Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 I thought the same thing about how it should be a very rare thing that we would ever meet anyone in our circles with this diagnosis. I thought I read that there are only around 20,000 kids even diagnosed with systemic jra. Do you think there is any kind of registry that they keep regarding the demographics, region etc...on kids with this disease? -- In , " WILLIAM PRICE " <bc.price@c...> wrote: > , I can't answer your question, but as rare as systemic jra is, we > shouldn't know anyone else with it. We used to live in New Orleans and my > husband worked at a hospital in a suburb there. After n was diagnosed > we found out that the nursing director's daughter was diagnosed with > systemic jra too. Then we found out that the janitor's granddaughter was > diagnosed with systemic. All of the people worked at this small hospital. > What are the chances of that? I have always wondered. (n, 15, > sytemic) > Good Morning > > > > > > > > Good Morning Everyone, > > > > I was just starting to think that Aundrea was getting over this flare > > and then last night her right knee started to really bother her. It > > seems swollen and warm to touch. I wrapped it with an ace bandage and > > she limped off to school. > > > > After we finally get to school I met up with the school nurse. She > > started to tell me about this 17 year old girl that lives 4 or 5 > > houses down with me and is likely to be diagnosed this week with JRA > > probably systemic. (They think she probably had it at age 10 and then > > went into remission for awhile) And get this. Another teenage girl > > that lives a few houses on down the same road was also diagnosed with > > Jra several years ago. > > > > Do you think this is merely conincidental? It seems so strange to me > > that 3 girls on the same street all have jra. Our town is very small > > with only 4,000 people and we also have a very high percentage of MS > > patients. Way above the national norm. > > > > My husband use to work at a factor in town (General Electric) and he > > said that many years ago they just dumped the chemicals out the back > > door. He said that was why they would never sell the property because > > it would open it up for investigation. (Do you think there could be > > any connection to this. I was unsure if there had been any studies > > done regarding the environment and its influences on Jra. > > > > Just wondering what your opinion would be of this. > > > > Hope you guys had a good weekend. > > > > (Aundrea age 9 systemic) > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 I don't think so, though I have always thought it would be interesting to see the demographics. I believe it is called " clusters " , and I think there was once legislation to look at some childhood diseases and the clustering of them. It was awhile ago. (n, 15, systemic) Good Morning > > > > > > > > > > > > > Good Morning Everyone, > > > > > > I was just starting to think that Aundrea was getting over this > flare > > > and then last night her right knee started to really bother her. > It > > > seems swollen and warm to touch. I wrapped it with an ace bandage > and > > > she limped off to school. > > > > > > After we finally get to school I met up with the school nurse. > She > > > started to tell me about this 17 year old girl that lives 4 or 5 > > > houses down with me and is likely to be diagnosed this week with > JRA > > > probably systemic. (They think she probably had it at age 10 and > then > > > went into remission for awhile) And get this. Another teenage > girl > > > that lives a few houses on down the same road was also diagnosed > with > > > Jra several years ago. > > > > > > Do you think this is merely conincidental? It seems so strange to > me > > > that 3 girls on the same street all have jra. Our town is very > small > > > with only 4,000 people and we also have a very high percentage of > MS > > > patients. Way above the national norm. > > > > > > My husband use to work at a factor in town (General Electric) and > he > > > said that many years ago they just dumped the chemicals out the > back > > > door. He said that was why they would never sell the property > because > > > it would open it up for investigation. (Do you think there could > be > > > any connection to this. I was unsure if there had been any > studies > > > done regarding the environment and its influences on Jra. > > > > > > Just wondering what your opinion would be of this. > > > > > > Hope you guys had a good weekend. > > > > > > (Aundrea age 9 systemic) > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 I guess I will mention it to Aundrea's rheumatologist at our next visit. I really think it has to be highly unlikely to have two kids with systemic jra and the other with poly jra all of the same block. Maybe someone else will chime in on how we can find out more about identifying clusters or demographics of childhood disease. I meant to ask you how is n doing with the cold. Are you still holding off on the prednisone? Aundrea's knee was really warm to the touch and swollen which is quite unusual for her. I need to stop at the pharmacy and buy one of those heat wraps. I should definately take out stock in wraps. I have spent a fortune on them! :-) (Aundrea age9 systemic)- -- In , " WILLIAM PRICE " <bc.price@c...