Guest guest Posted December 12, 2010 Report Share Posted December 12, 2010 Congratulations, I too couldn't think of a better gift for the holidays. Thank you for sharing! > > > > Just wanted to share a quick update on Tanner who continues to amaze us. One..and maybe this is something some wouldn't think is a big deal -but Tanner now enjoys watching Jon Steward and Colbert- Dakota and I used to watch the shows and when we laughed Tanner used to say " it's not even funny " The humor used to be over his head. The conversations we have now- it's just amazing. He looks up current news himself and discusses it with me. > > > > So this one I know all can relate to. Today I was on the phone with one of the parents from this group (Dawn was it you or was it you Ginny??? and BTW both of these mom have amazing updates too!!) and Tanner gets into the car and hands me his spelling test with a perfect score. But this was the thing -I never studied with him -had no idea he was going to have a test...and some of these words I would have spelled wrong! > > > > bask > > articulate > > anguish > > aloof > > abashed > > defect > > finesse > > flaunt > > forthright > > genial > > instill > > ostracize > > premonition > > pseudonym > > purge > > rehabilitate > > repercussion > > resolute > > retentive > > scapegoat > > > > ha -I spelled two of them wrong just typing them here! > > > > Tanner was always incredible at spelling -but I used to have to study with him. He now does all his work himself, and pretty much it's been like that since he's been on NV which is now just over one year...YAY NV!!! BTW the new site is just about done -please add your input -we love constructive criticism! http://pursuitofresearch.com > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Hi All, I haven't been on here for a bit but wanted to update on & Lily's neuro appt. last week. Both my children are on NV. Both kids are diagnosed with PDD NOS, apraxia, seizure disorders, and global delays. also has Agenesis Of Corpus Callosum (Congenital Disorder) My son is now off his seizure meds since Sept. 2010 & he is doing great & now only has to be seen yearly by the neuro. Also his OT has noted an increase in his hand strength and also he actually jumped in place getting both feet off the ground about 4 inches!! This is a huge accomplishment for him since he has been trying for years to do this!! He has been on 4 scoops of NV since Feb. 2010. He's had tremendous growth in weight and height which he needed both. He's grown at least 3 inches. I'm only 5 foot 1 but he's now 5 foot 2 and grew taller than me! He's 85 pounds now and last winter he was 72 and 4 foot 9, so this is the most growth he's ever had in this time period. His abilities have been tested to increase since being on NV in cognitive and communication. My daughter is also doing great, she will be starting to lower her seizure meds in August. Teachers have noted an increase in cognitive skills that is continuing since being on NV since Feb. 2010. She has been tested as well for the cognitive and communication and also has had increases in both since being on NV. She has gained 7 pounds and also grew 3 inches. She is now 4 foot 6 and weighs 63 pounds. For both my children as they are older progress prior to NV was painfully slow. Their growth was low percentile for both. So outside of the seizures there are so many areas of improvement that it's hard to put them all here. My husband and I are thrilled and I pray they never stop making NV. I don't know what we would do!! I wanted to tell you about a child in the parent group that I am in that had medication resistant seizures prior to NV, and was unable to walk prior to NV. When she started on NV about 5 months ago she started walking within ONE week at 4 years old! While before NV she was medication resistant and had seizures often, once on NV she immediately went for 5 weeks without a seizure, had 1 small seizure, and has since been seizure free for 14 weeks straight which is amazing!! My children's neurologist in NY is now very impressed as so far NV seems to be working for all of us that have tried it in my local support group. There are 6 of us and so far 3 people using it and one parent after checking NV out with 3 medical doctors including her child's endocrinologist where all approved it she's started it too last night. My neurologist is also so impressed that in addition to progress in all the other areas my children's growth is now getting closer to the line of normal. Again my children are 10 and 14, so all of this is so exciting. I don't know if I should share this but said a new word last night. I was in the kitchen and said " oh that sucks " and I don't know why I said it- but all of a sudden in the other room I hear my 14 year old say as clear as day " sucks " I have to watch what I say now!! My husband and I struggle to afford NV as we are not in the best situation but I have found that our food bills including for any snack foods has been lowered but I honestly don't know how I even afford to keep both my children on this at 4 scoops a day -but we make sure it's paid for every single month. We wish we could even order more for us. Also the NV company has a rewards program for customers so we get money back to pay for products. If anyone would like to speak with me about my experience with my children who had seizures for years & their progress with NV, please feel free to contact me anytime. Dawn Falley 631-447-0615 daffy4 @optonline.net (no space) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Dawn, Your children's progress is amazing! So glad to hear how well they are doing. J Warmest wishes, Barbara Barbara A. , M.S., CCC-SLP CEO/ Help Me Speak, LLC <http://www.helpmespeak.com/> http://www.helpmespeak.com (o) 410-442-9791 (f) 410-442-9783 2500 Wallington Way; Suite 103 Marriottsville, MD 21104 follow us on FaceBook: http://www.facebook.com/ffcentralmaryland#!