Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Thank you everyone for your thoughts and prayers. Dawn I hope to give you a call this week after I get the boys back to school. I love to hear your story. Alyssa From: Dawn Falley <dawn.falley4@...> Subject: [ ] Re: Prayers to both Alyssa and Matt!!! (Dawn please answer) Date: Saturday, February 19, 2011, 8:19 PM Hi all, first I want to say to Alyssa that I'm confident that Matt will come out of this most recent setback. I saw that he is back on the NV now. Yes, it has also been 1 Year as of yesterday that both my kids have been on NV. Both had seizures and were on seizure medication for years prior to taking NV. My son is now off seizure medication (!) and Lily is planned to be taken off all meds as well! It has been a great seizure free year for them & for us as well, as has mentioned below. In my opinion, I would not give my kids a break from NV, its working so why mess with success as they say. My big fear is that NV is not going to be available anymore for some reason. I did increase 's dose of NV from 4 to 5 scoops a day, & in just 2 weeks his tantrums, which I attribute to teenage behavior issues have lessened substantially. Also, he is just doing more independent stuff like getting his own snack or drink. The other day he took the FULL 1/2 gallon of soy milk out of the fridge from the top shelf with ONE hand, put it on the counter & gave me his cup! Usually he would have to use 2 hands for something heavy. Definitely they both have made huge cognitive gains this past year,the NV is repairing something in their brains and I am hopeful that they will just keep improving! If anyone would like to speak with me about my NV experience thus far please do not hesitate to call. Dawn Falley 631-447-0615 > I hope that she sees this here and shares too, but Dawn has both a 10 and 15 year old who like Matt, both suffered as well from seizures for years. Dawn's 15 year old never had a normal EEG in his life prior to NV, and both of her children are now seizure free and is for the first time in 9 years off all seizure medication (!!) and Lily is supposed to be taken off at the next visit. The reason I'm writing about Dawn and hoping she sees this is that she recently contacted me about about raising 's dosage from 4 to 5 scoops a day -and I know you'll want to hear about the changes they have already noted. > > Alyssa it's been over a year now that Tanner is on NV and if it wasn't for the now over one thousand in the past year who have seen the same results in the same time I'd still find it hard to believe that success could be this easy. I still pinch myself. > > I agree with Barbara, that half dosage is a maintenance dosage once you get to where you want, but NV is dosage dependent as we've learned over and over and you need full dosage in almost 100% of the cases to get therapeutic effects, or even neuro repair; which may seem bold to state but it is proven in research in 2 different studies now that validate not just cognitive improvement but actual neuro-repair http://pursuitofresearch.org/2010/10/15/two-new-studies-choice-is-diet-or-drugs-\ to-help-tbitraumatic-brain-injury-research-amino-acids/ > > Perhaps the good that comes out of this as I am the ever optimist is that you'll put Matt back on the 4 scoops a day vs the half dosage and instead of just no longer having seizures and being taken off his medication for seizures after years (which is OMG incredible don't get me wrong -that in itself!!) But...as Barbara pointed out Matt starts having even greater surges in various areas -not just speech/language!!! http://pursuitofresearch.org/pursuit-of-research/ > > Also, in addition to full dosage being possibly needed for further therapeutic value and not just maintenance, a few of us now for even a few months with our doctor's approval have raised the dosage and even greater gains are reported. Even without speaking to anyone, most of us go from level to heaping scoops- but again some of raise the number of scoops as I have on the FAQ page here http://pursuitofresearch.org/products/nutriiveda/frequently_asked_questions/ > > I hope that she sees this here and shares too, but Dawn has both a 10 and 15 year old who like Matt, both suffered as well from seizures for years. Dawn's 15 year old never had a normal EEG in his life prior to NV, and both of her children are now seizure free and is for the first time in 9 years off all seizure medication (!!) and Lily is supposed to be taken off at the next visit. The reason I'm writing about Dawn and hoping she sees this is that she recently contacted me about about raising 's dosage from 4 to 5 scoops a day -and I know you'll want to hear about the changes they have already noted. > > We may get lazy as you say -but I suspect it's not so much lazy about doing what is needed, but lazy about those things we believe may not be needed any longer. So again the good news is that once the seizures stop again, this may as Barbara said have you treat NV " like medicine--gotta take it; non-negotiable " And to me better than medications because NV has now gotten so many kids off medication. > > You are a fighter Alyssa and you'll get through this as you do everything else. And yes we are all here praying for you and Matt -so lots of love and prayers going your way! I'm sure Barbara will give you a huge hug when you guys see each other -but for right now... > > {{{{{{{HUGS!!!}}}}} > > > ===== > Quote Link to comment Share on other sites More sharing options...
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