Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Hi, I really need some advice. I am trying to do my best for my son but am not sure where to go. I'll try to keep it short but it may get long ... Brief history: is now 45 months. He has major speech " delays, " they are calling an expressive disorder, receptive disorder and articulation disorder. Also other issues, sensory, being screened for ASD. At 2 1/2 yrs, spoke about 25 words and no sentences, and was nearly un-intelligible, though he would try to make out words and sentences, they were just a bunch of babbly jargon coming out of his mouth with the occasional work that could be understood. We started ISD early special ed services at that time, 1hour a week for speech. He made some but little progress and we added on private therapy at 3yrs, 30mins 2xs a week. He started a early special ed preschool, 3 days a week for 2hours last fall. In January, his teach and SPL at school called me and told me they were concerned about apraxia. This was the first i had ever heard of the condition. Of course, I did some research and it seemed to me that had many of the symptoms. It is still very difficult to understand much of what he says, he shows inconsistent errors in his words and speech, he can imitate some but this does not translate into spontaneous speech, long words are harder for him so what speech that he does have is very simple, etc. had just had his private speech therapist changed (due to lack of communication from other SPL). I brought up the apraxia concerns to his new thereapist who outright dismissed me. She had only seen 1-2 times and told me there was no way that he had apraxia. She did not even ask me what behaviors I may have seen at home that made me think so. Well, I was unimpressed and we made another therapist switch even moving to another clinic. We really like our new person, but she says and is true that she needs time to get to know before making any diagnosis. He has seen her I think 3 times now. In the meantime, is being screened for ASD and we saw a ped neurologist. I brought up my questions but he basically just told me that apraxia is very hard to diagnose, and then dropeed the subject. Also, his SPL at the school is calling his new private therapist to discuss her concerns however, she went out on maternity leave early. She is even still going to call (how nice!) but I am giving her time since she just had a new baby. School tells me that the ISD cant make medical dx. Sorry this got so long but I hope I included all the revelant info. Any thoughts? I live in MN. Thank you, Quote Link to comment Share on other sites More sharing options...
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