/pages/Help-Me-Speak-LLC/10462885 2032 Call me with any questions about NutriiVeda! **************************************************************************** ************** The above email is for intended recipient only and may be confidential and is legally privileged. If you are not the intended recipient of this communication, you are hereby notified that any unauthorized review, use, dissemination, distribution, downloading, or copying of this communication is strictly prohibited. If you have received this communication in error, please immediately notify us by reply email, delete the communication and destroy all copies. Unauthorized use or distribution is prohibited and may be unlawful. **************************************************************************** *** From: [mailto: ] On Behalf Of Dawn Falley Sent: Tuesday, March 29, 2011 1:59 PM Subject: [ ] Dawn Falley's Update on (14) and Lily (10) Hi All, I haven't been on here for a bit but wanted to update on & Lily's neuro appt. last week. Both my children are on NV. Both kids are diagnosed with PDD NOS, apraxia, seizure disorders, and global delays. also has Agenesis Of Corpus Callosum (Congenital Disorder) My son is now off his seizure meds since Sept. 2010 & he is doing great & now only has to be seen yearly by the neuro. Also his OT has noted an increase in his hand strength and also he actually jumped in place getting both feet off the ground about 4 inches!! This is a huge accomplishment for him since he has been trying for years to do this!! He has been on 4 scoops of NV since Feb. 2010. He's had tremendous growth in weight and height which he needed both. He's grown at least 3 inches. I'm only 5 foot 1 but he's now 5 foot 2 and grew taller than me! He's 85 pounds now and last winter he was 72 and 4 foot 9, so this is the most growth he's ever had in this time period. His abilities have been tested to increase since being on NV in cognitive and communication. My daughter is also doing great, she will be starting to lower her seizure meds in August. Teachers have noted an increase in cognitive skills that is continuing since being on NV since Feb. 2010. She has been tested as well for the cognitive and communication and also has had increases in both since being on NV. She has gained 7 pounds and also grew 3 inches. She is now 4 foot 6 and weighs 63 pounds. For both my children as they are older progress prior to NV was painfully slow. Their growth was low percentile for both. So outside of the seizures there are so many areas of improvement that it's hard to put them all here. My husband and I are thrilled and I pray they never stop making NV. I don't know what we would do!! I wanted to tell you about a child in the parent group that I am in that had medication resistant seizures prior to NV, and was unable to walk prior to NV. When she started on NV about 5 months ago she started walking within ONE week at 4 years old! While before NV she was medication resistant and had seizures often, once on NV she immediately went for 5 weeks without a seizure, had 1 small seizure, and has since been seizure free for 14 weeks straight which is amazing!! My children's neurologist in NY is now very impressed as so far NV seems to be working for all of us that have tried it in my local support group. There are 6 of us and so far 3 people using it and one parent after checking NV out with 3 medical doctors including her child's endocrinologist where all approved it she's started it too last night. My neurologist is also so impressed that in addition to progress in all the other areas my children's growth is now getting closer to the line of normal. Again my children are 10 and 14, so all of this is so exciting. I don't know if I should share this but said a new word last night. I was in the kitchen and said " oh that sucks " and I don't know why I said it- but all of a sudden in the other room I hear my 14 year old say as clear as day " sucks " I have to watch what I say now!! My husband and I struggle to afford NV as we are not in the best situation but I have found that our food bills including for any snack foods has been lowered but I honestly don't know how I even afford to keep both my children on this at 4 scoops a day -but we make sure it's paid for every single month. We wish we could even order more for us. Also the NV company has a rewards program for customers so we get money back to pay for