> wrote: > I don't think so, though I have always thought it would be interesting to > see the demographics. I believe it is called " clusters " , and I think there > was once legislation to look at some childhood diseases and the clustering > of them. It was awhile ago. (n, 15, systemic) > Good Morning > > > > > > > > > > > > > > > > > > Good Morning Everyone, > > > > > > > > I was just starting to think that Aundrea was getting over this > > flare > > > > and then last night her right knee started to really bother her. > > It > > > > seems swollen and warm to touch. I wrapped it with an ace bandage > > and > > > > she limped off to school. > > > > > > > > After we finally get to school I met up with the school nurse. > > She > > > > started to tell me about this 17 year old girl that lives 4 or 5 > > > > houses down with me and is likely to be diagnosed this week with > > JRA > > > > probably systemic. (They think she probably had it at age 10 and > > then > > > > went into remission for awhile) And get this. Another teenage > > girl > > > > that lives a few houses on down the same road was also diagnosed > > with > > > > Jra several years ago. > > > > > > > > Do you think this is merely conincidental? It seems so strange to > > me > > > > that 3 girls on the same street all have jra. Our town is very > > small > > > > with only 4,000 people and we also have a very high percentage of > > MS > > > > patients. Way above the national norm. > > > > > > > > My husband use to work at a factor in town (General Electric) and > > he > > > > said that many years ago they just dumped the chemicals out the > > back > > > > door. He said that was why they would never sell the property > > because > > > > it would open it up for investigation. (Do you think there could > > be > > > > any connection to this. I was unsure if there had been any > > studies > > > > done regarding the environment and its influences on Jra. > > > > > > > > Just wondering what your opinion would be of this. > > > > > > > > Hope you guys had a good weekend. > > > > > > > > (Aundrea age 9 systemic) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 n's cold seems to be all gone. It sure was a bad one. She got her enbrel again today. She is still somewhat fatigued, but every day is getting better. The rash is improving too. She does have swelling in her knee and her foot hurts her. We go back to the rheumy in six weeks, so we will have to see what he adds, and if she gets her knee and foot injected. Her wrists were acting up with the cold, but they are back to normal now. We may have dodged the bullet on steroids. I hope so. (n, 15, systemic) Good Morning > > > > > > > > > > > > > > > > > > > > > > > Good Morning Everyone, > > > > > > > > > > I was just starting to think that Aundrea was getting over > this > > > flare > > > > > and then last night her right knee started to really bother > her. > > > It > > > > > seems swollen and warm to touch. I wrapped it with an ace > bandage > > > and > > > > > she limped off to school. > > > > > > > > > > After we finally get to school I met up with the school nurse. > > > She > > > > > started to tell me about this 17 year old girl that lives 4 or > 5 > > > > > houses down with me and is likely to be diagnosed this week > with > > > JRA > > > > > probably systemic. (They think she probably had it at age 10 > and > > > then > > > > > went into remission for awhile) And get this. Another > teenage > > > girl > > > > > that lives a few houses on down the same road was also > diagnosed > > > with > > > > > Jra several years ago. > > > > > > > > > > Do you think this is merely conincidental? It seems so > strange to > > > me > > > > > that 3 girls on the same street all have jra. Our town is > very > > > small > > > > > with only 4,000 people and we also have a very high percentage > of > > > MS > > > > > patients. Way above the national norm. > > > > > > > > > > My husband use to work at a factor in town (General Electric) > and > > > he > > > > > said that many years ago they just dumped the chemicals out > the > > > back > > > > > door. He said that was why they would never sell the property > > > because > > > > > it would open it up for investigation. (Do you think there > could > > > be > > > > > any connection to this. I was unsure if there had been any > > > studies > > > > > done regarding the environment and its influences on Jra. > > > > > > > > > > Just wondering what your opinion would be of this. > > > > > > > > > > Hope you guys had a good weekend. > > > > > > > > > > (Aundrea age 9 systemic) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 Ok now, If we're talking coincidences, here in Boise, ID (small city), just in our small support group of 11 families alone, there are 4 systemic boys all aged 8 - 10. We discussed environmental factors, and 2 of us have relocated to here after we were symptomatic, so it really is just such a strange coincidence. It blows away the statistics of the disease, but that's the way it goes. Stacia and Hunter 8 systemic, iritis > , I can't answer your question, but as rare as systemic jra is, we > shouldn't know anyone else with it. We used to live in New Orleans and my > husband worked at a hospital in a suburb there. After n was diagnosed > we found out that the nursing director's daughter was diagnosed with > systemic jra too. Then we found out that the janitor's granddaughter was > diagnosed with systemic. All of the people worked at this small hospital. > What are the chances of that? I have always wondered. (n, 15, > sytemic) > Good Morning > > > > > > > > Good Morning Everyone, > > > > I was just starting to think that Aundrea was getting over this flare > > and then last night her right knee started to really bother her. It > > seems swollen and warm to touch. I wrapped it with an ace bandage and > > she limped off to school. > > > > After we finally get to school I met up with the school nurse. She > > started to tell me about this 17 year old girl that lives 4 or 5 > > houses down with me and is likely to be diagnosed this week with JRA > > probably systemic. (They think she probably had it at age 10 and then > > went into remission for awhile) And get this. Another teenage girl > > that lives a few houses on down the same road was also diagnosed with > > Jra several years ago. > > > > Do you think this is merely conincidental? It seems so strange to me > > that 3 girls on the same street all have jra. Our town is very small > > with only 4,000 people and we also have a very high percentage of MS > > patients. Way above the national norm. > > > > My husband use to work at a factor in town (General Electric) and he > > said that many years ago they just dumped the chemicals out the back > > door. He said that was why they would never sell the property because > > it would open it up for investigation. (Do you think there could be > > any connection to this. I was unsure if there had been any studies > > done regarding the environment and its influences on Jra. > > > > Just wondering what your opinion would be of this. > > > > Hope you guys had a good weekend. > > > > (Aundrea age 9 systemic) > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 My swelling is beginning to come down too. I had a checkup with my OS today and he is very pleased with my progress so far. H <ginjin_jh@...> wrote: Hi everyone, I had to share. Two and a half weeks after surgery - and this morning I woke up to my ankle being normal size. I was so excited I started to dance. This is the first time since surgery, the swelling has dropped. Of course after my morning walk and exercises, the swelling is back but that is ok with me. So to everyone who said, just be patient, thanks. It really did go away!! Have a great day!! JennH Start your day with - make it your home page God bless you! Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 So to everyone who said, just be patient, thanks. It really did go away!! >>> Giggling.... Jenn see worth the wait and special enough for a dance all 2 itself. It'll keep getting better soon as your body figures out the worst is over and recovery is the only thing left for it to do. Congrats on the dance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Good morning Every Sunset gives us one day Less to Live but Every Sunrise gives us one more day to Hope So Hope for the Best LoveRajeev Kumar Deputy Manager Hindustan Motors Indore +919329734131 --------------------------- Avtec Ltd, Pithampur, India Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Thanks and Good morning to you too. With Best Regards, Yatendra Jain Officer-HR Knorr - Bremse India (P) Ltd. 14/6,Delhi Mathura Road, Faridabad. Ph. No.