHA, and very high levels of vitamin A and vitamin D. It is widely taken to ease the symptoms of arthritis and for other health benefits. It was once

commonly given to children, because the high levels of vitamin D in cod liver oil have been shown to prevent rickets.

http://en.wikipedia.org/wiki/Cod_liver_oil

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=cod%20liver%20oil & type=

Hepatitis C and cod liver oil:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

From HealthyHepper:

VITAMINS THAT CAN BE HAZARDOUS TO ANYONE WITH HCV

If you have a liver disease, it is recommended that you do not take a dose of over 10,000 international units of vitamin A or any amount of cod liver oil. However, according to F Balch. Mathhew Dolan (author of The Hepatitis C Handbook)says no more than 25,000 IU’s of vitamin A should be taken daily. Apparently, the opinion varies. Most multivitamin complexes do not exceed this amount. My gastro doctor seems to be confident that vitamin A would not be harmful unless taken in “mega dosesâ€, that no multivitamin is close to approaching.

http://www.healthyhepper.com/vitamins.htm

more:

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20and%20cod%20liver%20oil & type=

Use of Omega-3 Fatty Acids (Fish Oil) in Patients With Chronic Hepatitis C Infection

http://clinicaltrials.gov/ct2/show/NCT00547716

love

don in ks

[Guest guest]

Hi ,

Thank you, thank you, thank you for saving us from that product!

Let me give you some history on my son, Logan. We started early intervention

when he was 15 months old. He had no consonant sound babbling, no pincer grasp,

no waving, no pointing, not yet walking, no imitation of movement (all of which

he is doing now except the consonant babbling and he still has trouble with

imitation, especially of the mouth). He was diagnosed by a pediatric neurologist

with mild to moderate autism at 20 months and recently diagnosed by his two SLPs

with severe apraxia.

I sometimes find it hard to believe he is autistic because he is very social

with us, great eye contact, and it is as if he is trying to have a conversation

with you but with only ah and eh sounds. However he definitely has major sensory

issues and does flap his arms when stimulated and bang the back of his head in

his crib before going to sleep. We have made an appointment with Dr. Cargan,

who I believe I have seen you mention in a previous email (we live in northern

NJ) and also two other appts with neurodevelopmental pediatricians, a Dr.

Lanzkowski and Dr. Laveman. I am considering going to see Dr. Agin, but not sure

we can afford it right now.

As for therapy, we get 3 hours ST, 2 hours OT, 1 hour PT, 2 hours DI and 1 hour

of ABA per week. One of our SLPs is Prompt certified, but has a hard time using

the method on Logan since he can be pretty defensive around his mouth. We also

do gymboree, music class, and playgroups, which I like to think of as therapy as

well. Would love to hear your thoughts on ABA??

I am looking forward to starting NV. I will definitely follow your advice and

only use NV and ProEFA to start and maybe add probiotic back in to see what

happens. Just want to confirm that no multi-vitamin is needed while taking NV.

Our doc also recommended putting our 7-month-old daughter on cod liver oil and

probiotic as a preventative. Any thoughts on that? Also, any recommendations

on a good DAN doctor in north/central NJ?

As for the dairy, we stopped dairy since his bloodwork showed a high casein IgG

level, but he never showed any signs of an allergy (no constipation, diarrhea,

rash, etc). How do you know if there are problems with the gut?

Also, we have an MRI scheduled for Logan in a couple weeks. I am nervous for the

anesthesia. Do you recommend an MRI?

We are just starting the transition process for preschool, so I know I will have

a lot more questions as we get into that.

I am so glad I found this group!!! Thank you so much for your help!

Sent from my Verizon Wireless BlackBerry

[ ] Cod liver oil

Hi again !

Just came back to answer the rest without the name of the other shall not be

named mentioned as clearly I do get emotional for what it did to my son and

other children here. OK read your message again and you have a 2 year old who

has not had much progress- let's look at some of the exploratory supplements and

treatments you are using

Cod liver oil -no shock you haven't noticed anything from that alone as it's for

the vast majority the wrong formula. ProEPA isn't the right formula either to

start with as that too is a pure Omega 3.