products. If anyone would like to speak with me about my experience with my children who had seizures for years & their progress with NV, please feel free to contact me anytime. Dawn Falley 631-447-0615 daffy4 @optonline.net (no space) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Congratulations great update. Jeanne > > Hi All, > > I haven't been on here for a bit but wanted to update on & Lily's neuro appt. last week. Both my children are on NV. Both kids are diagnosed with PDD NOS, apraxia, seizure disorders, and global delays. also has Agenesis Of Corpus Callosum (Congenital Disorder) > > My son is now off his seizure meds since Sept. 2010 & he is doing great & now only has to be seen yearly by the neuro. Also his OT has noted an increase in his hand strength and also he actually jumped in place getting both feet off the ground about 4 inches!! This is a huge accomplishment for him since he has been trying for years to do this!! He has been on 4 scoops of NV since Feb. 2010. He's had tremendous growth in weight and height which he needed both. He's grown at least 3 inches. I'm only 5 foot 1 but he's now 5 foot 2 and grew taller than me! He's 85 pounds now and last winter he was 72 and 4 foot 9, so this is the most growth he's ever had in this time period. His abilities have been tested to increase since being on NV in cognitive and communication. > > My daughter is also doing great, she will be starting to lower her seizure meds in August. Teachers have noted an increase in cognitive skills that is continuing since being on NV since Feb. 2010. She has been tested as well for the cognitive and communication and also has had increases in both since being on NV. She has gained 7 pounds and also grew 3 inches. She is now 4 foot 6 and weighs 63 pounds. > > For both my children as they are older progress prior to NV was painfully slow. Their growth was low percentile for both. So outside of the seizures there are so many areas of improvement that it's hard to put them all here. My husband and I are thrilled and I pray they never stop making NV. I don't know what we would do!! > > I wanted to tell you about a child in the parent group that I am in that had medication resistant seizures prior to NV, and was unable to walk prior to NV. When she started on NV about 5 months ago she started walking within ONE week at 4 years old! While before NV she was medication resistant and had seizures often, once on NV she immediately went for 5 weeks without a seizure, had 1 small seizure, and has since been seizure free for 14 weeks straight which is amazing!! > > My children's neurologist in NY is now very impressed as so far NV seems to be working for all of us that have tried it in my local support group. There are 6 of us and so far 3 people using it and one parent after checking NV out with 3 medical doctors including her child's endocrinologist where all approved it she's started it too last night. > > My neurologist is also so impressed that in addition to progress in all the other areas my children's growth is now getting closer to the line of normal. Again my children are 10 and 14, so all of this is so exciting. I don't know if I should share this but said a new word last night. I was in the kitchen and said " oh that sucks " and I don't know why I said it- but all of a sudden in the other room I hear my 14 year old say as clear as day " sucks " I have to watch what I say now!! > > My husband and I struggle to afford NV as we are not in the best situation but I have found that our food bills including for any snack foods has been lowered but I honestly don't know how I even afford to keep both my children on this at 4 scoops a day -but we make sure it's paid for every single month. We wish we could even order more for us. Also the NV company has a rewards program for customers so we get money back to pay for products. > > If anyone would like to speak with me about my experience with my children who had seizures for years & their progress with NV, please feel free to contact me anytime. > > Dawn Falley > 631-447-0615 > daffy4 @optonline.net (no space) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Thank you for sharing. I have one older and one younger child just starting NV so this gives me lots of encouragement. B. [ ] Dawn Falley's Update on (14) and Lily (10) Hi All, I haven't been on here for a bit but wanted to update on & Lily's neuro appt. last week. Both my children are on NV. Both kids are diagnosed with PDD NOS, apraxia, seizure disorders, and global delays. also has Agenesis Of Corpus Callosum (Congenital Disorder) My son is now off his seizure meds since Sept. 2010 & he is doing great & now only has to be seen yearly by the neuro. Also his OT has noted an increase in his hand strength and also he actually jumped in place getting both feet off the ground about 4 inches!! This is a huge accomplishment for him since he has been trying for years to do this!! He has been on 4 scoops of NV since Feb. 2010. He's had tremendous growth in weight and height which he needed both. He's grown at least 3 inches. I'm only 5 foot 1 but he's now 5 foot 2 and grew taller than me! He's 85 pounds now and