Re: LDN and the Primary Progressive MS Diagnosis

[Guest guest]

The diagnosis I originally received from my nuro was advanced MS. I have since realized it is RRMS and probably SPRRMS. I am on Copaxone and I doubt it does anything except hurt. From speaking with others it appears that all the ABCR drugs fall in that same category. I recently read in the National MS Society Magazine the Copaxone company had discontinued a test for copaxone for progressive MS because it became obvious it does nothing for Progressive MS. Hopefully I was wrong in my interpitation of that aborted test. I hope this sheds some light for you.

----- Original Message -----

From: kettlestitch

low dose naltrexone

Sent: Saturday, June 07, 2003 1:37 PM

Subject: [low dose naltrexone] LDN and the Primary Progressive MS Diagnosis

Hi,I'm brand new to this group and have just been reading thus far! Up to now I have not seen any discussion about LDN and PPMS. Are people using LDN with this diagnosis and what kind of results are they seeing? I am currently using Copaxone (15 months) but have been thinking of discontinuing it. My doctor (who is an eminent researcher in the MS field) has told me that one reason to continue using it is that "although we can't show that it helps, we also can't show that it doesn't". (This response just drives me crazy. I KNOW I've lost ground while on Copaxone. ) He feels that it is important to take something (A,B,C,R),that specifcally addresses the MS. He says diet, B-12, bee vemom, acupuncture etc. is all well and good but it does not directly target the disease. To this end I'm interested in some feedback from PPMS group members who are using LDN along with Copaxone. I would appreciate any feedback you may have, especially from the PPMSr's.Kettlestitch