LDN and the Primary Progressive MS Diagnosis

[Guest guest]

Hi,

I'm brand new to this group and have just been reading thus far! Up to

now I have not seen any discussion about LDN and PPMS. Are people

using LDN with this diagnosis and what kind of results are they

seeing?

I am currently using Copaxone (15 months) but have been thinking of

discontinuing it. My doctor (who is an eminent researcher in the MS

field) has told me that one reason to continue using it is that

" although we can't show that it helps, we also can't show that it

doesn't " . (This response just drives me crazy. I KNOW I've lost

ground while on Copaxone. ) He feels that it is important to take

something (A,B,C,R),that specifcally addresses the MS. He says diet,

B-12, bee vemom, acupuncture etc. is all well and good but it does not

directly target the disease. To this end I'm interested in some

feedback from PPMS group members who are using LDN along with

Copaxone. I would appreciate any feedback you may have, especially

from the PPMSr's.

Kettlestitch