+91-129-4191422 Mobile No.-09891579815 From: [mailto: ] On Behalf Of Rajeev Kumar.Sent: 17/02/2007 10:56 PM Subject: Fw: good morning Good morning Every Sunset gives us one day Less to Live but Every Sunrise gives us one more day to Hope So Hope for the Best LoveRajeev Kumar Deputy Manager Hindustan Motors Indore +919329734131 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Thanks For the wonderful message,but i dont remember to make any account in this website? Any way ,all messagens are pretty thanks 2007/2/19, Yatendra.Jain@... <Yatendra.Jain@...>: Thanks and Good morning to you too. With Best Regards, Yatendra Jain Officer-HR Knorr - Bremse India (P) Ltd. 14/6,Delhi Mathura Road, Faridabad. Ph. No.+91-129-4191422 Mobile No.-09891579815 From: [mailto: ] On Behalf Of Rajeev Kumar.Sent: 17/02/2007 10:56 PM Subject: Fw: good morning Good morning Every Sunset gives us one day Less to Live but Every Sunrise gives us one more day to Hope So Hope for the Best LoveRajeev Kumar Deputy Manager Hindustan Motors Indore +919329734131 -- Pathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Thanks .. I atoo don't know how I came into this group...but its Ok.See we all corresponding from unknown destinations. Bye Rajeev Re: Fw: good morning Thanks For the wonderful message,but i dont remember to make any account in this website? Any way ,all messagens are pretty thanks 2007/2/19, Yatendra.Jainknorr-bremse <Yatendra.Jainknorr-bremse>: Thanks and Good morning to you too. With Best Regards, Yatendra Jain Officer-HR Knorr - Bremse India (P) Ltd. 14/6,Delhi Mathura Road, Faridabad. Ph. No.+91-129-4191422 Mobile No.-09891579815 From: [mailto: ] On Behalf Of Rajeev Kumar.Sent: 17/02/2007 10:56 PM Subject: Fw: good morning Good morning Every Sunset gives us one day Less to Live but Every Sunrise gives us one more day to Hope So Hope for the Best LoveRajeev Kumar Deputy Manager Hindustan Motors Indore +919329734131 -- Pathy --------------------------- Avtec Ltd, Pithampur, India Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Hi Everybody, I too cannot remember when I ahd registerd for this PTM. But anyway its nice, Rajeev how are you.. Bye, Lalit Malhotra Alves Barboza <patbarboza@...> wrote: Thanks For the wonderful message,but i dont remember to make any account in this website? Any way ,all messagens are pretty thanks 2007/2/19, Yatendra.Jainknorr-bremse <Yatendra.Jainknorr-bremse>: Thanks and Good morning to you too. With Best Regards, Yatendra Jain Officer-HR Knorr - Bremse India (P) Ltd. 14/6,Delhi Mathura Road, Faridabad. Ph. No.+91-129-4191422 Mobile No.-09891579815 From: [mailto: ] On Behalf Of Rajeev Kumar.Sent: 17/02/2007 10:56 PM Subject: Fw: good morning Good morning Every Sunset gives us one day Less to Live but Every Sunrise gives us one more day to Hope So Hope for the Best LoveRajeev Kumar Deputy Manager Hindustan Motors Indore +919329734131 -- Pathy Get your own web address. Have a HUGE year through Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Even I don't know who has booked me in PTM group. It's OK. Please find herewith a good attachment for all. Spend your time in working other wise your boss is watching you. Bye, Sunil From: [mailto: ] On Behalf Of Rajeev Kumar.Sent: Monday, February 19, 2007 6:08 PM Subject: Re: Fw: good morning Thanks .. I atoo don't know how I came into this group...but its Ok.See we all corresponding from unknown destinations. Bye Rajeev Re: Fw: good morning Thanks For the wonderful message,but i dont remember to make any account in this website? Any way ,all messagens are pretty thanks 2007/2/19, Yatendra.Jainknorr-bremse <Yatendra.Jainknorr-bremse>: Thanks and Good morning to you too. With Best Regards, Yatendra Jain Officer-HR Knorr - Bremse India (P) Ltd. 14/6,Delhi Mathura Road, Faridabad. Ph. No.+91-129-4191422 Mobile No.-09891579815 From: [mailto: ] On Behalf Of Rajeev Kumar.Sent: 17/02/2007 10:56 PM Subject: Fw: good morning Good morning Every Sunset gives us one day Less to Live but Every Sunrise gives us one more day to Hope So Hope for the Best LoveRajeev Kumar Deputy Manager Hindustan Motors Indore +919329734131 -- Pathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2007 Report Share Posted February 20, 2007 It's really Goooooood. Best regards, Rajendra Singh Re: Fw: good morning Thanks For the wonderful message,but i dont remember to make any account in this website? Any way ,all messagens are pretty thanks 2007/2/19, Yatendra.Jainknorr-bremse <Yatendra.Jainknorr-bremse>: Thanks and Good morning to you too. With Best Regards, Yatendra Jain Officer-HR Knorr - Bremse India (P) Ltd. 14/6,Delhi Mathura Road, Faridabad. Ph. No.