Re: psycho. educ. evaluation

[Guest guest]

Marie you so need private evaluations outside the school- and in my opinion

unless it's a rare educational psych who has great knowledge about speech

impairments and how to appropriately test one with a verbal disability I would

stick with neuroMD exams instead for apraxia as apraxia is not a psychological

condition and I've seen too many misdiagnosis.

I don't care for any school that feels that a test will answer all your

questions as I happen to have heard from Dr. a Tallal one of the Cherab

advisers that there are currently no 100 percent accurate cognitive or receptive

tests for a verbal disabled individual. Here's Dr. Tallal's background

http://www.cmbn.rutgers.edu/research/tallal/ I have a hunch based on her

research and educational background in working with our population she knows a

wee bit more than the people at your town school.

My son Tanner when we lived in NJ it was the same type of school -awesome public

school for regular students and their program for apraxia was HIGHLY

inappropriate and bordered on abusive to what they did to my poor son Tanner. I

have story after story in the archives of how they punished him, how when they

tried to get him to say " Good morning Mrs. Whiseman " when the child couldn't

even have said the first word of that sentence (!) they put him in front of the

class and he had his head down and the teacher took his face and forced him to

look up and patted his face -not hard enough to be a smack but more like a " come

on you can do it " kind of double quick pat and said " Come on Tanner you can do

it. Say Good morning Mrs. Whiseman " How do I know about those 2 alone? The

first the teacher told me and the second I saw through the double glass

observation room when he first started in this class which I didn't announce I

was there -because I didn't know I was supposed to as it was all new -and they

made it super clear to me that I was never to observe the class without

announcing I was there to observe. To put it bluntly how bad they were with my

son Tanner -they took a completely sweet child who worked so hard in therapy

prior to his few months in this horror and created a child that they pegged and

wrote into his IEP was " manipulative " Zimet CCC SLP from this group

who's now in Georgia was Tanner's EI therapist in Jersey before we moved so she

and Dr. Agin and Ortega can vouch for how Tanner was prior to this

placement.

So yes I advocated and had enough history to get Tanner placed in out of

district placement at the Summit Speech School which is an oral based school for

the hearing impaired in NJ and one of the top in the country. And the nightmare

was over as that school was incredible in every single way. A bunch of us with

apraxia had hearing apraxic children at the school soon after Tanner got in -

but from what I know after Kanter the school director passed away and

someone else took over they cracked down on not letting kids in that were

hearing. Honestly that school saved my son and I don't know where he would be

without it.

But when Tanner went to transition into kindergarten (at 6 -we kept him at SSS

until then and most of the kids at this school don't transition to public school

until 6 and the school has an extremely high success rate of mainstream after

preschool) he had to be tested by the same public school we left and by the same

educational psychologist. To make a long story short the public school as well

as my son was doing didn't think he'd " make it " in a mainstream kindergarten

class. Oh don't get me started -what a group of idiots they were! And his work

in SSS and appropriate testing should have shown that. As it ended up this

story gets to much worse as to someone from my NJ district calling the case

manager where I moved to in Florida to say that a mistake was being made and he

didn't belong in the mainstream that it's almost difficult to believe. And for

the educators reading this -I am so aware that so many of you are awesome -but I

also know that the edcational psych tests they give verbal disabled children are

typically are so unfair and in some cases are a violation of our children's

Civil Rights of not being tested on their abilities on their disability.

here's are links to the letter to parents I wrote years ago with the update

about kindergarten

http://www.cherab.org/information/familiesrelate/letter.html or

http://www.cherabfoundation.org/2006/a-letter-to-parents-who-have-a-child-that-i\

s-a-late-talker-first-written-7400-and-update-from-1003/

So if you don't have to do the testing just say no -if you do -get second

opinions. Actually either way I'd get second opinions because it seems based on

just a few comments you heard you are dealing with some professionals that have

already pegged your son even prior to testing.

Oh and about top academic private schools...after kindergarten - mainstream

where Tanner according to his teacher Mrs. was " not just making it but one

of the top students in his class " he went to a private school that was for

academically advanced students and was a straight A student. So don't say it's

not possible -your child sounds very bright to me -why shouldn't he be top in

his class?

PS...OK did you start the NV yet???? If you didn't please start it -it helps

with so much more than speech and motor planning, it's helping with academics

too.

Here's one example about a 6 year old

Professional anecdotal update from kindergarten teacher of a 6 year old

apraxic child after less than 2 weeks on Nutriiveda.

“I wanted to let you know how things are going with Dominic. I think

it’s safe to say that everyone that works with him has noticed a great change

in him over the past 1-2 weeks. He is much more outgoing, much more in tune with

what it going on in the classroom, and very talkative.

I think what I’ve noticed the most is that he is talking much more with

his peers during work time and play time. He also seems to be much more

self-directed when we do classwork. For example, last Monday when we made the

Valentine’s Day card, he did very well with the project and did not need much

direction from me to complete it. He did most of the project independently, even

the sticky tape (which has always been a challenge for him). I also heard that

on Friday, during their speech time with Mrs. Kulig, he came into class, took

out his ABC book and without any prompting from anyone, read the entire book for

the rest of the kids in the group! This is all great!!â€

Parents add “his teacher is not aware we have him on NV. We are pretty

excited since it has been six years with nothing like this until now.â€

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/

Sorry if I went and this message seemed strong -but you have no idea -I have so

much more on this topic. So again -no from me for this exam unless you have to

-and if you do -be prepared to double check them. They are not always right

-I'll just leave it at that.

