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Re: One Year Anniversary

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Joe wrote:

> All,

> Today marks my one year anniversary of being on the Walford Cron

> lifestyle (I do consider it a lifestyle now and not a diet). It has

.........(snipped)

Joe and everyone: On May 6, I will have my SECOND anniversary. I'm so

proud of myself and can tell all the newbies it gets easier and easier. As

Joe says, it's a way of life. Like Joe, I practise CRON in moderation. I

avg about 1400 cal a day; weigh about 114 (still losing but extremely

slowly) down from a high of 138 or so. But I now believe that actual weight

is not important as healthy low calories. Lost weight is just a side effect

of being a CRONIE.

I eat out (but small portions). For breakfast I usually have 3/4 cup of

Total cereal w/skim milk and maybe a couple of prunes or small amt of other

fruit. Lunch is usually a big salad (Leaf lettuce, tomato, red cabbage,

onion, red pepper, broccoli sprouts, and other veggies, a protein which can

be tofu, chicken, salmon and some salad dressing, usually my own concoction.

Dinner varies and I enjoy the variety, but invariably has lots of cooked

veggies and protein Examples would be poached salmon with veggies, omlettes

with lots of veggies or even a soy burger with trimmings.

Snacks are my home made no sugar cake (recipe in the archives) with ff

yogurt topping, bokchoy schmeared with a bit of nut butter, or sweet and

sour cabbage soup (recipe in archives). I also make a fruit salad for an

after dinner snack for hubbie and me virtually every night. We top it with

FF yogurt.

I do eat on occasion FF, sugar free, ice cream in extremely small

quantities topped with my home made hot fudge sauce (recipe discussed on the

list recently).

The only supplements I take are alphalipioc acid and fish oil. Unlike Joe,

I do eat Brewer's Yeast. I fold it into my cake recipe and into my

chocolate hot fudge sauce. I also enjoy a glass of red wine almost every

night.

I hope to have many more CRON anniversaries.

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  • 2 years later...

Jody,

My understanding of how Xolair works is that you will have to take

it forever.

Before I started taking Xolair I spoke with a rep from NovaFactor.

He told me that after the clinical trials among some patients there

did seem to be some residual effect that lasted for about a year,

but that it did eventually wear off.

I also asked him if, based on this residual effect, it would be

possible to take a lower dose and still get the same benefit. This

was also part of my rationale for possibly splitting up my shots

instead of taking both at once. He told me that this possibility

had not been studied, partly because nobody had thought of it but

mostly because the clinical study was less than two years.

Greg

> Congrats Greg! Isn't it wonderful to feel better and get off some

of that other medication?!

>

> I have a general question. Is Xolair something that needs to be

taken 'forever' like a maintenance medication......or at some point

does it 'fix' the allergic reactions? Does anyone know? Has their

been any studies on this?

>

> I am happy with my Xolair shots, just wonder if I am in this for

the long haul.

>

> Thanks,

> Jody

>

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Greg,

Congrats on your anniversary! Good luck with the health insurance

battle.

Jody, my understanding is the same as Greg's. At least with the

current science we'll be taking Xolair indefinitely.

I do not recommend anyone trying to lower doses. I can't say I've

been absolutely miserable on the lower dose, but I'm definitely

feeling worse. Yesterday I got exposed to mold and I had to resort

to pred today.

Addy

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Congrats Greg :) My one year anniversary was sometime in the middle

of August. When I got my 2 injections today, I was reminded that I

was the first asthma patient in the state of Arkansas to receive

Xolair. Now, there are hundreds.

God bless, and happy breathing my friend

Doug

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