Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hi Kim, I am not sure your email went to others group members... As far as I know this sound a bit expensive..is it for 30 days at 3 or 4.5 mg? Hope you get well soon, MassimoWalesong1@... wrote: Hi,I am having trouble with hands, fatique, memory at this point. I have had many other symptons in the past but have managed to over come some with certain drugs. I found a Dr in Louisville that is willing to subscribe this to me. The compound pharmacy is charging 78.00 for 30 day supply. Is that high? I am going to try although I have been taking ultram for energy and dont know how long it will take to get out of my system. Does anyone know. You think 48 hours? Thanks for everything.Kim It's Samaritans' Week. Help Samaritans help others. Call 08709 000032 to give or donate online now at http://www.samaritans.org/support/donations.shtm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 I agree. I paid $121 for 100 days and that seemed a bit higher than others were paying. Check that price. Someone gave out a number of Pharmacies a couple days back that are much less expensive (sorry don't have that list now), but I used Fairview in burg (I live in Michigan) 800-882-1377. His name is Steelep and the MD I'm using has used Fairview many times before with good success. BTW, he sent it in two shipments for expediency of getting me started, UPS mis-shipped the second one (still lost) and he sent a replacement to my work address at no charge while UPS tries to figure out what happened. It pays to work with a quality organization and to me worth the few cents more a day when problems arise. On Thu, 22 May 2003, [iso-8859-1] Massimo Ciabo wrote: > Hi Kim, > I am not sure your email went to others group members... > As far as I know this sound a bit expensive..is it for 30 days at 3 or 4.5 mg? > > Hope you get well soon, > Massimo > > Walesong1@... wrote: > Hi, > I am having trouble with hands, fatique, memory at this point. I have had many other symptons in the past but have managed to over come some with certain drugs. I found a Dr in Louisville that is willing to subscribe this to me. The compound pharmacy is charging 78.00 for 30 day supply. Is that high? I am going to try although I have been taking ultram for energy and dont know how long it will take to get out of my system. Does anyone know. You think 48 hours? Thanks for everything. > Kim > > > > > --------------------------------- > It's Samaritans' Week. Help Samaritans help others. > Call 08709 000032 to give or donate online now at > http://www.samaritans.org/support/donations.shtm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 I've been using LDN for my chronic lymphocytic leukemia for two weeks now. Too short a time to really expect any positive results. I am really interested in the results you are receiving in the treatment of your Nonhodgkins Lymphoma. An acquaintance of mine has the same thing and I'm trying to get him to try LDN. His story of the treatment he has received from his oncologist gives you nightmares. He was treated with chemo until it burnt his veins and turned his whole body a dark, burnt pink. They've removed his spleen, etc. AND, he still has the Lymphoma. Looking forward to hearing your results. Noland ----- Original Message ----- From: " " <ebaker@...> " LDN " <low dose naltrexone > Sent: Sunday, June 22, 2003 11:44 AM Subject: [low dose naltrexone] Suggestions on finding doc to prescribe LDN > Hi-- > > I'm in the US and have been using Low Dose Naltrexone for the past 6 > months to treat Nonhodgkins Lymphoma. > > I found a sympathetic physician's assistant who I convinced to write a > prescription. A nurse practitioner might also be willing to help. > > I had to convince the PA that it was a safe treatment. To do so, I > printed out all of the important information from the Low Dose > Naltrezone internet site. Once the PA understood how LDN works and how > benign it has been, she was willing to write the presciption. Good > luck. > > Anyone else out there using LDN for cancer?? > > What about histamine?? > > (My brother has MS. I have not been able to convince him to look into > LDN.) > > Regards, > S > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Thanks for the information, . I've copied this e-mail and am sending it to my friend. Am also going to review the web sites you referred to and probably copy some or all of the info and send to him. Since being diagnosed with chronic lymphocytic leukemia (CLL), I too, have made major dietary changes, lost about 20 pounds, and am taking a heavy regimen of vitamins and antioxidants. Am also taking hydrogen peroxide IV's but have not seen any definite indications that it is helping my CLL, yet. However, I am seeing other beneficial side effects, i.e., better skin color, elimination of my leg and foot cramps (they were so severe that they tore the tendons in my feet. Hurt like @#$%, too) My Oncologist is not the least bit happy about me trying other methods of treatment/control but, it's my life whether she likes it or not. I'm not sure at this point why I'm even going to her every couple of months other than to agitate her closed mind. She wants to put me on chemo, rituxin, procrit, or darbepoetin alfa. As far as I'm concerned at this point, chemo is not an option and procrit can have nightmarish side effects. I'm still researching the