Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Gee everyone was quiet for a few days - but we are making up for it!!!! I haven't reported on my results for a couple of weeks, just been watching carefully to make sure I knew what was happening. I have been on LDN for 4 weeks, the first two weeks were rough until I backed down from 4.5 mg. to 3 mg., that seems to have done the trick. I still have a little trouble sleeping, but it is also related to stress - for now I have good energy, feel stronger and a little better balanced but that fluctuates during the day. I still walk with a cane and "free walking" as I like to call it is a bit scary. All in all I do think that this LDN has some good benefits - and the best as I am sure we all feel is that it stops the progression. Larry sorry you are having a bad time of it, I don't know much about what you are taking, but I would speak with the pharmacy where you get the LDN and see if they can shed some light on it for you. In the meantime, I will keep you in my prayers. Wishing you all good weekend. ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 I would say the prescription drugs named herein would by my first concern. If you do an Internet search for " side effects of Rebif, Vioxx, and Allegra-D " the results can be frightening. The same goes for searching the word " Aspartame " which is used in nearly all diet drinks and sugar free products. The side effects of it will scare the c@#%$p out of you. It also is believed to cause MS or at least exacerbate it. Noland ----- Original Message ----- From: " LarryGC " <larrygc@...> <Spotlight_med > Cc: " LDN group " <low dose naltrexone > Sent: Thursday, May 29, 2003 7:20 PM Subject: [low dose naltrexone] Trouble in LDNland > Someone wrote: > > >I am also taking Rebif, Calcium, and for suspected > >arthritis: Vioxx, Glucosamine Sulfate 550 and Chondroitin > >Sulfate 400 and for allergies: Allegra-D. I have no known > >allergies to medicines but come to think of it the pharmacy > >did ask me if I was Lactose intolerant when I ordered the > >LDN. I don't know what that was about but I am not. > > > > and > > >I don't think I'm doing so well with it. About the sixth day > >I noticed that I was having a muscle twitching in an area I > >never had before. The seventh day I started getting tingling > >in many areas of my body that have either never have before > >for or have not had for a long time. > > This is a quote from someone who started LDN from another site, but is giving > it up. Anyone have any ideas? Rebif stands out as one.. but what about Vioxx? > Is it a non-narcotic substitute, or is it considered a narcotic? I think it > may be too late, he already gave it up, but am curious if anyone else has > muscle twitching and tingling? > > > I also notice tingles at times... but it's not the MS tingles I'm used to, it's > my arm or foot ACTUALLY " going to sleep " ... pins and needles I think they call > it. So, yes, I feel that too -- but they're not unprovoked! I think they're a > REAL reaction to sitting or laying a certain way. I thought it was a good sign, > like the old days when it happened. > > I also feel those spasms you may be talking about... like a little blurb blurb > bubble bubble feeling in different spots around my body. I figured it was the > body waking up again, healing. They're not painful, but sometimes noticable.. > not too frequently. > > Do other people get these? Do they go away? Am I wrong in thinking they're a > good thing? Feels like healing twinges, not bad symptoms. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Hi Noland, Was just wondering what the P.E. after your name stands for. I was guessing Professional engineer...am I right? joyce. >From: "Noland R. Durnell, P.E." >,"LarryGC" >CC: "LDN group" >Subject: Re: [low dose naltrexone] Trouble in LDNland >Date: Fri, 30 May 2003 09:05:49 -0600 > >I would say the prescription drugs named herein would by my first concern. >If you do an Internet search for "side effects of Rebif, Vioxx, and >Allegra-D" the results can be frightening. > >The same goes for searching the word "Aspartame" which is used in nearly all >diet drinks and sugar free products. The side effects of it will scare the >c@#%$p out of