Over the past decade most of us found the best success with a fish oil mixed

with GLA -higher EPA to DHA, just a small amount of GLA. ProEFA with an " F "

would be the formula to start with -or to get it right away and just spend a bit

more as you only get 60 capsules vs 90 you can buy the commercial version at the

store called Omega 369 with borage oil. Over the years Efalex and Eye Q are

great formulas for success as well -and as far as pure Omega 3 Coromega is a

great fish oil product because it's so high in EPA to DHA even though there is

no GLA (omega 6 from either primrose or borage seed oil) Most find no

difference between ProEFA and EyeQ but those formulas are better than Efalex and

Coromega...in fact Efalex is typically better than Coromega. But you can always

add a few drops of primrose oil to the Coromega.

We did a parent feedback between ProEFA (which is in Nordic's professional line

and only sold by health care professionals or online) and found little to no

change with CLO and moderate to dramatic surges with just one capsule of

ProEFA...and this was with a roomful of skeptics in our then NJ in person

support group with about 100 members, and then repeated with the same results

through ECHO of Canada which used to be an in person support group there as

well. Here's a blog I wrote on EFAs

http://pursuitofresearch.org/2010/12/01/therapeutic-use-of-fish-oil-for-apraxia-\

autism-and-other-communication-impairments/

As far as probiotics, vitamin D, dairy free, anti fungal...(he's not going to

throw the kitchen sink at your 2 year old next is he?) All may have their

place- but think you should start with the basics. Even though to me that is

appropriate diagnosis and therapy will address the methods you are using first.

I highly recommend you just start with the " right " formula of fish oils, and NV

I can't speak highly enough about and that will in almost all cases eliminate

the need for supplementation of vitamin D or anti fungals (and it is 100 percent

casein free) but more is not always better. Nutrients that come from food are

the purest way to get nutrients and the foods in NV are natural anti fungals,

anti virals, etc.

http://pursuitofresearch.org/2010/11/29/autism-antivirals-drugs-or-food/

So outside of fish oils, I find many of us have had incredible results with

trying to feed our children as healthy as possible, of course fish oils and now

NV, and making sure there is appropriate therapies. I was a celiac baby and had

to be raised GFCF -please don't put your child through that what I consider

nightmare diet unless you have to. I hated that diet and dread I'll have to be

on it again as I get older -my mom is back on it again. Kids like to share

lunches, eat birthday cake, have pancakes with the other kids at sleepovers etc.

Probiotics can be helpful to some -they made my son regress unless I used a

dairy probiotic for some reason -since you are dealing with the gut and

essential fatty acids which are long chained you need to be aware that some

things may short chain the long chained polyunsaturated fatty acids in the gut.

There are some kids that do need probiotics and digestive enzymes (see Sandy's

message below) but I'd still start without them and add after a few weeks or so

as Sandy did. My son had gut issues as well but again regressed on just about

every single probiotic we put him on.

By your son's age and the fact there is no progression and the amount of things

this person threw at your baby I would seek a second opinion. Even if he didn't

recommend that other product that shall not be named (unless it has to be)

Tell me more about who diagnosed your child and what type of therapy he is

currently receiving. The brain responds to multiple stimuli and appropriate

therapy is key. Good nutrients will help stimulate that faster from what we

have seen -and in the case of NV to the point of unbelievable, (

http://pursuitofresearch.org/2011/01/19/one-year-later-a-possible-cure-through-e\

ssential-nutrition-for-autism-apraxia-etc/ )but you still want therapy too.

Hope that helps and sorry if I freaked out about the one part and didn't talk

about the other but I really had to step away from the computer any time I think

about what could have been with my son Tanner...and so many others. We do have

one member who's child is still having seizures and never had them prior to that

high vitamin E product -and she too was just a peanut 2 year old when put on

it...and she's right now looking into starting NV. I just pray it stops the

seizures for Evoni as well since it brought me my son back -and even way beyond

where he was prior. And also because of this

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-seizures/

=====

[Guest guest]

Hi ,

You don't say the name of the neuroMD that originally diagnosed your child with

autism, but either way that was at 15 months and I'd seek a second opinion on

that as some of his signs of autism may be due to motor planning or muscle

weakness rather than autism. If he is not autistic than the ABA therapy is not

only inappropriate but can be detrimental so goal number one for you is to

secure that appropriate diagnosis. Since you are in NJ the land of apraxia and

two different SLPs diagnosed him with apraxia I'd say that's probably what he

does have, and sounds like it from what you wrote to.