other two of which she didn't come up with until she found out two days ago that I was taking LDN. Please keep us posted on your progress. Best wishes, Noland ----- Original Message ----- From: Noland R. Durnell, P.E. Sent: Thursday, June 26, 2003 7:34 PM Subject: Re: [low dose naltrexone] LDN for Cancer Hi Noland-- My cancer was progressing quite quickly when it was discovered last April. (I could see bloating in my abdomen.) Both my local oncologist and the one I went to (at Memorial Sloan-Kettering) for a second opinion wanted me to take chemo (CHOP--which is cyclophosphamide, doxiribucin, vinicristine and predinosone--hope I've spelled those correctly) along with Rituxan (a monoclonal antibody). My cancer is considered to be indolent, and incurable, so I refused the chemo and only took the Rituxan. I also went on a macrobiotic diet, lost 45 pounds, began taking supplements (after lots of research on each) and also went on LDN. My cancer has not progressed, at least according to the latest scans. My cancer did not respond to the Rituxan, but it's possible that Rituxan prevented progression. What effect is the LDN having?? I don't know. But, I'm not going to stop taking it. I've read of plenty of people who took CHOP and Rituxan a year ago whose cancer is progressing. I've had no side effects from the LDN and the science made sense to me: many cancers seem to respond to immune system stimulants, at least those which increase T-cells and Natural Killer cells. I'm sorry about your friend's difficult time with chemotherapy. If the cancer was aggressive, he probably did not have time to make the sort of changes that I was able to do. If his cancer is indolent, he might want to consider making some of the lifestyle changes which have been effective for some long-term survivors of Nonhodgkins Lymphoma. Take a look at: http://www.lymphomation.org/wwstrat1.htm By the way, I have done a lot of research about mercury, and just had all of my mercury ("silver") fillings removed by a Hal Huggins trained dentist. I believe that mercury is a significant factor in my cancer, Anyone interested in this subject might want to read: http://www.bioprobe.com All the best to you and your friend, S. "Noland R. Durnell, P.E." wrote: I've been using LDN for my chronic lymphocytic leukemia for two weeks now. Too short a time to really expect any positive results. I am really interested in the results you are receiving in the treatment of your Nonhodgkins Lymphoma. An acquaintance of mine has the same thing and I'm trying to get him to try LDN. His story of the treatment he has received from his oncologist gives you nightmares. He was treated with chemo until it burnt his veins and turned his whole body a dark, burnt pink. They've removed his spleen, etc. AND, he still has the Lymphoma. Looking forward to hearing your results. Noland ----- Original Message ----- From: "" <ebaker@...> "LDN" <low dose naltrexone > Sent: Sunday, June 22, 2003 11:44 AM Subject: [low dose naltrexone] Suggestions on finding doc to prescribe LDN > Hi-- > > I'm in the US and have been using Low Dose Naltrexone for the past 6 > months to treat Nonhodgkins Lymphoma. > > I found a sympathetic physician's assistant who I convinced to write a > prescription. A nurse practitioner might also be willing to help. > > I had to convince the PA that it was a safe treatment. To do so, I > printed out all of the important information from the Low Dose > Naltrezone internet site. Once the PA understood how LDN works and how > benign it has been, she was willing to write the presciption. Good > luck. > > Anyone else out there using LDN for cancer?? > > What about histamine?? > > (My brother has MS. I have not been able to convince him to look into > LDN.) > > Regards, > S > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Good morning, : I'm sorry it has taken me so long to answer the questions you posed in the following e-mail. My white blood count (WBC) started rising in 1995 but I wasn't positively diagnosed with CLL until February, 1998. The vitamins I take are: Dr. Whitakers Forward vitamin pack (www.drwhitaker.com) supplemented with the following: Milk thistle for keeping the liver healthy as possible Vitamin C-3000mg additional Selenium-600mcg additional Salmon (Fish) Oil-3000mg additional Flax seed oil-3000mg additional Coenzyme Q10-300mg additional Bilberry to keep the cataracts out of my eyes. I had them once and bilberry got rid of them. Through research I came up with the vitamin dosages myself and then found them pretty well summarized in the book "Challenge Cancer and Win" by Kim Dalzell, Ph.D., R.D., L.D. I got it through the Cancer Centers of America web page. Best wishes, Noland ----- Original Message ----- From: Noland R. Durnell, P.E. Sent: Sunday, June 29, 2003 4:37 PM Subject: Re: [low dose naltrexone] LDN for Cancer HI Noland-- Since being diagnosed with chronic lymphocytic leukemia (CLL), I too, have made major dietary changes, lost about 20 pounds, Congratulations! and am taking a heavy regimen of vitamins and antioxidants. I'm curious to hear which ones you are on, and whether you decided on them through your own research or through an enlightened doc. Am also taking hydrogen peroxide IV's but have not seen any definite indications that it is helping my CLL, yet. I tried hydrogen peroxide on my skin (using a food grad variety that I watered down) but