Re: Re: NN and Nutriiveda

[Guest guest]

Hi ,

Matts doctor is not that one. He is part of Ped Neurologist at Hopkins. He did

not endorse NV but is aware that Matt is taking it. He is will or trying to

keep an open mind on the subject.

Matt is now getting close to 13 weeks seizure free!!! What a wonderful feeling

not to be so up tight... He almost seems like the kid I knew in first grade

before he started having seizures.

Alyssa

On May 5, 2010, at 12:26 PM, " kiddietalk " <kiddietalk@...> wrote:

No Tricia then yours would make 3. the other two are Alyssa from land (who

posts here frequently) who one of the five patients of Barbara who is

surging on nutriiveda, and somewhere in Texas from our Big Tent group who's

doctor didn't approve fish oils either!

Not sure how you and handled it -but Alyssa is hysterical in that she told

her doctor " I'm not asking you I'm telling you " Ayssa's the parent who's son

Matt has stopped seizures since being on nutriiveda and reduced his Depakote has

her update below..and below that is the update from the update from the

only other parent who's child'd ped also didn't approve. I'd like to ask these

doctors that don't approve whole food nutrition what their views are on off

label adult medications being used now...and electroshock therapy -because

Alyssa tell me if I'm wrong but Matt's doctor is from Kennedy Krieger that just

published that paper about electroshock and autism that I posted here! See me

-I'd find medical doctors who share my views which is to be more conservative

with medications whenever possible -and have enough knowledge about the human

body's need for essential nutrients to " approve " them. I only tell everyone to

ask their child's doctor -but

again if a banana came with a nutritional label -trust me -the typical moms of

2 year olds would be nervous to give their child an entire banana as they would

fear there is " too much potassium " but wouldn't think twice of serving that same

child something that comes in a fast food wrapper (and would not ask the doctor

if that is OK!)

Below is Alyssa and 's update (who both like you used nutriiveda in spite of

what their doctor said) Again I'd find a doctor to work with- and share this

info http://pursuitofresearch.org/NutriiVeda_Information.pdf and from

http://pursuitofresearch.org/science.html

@groups. com

Sent: Thu, April 22, 2010 1:50:12 AM

Subject: [childrensapraxiane t] Re: and NV

This is just brilliant information Alyssa! Congratulations to you and your child

and thank goodness for this group. I can't read the information here fast enough

about nutraveda and I'm keen on trying a tub. I noticed slight differences in

the ingredients of vanilla and chocolate http://www.pursuito fresearch.

org/ingredients. html Are there any differences in effectiveness? What flavor

does your son use?

Hi all,

I just had to share Alyssa's son, Matt's, story. Thanks for granting

permission Alyssa!

This week their family is on vacation in Las Vegas. His mom emailed me

this:

" and his dad went on this out of control roller coaster, it has

loops and spirals and goes up to 70 miles an hour. would not rest

until he got on that ride. Jerry (dad) and Matt were waiting in line and I

could not see them at this point. I hear over the loud speaker that if you

have epilepsy you should not ride the coaster. Now I am freaking out!! I

text Jerry and he said to relax, ya right... Anyway the ride stops and

yelled " again " and Jerry said " no " . My girl friend thinks this

should be an ad for NutriiVeda Still holding strong "

More info from Alyssa:

" Matt is currently taking 200mg of Carbartol twice a day. Plus he was

taking 250mg twice a day of Depakote, now he takes 125mg of Depakote in the

morning, everything else is the same. I only drop or add meds with his

Neurologist' s suggestion or okay. I don't think he thinks it is a great

idea but he was willing to work with me. "

By the way, Matt's last seizure was Feb 4th---BEFORE he started on

NutriiVeda!! So he used to go only at most ~3 wks between seizures but now

it has been a little over 8 weeks!

So..for anyone who is nervous to try or allow their child to try NutriiVeda,

RELAX. ESP if you already have your doc's or your child's doc's approval!

REMEMBER---- NutriiVeda is a FOOD. So being nervous to try it would be the

same as being nervous to try any other food---a new cereal, a granola bar,

etc, etc.

BTW--- I drink it, my husband drinks it, and both of my kids are drinking

it. My son loves it and my dtr has taken some convincing-- -we started with

'doctoring' her shake---ice cream!---AND I convinced my mom to start

drinking it too---we are 'doctoring' hers too.

Oh---