Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 Adriel Preger wrote: > Falling asleep? is this a common symptom? I keep passing out letter in the > afternoon. I know it's not my antihistamine becuase, I am so used to it. Hi Adriel, It seems like no one would ever see that the need for extra sleep is a part of the P & PA package, but since I've been reading on this list, it's far more common than the so-called experts realize. I've written about how I used to fall asleep while driving as long ago as back in the 70s but thought it was just because I was a working single parent of three small children. Unlike Gillian, I didn't have my own office at work and would catch my co-workers laughing at me or exhibiting concern. When we begin to realize that this is a whole-body problem and stop trying to treat just parts of the body, we just might get somewhere in this battle of understanding and treating P & PA. A lot of healing takes place while we're asleep; if we don't allow enough time for it, our body will sometimes demand more sleep at inopportune times. That's the neat part of participating in a support group like this, we can compare our personal experiences and observations without fear of ridicule from people who really should be listening instead of trying to make us fit what's written in some book or simply ignoring us. Well, enough of that soapbox for now. Patty B in the Pineywoods of East Texas Moderator note: AMEN to that last paragraph, Patty B. My personal favorite is people who assume I'm lazy because I specifically choose to not chase my tail through life. One blessing from this disease has been that I've been able to let go of a lot of societal expectations about what I " should be " doing with my life. When I started having to conciously choose what I do based on how much energy/pain I have, I really started thinking about what my goals are and then, letting those goals drive my daily activities. So, in a way, this diagnosis has been a freeing experience for me. Just a little ramble from Patty (PHDRWD@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 A friend of mine has been dealing with Fibermyalgia for several years. I believe that many PA sufferers also have fibermyalgia even if it is not diagnosed. One of the most important things in dealing with fm, according to this friend, is lots and lots of sleep - even more important than diet, exercise, or drugs according to him. And I think this makes sense - if I remember Biology class correctly, I think your tissues and muscles and so forth repair themselves while you sleep (it has to do with the oxygen intake I think). It make sense then for FM or PA that extra sleep would be very beneficial - I know I sleep far more now than I ever did - I used to go all day on 4 or 5 hours and have plenty of energy - Now I NEED 8 to just function - more if I want to feel good. Now, could someone call my boss and tell him he must install a cot in my office?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 This is so true my mom has chronic fatigue and FM. Btw that's an intersting thing it seems that even tho she does not have P or PA she does have an autoimmune deficiency disease. So in the poll that is a thing to think about as well. -Adriel > From: TADEL630@... > Reply- egroups > Date: Wed, 16 Aug 2000 12:55:35 EDT > egroups > Subject: Re: [ ] Re: Falling Asleep > > A friend of mine has been dealing with Fibermyalgia for several years. I > believe that many PA sufferers also have fibermyalgia even if it is not > diagnosed. One of the most important things in dealing with fm, according to > this friend, is lots and lots of sleep - even more important than diet, > exercise, or drugs according to him. And I think this makes sense - if I > remember Biology class correctly, I think your tissues and muscles and so > forth repair themselves while you sleep (it has to do with the oxygen intake > I think). It make sense then for FM or PA that extra sleep would be very > beneficial - > I know I sleep far more now than I ever did - I used to go all day on 4 or 5 > hours and have plenty of energy - Now I NEED 8 to just function - more if I > want to feel good. > Now, could someone call my boss and tell him he must install a cot in my > office?? > > > > > Please visit our new web page at: > http://www.wpunj.edu/icip/pa > > We are currently discussing new chat times. moderates a chat on > arthritis at > www.about.com on Thursday evenings, so check that > out in the meantime! E mail at RA@... for details. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 I can relate to falling asleep. I don't actually go to sleep (usually) but at times, I just can't keep my eyes open. Especially when driving. When on the way to Ireland, I had to drive to Reno. The very last thing I want to do is give up the wheel to my mom. Unfortunately if we were to meet up with Gillian, I had to pull over. This has happened many times. I'm also on MTX. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 I don't know about nacolepsy, but I fall asleep much more easily now than I did before I began treating for the PA - Now it takes me all of about 2 minutes after getting into bed and getting comfortable to fall asleep - used to take about 30 minutes. Also, I used to have ocassional insomnia - no more! Speaking of sleep - off to bed for me! zzzzzzzz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 just to off-handedly quote Dr Amen because I haven't seen this noted in other publications, Dr Amen has noted in one of his books (ADHD?) that when a child with ADHD is asked to study, they get sleepy. It appears that blood flow to a certain portion of the brain decreases at this time. I found this interesting because it may explain why I often felt sleepy when studying hard .. or when I really concentrate on something. We think our kids are goofing off when perhaps in reality, their brain is shifting. I'd be curious to know if there's a research item on this ... doris maryland Posted by: " and Daron Freedberg " mdfreedberg@... <mailto:mdfreedberg@...?Subject=%20Re%3ADeep%20Sleep> freedbergfff <freedbergfff> Tue Mar 13, 2007 8:13 pm (PST) Hi, I am worried (as usual) about my daughter. She has fallen asleep in her math class a number of times and we've handled it by taking TV, music, computer away. It hasn't helped. She fell asleep yesterday and the teacher was unable to wake her up. This is how she is at times in the middle of the night (and often pees in the bed because she is in such a deep sleep) but I am worried that this is happening during the day. Has anyone had any experience with this and do you have any suggestions for us? Thanks so much, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 Thanks Doris, I just started reading Dr. Amen's book on recommendation of another parent on this list regarding brain spect scans so I specifically looked at the section you are talking about. We're planning on getting a brain spect sometime this year, we are actually having 2 face to face appointments with Dr. G this year, so hopefully we will get this worked out. You have to be such a detective with our kids. Yesterday she had such a bad attitude (ie fit) about doing her homework and this is so unlike her. I don't know if it is all related, it is so hard to figure things out. At 05:32 AM 3/15/2007, you wrote: >just to off-handedly quote Dr Amen because I haven't seen this noted in >other publications, Dr Amen has noted in one of his books (ADHD?) that >when a child >with ADHD is asked to study, they get sleepy. It appears that blood flow >to a certain >portion of the brain decreases at this time. I found this interesting >because it may explain >why I often felt sleepy when studying hard .. or when I really >concentrate on something. >We think our kids are goofing off when perhaps in reality, their brain >is shifting. > >I'd be curious to know if there's a research item on this ... > >doris >maryland > >Posted by: " and Daron Freedberg " ><mailto:mdfreedberg%40verizon.net>mdfreedberg@... ><mailto:mdfreedberg@...?Subject=%20Re%3ADeep%20Sleep> >freedbergfff ><<freedbergfff>freedbergfff\ > > >Tue Mar 13, 2007 8:13 pm (PST) > >Hi, >I am worried (as usual) about my daughter. She has fallen asleep in >her math class a number of times and we've handled it by taking TV, >music, computer away. It hasn't helped. She fell asleep yesterday >and the teacher was unable to wake her up. This is how she is at >times in the middle of the night (and often pees in the bed because >she is in such a deep sleep) but I am worried that this is happening >during the day. Has anyone had any experience with this and do you >have any suggestions for us? >Thanks so much, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 I wonder of she truly has a sleep disorder? You might check into that. There is a sleep disorder where someone falls asleep at certain odd times and can't be aroused. > > >just to off-handedly quote Dr Amen because I haven't seen this noted in > >other publications, Dr Amen has noted in one of his books (ADHD?) that > >when a child > >with ADHD is asked to study, they get sleepy. It appears that blood flow > >to a certain > >portion of the brain decreases at this time. I found this interesting > >because it may explain > >why I often felt sleepy when studying hard .. or when I really > >concentrate on something. > >We think our kids are goofing off when perhaps in reality, their brain > >is shifting. > > > >I'd be curious to know if there's a research item on this ... > > > >doris > >maryland > > > >Posted by: " and Daron Freedberg " > ><mailto:mdfreedberg%40verizon.net>mdfreedberg@... > ><mailto:mdfreedberg@...?Subject=%20Re%3ADeep%20Sleep> > >freedbergfff > ><<freedbergfff>f reedbergfff> > > > >Tue Mar 13, 2007 8:13 pm (PST) > > > >Hi, > >I am worried (as usual) about my daughter. She has fallen asleep in > >her math class a number of times and we've handled it by taking TV, > >music, computer away. It hasn't helped. She fell asleep yesterday > >and the teacher was unable to wake her up. This is how she is at > >times in the middle of the night (and often pees in the bed because > >she is in such a deep sleep) but I am worried that this is happening > >during the day. Has anyone had any experience with this and do you > >have any suggestions for us? > >Thanks so much, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 Is that sleep apnea? Or is it a different one? Another thing to research!! At 03:32 PM 3/15/2007, you wrote: >I wonder of she truly has a sleep disorder? You might check into >that. There is a sleep disorder where someone falls asleep at >certain odd times and can't be aroused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 Narcolepsy, not apnea. Re: Re: falling asleep Is that sleep apnea? Or is it a different one? Another thing to research!! At 03:32 PM 3/15/2007, you wrote: >I wonder of she truly has a sleep disorder? You might check into >that. There is a sleep disorder where someone falls asleep at >certain odd times and can't be aroused. Quote Link to comment Share on other sites More sharing options...
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