=====

[Guest guest]

Thank you so much for your reply. It is difficult to go against the well

regarded professionals in the area. The other parents know that they don't know

all the answers and aren't the best in the country, but the thought is " they're

the best we have here. " I'm from CT and NY (I was born in NJ), so my gut tends

to still go with northern thoughts (a whole 'nother issue . I have a good

friend whose son has apraxia and he's in a mainstream public school in Darien

and doing just fine. There are just lots of different thoughts on it. If they

were more honest and upfront, I'd be more impressed and trusting. His non-class

OT only works there p/t. She is much more progressive and willing to try

different therapies and talk about nutrition- she's not in full agreement with

everything at the school (she's the one who did the therap. listening and wants

to get the school onboard with ILS- let's just say she's frustrasted). She's the

one who seems most interested in conferences and being up with the newest

research, but I don't think many of them are really experts on apraxia at this

school. They know that low tone and sensory comes with it, but that's really

about it. They treat it from there.

Anyway, thank you for your thoughts. Much appreciated and yes, today was day 1

of NV. It all went down. He has 2 mos. left of school, so we'll see how it

goes!

Thanks, Marie

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Sat, March 26, 2011 4:26:32 PM

Subject: [ ] Re: psycho. educ. evaluation

Marie you so need private evaluations outside the school- and in my opinion

unless it's a rare educational psych who has great knowledge about speech

impairments and how to appropriately test one with a verbal disability I would

stick with neuroMD exams instead for apraxia as apraxia is not a psychological

condition and I've seen too many misdiagnosis.

I don't care for any school that feels that a test will answer all your

questions as I happen to have heard from Dr. a Tallal one of the Cherab

advisers that there are currently no 100 percent accurate cognitive or receptive

tests for a verbal disabled individual. Here's Dr. Tallal's background

http://www.cmbn.rutgers.edu/research/tallal/ I have a hunch based on her

research and educational background in working with our population she knows a

wee bit more than the people at your town school.

My son Tanner when we lived in NJ it was the same type of school -awesome public

school for regular students and their program for apraxia was HIGHLY

inappropriate and bordered on abusive to what they did to my poor son Tanner. I

have story after story in the archives of how they punished him, how when they

tried to get him to say " Good morning Mrs. Whiseman " when the child couldn't

even have said the first word of that sentence (!) they put him in front of the

class and he had his head down and the teacher took his face and forced him to

look up and patted his face -not hard enough to be a smack but more like a " come

on you can do it " kind of double quick pat and said " Come on Tanner you can do

it. Say Good morning Mrs. Whiseman " How do I know about those 2 alone? The

first the teacher told me and the second I saw through the double glass

observation room when he first started in this class which I didn't announce I

was there -because I didn't know I was supposed to as it was all new -and they

made it super clear to me that I was never to observe the class without

announcing I was there to observe. To put it bluntly how bad they were with my

son Tanner -they took a completely sweet child who worked so hard in therapy

prior to his few months in this horror and created a child that they pegged and

wrote into his IEP was " manipulative " Zimet CCC SLP from this group

who's now in Georgia was Tanner's EI therapist in Jersey before we moved so she

and Dr. Agin and Ortega can vouch for how Tanner was prior to this

placement.

So yes I advocated and had enough history to get Tanner placed in out of

district placement at the Summit Speech School which is an oral based school for

the hearing impaired in NJ and one of the top in the country. And the nightmare

was over as that school was incredible in every single way. A bunch of us with

apraxia had hearing apraxic children at the school soon after Tanner got in -

but from what I know after Kanter the school director passed away and

someone else took over they cracked down on not letting kids in that were

hearing. Honestly that school saved my son and I don't know where he would be

without it.

But when Tanner went to transition into kindergarten (at 6 -we kept him at SSS

until then and most of the kids at this school don't transition to public school

until 6 and the school has an extremely high success rate of mainstream after

preschool) he had to be tested by the same public school we left and by the same

educational psychologist. To make a long story short the public school as well

as my son was doing didn't think he'd " make it " in a mainstream kindergarten

class. Oh don't get me started -what a group of idiots they were! And his work

in SSS and appropriate testing should have shown that. As it ended up this

story gets to much worse as to someone from my NJ district calling the case

manager where I moved to in Florida to say that a mistake was being made and he

didn't belong in the mainstream that it's almost difficult to believe. And for

the educators reading this -I am so aware that so many of you are awesome -but I

also know that the edcational psych tests they give verbal disabled children are

typically are so unfair and in some cases are a violation of our children's

Civil Rights of not being tested on their abilities on their disability.

here's are links to the letter to parents I wrote years ago with the update

about kindergarten

http://www.cherab.org/information/familiesrelate/letter.html or

http://www.cherabfoundation.org/2006/a-letter-to-parents-who-have-a-child-that-i\

s-a-late-talker-first-written-7400-and-update-from-1003/

So if you don't have to do the testing just say no -if you do -get second

opinions. Actually either way I'd get second opinions because it seems based on

just a few comments you heard you are dealing with some professionals that have

already pegged your son even prior to testing.

Oh and about top academic private schools...after kindergarten - mainstream

where Tanner according to his teacher Mrs. was " not just making it but one

of the top students in his class " he went to a private school that was for

academically advanced students and was a straight A student. So don't say it's

not possible -your child sounds very bright to me -why shouldn't he be top in

his class?

PS...OK did you start the NV yet???? If you didn't please start it -it helps

with so much more than speech and motor planning, it's helping with academics

too.

Here's one example about a 6 year old

Professional anecdotal update from kindergarten teacher of a 6 year old apraxic

child after less than 2 weeks on Nutriiveda.