you. It also is believed to cause MS or at least exacerbate >it. > >Noland >----- Original Message ----- >From: "LarryGC" > >Cc: "LDN group" >Sent: Thursday, May 29, 2003 7:20 PM >Subject: [low dose naltrexone] Trouble in LDNland > > > > Someone wrote: > > > > >I am also taking Rebif, Calcium, and for suspected > > >arthritis: Vioxx, Glucosamine Sulfate 550 and Chondroitin > > >Sulfate 400 and for allergies: Allegra-D. I have no known > > >allergies to medicines but come to think of it the pharmacy > > >did ask me if I was Lactose intolerant when I ordered the > > >LDN. I don't know what that was about but I am not. > > > > > > > and > > > > >I don't think I'm doing so well with it. About the sixth day > > >I noticed that I was having a muscle twitching in an area I > > >never had before. The seventh day I started getting tingling > > >in many areas of my body that have either never have before > > >for or have not had for a long time. > > > > This is a quote from someone who started LDN from another site, but is >giving > > it up. Anyone have any ideas? Rebif stands out as one.. but what about >Vioxx? > > Is it a non-narcotic substitute, or is it considered a narcotic? I think >it > > may be too late, he already gave it up, but am curious if anyone else has > > muscle twitching and tingling? > > > > > > I also notice tingles at times... but it's not the MS tingles I'm used to, >it's > > my arm or foot ACTUALLY "going to sleep"... pins and needles I think they >call > > it. So, yes, I feel that too -- but they're not unprovoked! I think >they're a > > REAL reaction to sitting or laying a certain way. I thought it was a good >sign, > > like the old days when it happened. > > > > I also feel those spasms you may be talking about... like a little blurb >blurb > > bubble bubble feeling in different spots around my body. I figured it was >the > > body waking up again, healing. They're not painful, but sometimes >noticable.. > > not too frequently. > > > > Do other people get these? Do they go away? Am I wrong in thinking >they're a > > good thing? Feels like healing twinges, not bad symptoms. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Joyce: You are correct. Noland ----- Original Message ----- From: wkendz 32 rangeus50@... Cc: low dose naltrexone Sent: Friday, May 30, 2003 9:23 AM Subject: Re: [low dose naltrexone] Trouble in LDNland Hi Noland, Was just wondering what the P.E. after your name stands for. I was guessing Professional engineer...am I right? joyce. >From: "Noland R. Durnell, P.E." >,"LarryGC" >CC: "LDN group" >Subject: Re: [low dose naltrexone] Trouble in LDNland >Date: Fri, 30 May 2003 09:05:49 -0600 > >I would say the prescription drugs named herein would by my first concern. >If you do an Internet search for "side effects of Rebif, Vioxx, and >Allegra-D" the results can be frightening. > >The same goes for searching the word "Aspartame" which is used in nearly all >diet drinks and sugar free products. The side effects of it will scare the >c@#%$p out of you. It also is believed to cause MS or at least exacerbate >it. > >Noland >----- Original Message ----- >From: "LarryGC" > >Cc: "LDN group" >Sent: Thursday, May 29, 2003 7:20 PM >Subject: [low dose naltrexone] Trouble in LDNland > > > > Someone wrote: > > > > >I am also taking Rebif, Calcium, and for suspected > > >arthritis: Vioxx, Glucosamine Sulfate 550 and Chondroitin > > >Sulfate 400 and for allergies: Allegra-D. I have no known > > >allergies to medicines but come to think of it the pharmacy > > >did ask me if I was Lactose intolerant when I ordered the > > >LDN. I don't know what that was about but I am not. > > > > > > > and > > > > >I don't think I'm doing so well with it. About the sixth day > > >I noticed that I was having a muscle twitching in an area I > > >never had before. The seventh day I started getting tingling > > >in many areas of my body that have either never have before > > >for or have not had for a long time. > > > > This is a quote from someone who started LDN from another site, but is >giving > > it up. Anyone have any ideas? Rebif stands out as one.. but what about >Vioxx? > > Is it a non-narcotic substitute, or is it considered a narcotic? I think >it > > may be too late, he already