+91-129-4191422 Mobile No.-09891579815 From: [mailto: ] On Behalf Of Rajeev Kumar.Sent: 17/02/2007 10:56 PM Subject: Fw: good morning Good morning Every Sunset gives us one day Less to Live but Every Sunrise gives us one more day to Hope So Hope for the Best LoveRajeev Kumar Deputy Manager Hindustan Motors Indore +919329734131 -- Pathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 I dont have any advice..I was diagnosed after the birth of my last child...but wanted to say Congrats!!! that is awesome news!!!pamOn 7/10/07, Mike & Prudy <mparmijo@...> wrote: Hi- My name is Prudy Iv had hypothyroidism for 7yrs well since I was DXed.. As you all know what Hypothyroidism does to us really suxs I went through this crazy long strethch of everything going wrong with my system. You name it!!! from Bowels, panic attacks, high blood pressure, weight gain, always tierd, and Menstral was all outta wack and this was with my meds. Then my docs tell me I had no estrogen, or pro~estergen. Sorry about spelling. And that I wouldnever have another baby- well UMMMM I was only 27.. Mood swings was in full effect and they told me I was going through Pre-menopause/ WHAT? (tho it did exspain everything to a tee) And we all know how much after we go through- and what we go through that its nice to have aname- not that we want something wrong but because we know there is. Right.. So last yr after having thyroid failure, major panic attacks, and I also had to have a DNC cause nothing was working. WELP, Im pregnant!!!! Im 17 wks well as of tomorrow, Im counting the days. My husband and I are so excited.. This is a miracle baby!! Iv been reading~ and keeping an EYE on my thyroids since im Happiley in my 2nd trimester, Im doing really awsome. The docs raised my meds cause my TSH- T3` T4` was high. I will do everything I can. I wanted to know if there was some one like me, who has gone through like me>? God bless Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2007 Report Share Posted July 16, 2007 Hi Pam, Thank you for writting.. its nice to know that Im not allong.. Tho I wouldnt wish thyroid problems on anyone.. We are very exited and happy about the baby.. We are blessed. Prudy Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2007 Report Share Posted July 16, 2007 I haven't, but OMG God bless you and your husband. What a blessing! I've been hypothyroid since 1996, and I know what you've gone through. I wish you the best with your pregnancy and delivery. Keep us informed! I would like to know if anyone has lost an maintained their ideal weight or at least close to it)...and if so, how'd you do it? Pam > > > > Hi- My name is Prudy Iv had hypothyroidism for 7yrs well since I was > > DXed.. As you all know what Hypothyroidism does to us really suxs > > I went through this crazy long strethch of everything going wrong > > with my system. You name it!!! from Bowels, panic attacks, high blood > > pressure, weight gain, always tierd, and Menstral was all outta wack > > and this was with my meds. Then my docs tell me I had no estrogen, or > > pro~estergen. Sorry about spelling. And that I wouldnever have > > another baby- well UMMMM I was only 27.. Mood swings was in full > > effect and they told me I was going through Pre-menopause/ WHAT? > > (tho it did exspain everything to a tee) And we all know how much > > after we go through- and what we go through that its nice to have > > aname- not that we want something wrong but because we know there is. > > Right.. > > So last yr after having thyroid failure, major panic attacks, and I > > also had to have a DNC cause nothing was working. > > WELP, Im pregnant!!!! Im 17 wks well as of tomorrow, Im counting the > > days. My husband and I are so excited.. This is a miracle baby!! > > Iv been reading~ and keeping an EYE on my thyroids since im Happiley > > in my 2nd trimester, Im doing really awsome. The docs raised my meds > > cause my TSH- T3` T4` was high. I will do everything I can. I wanted > > to know if there was some one like me, who has gone through like me>? > > God bless > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 I'm in a similar boat as your husband. I had mono TWICE in the eighties and early 90's. Also diagnosed with high blood pressure at the age of 19 when I was a skinny 120 pounds in the 80's too. (Ends up I just needed to supplement with magnesium to heal myself). I have since been diagnosed with Epstein Barr/Chronic Fatigue by a REGULAR doctor, because of the mono. My EB antibodies are off the chart.. From what Bee says, Leaky Gut is a myth, and I believe her logic. Do a search... trust Bee instead of the Naturopath on this one, and have your