“I wanted to let you know how things are going with Dominic. I think it’s

safe

to say that everyone that works with him has noticed a great change in him over

the past 1-2 weeks. He is much more outgoing, much more in tune with what it

going on in the classroom, and very talkative.

I think what I’ve noticed the most is that he is talking much more with his

peers during work time and play time. He also seems to be much more

self-directed when we do classwork. For example, last Monday when we made the

Valentine’s Day card, he did very well with the project and did not need much

direction from me to complete it. He did most of the project independently, even

the sticky tape (which has always been a challenge for him). I also heard that

on Friday, during their speech time with Mrs. Kulig, he came into class, took

out his ABC book and without any prompting from anyone, read the entire book for

the rest of the kids in the group! This is all great!!â€

Parents add “his teacher is not aware we have him on NV. We are pretty

excited

since it has been six years with nothing like this until now.â€

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/

Sorry if I went and this message seemed strong -but you have no idea -I have so

much more on this topic. So again -no from me for this exam unless you have to

-and if you do -be prepared to double check them. They are not always right

-I'll just leave it at that.

=====

[Guest guest]

Is there a way for me to set up a meeting/call with Dr. Tallah or would she know

of anyone else I could meet with to discuss this? My aunt, a psychologist in

Baltimore, has been telling me for months to seek out a professional at s

Hopkins. I just want to talk to someone who is really in the know for a 2nd

opinion- especially re: testing before we move on.

I have family in Baltimore, northern NJ, NY and CT and am willing to travel if

needed to talk to someone I can trust and who is very knowledgeable.

Thanks, Marie

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Sat, March 26, 2011 4:26:32 PM

Subject: [ ] Re: psycho. educ. evaluation

Marie you so need private evaluations outside the school- and in my opinion

unless it's a rare educational psych who has great knowledge about speech

impairments and how to appropriately test one with a verbal disability I would

stick with neuroMD exams instead for apraxia as apraxia is not a psychological

condition and I've seen too many misdiagnosis.

I don't care for any school that feels that a test will answer all your

questions as I happen to have heard from Dr. a Tallal one of the Cherab

advisers that there are currently no 100 percent accurate cognitive or receptive

tests for a verbal disabled individual. Here's Dr. Tallal's background

http://www.cmbn.rutgers.edu/research/tallal/ I have a hunch based on her

research and educational background in working with our population she knows a

wee bit more than the people at your town school.

My son Tanner when we lived in NJ it was the same type of school -awesome public

school for regular students and their program for apraxia was HIGHLY

inappropriate and bordered on abusive to what they did to my poor son Tanner. I

have story after story in the archives of how they punished him, how when they

tried to get him to say " Good morning Mrs. Whiseman " when the child couldn't

even have said the first word of that sentence (!) they put him in front of the

class and he had his head down and the teacher took his face and forced him to

look up and patted his face -not hard enough to be a smack but more like a " come

on you can do it " kind of double quick pat and said " Come on Tanner you can do

it. Say Good morning Mrs. Whiseman " How do I know about those 2 alone? The

first the teacher told me and the second I saw through the double glass

observation room when he first started in this class which I didn't announce I

was there -because I didn't know I was supposed to as it was all new -and they

made it super clear to me that I was never to observe the class without

announcing I was there to observe. To put it bluntly how bad they were with my

son Tanner -they took a completely sweet child who worked so hard in therapy

prior to his few months in this horror and created a child that they pegged and

wrote into his IEP was " manipulative " Zimet CCC SLP from this group

who's now in Georgia was Tanner's EI therapist in Jersey before we moved so she

and Dr. Agin and Ortega can vouch for how Tanner was prior to this

placement.

So yes I advocated and had enough history to get Tanner placed in out of

district placement at the Summit Speech School which is an oral based school for

the hearing impaired in NJ and one of the top in the country. And the nightmare

was over as that school was incredible in every single way. A bunch of us with

apraxia had hearing apraxic children at the school soon after Tanner got in -

but from what I know after Kanter the school director passed away and

someone else took over they cracked down on not letting kids in that were

hearing. Honestly that school saved my son and I don't know where he would be

without it.

But when Tanner went to transition into kindergarten (at 6 -we kept him at SSS

until then and most of the kids at this school don't transition to public school

until 6 and the school has an extremely high success rate of mainstream after

preschool) he had to be tested by the same public school we left and by the same

educational psychologist. To make a long story short the public school as well

as my son was doing didn't think he'd " make it " in a mainstream kindergarten

class. Oh don't get me started -what a group of idiots they were! And his work

in SSS and appropriate testing should have shown that. As it ended up this

story gets to much worse as to someone from my NJ district calling the case

manager where I moved to in Florida to say that a mistake was being made and he

didn't belong in the mainstream that it's almost difficult to believe. And for

the educators reading this -I am so aware that so many of you are awesome -but I

also know that the edcational psych tests they give verbal disabled children

are typically are so unfair and in some cases are a violation of our children's

Civil Rights of not being tested on their abilities on their disability.

here's are links to the letter to parents I wrote years ago with the update

about kindergarten

http://www.cherab.org/information/familiesrelate/letter.html or

http://www.cherabfoundation.org/2006/a-letter-to-parents-who-have-a-child-that-i\

s-a-late-talker-first-written-7400-and-update-from-1003/

So if you don't have to do the testing just say no -if you do -get second

opinions. Actually either way I'd get second opinions because it seems based on

just a few comments you heard you are dealing with some professionals that have

already pegged your son even prior to testing.

Oh and about top academic private schools...after kindergarten - mainstream

where Tanner according to his teacher Mrs. was " not just making it but one

of the top students in his class " he went to a private school that was for

academically advanced students and was a straight A student. So don't say it's

not possible -your child sounds very bright to me -why shouldn't he be top in

his class?

