Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 I have PPMS and since there really aren't *any* other choices for us, LDN has been great. From the website: " Ninety-eight to 99% of people treated with LDN experience no more disease progression, whether the disease category is relapsing-remitting or chronic progressive. " Phil Harding On Sun, 8 Jun 2003, Sally wrote: > THANKS CAROL AND ALL FOR YOUR WONDERFUL SUPPORT AND POSTINGS. I " VE > LEARNED MORE HERE ABOUT LDN AND OTHER MEDS THAN ANYWHERE ELSE. > MY LAST LETTER WENT DIRECTLY TO CAROL...LOL...CAUSE I DIDNT KNOW HOW > TO ANSWER A POST TO ALL. THANKS TO DAVID, WHO ENLIGHTENED ME. > I AM ON LDN FOR TWO MONTHS AND HAVE JUST GONE BACK TO 3MG BECAUSE I > WAS HAVING LEG TIGHTNESS ON THE 4.5....I LEARNED THAT HERE > TOO...THANK YOU FOR LETTING ME KNOW THAT SOME OF YOU WERE HAVING THE > SAME PROBLEMS AND DID THE SAME THING. > > AND TO KETTLESTITCH...I DON'T KNOW THE ANSWER TO YOUR QUESTION ABOUT > LDN AND PPMS....BUT DO SUGGEST YOU CALL DR. BAHARI AND ASK HIM WHAT > EXPEREIENCES HE HAS HAD. I AM SURE HE COULD ADVISE YOU. IT'S A > REAL SHAME THAT OUR OWN NEUROS CAN'T DO THAT FOR US....THEY ARE > SUPPOSED TO HAVE OUR WELL BEING ON FRONT BURNER NOT LINING THIER > POCKETS. > WELCOME KETTLESTITCH AND LET US KNOW WHAT YOU FIND OUT AND OF DR > BAHARI CAN HELP YOU. > > SALLY > > > > > > > > > I'm glad to know what I've shared helped some of you. That makes > me > > smile!!! I really do love this site. Reading all the postings is > so > > very imformative. And, yes, like you said Sally, it's a great > place > > to be, when Everyone can understand Exactly what your'e going > thru!! > > Marie~ Best of luck to you too!!!! I'll be keeping you in my > prayers! > > Thanx for being here everyone. > > Carol > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi Pam, What dosag do you take? Thanks, Bev. -------Original Message------- From: low dose naltrexone Date: Wednesday, April 21, 2004 18:33:12 low dose naltrexone Subject: [low dose naltrexone] LDN and PPMS Steve,I have RRMS, and have seen remarkable results in my three months of taking LDN......but the changes have been ever-so-sligh. With a more severe form of MS, is it posible that you are just not "seeing" the slight changes? It is something which might take longer to actually "see,or feel" changes as they are happening.Please do not give up on the drug, as there has been so much success.Pam Quote Link to comment Share on other sites More sharing options...
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