Sensory issues are not only a sign of autism, they can be a sign of traumatic

brain injury for one, and sensory dysfunction just like apraxia or autism can

stand alone as a diagnosis. When they took the tags out of the t shirts it's

not because all of the men in the world that are annoyed by tags are autistic,

it's because many of us can have sensory issues and have perfectly normal lives.

I'd say sensory issues were hijacked by autism under the umbrella but yes many

of our apraxic children have sensory issues as well. But...just as it is

possible to have sensory dysfunction and another diagnosis such as autism,

apraxia or TBI, it's also possible to have apraxia and autism together. This is

why appropriate diagnosis for appropriate therapy and placement is so key.

Because out of all the therapies out there -some can be a waste of time and

money -but ABA is the only I know of that can actually be detrimental if not

needed -so proceed with caution. If a child has both autism and apraxia the ABA

therapist needs to be fully aware so as not to try to use ABA on any of the

motor planning aspects of that child's impairment.

How are your therapy times split up? Do you do an hour at a time or do you

split that up into 2 half hour sessions? For apraxia the more frequent the

therapy the better typically so 2 half hour sessions over 2 days is better than

1 hour session for just one day. And all the multisensory activities you are

doing -gold star for that for so many reason even beyond therapy -self esteem as

well!!

No you would not need any extra vitamins with NV as it contains all of the

essential amino acids and nutrients per serving all from the ingredients which

are all foods- so the purest form of supplementation. On this page on the

bottom you'll find the labels for chocolate and vanilla NV

http://pursuitofresearch.org/products/nutriiveda/nutriiveda-ingredients/

For the baby in my opinion I'd still use the mix formula like the ProEFA rather

than CLO- we've had many great reports in the young infant siblings of older

apraxic or autistic children using ProEFA and typically even faster than the

older kids. Here's a page on that for why

http://www.cherab.org/information/dietaryeffects/efatips.html#Here but actually

thought some of the stories are here too -I can find them in the archives if you

want to see some.

About the dairy -I just wrote a blog on that you may want to look at

Can You Have Whey If GFCF? In Support Of Dairy In the Autism Community

http://pursuitofresearch.org/2011/01/24/can-you-have-whey-if-gfcf-in-support-of-\

dairy-in-the-autism-community/

About the MRI, there are those that do go that route and those that don't. From

all those that have gone that route if you check the archives it is more for

peace of mind and to rule out any hard sign evidence, but typically nothing is

ever found as to the cause. So perhaps if you want to proceed wait about 3

months and see what type of progress first to see if you and the docs still

believe it necessary. Most of us do other types of testing -mainly genetic.

But if you decide to go ahead with the MRI now let me know as we have some great

archives on how to prepare the child for it as best possible.

Since you are reading The Late Talker book make sure you use the advocacy

chapter to help you with the IEP in the transition you are going through -and

the evaluations you are taking your child to will help as well. You for sure

don't want the school to classify your child as autistic unless for sure your

child is autistic -so that needs to be done ASAP -determine diagnosis.

Sounds like you are on it and I am thrilled to help anyone prevent going through

what I did as a parent if possible!!!

=====

[Guest guest]

Resending...may have gone to spam since I never received it in my inbox. If it

did go through, just disregard. Thanks!

Sent from my Verizon Wireless BlackBerry

[ ] Re: Cod liver oil

Dr. DeSouza helped me with both of my boys, but primarily Dakota who had

traumatic injuries to his head, face and neck from a delivery that almost killed

both of us (really) He was one of the first neuros I saw and liked in NJ once

we moved from NY -and Dakota's OT was Servello (sp?) and Dakota had

therapy right out of his office. Dr. DeSouza is the one that taught me the

importance of brain placidity and brain stimulation and this was going back 15

years ago or so now? Here's something I wrote about Dakota from the old Cherab

site http://cherab.org/information/familiesrelate/workandfamily.html So Dr.

DeSouza holds a special place in my heart as a doctor. But would I consider him

an expert on apraxia? mmmmm well -that's a tough question because it was Dr.