PS...OK did you start the NV yet???? If you didn't please start it -it helps

with so much more than speech and motor planning, it's helping with academics

too.

Here's one example about a 6 year old

Professional anecdotal update from kindergarten teacher of a 6 year old apraxic

child after less than 2 weeks on Nutriiveda.

“I wanted to let you know how things are going with Dominic. I think it’s

safe

to say that everyone that works with him has noticed a great change in him over

the past 1-2 weeks. He is much more outgoing, much more in tune with what it

going on in the classroom, and very talkative.

I think what I’ve noticed the most is that he is talking much more with his

peers during work time and play time. He also seems to be much more

self-directed when we do classwork. For example, last Monday when we made the

Valentine’s Day card, he did very well with the project and did not need much

direction from me to complete it. He did most of the project independently, even

the sticky tape (which has always been a challenge for him). I also heard that

on Friday, during their speech time with Mrs. Kulig, he came into class, took

out his ABC book and without any prompting from anyone, read the entire book for

the rest of the kids in the group! This is all great!!â€

Parents add “his teacher is not aware we have him on NV. We are pretty

excited

since it has been six years with nothing like this until now.â€

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/

Sorry if I went and this message seemed strong -but you have no idea -I have so

much more on this topic. So again -no from me for this exam unless you have to

-and if you do -be prepared to double check them. They are not always right

-I'll just leave it at that.

=====

[Guest guest]

We live in NY, an hour outside NYC. We have never been able to say, No, to the

Psych evaluations that go along with PT OT and Speech. Shes in 4th grade now,

but we have reports from days of EI from Psych all thru the years. So even in

EI, if you want your child evaluated for OT or PT, you must agree to the Psych

or they wont do the others. They're not all bad reports and I get a lot of very

useful information for her annual meetings. Just anohter perspective.

I've thought of the outside Neuropsych evaluation, but I'm putting off that

$2500 price tag as long as I can!!The school psychologist, from our VERY highly

repspected district, has done a great job with her over the years!

Maureen

>

> Thank you so much for your reply. It is difficult to go against the well

> regarded professionals in the area. The other parents know that they don't

know

> all the answers and aren't the best in the country, but the thought is

" they're

> the best we have here. " I'm from CT and NY (I was born in NJ), so my gut

tends

> to still go with northern thoughts (a whole 'nother issue . I have a good

> friend whose son has apraxia and he's in a mainstream public school in Darien

> and doing just fine. There are just lots of different thoughts on it. If they

> were more honest and upfront, I'd be more impressed and trusting. His

non-class

> OT only works there p/t. She is much more progressive and willing to try

> different therapies and talk about nutrition- she's not in full agreement with

> everything at the school (she's the one who did the therap. listening and

wants

> to get the school onboard with ILS- let's just say she's frustrasted). She's

the

> one who seems most interested in conferences and being up with the newest

> research, but I don't think many of them are really experts on apraxia at this

> school. They know that low tone and sensory comes with it, but that's really

> about it. They treat it from there.

>

>

>

> Anyway, thank you for your thoughts. Much appreciated and yes, today was day 1

> of NV. It all went down. He has 2 mos. left of school, so we'll see how it

> goes!

>

>

> Thanks, Marie

>

>

>

>

> ________________________________

> From: kiddietalk <kiddietalk@...>

>

> Sent: Sat, March 26, 2011 4:26:32 PM

> Subject: [ ] Re: psycho. educ. evaluation

>

>

> Marie you so need private evaluations outside the school- and in my opinion

> unless it's a rare educational psych who has great knowledge about speech

> impairments and how to appropriately test one with a verbal disability I would

> stick with neuroMD exams instead for apraxia as apraxia is not a psychological

> condition and I've seen too many misdiagnosis.

>

>

> I don't care for any school that feels that a test will answer all your

> questions as I happen to have heard from Dr. a Tallal one of the Cherab

> advisers that there are currently no 100 percent accurate cognitive or

receptive

> tests for a verbal disabled individual. Here's Dr. Tallal's background

> http://www.cmbn.rutgers.edu/research/tallal/ I have a hunch based on her

> research and educational background in working with our population she knows a

> wee bit more than the people at your town school.

>

> My son Tanner when we lived in NJ it was the same type of school -awesome

public

> school for regular students and their program for apraxia was HIGHLY

> inappropriate and bordered on abusive to what they did to my poor son Tanner.

I

> have story after story in the archives of how they punished him, how when they

> tried to get him to say " Good morning Mrs. Whiseman " when the child couldn't

> even have said the first word of that sentence (!) they put him in front of

the

> class and he had his head down and the teacher took his face and forced him to

> look up and patted his face -not hard enough to be a smack but more like a

" come

> on you can do it " kind of double quick pat and said " Come on Tanner you can do

> it. Say Good morning Mrs. Whiseman " How do I know about those 2 alone? The

> first the teacher told me and the second I saw through the double glass

> observation room when he first started in this class which I didn't announce I

> was there -because I didn't know I was supposed to as it was all new -and they

> made it super clear to me that I was never to observe the class without

> announcing I was there to observe. To put it bluntly how bad they were with

my

> son Tanner -they took a completely sweet child who worked so hard in therapy

> prior to his few months in this horror and created a child that they pegged

and

> wrote into his IEP was " manipulative " Zimet CCC SLP from this group

> who's now in Georgia was Tanner's EI therapist in Jersey before we moved so

she

> and Dr. Agin and Ortega can vouch for how Tanner was prior to this

> placement.