gave it up, but am curious if anyone else has > > muscle twitching and tingling? > > > > > > I also notice tingles at times... but it's not the MS tingles I'm used to, >it's > > my arm or foot ACTUALLY "going to sleep"... pins and needles I think they >call > > it. So, yes, I feel that too -- but they're not unprovoked! I think >they're a > > REAL reaction to sitting or laying a certain way. I thought it was a good >sign, > > like the old days when it happened. > > > > I also feel those spasms you may be talking about... like a little blurb >blurb > > bubble bubble feeling in different spots around my body. I figured it was >the > > body waking up again, healing. They're not painful, but sometimes >noticable.. > > not too frequently. > > > > Do other people get these? Do they go away? Am I wrong in thinking >they're a > > good thing? Feels like healing twinges, not bad symptoms. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 aspartame is well known to be a carcinogen and suspected in causing/aggravating many other diseases (such as MS). Don't drink any " diet " drinks or any soda for that matter. It is the big American experiment on people's health in the market place. Gotta love the profit motives of large corporations... read Adrienna Huffington's " Pigs at the Trough " concerning how much corporation care about our health... sorry to rant, but how can a soft drink company keep adding a chemical to a drink that is KNOWN to cause health problems? It seems kind of irresponisble to me. Of course they'd claim " results are inconclusive " like our current administration feels about Global Warming... On Fri, 30 May 2003, Noland R. Durnell, P.E. wrote: > I would say the prescription drugs named herein would by my first concern. > If you do an Internet search for " side effects of Rebif, Vioxx, and > Allegra-D " the results can be frightening. > > The same goes for searching the word " Aspartame " which is used in nearly all > diet drinks and sugar free products. The side effects of it will scare the > c@#%$p out of you. It also is believed to cause MS or at least exacerbate > it. > > Noland > ----- Original Message ----- > From: " LarryGC " <larrygc@...> > <Spotlight_med > > Cc: " LDN group " <low dose naltrexone > > Sent: Thursday, May 29, 2003 7:20 PM > Subject: [low dose naltrexone] Trouble in LDNland > > > > Someone wrote: > > > > >I am also taking Rebif, Calcium, and for suspected > > >arthritis: Vioxx, Glucosamine Sulfate 550 and Chondroitin > > >Sulfate 400 and for allergies: Allegra-D. I have no known > > >allergies to medicines but come to think of it the pharmacy > > >did ask me if I was Lactose intolerant when I ordered the > > >LDN. I don't know what that was about but I am not. > > > > > > > and > > > > >I don't think I'm doing so well with it. About the sixth day > > >I noticed that I was having a muscle twitching in an area I > > >never had before. The seventh day I started getting tingling > > >in many areas of my body that have either never have before > > >for or have not had for a long time. > > > > This is a quote from someone who started LDN from another site, but is > giving > > it up. Anyone have any ideas? Rebif stands out as one.. but what about > Vioxx? > > Is it a non-narcotic substitute, or is it considered a narcotic? I think > it > > may be too late, he already gave it up, but am curious if anyone else has > > muscle twitching and tingling? > > > > > > I also notice tingles at times... but it's not the MS tingles I'm used to, > it's > > my arm or foot ACTUALLY " going to sleep " ... pins and needles I think they > call > > it. So, yes, I feel that too -- but they're not unprovoked! I think > they're a > > REAL reaction to sitting or laying a certain way. I thought it was a good > sign, > > like the old days when it happened. > > > > I also feel those spasms you may be talking about... like a little blurb > blurb > > bubble bubble feeling in different spots around my body. I figured it was > the > > body waking up again, healing. They're not painful, but sometimes > noticable.. > > not too frequently. > > > > Do other people get these? Do they go away? Am I wrong in thinking > they're a > > good thing? Feels like healing twinges, not bad symptoms. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 Hi Cyn..oh boy, I did get a response and I thought it went out to the entire group but I guess not. Noland did write back and said that I was entirely right....he is a professional engineer. Thanks for the info Noland. I'll post it to the group cuz I'm thinking that if you are curious then others might just be too...see Noland, you are a star...lol. Joyce. >From: "Cydney Avery" >Reply- >"'wkendz 32'" >Subject: RE: [low dose naltrexone] Trouble in LDNland >Date: Sat, 31 May 2003 19:49:27 -0700 > >Joyce did you find out what P E is? I am also curious!! >Cyd > >-----Original Message----- >From: wkendz 32 [mailto:wkendz32@...] >Sent: Friday, May 30, 2003 8:23 AM >rangeus50@... >Cc: low dose naltrexone >Subject: Re: [low dose naltrexone] Trouble in LDNland > > > >Hi Noland, > >Was just wondering what the P.E. after your name stands for. I was >guessing Professional engineer...am I right? joyce. > > > > >From: "Noland R. Durnell, P.E." > >,"LarryGC" > >CC: "LDN group" > >Subject: Re: [low dose naltrexone] Trouble in LDNland > >Date: Fri, 30 May 2003 09:05:49 -0600 > > > >I would say the prescription drugs named herein would by my first >concern. > >If you do an Internet search for "side effects of Rebif, Vioxx, and > >Allegra-D" the results can be frightening. > > > >The same goes for searching the word "Aspartame" which is used in >nearly all > >diet drinks and sugar free products. The side effects of it will scare >the > >c@#%$p out of you. It also is believed to cause MS or at least >exacerbate > >it. > > > >Noland > >----- Original Message ----- > >From: "LarryGC" > >> >Cc: "LDN group" > >Sent: Thursday, May 29, 2003 7:20 PM > >Subject: [low dose naltrexone] Trouble in LDNland > > > > > > > Someone wrote: > > > > > > >I am also taking Rebif, Calcium, and for suspected > > > >arthritis: Vioxx, Glucosamine Sulfate 550 and Chondroitin > > > >Sulfate 400 and for allergies: Allegra-D. I have no known > > > >allergies to medicines but come to think of it the pharmacy > > > >did ask me if I was Lactose intolerant when I ordered the > > > >LDN. I don't know what that was about but I am not. > > > > > > > > > > and > > > > > > >I don't think I'm doing so well with it. About the sixth day > > > >I noticed that I was having a muscle twitching in an area I > > > >never had before. The seventh day I started getting tingling > > > >in many areas of my body that have either never have before > > > >for or have not had for a long time. > > > > > > This is a quote from someone who started LDN from another site, but >is > >giving > > > it up. Anyone have any ideas? Rebif stands out as one.. but what >about > >Vioxx? > > > Is it a non-narcotic substitute, or is it considered a narcotic? I >think > >it > > > may be too late, he already gave it up, but am curious if anyone >else has > > > muscle twitching and tingling? > > > > > > > > > I also notice tingles at times... but it's not the MS tingles I'm >used to, > >it's > > > my arm or foot ACTUALLY "going to sleep"... pins and needles I think >they > >call > > > it. So, yes, I feel that too -- but they're not unprovoked! I think > >they're a > > > REAL reaction to sitting or laying a certain way. I thought it was a >good > >sign, > > > like the old days when it happened. > > > > > > I also feel those spasms you may be talking about... like a little >blurb > >blurb > > > bubble bubble feeling in different spots around my body. I figured >it was > >the > > > body waking up again, healing. They're not painful, but sometimes > >noticable.. > > > not too frequently. > > > > > > Do other people get these? Do they go away? Am I wrong in thinking > >they're a > > > good thing? Feels like healing twinges, not bad symptoms. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Hello Joyce & Cyn: Aw gee!! Here I thought I was just a nobody! I am thoroughly enjoying this group and am picking up worlds of information. I just saw my Doctor here in Grand Junction, Colorado, this morning and I am getting set up to try LDN for my leukemia (CLL). Can hardly wait for the prescription to arrive. My family doctor, the one I saw this morning, is open-minded and works with a Naturapathic Doctor. I see both of them. I told them of the responses that you all are having from using LDN for MS and they were VERY interested. My Oncologist's have been closed minded to everything but chemotherapy. Needless to say, I AM NOT interested in letting them try to kill me with chemo, yet. Keep up the good info, Noland ----- Original Message ----- From: wkendz 32 cavery@... Cc: low dose naltrexone Sent: Sunday, June 01, 2003 10:16 AM Subject: RE: [low dose naltrexone] Trouble in LDNland Hi Cyn..oh boy, I did get a response and I thought it went out to the entire group but I guess not. Noland did write back and said that I was entirely right....he is a professional engineer. Thanks for the info Noland. I'll post it to the group cuz I'm thinking that if you are curious then others might just be too...see Noland, you are a star...lol. Joyce. >From: "Cydney Avery" >Reply- >"'wkendz 32'" >Subject: RE: [low dose naltrexone] Trouble in LDNland >Date: Sat, 31 May 2003 19:49:27 -0700 > >Joyce did you find out what P E is? I am also curious!! >Cyd > >-----Original Message----- >From: wkendz 32 [mailto:wkendz32@...] >Sent: Friday, May 30, 2003 8:23 AM >rangeus50@... >Cc: low dose naltrexone >Subject: Re: [low dose naltrexone] Trouble in LDNland > > > >Hi Noland, > >Was just wondering what the P.E. after your name stands for. I was >guessing Professional engineer...am I right? joyce. > > > > >From: "Noland R. Durnell, P.E." > >,"LarryGC" > >CC: "LDN group" > >Subject: Re: [low dose naltrexone] Trouble in LDNland > >Date: Fri, 30 May 2003 09:05:49 -0600 > > > >I would say the prescription drugs named herein would by my first >concern. > >If you do an Internet search for "side effects of Rebif, Vioxx, and > >Allegra-D" the results can be frightening. > > > >The same goes for searching the word "Aspartame" which is used in >nearly all > >diet drinks and sugar free products. The side effects of it will scare >the > >c@#%$p out of you. It also is believed to cause MS or at least >exacerbate > >it. > > > >Noland > >----- Original Message ----- > >From: "LarryGC" > >> >Cc: "LDN group" > >Sent: Thursday, May 29, 2003 7:20 PM > >Subject: [low dose naltrexone] Trouble in LDNland > > > > > > > Someone wrote: > > > > > > >I am also taking Rebif, Calcium, and for suspected > > > >arthritis: Vioxx, Glucosamine Sulfate 550 and Chondroitin > > > >Sulfate 400 and for allergies: Allegra-D. I have no known > > > >allergies to medicines but come to think of it the pharmacy > > > >did ask me if I was Lactose intolerant when I ordered the > > > >LDN. I don't know what that was about but I am not. > > > > > > > > > > and > > > > > > >I don't think I'm doing so well with it. About the sixth day > > > >I noticed that I was having a muscle twitching in an area I > > > >never had before. The seventh day I started getting tingling > > > >in many areas of my body that have either never have before > > > >for or have not had for a long time. > > > > > > This is a quote from someone who started LDN from another site, but >is > >giving > > > it up. Anyone have any ideas? Rebif stands out as one.. but what >about > >Vioxx? > > > Is it a non-narcotic substitute, or is it considered a narcotic? I >think > >it > > > may be too late, he already gave it up, but am curious if anyone >else has > > > muscle twitching and tingling? > > > > > > > > > I also notice tingles at times... but it's not the MS tingles I'm >used to, > >it's > > > my arm or foot ACTUALLY "going to sleep"... pins and needles I think >they > >call > > > it. So, yes, I feel that too -- but they're not unprovoked! I think > >they're a > > > REAL reaction to sitting or laying a certain way. I thought it was a >good > >sign, > > > like the old days when it happened. > > > > > > I also feel those spasms you may be talking about... like a little >blurb > >blurb > > > bubble bubble feeling in different spots around my body. I figured >it was > >the > > > body waking up again, healing. They're not painful, but sometimes > >noticable.. > > > not too frequently. > > > > > > Do other people get these? Do they go away? Am I wrong in thinking > >they're a > > > good thing? Feels like healing twinges, not bad symptoms. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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