Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 I did it as per McCandles and Dana's view. I used mylecized (sp) vitamin a. He had 300,000 IU for 2 days and then we reduced it daily after that. I would recommended her book, " Children with Starving Brains. " She has a section that talks about the g alpha protein defect and how wheat, mmr and pertussis could all work together to break down the gut and the connections in the brain. I found it interesting considering my son has wheat issues, regressed after mmr, and had a seizure after dtap. Since the vitamin a protocol his appetite has increased incredibly. He has some oral motor/sensory issues (going for iron testing) but he literally tries to push food past his tongue to eat it. So I guess it isn't so much digestion as appetite that was improved. THat being said, he seems to be gaining a little weight (must get a scale!!) Kes > > > > May I ask you all what improved or brought about speech in your > kids? > > My 4 year old improved after epsom salts and gfcf diet but my 2 > year > > old still isn't speaking. We've tried everything that we've had > > success with for our oldest but sadly, nothing has worked. > > a little list > > enzymes > > gfcf (+corn free +soy free) > > acetyl L carntine > > DMG > > super nu thera > > cod liver oil > > parasite cleanses > > vitamin a protocol (definitely helped his digestion) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 oops. I missed this message. sorry dana. he gets about 150 - 200 mcg a dayt. Kes > > > As far as the MB12, I'd like to try it orally. I'm curious about > > > adding it in when they get such high doses of B vitamins from their > > > multivitamins already. Any thoughts? > > > > > > Other B vitamins don't matter. What matters is the dose of mB12. How > > much are you giving in their multi? > > > > At my house, oral mB12 required folic acid and carnitine for proper > > absorption, so also look at the doses of those. > > > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Hello, we just started the shots, too, without folic acid. I'm wondering the same thing! Looking forward to responses. Dana in NY > > > As far as the MB12, I'd like to try it orally. I'm curious about > > > adding it in when they get such high doses of B vitamins from their > > > multivitamins already. Any thoughts? > > > > > > Other B vitamins don't matter. What matters is the dose of mB12. How > > much are you giving in their multi? > > > > At my house, oral mB12 required folic acid and carnitine for proper > > absorption, so also look at the doses of those. > > > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Many parents an the Apraxia list report good results with ProEFA (a combination of Omega 3, 6 and 9 (borage oil.) /message/74056 I've never tried it because borage oil may exacerbate seizures, and also, my girl doesn't tolerate fish oils well. :-/ (I'm learning that could be a result of a high oxolate intake, which doesn't surprise me since all she wants to eat is spinach, carrots and tofu...never mind the stuff kids " normally " like..she could give a toss about cookies! :-) The best thing that happened for our daughter's speech was taking her off of gluten. She soared!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Wow!! That group is huge!! I considered joining(my son 8yrs is non verbal), but I think I would have an email nightmare!! Do you know of any smaller support groups that are much smaller? Jennie<>< wingedheels <alex@...> wrote: Many parents an the Apraxia list report good results with ProEFA (a combination of Omega 3, 6 and 9 (borage oil.) /message/74056 I've never tried it because borage oil may exacerbate seizures, and also, my girl doesn't tolerate fish oils well. :-/ (I'm learning that could be a result of a high oxolate intake, which doesn't surprise me since all she wants to eat is spinach, carrots and tofu...never mind the stuff kids " normally " like..she could give a toss about cookies! :-) The best thing that happened for our daughter's speech was taking her off of gluten. She soared!! --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 2 yrs? Is there some verbal, even babble? I know that with boys specifically(dont know if your 2yr old is), it isnt unusual at that age not to be talking(in small sentences at least). Some boys dont start until around the age of 4 or so with sentences. So try not to worry to much. Although I understand your concerns, once my son past the typical 4 or so age, I got nervous. He is 8yrs now and just started baby babble again(regressed with each round of vacs)! His neuro told us there is a time slot of about 6-8yrs of age to have what would be considered a last chance of speech. With that said our son is now 8 and considered non verbal(some baby babble) and I feel there is still hope no matter what specialists say. I know there have been some with children even older than my son that have said they started talking. Maybe even some in this group! If there is, please let me know!! Inpsiration is great!! I hope you find what works for your little one! Thanks for the good report with your oldest, that gives hope!! Jennie<>< > > May I ask you all what improved or brought about speech in your kids? > My 4 year old improved after epsom salts and gfcf diet but my 2 year > old still isn't speaking. We've tried everything that we've had > success with for our oldest but sadly, nothing has worked. > a little list > enzymes > gfcf (+corn free +soy free) > acetyl L carntine > DMG > super nu thera > cod liver oil > parasite cleanses > vitamin a protocol (definitely helped his digestion) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 > Hi Dana, > I had a question for you about the folic acid. We just started our son > on the MB12 shots and I was wondering how would I know if the MB12 > needed the folic acid? Currently he does not get it. At my house, severely dry skin, lots of scripting, hyper, etc. Most kids seem to need 800-1600mcg folic per day. My son needed more than that, plus carnitine, for proper absorption of mB12. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2008 Report Share Posted October 2, 2008 Hi Misty, If your son speaks well now, he will continue to do so and may even show improvement. I had a progressive hearing loss that did not start until I was an adult. Before getting my implant, my speech was fine but beginning to deteriorate. As soon as I got the CI, people were telling me that my speech improved- that I was speaking more distinctly. I could hear all those consonants that I wasn't able to hear before. While everyone's experience with the CI is different insofar as how soon they can discriminate speech, I think we all hear at activation. In my case, I was able to understand speech immediately and with a clarity that I craved but could not achieve with hearing aids. The hardest part for me was that you are inundated with all of these environmental sounds that you have not heard before. It takes time for the brain to sort everything out. I'm sure he will do just fine. I would definitely not worry about losing speech and sounding deaf. Lynn Fairhope, AL Nucleus Freedom Surgery date 9/6/06 Activation date 9/27/06 speech Hello. My 13 year old son has a progressive hearing loss. We are almost to the implant point. He is totally afraid that he is going to lose his speech. He is afraid it is going to take too long to learn to hear with the implant and by the time he does he will sound totally deaf like his friends at school. I am not sure what to tell him. Thanks, Misty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2008 Report Share Posted October 2, 2008 Besides if push come to shove, one could also always opt for speech therapy. Dan > > Hi Misty, > If your son speaks well now, he will continue to do so and may even show > improvement. I had a progressive hearing loss that did not start until I was > an adult. Before getting my implant, my speech was fine but beginning to > deteriorate. As soon as I got the CI, people were telling me that my speech > improved- that I was speaking more distinctly. I could hear all those > consonants that I wasn't able to hear before. > > While everyone's experience with the CI is different insofar as how soon > they can discriminate speech, I think we all hear at activation. In my case, > I was able to understand speech immediately and with a clarity that I craved > but could not achieve with hearing aids. The hardest part for me was that > you are inundated with all of these environmental sounds that you have not > heard before. It takes time for the brain to sort everything out. > > I'm sure he will do just fine. I would definitely not worry about losing > speech and sounding deaf. > > Lynn > Fairhope, AL > > Nucleus Freedom > Surgery date 9/6/06 > Activation date 9/27/06 > > > speech > > Hello. My 13 year old son has a progressive hearing loss. We are almost to > the implant point. He is totally afraid that he is going to lose his speech. > He is afraid it is going to take too long to learn to hear with the implant > and by the time he does he will sound totally deaf like his friends at > school. I am not sure what to tell him. Thanks, Misty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2008 Report Share Posted October 2, 2008 Misty - I have some news for you! I was hard of hearing and took many hours of speech therapy as a kid. As I became deaf, I didn't care about my speech and yes I did sound like a deaf person. I'm told now after a couple of months of mappings etc, my speech was much more clear and volume lower! Because I was hearing myself. I'll tell you I had more hearing than I did when I went in. And my brain remembered how come things sounded. While my right ear is my worst ear and it's taken 2 years to get where I am. I was able to talk clearly after surgery and improved over time. Part by practicing out loud and by the mappings I received on the processor. I think and wish I had done this earlier on, he could benefit by reading to himself out loud where he will be able to hear his voice and get used to it. His brain will associates what it remembers with what it's hearing. I've started spelling things the way I hear them, which leads to misspellings at time. I'm saying this because, the brain will remember. What's more evident now, I just went bilateral, and the second day after activation (3 weeks ago) I was able to read along and recognize some words and basically up to par with my right ear. Now we all must keep in mind that our hearing journeys are different, just as like the drastic extremes between my left and right ears. There is hope, and I believe since I am onlt able to distinguish 8% of speech from my right ear over the 2 years, I was able to hear my voice and not sound like a deaf person. I think his brain will adapt to what it remembers and what it hears. As we say around here High Hopes, but low expectations. I wish your son the best of luck! ~ Kitty S. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 One of my students, age 16, was implanted in June. He was totally miserable for a few months. It DOES take time, but your son will still be able to wear his hearing aid in the other ear and that helps a lot. My student is doing very well. At that age it's very difficult to be patient. Please reassure him that it won't take THAT long, especially if he practices auditorily. Wishing him the best. Jackie ) **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 After getting bilateral CIs, I found it exceeded my expectations - but everyone is different. When some of my old friends who I had not seen in a while told me my speech was better, I wondered what I sounded like before CIs! I second Kitty S's comments. My speech has improved. I can hear the " s " sound now when before I could not. I was trained to say " s " but now I can hear it. That is one example. Good luck and see you back on the list. Neely, Dallas Texas > > Hi Misty, > If your son speaks well now, he will continue to do so and may even show > improvement. I had a progressive hearing loss that did not start until I was > an adult. Before getting my implant, my speech was fine but beginning to > deteriorate. As soon as I got the CI, people were telling me that my speech > improved- that I was speaking more distinctly. I could hear all those > consonants that I wasn't able to hear before. > > While everyone's experience with the CI is different insofar as how soon > they can discriminate speech, I think we all hear at activation. In my case, > I was able to understand speech immediately and with a clarity that I craved > but could not