>

> So yes I advocated and had enough history to get Tanner placed in out of

> district placement at the Summit Speech School which is an oral based school

for

> the hearing impaired in NJ and one of the top in the country. And the

nightmare

> was over as that school was incredible in every single way. A bunch of us

with

> apraxia had hearing apraxic children at the school soon after Tanner got in -

> but from what I know after Kanter the school director passed away and

> someone else took over they cracked down on not letting kids in that were

> hearing. Honestly that school saved my son and I don't know where he would be

> without it.

>

> But when Tanner went to transition into kindergarten (at 6 -we kept him at SSS

> until then and most of the kids at this school don't transition to public

school

> until 6 and the school has an extremely high success rate of mainstream after

> preschool) he had to be tested by the same public school we left and by the

same

> educational psychologist. To make a long story short the public school as

well

> as my son was doing didn't think he'd " make it " in a mainstream kindergarten

> class. Oh don't get me started -what a group of idiots they were! And his

work

> in SSS and appropriate testing should have shown that. As it ended up this

> story gets to much worse as to someone from my NJ district calling the case

> manager where I moved to in Florida to say that a mistake was being made and

he

> didn't belong in the mainstream that it's almost difficult to believe. And

for

> the educators reading this -I am so aware that so many of you are awesome -but

I

> also know that the edcational psych tests they give verbal disabled children

are

> typically are so unfair and in some cases are a violation of our children's

> Civil Rights of not being tested on their abilities on their disability.

>

> here's are links to the letter to parents I wrote years ago with the update

> about kindergarten

> http://www.cherab.org/information/familiesrelate/letter.html or

>

>

http://www.cherabfoundation.org/2006/a-letter-to-parents-who-have-a-child-that-i\

s-a-late-talker-first-written-7400-and-update-from-1003/

>

>

> So if you don't have to do the testing just say no -if you do -get second

> opinions. Actually either way I'd get second opinions because it seems based

on

> just a few comments you heard you are dealing with some professionals that

have

> already pegged your son even prior to testing.

>

> Oh and about top academic private schools...after kindergarten - mainstream

> where Tanner according to his teacher Mrs. was " not just making it but

one

> of the top students in his class " he went to a private school that was for

> academically advanced students and was a straight A student. So don't say

it's

> not possible -your child sounds very bright to me -why shouldn't he be top in

> his class?

>

> PS...OK did you start the NV yet???? If you didn't please start it -it helps

> with so much more than speech and motor planning, it's helping with academics

> too.

>

>

> Here's one example about a 6 year old

>

> Professional anecdotal update from kindergarten teacher of a 6 year old

apraxic

> child after less than 2 weeks on Nutriiveda.

>

> “I wanted to let you know how things are going with Dominic. I think it’s

safe

> to say that everyone that works with him has noticed a great change in him

over

> the past 1-2 weeks. He is much more outgoing, much more in tune with what it

> going on in the classroom, and very talkative.

>

> I think what I’ve noticed the most is that he is talking much more with his

> peers during work time and play time. He also seems to be much more

> self-directed when we do classwork. For example, last Monday when we made the

> Valentine’s Day card, he did very well with the project and did not need

much

> direction from me to complete it. He did most of the project independently,

even

> the sticky tape (which has always been a challenge for him). I also heard that

> on Friday, during their speech time with Mrs. Kulig, he came into class, took

> out his ABC book and without any prompting from anyone, read the entire book

for

> the rest of the kids in the group! This is all great!!â€

>

> Parents add “his teacher is not aware we have him on NV. We are pretty

excited

> since it has been six years with nothing like this until now.â€

>

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/

>

>

> Sorry if I went and this message seemed strong -but you have no idea -I have

so

> much more on this topic. So again -no from me for this exam unless you have

to

> -and if you do -be prepared to double check them. They are not always right

> -I'll just leave it at that.

>

> =====

>

[Guest guest]

Thanks for your thoughts. what disturbs us is that his classroom teachers (an

ST, OT and a special ed. teacher) give us such vague answers and insist that

this test will tell us all we need to know. we wonder what we're paying over

$20,000 for if his own teachers (therapists) can't tell us. It just seems odd

that specialists in the classroom can't tell us much, but a test that is geared

toward kids that are more verbal and is just a quick peak at these kids- can

tell us more. These kids are so different. A friend of mine with an apraxic kid

bucked the system and put her child in an accelerated private school in the area

(she teaches there, so had strings to get him in there- i used to teach there-

one of the top private schools in the area) in kindergarten. He struggled a

little that year, but was reading 4th grade level by 1st grade and is doing well

today. a chess player, more on the geeky side vs. athletic, but happy. The

therapists disagreed with her going down this route. Another friend (in CT) has

her child in public school in Darien (he has apraxia)- he's doing well. When you

pay big taxes, you get better schools (and services)- all I'll say. We have to

pay out of pocket $3000 for this psych. ed. test, so $2500 would actually be a

savings.

i just think it's worth a 2nd opinion and to talk to someone more in the know

about apraxia- not just all speech/language issues lumped together.

Thanks!

________________________________

From: mosense <mosense@...>

Sent: Sun, March 27, 2011 8:40:25 AM

Subject: [ ] Re: psycho. educ. evaluation

We live in NY, an hour outside NYC. We have never been able to say, No, to the

Psych evaluations that go along with PT OT and Speech. Shes in 4th grade now,

but we have reports from days of EI from Psych all thru the years. So even in

EI, if you want your child evaluated for OT or PT, you must agree to the Psych

or they wont do the others. They're not all bad reports and I get a lot of very

useful information for her annual meetings. Just anohter perspective.

