Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 I agree. This is the best group. I don't feel like I am going through this disease alone. don't get me wrong, I get a lot of support from my husband, my family and my friends but they can't posibly know really how I feel. It's good to talk to people just like me. And I learn a lot too.Thanks to all of you. Marie ----- Original Message ----- From: " CK Connie King (1452) " <connie.king@...> <low dose naltrexone > Sent: Tuesday, June 24, 2003 2:15 PM Subject: [low dose naltrexone] LDN Dosage > Just some thoughts regarding my recent experiences (rollercoaster ride) with > everyone regarding the amount of LDN to take. > > To review, I started out on 4.5 mg of LDN over 8 weeks ago. I soon > realized, mostly from the great feedback I received from others in this > group, that because of leg stiffness and spasms throughout the night, I > should decrease to 3 mg. That worked great and for some time, I was doing > much better. Then, due to periods of extremely high stress, I found myself > deteriorating quickly. During those times, I increased my dose to 4.5 mg. > in order to get me through the rough times. The problem for me became - > when do I go back to 3 mg. After this last incident, I find that I'm > coming to know more clearly when to cut back. Actually, I think I was > waiting too long to cut back. I've questioned that maybe I shouldn't have > increased to 4.5 mg. during those rough times - although at this point, I > think it helped me get through it all. > > And again, I want to thank all of you! Everyday, I look forward to > reading my email from this group. It's encouraging, especially during > those times when you're not doing so good! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2003 Report Share Posted June 25, 2003 I agree whole heartedly with Connie and Marie. If it wern't for this site and all the great supportive people here, I probably would have gone off of LDN with the first problem. But, here, I found that a lot of you were having the same experiences, and were sticking in there and dealing. And that gave me the courage to do the same, and am I glad. The leg stiffness is easing little by little, and I am feeling a lot better. I went from 4.5mg to 3mg a month ago and I am sticking with it. Like Connie I argued with myself whether to go up or down and back up again, but I think going down to 3mg was the right decision for me, and I am giving it a chance to do the job. Some of us do well on the 4.5mg(a friend is on that and she doesnt even think she has MS anymore..lol) I hope this helps all of you who are on that doseage " roller coaster ride " (as Connie puts it) Thank you all for being here..~~Sally > I agree. This is the best group. I don't feel like I am going through this > disease alone. don't get me wrong, I get a lot of support from my husband, > my family and my friends but they can't posibly know really how I feel. It's > good to talk to people just like me. And I learn a lot too.Thanks to all of > you. > Marie > ----- Original Message ----- > From: " CK Connie King (1452) " <connie.king@a...> > <low dose naltrexone > > Sent: Tuesday, June 24, 2003 2:15 PM > Subject: [low dose naltrexone] LDN Dosage > > > > Just some thoughts regarding my recent experiences (rollercoaster ride) > with > > everyone regarding the amount of LDN to take. > > > > To review, I started out on 4.5 mg of LDN over 8 weeks ago. I soon > > realized, mostly from the great feedback I received from others in this > > group, that because of leg stiffness and spasms throughout the night, I > > should decrease to 3 mg. That worked great and for some time, I was > doing > > much better. Then, due to periods of extremely high stress, I found > myself > > deteriorating quickly. During those times, I increased my dose to 4.5 > mg. > > in order to get me through the rough times. The problem for me became - > > when do I go back to 3 mg. After this last incident, I find that I'm > > coming to know more clearly when to cut back. Actually, I think I was > > waiting too long to cut back. I've questioned that maybe I shouldn't > have > > increased to 4.5 mg. during those rough times - although at this point, > I > > think it helped me get through it all. > > > > And again, I want to thank all of you! Everyday, I look forward to > > reading my email from this group. It's encouraging, especially during > > those times when you're not doing so good! > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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