husband follow this diet/supplements. That's what I'M gonna do!!! Doug > > Hi Everyone, > > I joined the group back in August and have been reading and learning from > all your emails. I've found some more pieces to fit in the puzzle of my > husband's health challenges. He was originally diagnosed with Mononucleosis > and high blood pressure seven years ago. He did everything they suggested > for a year and was in no better health. At that point I began searching for > natural, healthy ways to help rebuild health. We've been on a supplement > program ever since and have been cleaning up our diet as we go along. > > This past year he was diagnosed with Adrenal Fatigue and Leaky Gut > syndrome. More recently the Naturopath suspected yeast as part of his > problem. So this has been a help in finding this group and learning from you > all. Thank you so much! > > -Sharon > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 I had mono beginning of this year. Didn't know what it was at the time but later my EB antibodies were 2790 and the normal range given was 0-90. No wonder I've been feeling crappy. a >I'm in a similar boat as your husband. I had mono TWICE in the eighties and early 90's. Also diagnosed with high blood pressure at the age of 19 when I was a skinny 120 pounds in the 80's too. (Ends up I just needed to supplement with magnesium to heal myself). I have since been diagnosed with Epstein Barr/Chronic Fatigue by a REGULAR doctor, because of the mono. My EB antibodies are off the chart.. From what Bee says, Leaky Gut is a myth, and I believe her logic. Do a search... trust Bee instead of the Naturopath on this one, and have your husband follow this diet/supplements. That's what I'M gonna do!!! Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Dear all Its fantastic tnu On Tue, 12 May 2009 11:39:08 +0530 wrote > v:* {}v:* {}Good Morning! Life means missing expected things and facing unexpected  things. When you are right, no one remembers, but when you are wrong, no one forgets...This is life. Keep the lamp of friendship burning  with oil of love bcoz sun rises in east and sets in west but friendship rises in heart and sets after death.  Do remember ur friends... Aseem KaisthaIt's your attitude and not your aptitude that determines your altitude. > Cricket on your mind? Visit the ultimate cricket website. Enter now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Hi SFM, You can expect to pain free in some cases. I am 98% pain free. BUT, None of the non-steroidal anti-inflammatory drug (NSAIDs) achieved this. I take MTX a disease-modifying anti-rheumatic drug (DMARD) and that is what allows me to be pain free. You are young and possibly considering children, so MTX might not be appropriate for you right now. FYI, My MTX dose is in tablet form. As far as diet, I haven't a clue. I gained about 20lbs during the year or so that I was immobile and undiagnosed. I have managed to not gain any more, but losing those 20lbs seems to be momumental even though now I have full mobility and am much more active than prior to me being affected. Stay Well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Absolutely. I now say arthritis and nerve pain turns folks into human barometers. BTW I am from KS too. So just know when you are in pain. There are a whole lot of KS folks feeling pain too. I worked in a clinic for several years. The day before a tornado in the area and pain related issues increased dramatically. From: kansas77@... <kansas77@...> Subject: Good morning spinal problems Date: Thursday, June 18, 2009, 8:41 AM Hi all, Yesterday I took bus to see the doctor she told me I messed up my sciartic nerve I wonder,to point I cant move or carry heavy things much more with out hurting my back.Next week start on thearphy.She prescibe me new med called least is new to me calledmethyiprednis olone like4 mg one day for 21 days.This morning I can some what sit at computer.Im tire of pain his morning my left neck woke ealry with between migraine and stress headache.I had question does any one in group hurt more when on weather conditon there low pressure or high humidty?Some days get migraine in low pressure.Glad no classes this week that helps. I pray on Monday when social security call my husband that this time he will get disabilty since he has neuorpathy in legs nerve damage.Not sure how much more this year he can work only work can do is mowing after today might be miserable for few days after wards/He diabetictype two second time fighting on his disabilty doctor thinks he should have it to.Anyone in groups has his kind of pain either.i got some nerve pain in my left arm and degrenrated disc in. Anyone