achieve with hearing aids. The hardest part for me was that > you are inundated with all of these environmental sounds that you have not > heard before. It takes time for the brain to sort everything out. > > I'm sure he will do just fine. I would definitely not worry about losing > speech and sounding deaf. > > Lynn > Fairhope, AL > > Nucleus Freedom > Surgery date 9/6/06 > Activation date 9/27/06 > > > speech > > Hello. My 13 year old son has a progressive hearing loss. We are almost to > the implant point. He is totally afraid that he is going to lose his speech. > He is afraid it is going to take too long to learn to hear with the implant > and by the time he does he will sound totally deaf like his friends at > school. I am not sure what to tell him. Thanks, Misty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 Mr. Neely, I was wondering where you had your CI surgery. I am going to Dallas to get my done with Dr s with the Dallas Otolaryngology Associates. I asked 4 different audiologist who they recommended and got 4 different answers. I didn't know who to go to! Debra speech > > Hello. My 13 year old son has a progressive hearing loss. We are almost to > the implant point. He is totally afraid that he is going to lose his speech. > He is afraid it is going to take too long to learn to hear with the implant > and by the time he does he will sound totally deaf like his friends at > school. I am not sure what to tell him. Thanks, Misty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 my son has speech issues but has always had spoken language even though he is also hearing impaired. he has been dx. w/ apraxia at one point and a phonological delay at another. the thing that is most important is finding a good ST to 'try' and pinpoint if there is an overlying speech issue 'in addition' to the autism. sometimes this is not found out until a child is much older - just can't be done- for example i know an 8 yo boyy and an 18 yo girl both just dx w/ aphasia and they are doing protocoals successfully for them with that dx in addition to their autism therapy (RDI for them.) your son might be a tad young to pinpoint that though... i will say once we realized that had a phonological delay and worked on it properly we saw some nice gains..but it also had to have the right timing. we do ST on and off because...well... one can NOT stand to do that weekly forever;) LOL Amy Homeschool and Life Blog Art, Music and Nature Blog Healthy Home Blog ________________________________ From: Bussey <seanandkaty@...> Sent: Tuesday, January 13, 2009 12:38:29 PM Subject: speech What interventions work best for developing speech? My son is beginning to speak and I want to help him emerge in this area. He gets speech therapy and is in an autism unit at school. He uses pictures and a computerized aug com device at school, but not at home. He uses signs, gestures and a few words at home. Are there specific supplements or techniques we can use to pull out those words? He is gfcfsf and has been for several years, but we are going to try enzymes along with the diet soon and then maybe challenge the diet. He is taking daily vitamins from Dr. Sears and Coromega orange flavored omega 3 supplements. He also takes 1.5-3 mg of melatonin each night which has helped his sleep issues(they developed 6 months ago after always being a terrific sleeper). He has some giggling episodes also and some hyperactivity and his stimming is running back and forth and touching his privates like he has to pee. He has trouble engaging with othersand would much rather stick to his obsessions. We are on a tight budget so giving up the diet for enzymes might make it possible to try other supplements and treatments. -Undiagnosed Asperger's Syndrome Stay at home mom to 3, Wife to -6-6-02- Autism Spectrum, the light of my life Katy-11-19-03- undiagnosed genetic syndrome that includes cleft palate-Pierre Robin Sequence, scoliosis, heart defects, short stature, low muscle tone, developmental delay, oral defensiveness, g tube fed part time-working on oral feeding, slightly dysmorphic features, and my joy J.D-no issues except he is totally in love with mommy, cutest baby in the world visit my blog http://busiestmommy inamerica. blogspot. com " If you think my hands are full, you should see my heart! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 > What interventions work best for developing speech? For my son, anti-fungals, anti-virals, and B1/B12/TMG/folic acid/carnitine. >>He has some giggling episodes also and some hyperactivity and his stimming is running back and forth and touching his privates like he has to pee. Increase the yeast protocol. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 For my daughter it has been the following nutritional and speech therapies: Omega-Cure omega 3 oil. Absolute speech improvement (asking for things, attempting sentences after almost no language for 2 years) after beginning this supplement. www.omega-cure.com DMG. Again another leap in speech. Sentences, eye contact during, more manding. Love and learning language video and book program. Interest in language and communicating with others, pronunciation improvement and the ability to read. www.loveandlearning.com You will be able to see how the program works (it's dirt simple) and get all the details you want before you buy. Verbal Mapping program developed by Dr. Mark Sundaberg. This the program being used in her classroom. We just started it this year and I am seeing great improvement in use of language, interest in communicating, ability to communicate through difficult moments, verb use, etc. It is new program and just published. Our district and several others in the area are Mark's study groups. Hope something helps or is of interest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Is bilingualism responsible of delays on speech in some children Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 No, if a child is delayed in one lang; he/she will be delayed in all Warmest wishes, Barbara A , M.S., CCC-SLP,Executive Director, Help Me Speak, LLC 410-442-9791 www.helpmespeak.com [ ] Speech Is bilingualism responsible of delays on speech in some children Quote Link to comment Share on other sites More sharing options...
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