technologically confused - And an update

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Hello all,

I cannot figure out how to reply to a message from the digest. I click reply and

it keeps  bouncing back that I am not allowed to send messages through there and

to click on the link 'in the email.' huh??? someone help me out? lol.

 

On a totally different subject:

 

For now our working diagnosis (not officially diagnosed) with Jenna is verbal

apraxia / sensory integration problems / compulsive tendancies.

 

After 2 months of frusteration, confusion, increasingly pissing phone calls, and

finally conecting with one very helpful, nice, useful lady I have all the

paperwork in order for Jenna (2 years old) to have a full developmental/nuero

eval through the CHDD (center for human disease and disability) to see about a

diagnosis and/or suggestions for different treatment options. (and also to

hopefully encourage our insurance to continue coverage.)

 

They are planning to do the eval in June, it takes 3 weekly meetings of 3-4

hours. She will see a speach therapist, childrens physcologist, developmental

pediatrician, and nutrisionist (I am sure i spelled some of that wrong.) and on

the 3rd week I will meet with the main coordinator and they will go over the

results/ recommendations with me. I am very glad to finally have that organized.

They are supposed to call me on Mon/Tue with the specific appointment times.

 

Also, Jenna started OT this last week and I am very happy with that! They taught

me how to make 'playdough' with cinamon and applesauce so if she eats it (which

she seems to do) its totally ok, and I can add flour to make it less sticky

since she flips if he hands get anythign on them. Then as she gets more used to

it I make it slightly more sticky until she gets used to that, etc. It is

working so well. She actually had a tiny bit stick to her hand yesterday and she

didn't notice. After we put it away and got all cleaned up I was so excited

(becuase she was a bit dirty and still loved it) that i turned on music and we

danced.

 

Also, I started Jenna on a lowish dose of fish oil. I havent noticed any huge

improvement (but maybe the higher tolerance level is related, not sure), but

things have been very stressful at my house (My mom is in the hospital with

severe headaches, vision changes, high blood sugars, etc.  and my Dad is staying

with us to help with child care) so I am not surprised she has stagnated.

However, As of a few weeks ago we counted 15 spotaneous/reoccuring words and her

prompted words are ever increasing. Just typing it all out makes me smile!!!

 

I am so glad to have found you guys and am reading your stories, and if I ever

figure out how to reply will start joining in!

 

Have a great day,

Crys (Mom to Jenna, 26 months)