Marilyn Agin who really came to the rescue there for me for Tanner. Keep in

mind however Tanner is now 14 years old -so going back 11 years ago and I'm not

even kidding there were SLPs that used to come to our huge in person support

groups that used to argue over the existence of apraxia. There were lots of

SLPs who didn't know how to diagnose it and back then the main group for apraxia

was super lame in information for anything but classic apraxia in an older child

and to only be diagnosed by an SLP etc. My favorite site back then was Can We

Talk? http://www.tayloredmktg.com/dyspraxia/ because it was so warm.

Anyway I digress. It does sound like your child at 15 months had signs of

autism, but for sure it's time to reevaluate prior to classifications for school

and to assure the therapy going ahead is appropriate.

Out of the doctors you have appointments with I've heard great things about Dr.

Abba Cargan. Dr. Laveman is still on our advisory board but has not been

actively involved in answering questions here as he used to -but neither has Dr.

Agin since she's become well known. Just like parents move on in most cases

once their children are doing well and don't stick around to help the new

parents, some professionals do the same. But in the MRI archives for you below

you'll see messages from Dr. Laveman and I think Dr. Agin too. Dr. Laveman

diagnosed a former secretary of Cherab's son at a picnic with apraxia, and he

used to be involved in our meetings -here's Stacey's story about Evan

http://www.cherab.org/information/familiesrelate/staci.html and I think Dr.

Laveman wrote up something for how MDs can help with IEPs so you can ask him

about that as well.

I know Dr. Cargan and Dr. Laveman know the importance of the fish oils, I know

Dr. Agin knows not only about the importance of the essential fatty acids and

was with me when Cherab hosted the First Apraxia Conference ever which covered

the importance of the fish oils with world renowned doctors

http://cherab.org/news/scientific.html and is my co author of The Late Talker

book, but Dr. Agin also knows about the importance of the essential amino acids

and even knows about the botanicals in NV as well, and has enough knowledge in

nutrition to know that NV is an excellent product (

http://pursuitofresearch.org/products/nutriiveda/nutriiveda-ingredients ) so

once again she's going to be top on my list.

I don't know the other doctor- but other parents here may?

About therapy -no we never had that much therapy for apraxia -25 hours a week?

No way -you must be still going by the ABA autism schedule? My son would be

pooped out after even a few hours of preschool due to his hypotonia. The most

therapy he had in one day was 2 hours and he was in therapy every day except for

Sunday.

About the MRI and advice for how to go through it in a few weeks...in a word

" don't " ...why not reschedule it and wait till after you see Dr. Cargan and/or

Dr. Laveman to see if they think it's necessary? Go ahead and check the

archives over the past decade -unless there is reason such as seizures it's been

a waste of time and well I have some of the archives below -but that is one test

we didn't put Tanner through. I mean unless you are doing it for research

reasons...and one good point brought up is insurance companies can use it

against you because it's in almost 100 percent of the cases in this group going

to show you nothing. And it does come with risks.

Here are some archives on tips and risks from the archives

Among the numerous dangers associated with MRI's, two of the dangers that strike

me as strong when considering aMRI for a child are te following:

1. Burns from touching the sides of the machine. (reference below)

http://www.wrongdiagnosis.com/news/mri_dangers_with_carelessness.htm

2. The potential from heating body tissue due to the application of the radio

frequency energy. (reference below)

http://www.mr-tip.com/serv1.php?type=pin & sub=1

There are many other dangers associated with MRI. I would assume that these are

two of the ones that are not conveyed to the patient or in the case of a minor,

to their parent.

If you are considering an MRI for yourself or your child, then please get FULL

informed consent and be aware of all of the dangers that could possibly happen.

Re: MRI dangers

there are many here that have children that had MRIs. I don't believe that

is saying that everyone that has an MRI will have a complication -she is

pointing out there may be risks, relatively rare but possible, that are known to

medical professionals that are downplayed to the public. I found the information

provided by valuable. I for one want to know every possible risk prior to

exposing my child to something. It allows us the opportunity to make educated

decisions. (Doesn't mean you don't do something just because there is a risk or

none of us would drive in a car or go to the bathroom!)

Here's just one example of a risk pointed out -this one from the FDA with

a list of others on a link below;

Cables and electrodes can burn patients during MRI

BY SUSAN LANGE, ARRT, MPH, AND QUYNH NHU NGUYEN, BS

(Article reprinted from Nursing2006, Volume 36, Number 11, p. 18.)