I've thought of the outside Neuropsych evaluation, but I'm putting off that

$2500 price tag as long as I can!!The school psychologist, from our VERY highly

repspected district, has done a great job with her over the years!

Maureen

>

> Thank you so much for your reply. It is difficult to go against the well

> regarded professionals in the area. The other parents know that they don't

know

>

> all the answers and aren't the best in the country, but the thought is

" they're

>

> the best we have here. " I'm from CT and NY (I was born in NJ), so my gut

tends

>

> to still go with northern thoughts (a whole 'nother issue . I have a good

> friend whose son has apraxia and he's in a mainstream public school in Darien

> and doing just fine. There are just lots of different thoughts on it. If they

> were more honest and upfront, I'd be more impressed and trusting. His

non-class

>

> OT only works there p/t. She is much more progressive and willing to try

> different therapies and talk about nutrition- she's not in full agreement with

> everything at the school (she's the one who did the therap. listening and

wants

>

> to get the school onboard with ILS- let's just say she's frustrasted). She's

>the

>

> one who seems most interested in conferences and being up with the newest

> research, but I don't think many of them are really experts on apraxia at this

> school. They know that low tone and sensory comes with it, but that's really

> about it. They treat it from there.

>

>

>

> Anyway, thank you for your thoughts. Much appreciated and yes, today was day 1

> of NV. It all went down. He has 2 mos. left of school, so we'll see how it

> goes!

>

>

> Thanks, Marie

>

>

>

>

> ________________________________

> From: kiddietalk <kiddietalk@...>

>

> Sent: Sat, March 26, 2011 4:26:32 PM

> Subject: [ ] Re: psycho. educ. evaluation

>

>

> Marie you so need private evaluations outside the school- and in my opinion

> unless it's a rare educational psych who has great knowledge about speech

> impairments and how to appropriately test one with a verbal disability I would

> stick with neuroMD exams instead for apraxia as apraxia is not a psychological

> condition and I've seen too many misdiagnosis.

>

>

> I don't care for any school that feels that a test will answer all your

> questions as I happen to have heard from Dr. a Tallal one of the Cherab

> advisers that there are currently no 100 percent accurate cognitive or

>receptive

>

> tests for a verbal disabled individual. Here's Dr. Tallal's background

> http://www.cmbn.rutgers.edu/research/tallal/ I have a hunch based on her

> research and educational background in working with our population she knows a

> wee bit more than the people at your town school.

>

> My son Tanner when we lived in NJ it was the same type of school -awesome

>public

>

> school for regular students and their program for apraxia was HIGHLY

> inappropriate and bordered on abusive to what they did to my poor son Tanner.

>I

>

> have story after story in the archives of how they punished him, how when they

> tried to get him to say " Good morning Mrs. Whiseman " when the child couldn't

> even have said the first word of that sentence (!) they put him in front of

the

>

> class and he had his head down and the teacher took his face and forced him to

> look up and patted his face -not hard enough to be a smack but more like a

> " come

>

> on you can do it " kind of double quick pat and said " Come on Tanner you can do

> it. Say Good morning Mrs. Whiseman " How do I know about those 2 alone? The

> first the teacher told me and the second I saw through the double glass

> observation room when he first started in this class which I didn't announce I

> was there -because I didn't know I was supposed to as it was all new -and they

> made it super clear to me that I was never to observe the class without

> announcing I was there to observe. To put it bluntly how bad they were with

my

>

> son Tanner -they took a completely sweet child who worked so hard in therapy

> prior to his few months in this horror and created a child that they pegged

and

>

> wrote into his IEP was " manipulative " Zimet CCC SLP from this group

> who's now in Georgia was Tanner's EI therapist in Jersey before we moved so

she

>

> and Dr. Agin and Ortega can vouch for how Tanner was prior to this

> placement.

>

> So yes I advocated and had enough history to get Tanner placed in out of

> district placement at the Summit Speech School which is an oral based school

>for

>

> the hearing impaired in NJ and one of the top in the country. And the

>nightmare

>

> was over as that school was incredible in every single way. A bunch of us

with

>

> apraxia had hearing apraxic children at the school soon after Tanner got in -

> but from what I know after Kanter the school director passed away and

> someone else took over they cracked down on not letting kids in that were

> hearing. Honestly that school saved my son and I don't know where he would be

> without it.

>

> But when Tanner went to transition into kindergarten (at 6 -we kept him at SSS

> until then and most of the kids at this school don't transition to public

>school

>

> until 6 and the school has an extremely high success rate of mainstream after

> preschool) he had to be tested by the same public school we left and by the

>same

>

> educational psychologist. To make a long story short the public school as

well

>

> as my son was doing didn't think he'd " make it " in a mainstream kindergarten

> class. Oh don't get me started -what a group of idiots they were! And his

>work

>

> in SSS and appropriate testing should have shown that. As it ended up this

> story gets to much worse as to someone from my NJ district calling the case

> manager where I moved to in Florida to say that a mistake was being made and

he

>

> didn't belong in the mainstream that it's almost difficult to believe. And

for

>

> the educators reading this -I am so aware that so many of you are awesome -but

>I

>

> also know that the edcational psych tests they give verbal disabled children

>are

>

> typically are so unfair and in some cases are a violation of our children's

> Civil Rights of not being tested on their abilities on their disability.

>

> here's are links to the letter to parents I wrote years ago with the update

> about kindergarten

> http://www.cherab.org/information/familiesrelate/letter.html or

>

>http://www.cherabfoundation.org/2006/a-letter-to-parents-who-have-a-child-that-\

is-a-late-talker-first-written-7400-and-update-from-1003/

>/

>

>

> So if you don't have to do the testing just say no -if you do -get second

> opinions. Actually either way I'd get second opinions because it seems based

>on

>

> just a few comments you heard you are dealing with some professionals that

have

>

> already pegged your son even prior to testing.

