Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 I'm so happy to hear you discussed with ny's neuro-pediatrician. I'm curious what your son's doctor felt about the reports from so many here of reduction or mainly elimination of seizures once on nutriiveda- and Mel's story which shows the potential which is Mel's doctor's belief that nutriiveda is what healed her brain based on scans. She's been seizure free for the entire 3 months on nutriiveda and while in the past she had been hospitalized and almost died twice of seizures -her doctor now believes that she will be off all seizure meds by later this year. Mel's mother Robin also wants parents here who have seizure prone children like yours to know that while you may be thrilled that your child is no longer having seizures it's vital to have blood testing for levels as in Mel's case the dosage of Depakote she had been on for years became toxic in her body as she no longer needed the mega dosages and due to that her body developed myopathies. Just curious if you shared these particular blog updates http://littlemermaidmelanie.wordpress.com/category/about/ http://littlemermaidmelanie.wordpress.com/category/ayurveda-journal/ Or this offer and information from Dr. Tom and Dr. Suhas From Dr. Tom: Thanks for the inspiring testimonial. The results, although dramatic, are not surprising. The amino acid profile of NutriiVeda would undoubtedly assist and support the healing of any neurotransmitter deficiency, whether seizures, depression, anxiety disorder, insomnia. Parkinson's disease, due to its unique nature, would be less likely to show significant; however, we did have an unexpected and dramatic improvement in an individual with Parkinson's using Zrii. To answer the question/concern regarding serotonin level monitoring during the consumption of NutriiVeda: it is not necessary. However, if an individual does have any of the neurotransmitter deficiency disorders listed above and DOES wish to monitor their neurotransmitter levels, I would be most supportive of this documentation. The most extensive neurotransmitter testing available is done at home, rather than at a lab, on a morning urine, and is covered by most insurances including Medicare and HMO's. Many physicians, including Neurologists and Psychiatrists, are unaware of this home-based test, its insurance coverage, or how to interpret the results. Any IE or consumer wishing to obtain such neurotransmitter testing may contact Geng who will contact me directly. Email at lisa@... as she will pass on to me and I will have the lab test kit drop shipped to them. I will serve as the ordering physician and ensure their primary care physician receive a carbon copy of results. Regards, Dr. Tom ( Yarema M.D. is director of Clinical Medicine for Kerala Ayurveda, with medical clinics and Ayurvedic academies in Aptos, California and Seattle. Dr. Yarema is a pioneer in the field of Integrative Medicine and remains committed to bridging the best of all systems of medicine. His professional tools consist of Allopathy, including 12 years of full-time practice in Emergency Medicine, Ayurveda, and Traditional Oriental Medicine. His is also author of the book Eat, Taste, Heal An Ayuvedic Guidebook and Cookbook for Modern Living) From Dr. Suhas: Aloha, NutriiVeda is an ideal herbal food supplement. It takes care of some vital nutrients absolutely needed for the optimum functioning of neuro-physiology but also the herbs like Amalaki-Turmeric-Guggul- Gymnema work on opening the micro circulatory channels. They also regulate the various endocrine pathways. It is very likely that there is better oxygenation to the brain and harmonious functioning of the Rt and Lt hemispheres because of reduced inflammation. Serotonin- It does not increase or decrease anything but it regulates these subtle molecules by improved Lymphatic Return in the circulation. According to Ayurveda Serotonin and Melatonin are Sun/Moon, Male/Female, Silence/Dynamism, Yin/Yang like principles, which are effectively regulated by these intelligent herbs. Great testimonial, we do expect many more in many diverse areas. Suhas Dr. Suhas G.Kshirsagar BAMS, MD(Ayurveda,India) Head of US Operations, Kerala Ayurveda Academy & Clinics California Center for Integrative Medicine 9099 Soquel Drive, Cottage 7 & 9 Aptos, CA 95003 (Dr. Suhas Kshirsagar BAMS, MD Ayurveda is an accomplished ayurvedic doctor with over 10 generations of actual ayurvedic healing practice in his family heritage. Dr. Suhas Kshirsagar has conducted research for Ayuveda Rasashala and has been Medical Director of Maharshi University of Management. He has extensive clinical experience in treating patients in ayurvedic therapies and Panchakarma which promotes gentle body cleansing, body balancing and rejuvenation for an inner sense of well-being. Suhas has received Gold Medal recognition from Pune University. ) http://www.facebook.com/board.php?uid=115029735601#!/topic.php?uid=115029735601 & \ topic=14199 It's been around a month that ny is on nutriiveda now. Please read over the survey here (there is a PDF you can view and print out from this page) http://pursuitofresearch.org/survey.html Have you noticed any improvements in any area? I know that Sotos Syndrome is rare and appears to come with a number of symptoms- so please let us know out of the following description which best fit ny. I'll see when I get back if there is any research in the areas he has symptoms linked to the nutrients in nutriiveda for you: What is Sotos syndrome? Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development. Characteristic facial features include a long, narrow face; a high forehead; flushed (reddened) cheeks; and a small, pointed chin. In addition, the outside corners of the eyes may point downward (down-slanting palpebral fissures). This facial appearance is most notable in early childhood. Affected infants and children tend to grow quickly; they are significantly taller than their siblings and peers and have an unusually large head. Adult height is usually in the normal range, however. People with Sotos syndrome often have intellectual impairment, and most also have behavioral problems. Frequent behavioral issues include attention deficit hyperactivity disorder (ADHD), phobias, obsessions and compulsions, tantrums, and impulsive behaviors. Problems with speech and language are also common. Affected individuals often have problems with sound production, stuttering, and a monotone voice. Additionally, weak muscle tone (hypotonia) may delay other aspects of early development, particularly motor skills such as sitting and crawling. Other signs and symptoms of Sotos syndrome can include an abnormal side-to-side curvature of the spine (scoliosis), seizures, heart or kidney defects, hearing loss, and problems with vision. Some infants with this disorder experience yellowing of the skin and whites of the eyes (jaundice) and poor feeding. A few people with Sotos syndrome have developed cancer, most often in childhood, but no single form of cancer has been associated with this condition. It remains uncertain whether Sotos syndrome increases the risk of specific types of cancer. If people with this disorder have any increased cancer risk, their risk is only slightly greater than that of the general population. How common is Sotos syndrome? Sotos syndrome is reported to occur in 1 in 10,000 to 14,000 newborns. Many cases of this disorder are not diagnosed, however, so the true incidence may be closer to 1 in 5,000. http://ghr.nlm.nih.gov/condition=sotossyndrome ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 I printed out what you have added below and had the doctor read it. Also another explanation written by Tim Stearns and a page with the ingredients. He did read it all. But he didn't make a comment. He wrote a book on Childhood Epilepsy so I wonder if " his mind is made up. " Hard to say. What will impress him is to hear of changes that we see take place in our son. So far he's been through quite a bit with me over the years! He's been skeptical at my new discoveries and so far I haven't proven him wrong. ha! That doesn't mean he has been against my trying things. Thanks for your encouragement. (ny 12 non-verbal) > > I'm so happy to hear you discussed with ny's neuro-pediatrician. I'm curious what your son's doctor felt about the reports from so many here of reduction or mainly elimination of seizures once on nutriiveda- and Mel's story which shows the potential which is Mel's doctor's belief that nutriiveda is what healed her brain based on scans. She's been seizure free for the entire 3 months on nutriiveda and while in the past she had been hospitalized and almost died twice of seizures -her doctor now believes that she will be off all seizure meds by later this year. Mel's mother Robin also wants parents here who have seizure prone children like yours to know that while you may be thrilled that your child is no longer having seizures it's vital to have blood testing for levels as in Mel's case the dosage of Depakote she had been on for years became toxic in her body as she no longer needed the mega dosages and due to that her body developed myopathies. Just curious if you shared these particular blog updates > http://littlemermaidmelanie.wordpress.com/category/about/ > http://littlemermaidmelanie.wordpress.com/category/ayurveda-journal/ > > Or this offer and information from Dr. Tom and Dr. Suhas > From Dr. Tom: > > > Thanks for the inspiring testimonial. The results, although dramatic, are not > surprising. The amino acid profile of NutriiVeda would undoubtedly assist and > support the healing of any neurotransmitter deficiency, whether seizures, > depression, anxiety disorder, insomnia. Parkinson's disease, due to its unique > nature, would be less likely to show significant; however, we did have an > unexpected and dramatic improvement in an individual with Parkinson's using > Zrii. > To answer the question/concern regarding serotonin level monitoring during the > consumption of NutriiVeda: it is not necessary. However, if an individual does > have any of the neurotransmitter deficiency disorders listed above and DOES wish > to monitor their neurotransmitter levels, I would be most supportive of this > documentation. The most extensive neurotransmitter testing available is done at > home, rather than at a lab, on a morning urine, and is covered by most > insurances including Medicare and HMO's. > > Many physicians, including Neurologists and Psychiatrists, are unaware of this > home-based test, its insurance coverage, or how to interpret the results. Any > IE or consumer wishing to obtain such