Guest guest Posted May 13, 2003 Report Share Posted May 13, 2003 I will be saying prayers for you. I stopped taking Avonex and informed my doctor that I would not take chemo or steroids ever again. I feel that staring LDN was a good choice for me. But, it's a hard decision to make! -----Original Message-----From: Marie Deady [mailto:Mardea@...]Sent: Monday, May 12, 2003 10:37 AMlow dose naltrexone Subject: [low dose naltrexone] Dr. Bihari Hi Everyone. I just thought that I would let you know that I am either going down the tubes or am going to improve greatly. Last week I went to see my MS doctor in Boston. She has never heard of LDN nor will she prescribe it. That was the same respond that I got from my neurologist 2 weeks prior to this appointment. My MS doc says that we should never take any medication that has not been FDA approved. Even though it was FDA approved in the higher dose, it was never approved for MS. I came out of that doctors office very frustrated. Two days later I was having some shooting pain in my head and right ear. A problem that I have been having since I started Copaxone in January. So I made some serious decisions. 1. I stopped Copaxone and have lost those shooting pains. I can tell that they are trying but never make it. I think that after I am off the copaxone for a while those feeling will be gone. 2. I made an appointment with Dr. Bihari in his office on May 30th. I will then try LDN 3. I also made an appointment with a nutritionalist/naturepathic doctor. I want him to check my blood and find out if I have any food hypersensitivities or food allergies. I also want him to give me test to see if I have anything toxic going on in me. I have a lot of drug allergies so maybe I am on the right tract. 4. I started to read the MS diet book by Dr. Roy Swank and am going to follow his diet suggestions for a low-fat diet. I hope that I am going in the right direction. Wish me luck and please pray for me, I need it.Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 I'll be anxious to hear how he is doing! I think he's an older gentleman, right? Not sure of his age. Does anyone know? -----Original Message-----From: Marie Deady [mailto:Mardea@...]Sent: Sunday, June 01, 2003 9:13 AMlow dose naltrexone Subject: [low dose naltrexone] Dr. Bihari Hi Everyone, I had an appointment with Dr. Bihari on Friday. I went to New York from Mass. to see him and he had been taken to the hospital with conjestion. He is okay but they were going to keep him overnight just in case. I was real disappointed that I wasn't able to see him. I just hope that he will be okay. He has helped a lot of people. We all still need his knowledge and his help with LDN. I will call his office this week and let you all know how he is doing. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 sorry, I meant to reply to the whole group.....bihari is ok, and began seeing patients today. --- " CK Connie King (1452) " <connie.king@...> wrote: > I'll be anxious to hear how he is doing! I think > he's an older gentleman, > right? Not sure of his age. Does anyone know? > > -----Original Message----- > From: Marie Deady [mailto:Mardea@...] > Sent: Sunday, June 01, 2003 9:13 AM > low dose naltrexone > Subject: [low dose naltrexone] Dr. Bihari > > > Hi Everyone, > I had an appointment with Dr. Bihari on Friday. I > went to New York from > Mass. to see him and he had been taken to the > hospital with conjestion. He > is okay but they were going to keep him overnight > just in case. > I was real disappointed that I wasn't able to see > him. I just hope that he > will be okay. He has helped a lot of people. We all > still need his > knowledge and his help with LDN. > I will call his office this week and let you all > know how he is doing. > Marie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 Hi All. For the record, I was told the same thing (to pour some out to reduce the dosage if I needed to) by Dr. Bihari's assistant, as well as the pharmacist who filled my presription at Park-Irmat Drug Co. in NY who has worked with Dr. Bihari for many years. So perhaps the LDN is mixed more thoroughly with the filler than might be expected. I haven't had reason to lower my dose, though, so haven't tried dumping any out. It's probably fine to do it that way, at least temporarily, till the correct dosage is determined. That's my " 2 cents worth " anyway. Sue Quote Link to comment Share on other sites More sharing options...
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