>

> Oh and about top academic private schools...after kindergarten - mainstream

> where Tanner according to his teacher Mrs. was " not just making it but

>one

>

> of the top students in his class " he went to a private school that was for

> academically advanced students and was a straight A student. So don't say

it's

>

> not possible -your child sounds very bright to me -why shouldn't he be top in

> his class?

>

> PS...OK did you start the NV yet???? If you didn't please start it -it helps

> with so much more than speech and motor planning, it's helping with academics

> too.

>

>

> Here's one example about a 6 year old

>

> Professional anecdotal update from kindergarten teacher of a 6 year old

apraxic

>

> child after less than 2 weeks on Nutriiveda.

>

> “I wanted to let you know how things are going with Dominic. I think it’s

safe

> to say that everyone that works with him has noticed a great change in him

over

>

> the past 1-2 weeks. He is much more outgoing, much more in tune with what it

> going on in the classroom, and very talkative.

>

> I think what I’ve noticed the most is that he is talking much more with his

> peers during work time and play time. He also seems to be much more

> self-directed when we do classwork. For example, last Monday when we made the

> Valentine’s Day card, he did very well with the project and did not need

much

> direction from me to complete it. He did most of the project independently,

>even

>

> the sticky tape (which has always been a challenge for him). I also heard that

> on Friday, during their speech time with Mrs. Kulig, he came into class, took

> out his ABC book and without any prompting from anyone, read the entire book

>for

>

> the rest of the kids in the group! This is all great!!â€

>

> Parents add “his teacher is not aware we have him on NV. We are pretty

excited

>

> since it has been six years with nothing like this until now.â€

>http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift\

-in-treatment-of-speech-impairments/

>/

>

>

> Sorry if I went and this message seemed strong -but you have no idea -I have

so

>

> much more on this topic. So again -no from me for this exam unless you have

to

>

> -and if you do -be prepared to double check them. They are not always right

> -I'll just leave it at that.

>

> =====

>

[Guest guest]

That is why I said you should be able to say no -or at least choose who

evaluates if you are paying. You aren't in a public school as they don't

charge. Why isn't your son in the public school system? And if they say he

wouldn't make it -I say " says who?! " Save yourself money and grief as they

sound clueless anyway and try public for next year.

=====

[Guest guest]

The $2500 is the estimate!! from one of the ONLY Pediatric Neuropsychologists in

NYC. One of my very good friends is an Adult/Couples/Family Neuropsychologist

who practices in NYC. I asked him for some names of colleagues who treat

children. The name he gave me is the only one he told me that is strictly

pediatric. His office said its a 5-6hour evaluation, at the least but would be

very thorough and more information than the school psych testing.

> >

> > Thank you so much for your reply. It is difficult to go against the well

> > regarded professionals in the area. The other parents know that they don't

know

> >

> > all the answers and aren't the best in the country, but the thought is

" they're

> >

> > the best we have here. " I'm from CT and NY (I was born in NJ), so my gut

tends

> >

> > to still go with northern thoughts (a whole 'nother issue . I have a good

> > friend whose son has apraxia and he's in a mainstream public school in

Darien

> > and doing just fine. There are just lots of different thoughts on it. If

they

>

> > were more honest and upfront, I'd be more impressed and trusting. His

non-class

> >

> > OT only works there p/t. She is much more progressive and willing to try

> > different therapies and talk about nutrition- she's not in full agreement

with

>

> > everything at the school (she's the one who did the therap. listening and

wants

> >

> > to get the school onboard with ILS- let's just say she's frustrasted). She's

> >the

> >

> > one who seems most interested in conferences and being up with the newest

> > research, but I don't think many of them are really experts on apraxia at

this

>

> > school. They know that low tone and sensory comes with it, but that's really

> > about it. They treat it from there.

> >

> >

> >

> > Anyway, thank you for your thoughts. Much appreciated and yes, today was day

1

>

> > of NV. It all went down. He has 2 mos. left of school, so we'll see how it

> > goes!

> >

> >

> > Thanks, Marie

> >

> >

> >

> >

> > ________________________________

> > From: kiddietalk <kiddietalk@>

> >

> > Sent: Sat, March 26, 2011 4:26:32 PM

> > Subject: [ ] Re: psycho. educ. evaluation

> >

> >

> > Marie you so need private evaluations outside the school- and in my opinion

> > unless it's a rare educational psych who has great knowledge about speech

> > impairments and how to appropriately test one with a verbal disability I

would

>

> > stick with neuroMD exams instead for apraxia as apraxia is not a

psychological

>

> > condition and I've seen too many misdiagnosis.

> >

> >

> > I don't care for any school that feels that a test will answer all your

> > questions as I happen to have heard from Dr. a Tallal one of the Cherab

> > advisers that there are currently no 100 percent accurate cognitive or

> >receptive

> >

> > tests for a verbal disabled individual. Here's Dr. Tallal's background

> > http://www.cmbn.rutgers.edu/research/tallal/ I have a hunch based on her

> > research and educational background in working with our population she knows

a

>

> > wee bit more than the people at your town school.

> >

> > My son Tanner when we lived in NJ it was the same type of school -awesome

> >public

> >

> > school for regular students and their program for apraxia was HIGHLY

> > inappropriate and bordered on abusive to what they did to my poor son

Tanner.