neurotransmitter testing may contact > Geng who will contact me directly. Email at lisa@... as she will > pass on to me and I will have the lab test kit drop shipped to them. I will > serve as the ordering physician and ensure their primary care physician receive > a carbon copy of results. > > Regards, > Dr. Tom > > ( Yarema M.D. is director of Clinical Medicine for Kerala Ayurveda, with > medical clinics and Ayurvedic academies in Aptos, California and Seattle. Dr. > Yarema is a pioneer in the field of Integrative Medicine and remains committed > to bridging the best of all systems of medicine. His professional tools consist > of Allopathy, including 12 years of full-time practice in Emergency Medicine, > Ayurveda, and Traditional Oriental Medicine. His is also author of the book > Eat, Taste, Heal An Ayuvedic Guidebook and Cookbook for Modern Living) > > From Dr. Suhas: > > Aloha, > NutriiVeda is an ideal herbal food supplement. It takes care of some vital > nutrients absolutely needed for the optimum functioning of neuro-physiology but > also the herbs like Amalaki-Turmeric-Guggul- Gymnema work on opening the micro > circulatory channels. > > They also regulate the various endocrine pathways. It is very likely that there > is better oxygenation to the brain and harmonious functioning of the Rt and Lt > hemispheres because of reduced inflammation. > > Serotonin- It does not increase or decrease anything but it regulates these > subtle molecules by improved Lymphatic Return in the circulation. According to > Ayurveda Serotonin and Melatonin are Sun/Moon, Male/Female, Silence/Dynamism, > Yin/Yang like principles, which are effectively regulated by these intelligent > herbs. > Great testimonial, we do expect many more in many diverse areas. > > Suhas > > Dr. Suhas G.Kshirsagar BAMS, MD(Ayurveda,India) > Head of US Operations, Kerala Ayurveda Academy & Clinics > California Center for Integrative Medicine > 9099 Soquel Drive, Cottage 7 & 9 > Aptos, CA 95003 > > (Dr. Suhas Kshirsagar BAMS, MD Ayurveda is an accomplished ayurvedic doctor > with over 10 generations of actual ayurvedic healing practice in his family > heritage. Dr. Suhas Kshirsagar has conducted research for Ayuveda Rasashala > and has been Medical Director of Maharshi University of Management. He has > extensive clinical experience in treating patients in ayurvedic therapies and > Panchakarma which promotes gentle body cleansing, body balancing and > rejuvenation for an inner sense of well-being. Suhas has received Gold Medal > recognition from Pune University. ) > > http://www.facebook.com/board.php?uid=115029735601#!/topic.php?uid=115029735601 & \ topic=14199 > > It's been around a month that ny is on nutriiveda now. Please read over the survey here (there is a PDF you can view and print out from this page) http://pursuitofresearch.org/survey.html Have you noticed any improvements in any area? > > I know that Sotos Syndrome is rare and appears to come with a number of symptoms- so please let us know out of the following description which best fit ny. I'll see when I get back if there is any research in the areas he has symptoms linked to the nutrients in nutriiveda for you: > > What is Sotos syndrome? > > Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development. Characteristic facial features include a long, narrow face; a high forehead; flushed (reddened) cheeks; and a small, pointed chin. In addition, the outside corners of the eyes may point downward (down-slanting palpebral fissures). This facial appearance is most notable in early childhood. Affected infants and children tend to grow quickly; they are significantly taller than their siblings and peers and have an unusually large head. Adult height is usually in the normal range, however. > > People with Sotos syndrome often have intellectual impairment, and most also have behavioral problems. Frequent behavioral issues include attention deficit hyperactivity disorder (ADHD), phobias, obsessions and compulsions, tantrums, and impulsive behaviors. Problems with speech and language are also common. Affected individuals often have problems with sound production, stuttering, and a monotone voice. Additionally, weak muscle tone (hypotonia) may delay other aspects of early development, particularly motor skills such as sitting and crawling. > > Other signs and symptoms of Sotos syndrome can include an abnormal side-to-side curvature of the spine (scoliosis), seizures, heart or kidney defects, hearing loss, and problems with vision. Some infants with this disorder experience yellowing of the skin and whites of the eyes (jaundice) and poor feeding. A few people with Sotos syndrome have developed cancer, most often in childhood, but no single form of cancer has been associated with this condition. It remains uncertain whether Sotos syndrome increases the risk of specific types of cancer. If people with this disorder have any increased cancer risk, their risk is only slightly greater than that of the general population. > How common is Sotos syndrome? > > Sotos syndrome is reported to occur in 1 in 10,000 to 14,000 newborns. Many cases of this disorder are not diagnosed, however, so the true incidence may be closer to 1 in 5,000. > http://ghr.nlm.nih.gov/condition=sotossyndrome > > ===== > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.