New to group with a few questions

[Guest guest]

Hi,

My wife has myxoid liposarcoma - rare cancer - she is responding

well to a range of alternatives and chemo at the moment but I am

keen to find a long term solution.

What is best source of info on LDN (books, websites etc)?

Any suppliers in the UK?

Also we have a number of friends with MS, ME and Parkinsons. I have

read that LDN can help in these situations? Any comments?

Many thanks

Steve Lamont

[Guest guest]

Hi Jeff

My son was pretty much considered high functioning when we started,

but he had LOTS of sensory issues, non-responsive, auditory

processing problems too. We have had tremendous success with the

protocol, as all of the above are pretty much gone, our biggest

hurdle now is " socialization " . We started when my son was 3, 2 1/4

years ago. The earlier treatment is begun, the sooner a child can

start developing again. I encourage you to pursue your information

gathering on .

-- In , " jeffsox1 " <jeffsox1@c...> wrote:

>

>

> Hi all,

>

> I have a 3yo boy, Sam, diagnosed with moderate to severe autism.

He is

> non-verbal, not very responsive to verbal commands and has a lot

of

> sensory issues. He is extremely oral, too. Also hyposensitive--

never

> sits still. He is in floortime therapy and about to go into a

floortime

> school program.

>

> I have been told about Dr. Goldberg in California and have

inquired at

> his office, as well. I am curious if anyone out there with a

similarly

> diagnosed child has worked with a doctor (or Goldberg) and

what

> type of success, or lack of success, they have experienced?

>

> Thank you very much, Jeff

[Guest guest]

Hi Jeff,

When we started, my son was considered to be on the moderate part of

the spectrum, with lots of sensory, language, and some behavior

issues. He's been on the protocol for almost three years and has come

along amazingly well. He's not completely recovered yet, but he's now

considered very high-functioning and can hold his own in a general

education classroom.

>

> I have a 3yo boy, Sam, diagnosed with moderate to severe autism. He is

> non-verbal, not very responsive to verbal commands and has a lot of

> sensory issues. He is extremely oral, too. Also hyposensitive--never

> sits still. He is in floortime therapy and about to go into a floortime

> school program.

>

> I have been told about Dr. Goldberg in California and have inquired at

> his office, as well. I am curious if anyone out there with a similarly

> diagnosed child has worked with a doctor (or Goldberg) and what

> type of success, or lack of success, they have experienced?

>

> Thank you very much, Jeff

[Guest guest]

BTW, forgot to mention that we started the protocol when my son was 4

and 1/2. When he was 3, he was almost completely non-verbal and very

unresponsive, like Sam.

>

> When we started, my son was considered to be on the moderate part of

> the spectrum, with lots of sensory, language, and some behavior

> issues. He's been on the protocol for almost three years and has come

> along amazingly well. He's not completely recovered yet, but he's now

> considered very high-functioning and can hold his own in a general

> education classroom.

>

>

> >

> > I have a 3yo boy, Sam, diagnosed with moderate to severe autism.

He is

> > non-verbal, not very responsive to verbal commands and has a lot of

> > sensory issues. He is extremely oral, too. Also hyposensitive--never

> > sits still. He is in floortime therapy and about to go into a

floortime

> > school program.

> >

> > I have been told about Dr. Goldberg in California and have

inquired at

> > his office, as well. I am curious if anyone out there with a

similarly

> > diagnosed child has worked with a doctor (or Goldberg) and what

> > type of success, or lack of success, they have experienced?

> >

> > Thank you very much, Jeff

[Guest guest]

WHAT is his diagnosis? If he has a diagnosis, and symptoms, how can

they eliminate his IEP?

> >

> >

> > Hi all,

> >

> > I have a 3yo boy, Sam, diagnosed with moderate to severe

autism.

> He is

> > non-verbal, not very responsive to verbal commands and has a

lot

> of

> > sensory issues. He is extremely oral, too. Also hyposensitive--

> never

> > sits still. He is in floortime therapy and about to go into a

> floortime

> > school program.