PATIENTS UNDERGOING magnetic resonance imaging (MRI) while wearing ECG

electrodes attached to cables have received second- and third-degree burns on

skin under the electrodes. These burns were discovered after the MRI, according

to reports received by the Food and Drug Administration.

What went wrong?

The radiofrequency fields that occur during an MRI can heat ECG cables and

electrodes, seriously burning skin under the electrodes. The burns can be severe

enough to require plastic surgery.

What precautions can you take?

The number of MRI studies performed annually is consistently increasing. As the

imaging technology advances, more patients require monitoring during study

because of the type of study or their general condition. Patient monitoring

requires the use of MRI-compatible equipment. To help reduce patient adverse

events during an MRI, follow these steps:

Coordinate with the MRI staff technologist before the imaging study to ensure

that cables and

electrodes are available that have been cleared for use in the MRI environment.

Make sure electrodes used aren't past their expiration date.

Search the patient for any previously used electrodes and cables that may have

been inadvertently left behind, either in clothing, in the sheets, or on the

patient. Remove any electrodes and cables that are no longer being actively used

for monitoring. This will prevent the possibility of burns from leftover

electrodes.

Be aware that, even though you're using electrodes and cables that are approved

for use during an MRI, a serious burn can still develop if the electrodes aren't

in complete contact with the skin surface (that is, if excess hair hasn't been

removed or there's an air gap between the electrode and the skin). When there's

an air gap, the electrical pathway is broken and heat can build up at the center

of the electrode as well as letting the current arc from the electrode to the

skin, which can cause burns. Don't let the cables form a loop and keep them off

the patient's skin by placing a blanket under them.

After the MRI study is complete, patients (especially those who can't

verbalize), should be examined for possible burns or reddening of the skin under

the electrodes.

If your patient has a burn, make sure she gets appropriate treatment. Document

all medically relevant information in the medical record and file an incident

report. Notify your facility's biomedical engineering department and quarantine

the electrodes involved plus any remaining in the packet.

--------------------------------------------------------------------------------

Although you need to support the adverse event- reporting policy of your health

care facility, you may voluntarily report a medical device that doesn't perform

as intended by contacting MedWatch at 1-800-FDA-1088 (fax: 1-800-FDA-0178) or

online at http://www.fda.gov/medwatch/how.htm. The opinions and statements in

this report are those of the authors and may not reflect the views of the

Department of Health and Human Services. Beverly Albrecht Gallauresi, RN, BS,

MPH, who coordinates Device Safety, is a nurse-consultant at the Center for

Devices and Radiological Health at the Food and Drug Administration in

Rockville, Md.

Lange is a medical imaging specialist and Quynh Nhu Nguyen is a biomedical

engineer fellow at the Center for Devices and Radiological Health.

Updated November 22, 2006

http://www.fda.gov/cdrh/medicaldevicesafety/tipsarticles/electrodes.html

List of more from the FDA

http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfMDS/MDSResults.cfm

=====

[Guest guest]

>

> Ok, I will take 3 of the Life Time Omega pills then but what about the halibut

> liver oil ones? Should I stick to 3/day or should I just take 2/day?

+++Hi ,

You can calculate this yourself, so you need to take Halibut liver oil so it is

in these ranges:

Vitamin A: 20,000 IU - 30,000 IU

Vitamin D: 800 IU - 1,200 IU

Omega-3: 2,000 mg - 3,000 mg [EPA plus DHA]

Bee

[Guest guest]

No it doesn't matter.

Bee

>

> Hi Bee,

> I know I can do the calculation on my own which I already did. My question was

> do you recommend taking 2 or 3 pills/day of the halibut liver oil being both

are

> within the range but you always say more isn't better. Or doesn't it matter

> either way?

> Thanks,

>

>

> +++Hi ,

>

> You can calculate this yourself, so you need to take Halibut liver oil so it

is

> in these ranges:

>

> Vitamin A: 20,000 IU - 30,000 IU

> Vitamin D: 800 IU - 1,200 IU

> Omega-3: 2,000 mg - 3,000 mg [EPA plus DHA]

>

> Bee

>

>

>

>

>