last winter he was 72 and 4 foot 9, so this is the most growth he's ever had in this time period. His abilities have been tested to increase since being on NV in cognitive and communication. My daughter is also doing great, she will be starting to lower her seizure meds in August. Teachers have noted an increase in cognitive skills that is continuing since being on NV since Feb. 2010. She has been tested as well for the cognitive and communication and also has had increases in both since being on NV. She has gained 7 pounds and also grew 3 inches. She is now 4 foot 6 and weighs 63 pounds. For both my children as they are older progress prior to NV was painfully slow. Their growth was low percentile for both. So outside of the seizures there are so many areas of improvement that it's hard to put them all here. My husband and I are thrilled and I pray they never stop making NV. I don't know what we would do!! I wanted to tell you about a child in the parent group that I am in that had medication resistant seizures prior to NV, and was unable to walk prior to NV. When she started on NV about 5 months ago she started walking within ONE week at 4 years old! While before NV she was medication resistant and had seizures often, once on NV she immediately went for 5 weeks without a seizure, had 1 small seizure, and has since been seizure free for 14 weeks straight which is amazing!! My children's neurologist in NY is now very impressed as so far NV seems to be working for all of us that have tried it in my local support group. There are 6 of us and so far 3 people using it and one parent after checking NV out with 3 medical doctors including her child's endocrinologist where all approved it she's started it too last night. My neurologist is also so impressed that in addition to progress in all the other areas my children's growth is now getting closer to the line of normal. Again my children are 10 and 14, so all of this is so exciting. I don't know if I should share this but said a new word last night. I was in the kitchen and said " oh that sucks " and I don't know why I said it- but all of a sudden in the other room I hear my 14 year old say as clear as day " sucks " I have to watch what I say now!! My husband and I struggle to afford NV as we are not in the best situation but I have found that our food bills including for any snack foods has been lowered but I honestly don't know how I even afford to keep both my children on this at 4 scoops a day -but we make sure it's paid for every single month. We wish we could even order more for us. Also the NV company has a rewards program for customers so we get money back to pay for products. If anyone would like to speak with me about my experience with my children who had seizures for years & their progress with NV, please feel free to contact me anytime. Dawn Falley 631-447-0615 daffy4 @optonline.net (no space) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Dawn's updates really are so amazing to follow because when she first told her neurologist about it -he barely listened to her after approving it -just wrote it down on her children's files. And here it is a year later and both of her children have made so much progress in so many areas and now this same neurologist is asking for more information about NV as he's very impressed. And finally what appears to be an answer through food- so perhaps expanding the limited choices of drugs or surgery..some chocolate or vanilla NV, which is just food!! (for those that want to check ingredients http://pursuitofresearch.org/products/nutriiveda/nutriiveda-ingredients/ ) I'm highly encouraging Dawn to start an online support group for those with seizures to share with others. She's in NY and the fact that NV is having a 100 percent success rate so far with all the children on it -and not just little ones but older children- teens, including those that were medication resistant, is just remarkable. I know I keep saying this but clearly the answer has to lie in the essential nutrients -because it's not just what we eat but what we digest. Somehow NV must be getting one or more nutrients that were previously missing to the body where it's needed. If anyone reading this has a child prone to seizures -please contact Dawn Falley - all her info is below. Dawn's original updates about her 14 year old son and her 10 year old daughter Lily are here http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\ in-treatment-of-seizures Dawn I again am SO happy for you and your family!!! Hugs to both your kids!!