My husband has MS

[Guest guest]

Hi all,

My husband has MS and he just started taking LDN last month. He is

on his second bottle. The first month his GP gave him a script for

3mg. After emailing Dr. Bahiri, who recommended the 4.5mg. his GP

changed the prescription to 4.5. He had improvement last month with

the 3mg dose. but is seeing more results this month with the higher

dose. He has rr, but we think it was changing to prr. because while

on the abc drugs he was continually getting worse. He decided, after

talking to his neuro, to stop taking any of the abc drugs, because of

the side affects and the progression of the disease.

He has been noticing more control over his legs especially his right

one, which he was barely able to lift. He is less fatigued

everyday. And for the last couple of days he has been able to keep

his balance without using his cane! We are really excited about the

results. I told him about the group, so he will probably join also.

We need to get the word out for others with MS and any other

conditions that this may help. It doesn't hurt to at least try it.

If it doesn't work for you at least you tried.

LadyAkrista

[Guest guest]

Tracie--this is the other letter that I received---enjoy reading

it---sounding good.

LOL

Marie

----- Original Message -----

From: " Akrista LBert " <ladyakrista@...>

<low dose naltrexone >

Sent: Saturday, March 22, 2003 7:00 PM

Subject: [low dose naltrexone] My husband has MS

> Hi all,

> My husband has MS and he just started taking LDN last month. He is

> on his second bottle. The first month his GP gave him a script for

> 3mg. After emailing Dr. Bahiri, who recommended the 4.5mg. his GP

> changed the prescription to 4.5. He had improvement last month with

> the 3mg dose. but is seeing more results this month with the higher

> dose. He has rr, but we think it was changing to prr. because while

> on the abc drugs he was continually getting worse. He decided, after

> talking to his neuro, to stop taking any of the abc drugs, because of

> the side affects and the progression of the disease.

> He has been noticing more control over his legs especially his right

> one, which he was barely able to lift. He is less fatigued

> everyday. And for the last couple of days he has been able to keep

> his balance without using his cane! We are really excited about the

> results. I told him about the group, so he will probably join also.

> We need to get the word out for others with MS and any other

> conditions that this may help. It doesn't hurt to at least try it.

> If it doesn't work for you at least you tried.

> LadyAkrista

>

>

>

>

[Guest guest]

Dear Sharon

I have noticed a 100% difference with LDN I hope she gives it a try, I would like to know how it goes. I also changed my diet and exercise regularly and try to keep stress under control.

Good Luck

[Guest guest]

In a message dated 9/18/2005 12:36:17 PM Eastern Daylight Time, sharonzimmer@... writes:

and has stopped taking Avonex since it's been 18 months and she still feels bad with no relief, and the drug makes her feel worse, the flu-like symptoms

Sharon

My flu-like symptoms never went away either. I was in bed 2 days a week after the shot. I also developed drop foot while on it. Glad your mom stopped it.

I have taken ldn since April 2004. I didn't get the symptom relief several others have. I did get some bladder urgency/frequency relief, but not for about 8 months. I take it b/c its main purpose is to stop progression.

Good luck

Arlene

[Guest guest]

I joined this group for my Mom who has MS, and has stopped taking

Avonex since it's been 18 months and she still feels bad with no

relief, and the drug makes her feel worse, the flu-like symptoms

they say will go away have not. She heard about LDN from a co-

workers who's wife has MS and has been taking it. We are going to

have Mom's internist get her a script for it and get it mailed to us

from Skip's Pharmacy since we live in Florida. Any comments on the

dosages and where you've been getting LDN and how it's been

effective.

Thanks,

Sharon Z.

> Hi all,

> My husband has MS and he just started taking LDN last month. He

is

> on his second bottle. The first month his GP gave him a script

for

> 3mg. After emailing Dr. Bahiri, who recommended the 4.5mg. his GP

> changed the prescription to 4.5. He had improvement last month

with

> the 3mg dose. but is seeing more results this month with the

higher

> dose. He has rr, but we think it was changing to prr. because

while

> on the abc drugs he was continually getting worse. He decided,

after

> talking to his neuro, to stop taking any of the abc drugs, because

of

> the side affects and the progression of the disease.

> He has been noticing more control over his legs especially his

right

> one, which he was barely able to lift. He is less fatigued

> everyday. And for the last couple of days he has been able to

keep

> his balance without using his cane! We are really excited about

the

> results. I told him about the group, so he will probably join

also.

> We need to get the word out for others with MS and any other

> conditions that this may help. It doesn't hurt to at least try

it.

> If it doesn't work for you at least you tried.

> LadyAkrista

[Guest guest]

I'm getting mine from Skip's and do 3.0 mgs. I t has been good for my immune system in general. I work with many people who are sick with colds and flu. Fortunately, I seem to have good defenses against this type of thing due to an arsenal of things including LDN.

Skip is a good guy to talk with concerning numbers of people this has helped. I think they send out about 4200 prescriptions a month. Kathy [low dose naltrexone] Re: My husband has MS

I joined this group for my Mom who has MS, and has stopped taking Avonex since it's been 18 months and she still feels bad with no relief, and the drug makes her feel worse, the flu-like symptoms they say will go away have not. She heard about LDN from a co-workers who's wife has MS and has been taking it. We are going to have Mom's internist get her a script for it and get it mailed to us from Skip's Pharmacy since we live in Florida. Any comments on the dosages and where you've been getting LDN and how it's been effective.Thanks,Sharon Z.> Hi all,> My husband has MS and he just started taking LDN last month. He is > on his second bottle. The first month his GP gave him a script for > 3mg. After emailing Dr. Bahiri, who recommended the 4.5mg. his GP > changed the prescription to 4.5. He had improvement last month with > the 3mg dose. but is seeing more results this month with the higher > dose. He has rr, but we think it was changing to prr. because while > on the abc drugs he was continually getting worse. He decided, after > talking to his neuro, to stop taking any of the abc drugs, because of > the side affects and the progression of the disease. > He has been noticing more control over his legs especially his right > one, which he was barely able to lift. He is less fatigued > everyday. And for the last couple of days he has been able to keep > his balance without using his cane! We are really excited about the > results. I told him about the group, so he will probably join also.> We need to get the word out for others with MS and any other > conditions that this may help. It doesn't hurt to at least try it. > If it doesn't work for you at least you tried.> LadyAkrista

[Guest guest]

Sharon, on the LDN website, Dr. Bihari recommends a dosage of 3 or 4.5

mg==3 if the person has had spasticity. Although I get my LDN from

Irmat Pharmacy in New York, Skip's Pharmacy has an excellent

reputation. Did you say you live in Florida? I'm sure if you call

Skip he can recommend a doctor who prescribes LDN.

P.S. The e-mail digests are very long. Let's all try to remember to

ERASE the previous messages.