Re: LDN dosage adjustment

[Guest guest]

I agree Elaine, this is exactly what my pharmacist told me -- not to try

and make up the right dose on my own -- let a professional do it.

Otherwise one doesn't really know what dose they are getting and then even

if it is modified in the future, you don't know where what you've been

taking.

It makes me wonder about Dr. Bihari's assistant giving out that kind of

advice - I'm not saying it's wrong, it just makes me question the advice.

I know what some neurologists would say: " see it doesn't make any

difference what dose you take " - implicating the placebo effect.

> Hi,

> I was also told by Dr. Bahari's asst. to open the capsule and empty out some

of the mixture to cut my dosage from 4.5 to 3...however when I discussed this

with my pharmacist I was told this could result in either still getting 4.5 or

getting no LDN at all... . a 4.5 dose of LDN can fit on the head of a pin and

the rest in the capsule is just filler, so it would be difficult to separate

accurately...it makes sense to me to have a compounding pharmacist make the

adjustment.

> Elaine

>

[Guest guest]

I really do believe, after adjusting my own for the past weeks, that it is NOT a good thing. There are times when I'm really discouraged because one day I feel good and the next I feel awful like I did when I was on the higher dose. I have to believe that it's because I'm not adjusting it properly and as one person said, I'm dumping out filler and not medication. I'm going to call Dr. Bihari's office again and see if I can't talk directly to Dr. Birhari. I really don't care that I have a 60 day supply for 4.5 mg. It would have been nice to use them but not at the expense of going through the roller coaster of feeling great one day and feeling awful the next.

I really have to thank everyone for their input on this - otherwise I don't think I would have realized why I was feeling the way I was feeling.

-----Original Message-----From: G. Harding [mailto:philh@...]Sent: Thursday, June 05, 2003 7:59 AMelaineCc: low dose naltrexone Subject: Re: [low dose naltrexone] LDN dosage adjustmentI agree Elaine, this is exactly what my pharmacist told me -- not to tryand make up the right dose on my own -- let a professional do it.Otherwise one doesn't really know what dose they are getting and then evenif it is modified in the future, you don't know where what you've beentaking.It makes me wonder about Dr. Bihari's assistant giving out that kind ofadvice - I'm not saying it's wrong, it just makes me question the advice.I know what some neurologists would say: "see it doesn't make anydifference what dose you take" - implicating the placebo effect.> Hi,> I was also told by Dr. Bahari's asst. to open the capsule and empty out some of the mixture to cut my dosage from 4.5 to 3...however when I discussed this with my pharmacist I was told this could result in either still getting 4.5 or getting no LDN at all... . a 4.5 dose of LDN can fit on the head of a pin and the rest in the capsule is just filler, so it would be difficult to separate accurately...it makes sense to me to have a compounding pharmacist make the adjustment.> Elaine>

[Guest guest]

You know after listening to all of you, I agree. I was lowering the

dose by pouring out 1/3 but, like you, some days I felt better

and some worse. Like today, I feel more numbness in me knees

and it's really annoying. I just called the pharmacist and are

having them overnight a 3.0 script. This is my health and it's

worth any extra money I have to pay out. That's my 2 cents!!

"CK Connie King (1452)" wrote:

I

really do believe, after adjusting my own for the past weeks, that it is

NOT a good thing. There are times when I'm really discouraged

because one day I feel good and the next I feel awful like I did when I

was on the higher dose. I have to believe that it's because

I'm not adjusting it properly and as one person said, I'm dumping out filler

and not medication. I'm going to call Dr. Bihari's office

again and see if I can't talk directly to Dr. Birhari.

I really don't care that I have a 60 day supply for 4.5 mg.

It would have been nice to use them but not at the expense of going through

the roller coaster of feeling great one day and feeling awful the next.I

really have to thank everyone for their input on this - otherwise I don't

think I would have realized why I was feeling the way I was feeling.

-----Original

Message-----

From: G. Harding [mailto:philh@...]

Sent: Thursday, June 05, 2003

7:59 AM

elaine

Cc: low dose naltrexone

Subject: Re: [low dose naltrexone]

LDN dosage adjustment

I agree Elaine, this is exactly what my pharmacist told me -- not to

try

and make up the right dose on my own -- let a professional do it.

Otherwise one doesn't really know what dose they are getting and

then even

if it is modified in the future, you don't know where what you've

been

taking.

It makes me wonder about Dr. Bihari's assistant giving out that

kind of

advice - I'm not saying it's wrong, it just makes me question the

advice.

I know what some neurologists would say: "see it doesn't make any

difference what dose you take" - implicating the placebo effect.

> Hi,

> I was also told by Dr. Bahari's asst. to open the capsule and

empty out some of the mixture to cut my dosage from 4.5 to 3...however

when I discussed this with my pharmacist I was told this could result in

either still getting 4.5 or getting no LDN at all... . a 4.5 dose of LDN

can fit on the head of a pin and the rest in the capsule is just filler,

so it would be difficult to separate accurately...it makes sense to me

to have a compounding pharmacist make the adjustment.

> Elaine

>