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Hi Dawn, Thanks for keeping us updated. Your kids are doing so well! From: Dawn Falley Sent: Tuesday, March 29, 2011 1:58 PM Subject: [ ] Dawn Falley's Update on (14) and Lily (10) Hi All, I haven't been on here for a bit but wanted to update on & Lily's neuro appt. last week. Both my children are on NV. Both kids are diagnosed with PDD NOS, apraxia, seizure disorders, and global delays. also has Agenesis Of Corpus Callosum (Congenital Disorder) My son is now off his seizure meds since Sept. 2010 & he is doing great & now only has to be seen yearly by the neuro. Also his OT has noted an increase in his hand strength and also he actually jumped in place getting both feet off the ground about 4 inches!! This is a huge accomplishment for him since he has been trying for years to do this!! He has been on 4 scoops of NV since Feb. 2010. He's had tremendous growth in weight and height which he needed both. He's grown at least 3 inches. I'm only 5 foot 1 but he's now 5 foot 2 and grew taller than me! He's 85 pounds now and last winter he was 72 and 4 foot 9, so this is the most growth he's ever had in this time period. His abilities have been tested to increase since being on NV in cognitive and communication. My daughter is also doing great, she will be starting to lower her seizure meds in August. Teachers have noted an increase in cognitive skills that is continuing since being on NV since Feb. 2010. She has been tested as well for the cognitive and communication and also has had increases in both since being on NV. She has gained 7 pounds and also grew 3 inches. She is now 4 foot 6 and weighs 63 pounds. For both my children as they are older progress prior to NV was painfully slow. Their growth was low percentile for both. So outside of the seizures there are so many areas of improvement that it's hard to put them all here. My husband and I are thrilled and I pray they never stop making NV. I don't know what we would do!! I wanted to tell you about a child in the parent group that I am in that had medication resistant seizures prior to NV, and was unable to walk prior to NV. When she started on NV about 5 months ago she started walking within ONE week at 4 years old! While before NV she was medication resistant and had seizures often, once on NV she immediately went for 5 weeks without a seizure, had 1 small seizure, and has since been seizure free for 14 weeks straight which is amazing!! My children's neurologist in NY is now very impressed as so far NV seems to be working for all of us that have tried it in my local support group. There are 6 of us and so far 3 people using it and one parent after checking NV out with 3 medical doctors including her child's endocrinologist where all approved it she's started it too last night. My neurologist is also so impressed that in addition to progress in all the other areas my children's growth is now getting closer to the line of normal. Again my children are 10 and 14, so all of this is so exciting. I don't know if I should share this but said a new word last night. I was in the kitchen and said " oh that sucks " and I don't know why I said it- but all of a sudden in the other room I hear my 14 year old say as clear as day " sucks " I have to watch what I say now!! My husband and I struggle to afford NV as we are not in the best situation but I have found that our food bills including for any snack foods has been lowered but I honestly don't know how I even afford to keep both my children on this at 4 scoops a day -but we make sure it's paid for every single month. We wish we could even order more for us. Also the NV company has a rewards program for customers so we get money back to pay for products. If anyone would like to speak with me about my experience with my children who had seizures for years & their progress with NV, please feel free to contact me anytime. Dawn Falley 631-447-0615 daffy4 @optonline.net (no space) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Congrats- what a great update! Meyer > > Dawn's updates really are so amazing to follow because when she first told her neurologist about it -he barely listened to her after approving it -just wrote it down on her children's files. And here it is a year later and both of her children have made so much progress in so many areas and now this same neurologist is asking for more information about NV as he's very impressed. And finally what appears to be an answer through food- so perhaps expanding the limited choices of drugs or surgery..some chocolate or vanilla NV, which is just food!! (for those that want to check ingredients http://pursuitofresearch.org/products/nutriiveda/nutriiveda-ingredients/ ) > > I'm highly encouraging Dawn to start an online support group for those with seizures to share with others. She's in NY and the fact that NV is having a 100 percent success rate so far with all the children on it -and not just little ones but older children- teens, including those that were medication resistant, is just remarkable. I know I keep saying this but clearly the answer has to lie in the essential nutrients -because it's not just what we eat but what we digest. Somehow NV must be getting one or more nutrients that were previously missing to the body where it's needed. If anyone reading this has a child prone to seizures -please contact Dawn Falley - all her info is below. Dawn's original updates about her 14 year old son and her 10 year old daughter Lily are here http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\ in-treatment-of-seizures > > Dawn I again am SO happy for you and your family!!! Hugs to both your kids!!! > > ===== > Quote Link to comment Share on other sites More sharing options...
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