gave it up because it seemed to be having a proliferative effect ---but it's so difficult to tell. I used to have a tumor in my arm which was an easy to feel marker. I'm almost nostalgic that it regressed;-) However, I am seeing other beneficial side effects, i.e., better skin color, elimination of my leg and foot cramps (they were so severe that they tore the tendons in my feet. Hurt like @#$%, too) Wow. My Oncologist is not the least bit happy about me trying other methods of treatment/control but, it's my life whether she likes it or not. I'm not sure at this point why I'm even going to her every couple of months other than to agitate her closed mind. I love it. She wants to put me on chemo, rituxin, procrit, or darbepoetin alfa. As far as I'm concerned at this point, chemo is not an option and procrit can have nightmarish side effects. I'm still researching the other two of which she didn't come up with until she found out two days ago that I was taking LDN. Keep up the fight. How long have you had CLL?Regards, S. ----- Original Message ----- From: Noland R. Durnell, P.E. Sent: Thursday, June 26, 2003 7:34 PM Subject: Re: [low dose naltrexone] LDN for Cancer Hi Noland-- My cancer was progressing quite quickly when it was discovered last April. (I could see bloating in my abdomen.) Both my local oncologist and the one I went to (at Memorial Sloan-Kettering) for a second opinion wanted me to take chemo (CHOP--which is cyclophosphamide, doxiribucin, vinicristine and predinosone--hope I've spelled those correctly) along with Rituxan (a monoclonal antibody). My cancer is considered to be indolent, and incurable, so I refused the chemo and only took the Rituxan. I also went on a macrobiotic diet, lost 45 pounds, began taking supplements (after lots of research on each) and also went on LDN. My cancer has not progressed, at least according to the latest scans. My cancer did not respond to the Rituxan, but it's possible that Rituxan prevented progression. What effect is the LDN having?? I don't know. But, I'm not going to stop taking it. I've read of plenty of people who took CHOP and Rituxan a year ago whose cancer is progressing. I've had no side effects from the LDN and the science made sense to me: many cancers seem to respond to immune system stimulants, at least those which increase T-cells and Natural Killer cells. I'm sorry about your friend's difficult time with chemotherapy. If the cancer was aggressive, he probably did not have time to make the sort of changes that I was able to do. If his cancer is indolent, he might want to consider making some of the lifestyle changes which have been effective for some long-term survivors of Nonhodgkins Lymphoma. Take a look at: http://www.lymphomation.org/wwstrat1.htm By the way, I have done a lot of research about mercury, and just had all of my mercury ("silver") fillings removed by a Hal Huggins trained dentist. I believe that mercury is a significant factor in my cancer, Anyone interested in this subject might want to read: http://www.bioprobe.com All the best to you and your friend, S. "Noland R. Durnell, P.E." wrote: I've been using LDN for my chronic lymphocytic leukemia for two weeks now. Too short a time to really expect any positive results. I am really interested in the results you are receiving in the treatment of your Nonhodgkins Lymphoma. An acquaintance of mine has the same thing and I'm trying to get him to try LDN. His story of the treatment he has received from his oncologist gives you nightmares. He was treated with chemo until it burnt his veins and turned his whole body a dark, burnt pink. They've removed his spleen, etc. AND, he still has the Lymphoma. Looking forward to hearing your results. Noland ----- Original Message ----- From: "" <ebaker@...> "LDN" <low dose naltrexone > Sent: Sunday, June 22, 2003 11:44 AM Subject: [low dose naltrexone] Suggestions on finding doc to prescribe LDN > Hi-- > > I'm in the US and have been using Low Dose Naltrexone for the past 6 > months to treat Nonhodgkins Lymphoma. > > I found a sympathetic physician's assistant who I convinced to write a > prescription. A nurse practitioner might also be willing to help. > > I had to convince the PA that it was a safe treatment. To do so, I > printed out all of the important information from the Low Dose > Naltrezone internet site. Once the PA understood how LDN works and how > benign it has been, she was willing to write the presciption. Good > luck. > > Anyone else out there using LDN for cancer?? > > What about histamine?? > > (My brother has MS. I have not been able to convince him to look into > LDN.) > > Regards, > S > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Steve, if you contact the Brewer Science Library they can tell you of many people who are treating cancer successfully with LDN. White at the library can give you contacts. She is a friend of Dr. Biharis and was instrumental in getting treatment started for people with ms and cancer [low dose naltrexone] LDN for Cancer Question One: Is anyone else using LDN to treat cancer (anykind of cancer) and are you using it with any other treatments either mainstream medical or alternative with good results? Question Two: Is anybody not using it now for cancer, but it was prescribed in the past? Quote Link to comment Share on other sites More sharing options...
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