Re: ldn AND PAT

[Guest guest]

HI PAT, YES, I AGREE WITH JOYCE...I CERTAINLY CAN'T TELL YOU WHAT

TO DO WITH THE AVONEX....I WILL JUST TELL YOU WHAT I DID WITH

IT.....THREW IT OUT!! THE SIDE EFFECTS WERE AWFUL...AND THEN MY

NEURO TALKED ME INTO COPAXONE...AND I TRIED THAT FOR ALMOST A YEAR.

MY MS JUST KEPT PROGRESSING SLOWLY...SO I GOT OFF OF THAT TOO. IT

WASN'T UNTILL I STARTED TAKING LDN, THAT I ACTUALLY FELT BETTER...I

FELT, FOR THE 1ST TIME, THAT I WAS DOING THE RIGHT THING FOR MY MS

AND FOR MY WHOLE SELF. I AM NOT SAYING THAT THE AVONEX AND COPAXONE

DIDN'T SLOW THE PROGRESSION, IT MAY HAVE, BUT AT WHAT PRICE?? I 'VE

HAD MS FOR ABOUT 35 YRS NOW, AND TRUELY FEEL IN MY HEART, THAT LDN

IS THE ANSWER TO REGULATE OUR IMMUNE SYSTEMS, WHICH IN TURN STOPS

THE ATTACKS AND THUS STOPS THE PROGRESSION. AT THE SAME TIME WE FEEL

BETTER, STRONGER AND SOME SYMPTOMS ACTUALLY GO AWAY. WE STILL HAVE

MS. BUT LDN MAKES IT EASIER TO LIVE WITH. I HOPE THIS HELPS YOU AND

I WISH YOU WELL. WELCOME TO OUR GROUP!

HUGS, SALLY

> Hi there Pat,

> I can certainly understand your husbands feelings that you would

be rocking

> the boat by going off what is considered a proven drug especially

if you

> feel it is helping you. I don't think anyone here would want to

tell you to

> do that. I personally feel that the LDN is the way to go but then

I've never

> been on any of those ABCR's myself. I consider myself lucky that I

never got

> on that merry go round. Who really knows for sure. I bet you will

get

> everyone to agree that for us there is no question. I'm just not

confortable

> telling someone to go off of the drugs if they think they are

helping. I

> like the idea of giving it a trial period if you are getting to

that point

> where you might make that decision for yourself. I told myself I

would give

> it a year. Well it is just over a year for me and so far so good,

thank the

> Lord. Not sure a month or two would be enough but whatever you

decide to do,

> please let us know what happens ok? We are all in this together.

As far as

> what to continue and what to discontinue. The only thing that you

cannot

> take with the LDN is anything with a narcotic in it. Maybe try to

Avonex

> first and then slowly try to get off the other things. I wish I

was more

> familiar with all those drugs. Good luck and let us know. Oh and

welcome to

> the group. Joyce.

>

>

> From: " jposbo_77357 "

> low dose naltrexone

> Subject: [low dose naltrexone] ldn

> Date: Fri, 04 Jul 2003 15:34:04 -0000

> I am very intrigued about the whole ldn concept....I came on line

> yesterday and stated that I was new to the group and apparently I

did

> not state my views very clearly..... I got a few responses and I

> appreciate that very much thank ya'll so very much. Now if ya'll

> could please answer a few questions before i go to the dr at the

end

> of this month? my husband is very leary of this. I have printed out

> all the stuff, he has read it and all but he says i am doing so

well

> on avonex why rock the boat? i take the avonex injection weekly but

> daily i take 80mg baclofen and 450mg nuerontin and i am TIRED of

> putting that many chemicals into MY body PLUS the avonex? do i

> continue everything and just discontinue the avonex even that would

> be a plus at this stage of the game. I really need some

> information. i think i could maybe talk my neuro into maybe a trial

> of perhaps a month or two just to see what happens? I mean what

> could it hurt? Pat

>

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