> >

> > I have been told about Dr. Goldberg in California and have

> inquired at

> > his office, as well. I am curious if anyone out there with a

> similarly

> > diagnosed child has worked with a doctor (or Goldberg)

and

> what

> > type of success, or lack of success, they have experienced?

> >

> > Thank you very much, Jeff

>

>

>

>

>

> Responsibility for the content of this message lies strictly

with

> the original author(s), and is not necessarily endorsed by or

the

> opinion of the Research Institute.

>

>

>

>

> -------------------------------------------------------------------

-----------

>

[Guest guest]

Hi ,

After reading your response to Jeff......we are in the same boat! My youngest

son " " is 5 1/2 and is high functioning, LOTS of sensory issues and has

auditiory processing problems. My latest hurdle has been his elementary school.

Since he is so high functioning that they don't recognize any of his sensory and

auditory problems. Even though he has a diagnosis he was just taken out of the

" special ed " category and no longer has an IEP. I came accross this group

while searching for help / answers.

Re: new to group with a few questions

Hi Jeff

My son was pretty much considered high functioning when we started,

but he had LOTS of sensory issues, non-responsive, auditory

processing problems too. We have had tremendous success with the

protocol, as all of the above are pretty much gone, our biggest

hurdle now is " socialization " . We started when my son was 3, 2 1/4

years ago. The earlier treatment is begun, the sooner a child can

start developing again. I encourage you to pursue your information

gathering on .

-- In , " jeffsox1 " <jeffsox1@c...> wrote:

>

>

> Hi all,

>

> I have a 3yo boy, Sam, diagnosed with moderate to severe autism.

He is

> non-verbal, not very responsive to verbal commands and has a lot

of

> sensory issues. He is extremely oral, too. Also hyposensitive--

never

> sits still. He is in floortime therapy and about to go into a

floortime

> school program.

>

> I have been told about Dr. Goldberg in California and have

inquired at

> his office, as well. I am curious if anyone out there with a

similarly

> diagnosed child has worked with a doctor (or Goldberg) and

what

> type of success, or lack of success, they have experienced?

>

> Thank you very much, Jeff

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute.

------------------------------------------------------------------------------

[Guest guest]

,

His latest diagnosis is Autistic Spectrum Disorder ..... previously it was

the same with PDD - NOS at the end (I'm sure you know what those stand for being

that you go through the same stuff). So, basically he's high functioning

autistic.

I spoke with some support people that helped me a great deal when he was in

preschool. They too agreed that they can't eliminate his IEP..... but they did.

I am in the process of figuring out how to fight this.

Now that he transitioned out of that (preschool setting) I feel like it's me

against the system. I attended a couple of Advocacy seminars. It helped a

little but not at his latest CSE meeting. It was horrible. They basically

claim that as long as he can pass (grade to grade) he's in no need of services.

Bla, Bla, Bla.

Frustrated.

Re: new to group with a few questions

WHAT is his diagnosis? If he has a diagnosis, and symptoms, how can

they eliminate his IEP?

> >

> >

> > Hi all,

> >

> > I have a 3yo boy, Sam, diagnosed with moderate to severe

autism.

> He is

> > non-verbal, not very responsive to verbal commands and has a

lot

> of

> > sensory issues. He is extremely oral, too. Also hyposensitive--

> never

> > sits still. He is in floortime therapy and about to go into a

> floortime

> > school program.

> >

> > I have been told about Dr. Goldberg in California and have

> inquired at

> > his office, as well. I am curious if anyone out there with a

> similarly

> > diagnosed child has worked with a doctor (or Goldberg)

and

> what

> > type of success, or lack of success, they have experienced?

> >

> > Thank you very much, Jeff

>

>

>

>

>

> Responsibility for the content of this message lies strictly

with

> the original author(s), and is not necessarily endorsed by or

the

> opinion of the Research Institute.

>

>

>

>

> -------------------------------------------------------------------

-----------

>