go through sweet cravings lot.?Im not diabetic but do have low blood pressure always have since my open heart sugery as kid was born with whole in my heart.Anyone want pisky gly lol buzzing around driving me nuts lol.Going be hot humid in ks summer is here for sure. Need get breakfeast take my medicine and fishoil.anything help on dry scalp why I started taking fish oil. Good day all.I aslo had stop working due health problems.Hard eough dealing with online college as it is. Sue.,ks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Hi I also work in KS but live in Mo so I can relate to the humidity issues.. UGH>. HOT and HUMID. spinal problems From: kansas77@... Date: Thu, 18 Jun 2009 13:41:08 +0000 Subject: Good morning Hi all, Yesterday I took bus to see the doctor she told me I messed up my sciartic nerve I wonder,to point I cant move or carry heavy things much more with out hurting my back.Next week start on thearphy.She prescibe me new med called least is new to me calledmethyiprednisolone like4 mg one day for 21 days.This morning I can some what sit at computer.Im tire of pain his morning my left neck woke ealry with between migraine and stress headache.I had question does any one in group hurt more when on weather conditon there low pressure or high humidty?Some days get migraine in low pressure.Glad no classes this week that helps. I pray on Monday when social security call my husband that this time he will get disabilty since he has neuorpathy in legs nerve damage.Not sure how much more this year he can work only work can do is mowing after today might be miserable for few days after wards/He diabetictype two second time fighting on his disabilty doctor thinks he should have it to.Anyone in groups has his kind of pain either.i got some nerve pain in my left arm and degrenrated disc in. Anyone go through sweet cravings lot.?Im not diabetic but do have low blood pressure always have since my open heart sugery as kid was born with whole in my heart.Anyone want pisky gly lol buzzing around driving me nuts lol.Going be hot humid in ks summer is here for sure. Need get breakfeast take my medicine and fishoil.anything help on dry scalp why I started taking fish oil. Good day all.I aslo had stop working due health problems.Hard eough dealing with online college as it is. Sue.,ks _________________________________________________________________ Microsoft brings you a new way to search the web. Try Bingâ„¢ now http://www.bing.com?form=MFEHPG & publ=WLHMTAG & crea=TEXT_MFEHPG_Core_tagline_try bing_1x1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Hey Sue, Today, I just received a letter from SocSec denying my disability claim. This is only the first time, but my neurosurgeon thought that I would get it. Along with my facet joint issues, I've have sciatica, DDD, osteoarthritis, spondylolysis, central and foraminal stenosis, and a few bulges up and down. I have not experienced any sweet cravings or pain as a result of weather. I'm not diabetic, but I do have high blood pressure. I really don't like sweets anymore. Sorry I can be of any assistance. I'm trying to understand this SocSec issue. After telling them that I have never been diagnosed with depression or mental conditions, nor do I take any meds for it, they sent me this denial letter. Now, I'm questioning having not answered in the affirmative. Even though I do have some depression, I have and will never go to a doc for it. I don't want to be on meds to mess with my head. In the letter, it presses the issue of performing substantial work, being 30 yrs, and having a college degree. It says that medical evidence shows limitations, but that no other conditions would significantly limit my ability to work.   This is ridiculous! Why should I need to meet more than the qualifying conditions with mental issues? Dave ________________________________ From: " kansas77@... " <kansas77@...> spinal problems Sent: Thursday, June 18, 2009 8:41:08 AM Subject: Good morning Hi all, Yesterday I took bus to see the doctor she told me I messed up my sciartic nerve I wonder,to point I cant move or carry heavy things much more with out hurting my back.Next week start on thearphy.She prescibe me new med called least is new to me calledmethyiprednis olone like4 mg one day for 21 days.This morning I can some what sit at computer.Im tire of pain his morning my left neck woke ealry with between migraine and stress headache.I had question does any one in group hurt more when on weather conditon there low pressure or high humidty?Some days get migraine in low pressure.Glad no classes this week that helps. I pray on Monday when social security call my husband that this