Re: MSWatch deletions and warning

[Guest guest]

the proof is in the pudding... if it works, it will be raised up as a

sacrament on the altar of MS, if not, it will be tossed aside as another

promising therapy for MS that never panned out.

I think we've heard from many people their anecdotal data supports the

theory that by inducing increased production of endorphins, the OGF factor

inherent therein, stabilizes the patient. Dr. Zagon at Penn State has

several articles in scientific journals addressing this -- not

specifically for MS but for autoimmune diseases in general. See

http://www.hmc.psu.edu/depts/old%20pages-kms%20save/neuro/faculty/zagon.htm

http://www.genetics.psu.edu/Faculty/detail.asp?pkey=61

for details on this important work.

On Mon, 12 May 2003, LarryGC wrote:

> This is what you get when a company sponsors a website to promote $1199/month

drugs compared to something that costs only 22.62, has no side effects, and has

PEOPLE living with great success, but no MONEY behind it.

>

>

>

> From: The MSWatch Team

> LarryGC

>

> Received: 05/12/2003 08:35 AM

>

> Priority: High

>

>

>

> Subject: Postings deleted

> Message:

> Larry,

> We have deleted your postings again from the discussion boards about

naltrexone.

>

> You have already been warned about this once before. If we have to

delete your postings again, we will also ban you from using MSWatch.

>

> I have attached three answers to questions about naltrexone from the Ask

an Expert section for you to review. I am sure you know that this is not an FDA

approved therapy for any form of MS and has not been scientifically proven to do

anything.

>

> Again, if you continue to promote naltrexone (LDN) as a proven therapy

for MS we will be forced to ban you from using MSWatch.

> -The MSWatch Team

>

> Q1: I saw a web page about the use of low-dose Naltrexone for MS. It

seems like a strange theory and I wonder what the rest of the medical

establishment thinks of this treatment.

> A1: In my judgment it's a scam. There is no scientifically acceptable

evidence to support it.

> Hillel Panitch, MD

> August 2001

>

> Q2: Do you have any updated information on low-dose naltrexone? What do

you think? Any down side to taking it, other than the expense?

> A2: There is no credible scientific evidence to support the use of

Naltrexone, which is approved for use in alcohol abstinence, in multiple

sclerosis.

> ph B. Guarnaccia, MD

> November 2002

>

> Q3: Is low dose naltrexone a possibility for helping with MS symptoms? I

know of a lady who was diagnosed with MS 14 years ago and had to give up her job

as a schoolteacher because of fatigue. She has been either in a wheelchair or

using a cane to get around the house and after taking 3 days medication of

naltrexone (7 ml each) she no longer uses the chair or cane and does not have

the constant fatigue. Thanks.

> A3: There have been no large studies of naltrexone in multiple sclerosis

which would give us any definitive information about how this drug may help

multiple sclerosis. The National Multiple Sclerosis Society keeps on file

information about drugs which have been tested for multiple sclerosis, and it is

a good source of information for drugs which have been tested.

> , MD

> November 2002

>

>

>

>

>

>

> And this was my reply:

>

> Subject: Re: Postings deleted

> Message:

> I have never been told about this before!

>

> Your Expert is wrong, but that's beside the point.

>

> I won't argue the point, it may cause me an exacerbation.

>

>