> >I

> >

> > have story after story in the archives of how they punished him, how when

they

>

> > tried to get him to say " Good morning Mrs. Whiseman " when the child couldn't

> > even have said the first word of that sentence (!) they put him in front of

the

> >

> > class and he had his head down and the teacher took his face and forced him

to

>

> > look up and patted his face -not hard enough to be a smack but more like a

> > " come

> >

> > on you can do it " kind of double quick pat and said " Come on Tanner you can

do

>

> > it. Say Good morning Mrs. Whiseman " How do I know about those 2 alone?

The

> > first the teacher told me and the second I saw through the double glass

> > observation room when he first started in this class which I didn't announce

I

>

> > was there -because I didn't know I was supposed to as it was all new -and

they

>

> > made it super clear to me that I was never to observe the class without

> > announcing I was there to observe. To put it bluntly how bad they were with

my

> >

> > son Tanner -they took a completely sweet child who worked so hard in therapy

> > prior to his few months in this horror and created a child that they pegged

and

> >

> > wrote into his IEP was " manipulative " Zimet CCC SLP from this group

> > who's now in Georgia was Tanner's EI therapist in Jersey before we moved so

she

> >

> > and Dr. Agin and Ortega can vouch for how Tanner was prior to this

> > placement.

> >

> > So yes I advocated and had enough history to get Tanner placed in out of

> > district placement at the Summit Speech School which is an oral based school

> >for

> >

> > the hearing impaired in NJ and one of the top in the country. And the

> >nightmare

> >

> > was over as that school was incredible in every single way. A bunch of us

with

> >

> > apraxia had hearing apraxic children at the school soon after Tanner got in

-

> > but from what I know after Kanter the school director passed away and

> > someone else took over they cracked down on not letting kids in that were

> > hearing. Honestly that school saved my son and I don't know where he would

be

>

> > without it.

> >

> > But when Tanner went to transition into kindergarten (at 6 -we kept him at

SSS

>

> > until then and most of the kids at this school don't transition to public

> >school

> >

> > until 6 and the school has an extremely high success rate of mainstream

after

> > preschool) he had to be tested by the same public school we left and by the

> >same

> >

> > educational psychologist. To make a long story short the public school as

well

> >

> > as my son was doing didn't think he'd " make it " in a mainstream kindergarten

> > class. Oh don't get me started -what a group of idiots they were! And his

> >work

> >

> > in SSS and appropriate testing should have shown that. As it ended up this

> > story gets to much worse as to someone from my NJ district calling the case

> > manager where I moved to in Florida to say that a mistake was being made and

he

> >

> > didn't belong in the mainstream that it's almost difficult to believe. And

for

> >

> > the educators reading this -I am so aware that so many of you are awesome

-but

> >I

> >

> > also know that the edcational psych tests they give verbal disabled children

> >are

> >

> > typically are so unfair and in some cases are a violation of our children's

> > Civil Rights of not being tested on their abilities on their disability.

> >

> > here's are links to the letter to parents I wrote years ago with the update

> > about kindergarten

> > http://www.cherab.org/information/familiesrelate/letter.html or

> >

>

>http://www.cherabfoundation.org/2006/a-letter-to-parents-who-have-a-child-that-\

is-a-late-talker-first-written-7400-and-update-from-1003/

> >/

> >

> >

> > So if you don't have to do the testing just say no -if you do -get second

> > opinions. Actually either way I'd get second opinions because it seems

based

> >on

> >

> > just a few comments you heard you are dealing with some professionals that

have

> >

> > already pegged your son even prior to testing.

> >

> > Oh and about top academic private schools...after kindergarten - mainstream

> > where Tanner according to his teacher Mrs. was " not just making it but

> >one

> >

> > of the top students in his class " he went to a private school that was for

> > academically advanced students and was a straight A student. So don't say

it's

> >

> > not possible -your child sounds very bright to me -why shouldn't he be top

in

> > his class?

> >

> > PS...OK did you start the NV yet???? If you didn't please start it -it

helps

> > with so much more than speech and motor planning, it's helping with

academics

> > too.

> >

> >

> > Here's one example about a 6 year old

> >

> > Professional anecdotal update from kindergarten teacher of a 6 year old

apraxic

> >

> > child after less than 2 weeks on Nutriiveda.

> >

> > “I wanted to let you know how things are going with Dominic. I think

it’s safe

>

> > to say that everyone that works with him has noticed a great change in him

over

> >

> > the past 1-2 weeks. He is much more outgoing, much more in tune with what it

> > going on in the classroom, and very talkative.

> >

> > I think what I’ve noticed the most is that he is talking much more with

his

> > peers during work time and play time. He also seems to be much more

> > self-directed when we do classwork. For example, last Monday when we made

the

> > Valentine’s Day card, he did very well with the project and did not need

much

> > direction from me to complete it. He did most of the project independently,

> >even

> >

> > the sticky tape (which has always been a challenge for him). I also heard

that

>

> > on Friday, during their speech time with Mrs. Kulig, he came into class,

took

> > out his ABC book and without any prompting from anyone, read the entire book

> >for

> >

> > the rest of the kids in the group! This is all great!!â€

> >

> > Parents add “his teacher is not aware we have him on NV. We are pretty

excited

> >

> > since it has been six years with nothing like this until now.â€

>

>http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift\

-in-treatment-of-speech-impairments/

> >/

> >

> >

> > Sorry if I went and this message seemed strong -but you have no idea -I have

so

> >

> > much more on this topic. So again -no from me for this exam unless you have

to

> >

> > -and if you do -be prepared to double check them. They are not always right

> > -I'll just leave it at that.

> >

> > =====

> >