time he will get disabilty since he has neuorpathy in legs nerve damage.Not sure how much more this year he can work only work can do is mowing after today might be miserable for few days after wards/He diabetictype two second time fighting on his disabilty doctor thinks he should have it to.Anyone in groups has his kind of pain either.i got some nerve pain in my left arm and degrenrated disc in. Anyone go through sweet cravings lot.?Im not diabetic but do have low blood pressure always have since my open heart sugery as kid was born with whole in my heart.Anyone want pisky gly lol buzzing around driving me nuts lol.Going be hot humid in ks summer is here for sure. Need get breakfeast take my medicine and fishoil.anything help on dry scalp why I started taking fish oil. Good day all.I aslo had stop working due health problems.Hard eough dealing with online college as it is. Sue.,ks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Dave SSD goes by severity....the fact that you have a college degree means that you can do work that is not physical...in other words you can use your brain to earn a living,...the younger you are the harder it is to get SSD....I was 37 when I was approved....have you had EMG testing.....the things you listed in and of itself DO NOT qualify for SSD UNLESS you are unable to ambulate....read the red and green book.  Debra RN in St. Louis ________________________________ From: D Chavez <chavezd@...> spinal problems Sent: Thursday, June 18, 2009 3:24:21 PM Subject: Re: Good morning Hey Sue, Today, I just received a letter from SocSec denying my disability claim. This is only the first time, but my neurosurgeon thought that I would get it. Along with my facet joint issues, I've have sciatica, DDD, osteoarthritis, spondylolysis, central and foraminal stenosis, and a few bulges up and down. I have not experienced any sweet cravings or pain as a result of weather. I'm not diabetic, but I do have high blood pressure. I really don't like sweets anymore. Sorry I can be of any assistance. I'm trying to understand this SocSec issue. After telling them that I have never been diagnosed with depression or mental conditions, nor do I take any meds for it, they sent me this denial letter. Now, I'm questioning having not answered in the affirmative. Even though I do have some depression, I have and will never go to a doc for it. I don't want to be on meds to mess with my head. In the letter, it presses the issue of performing substantial work, being 30 yrs, and having a college degree. It says that medical evidence shows limitations, but that no other conditions would significantly limit my ability to work.   This is ridiculous! Why should I need to meet more than the qualifying conditions with mental issues? Dave ____________ _________ _________ __ From: " kansas77sbcglobal (DOT) net " <kansas77sbcglobal (DOT) net> spinedisorderssuppo rtgroup@gro ups.com Sent: Thursday, June 18, 2009 8:41:08 AM Subject: Good morning Hi all, Yesterday I took bus to see the doctor she told me I messed up my sciartic nerve I wonder,to point I cant move or carry heavy things much more with out hurting my back.Next week start on thearphy.She prescibe me new med called least is new to me calledmethyiprednis olone like4 mg one day for 21 days.This morning I can some what sit at computer.Im tire of pain his morning my left neck woke ealry with between migraine and stress headache.I had question does any one in group hurt more when on weather conditon there low pressure or high humidty?Some days get migraine in low pressure.Glad no classes this week that helps. I pray on Monday when social security call my husband that this time he will get disabilty since he has neuorpathy in legs nerve damage.Not sure how much more this year he can work only work can do is mowing after today might be miserable for few days after wards/He diabetictype two second time fighting on his disabilty doctor thinks he should have it to.Anyone in groups has his kind of pain either.i got some nerve pain in my left arm and degrenrated disc in. Anyone go through sweet cravings lot.?Im not diabetic but do have low blood pressure always have since my open heart sugery as kid was born with whole in my heart.Anyone want pisky gly lol buzzing around driving me nuts lol.Going be hot humid in ks summer is here for sure. Need get breakfeast take my medicine and fishoil.anything help on dry scalp why I started taking fish oil. Good day all.I aslo had stop working due health problems.Hard eough dealing with online college as it is. Sue.,ks Quote Link to comment Share on other sites More sharing options...
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