Want to start LDN

[Guest guest]

I have been reading up on LDN for about six months now. Was

diagnosed as probable MS about a year and a half ago. Six months

ago, after another brain MRI, my neuro said positive MS. He has

talked about starting conventional (ABC) therapy. When I asked

about LDN, he had no knowledge of it. I gave him the info from the

LDN website, he did a quick glance and said " NO " . Only if ABCs did

not work or I could not tolerate them would he even think of it.

I told him ABCs are not an option, I will not try them. High

cost, low success rate, and questionable quality of life. As I am

not rich, I must continue working, and flu like symptoms 3 days a

week aren't going to cut it. I talked to my GP, he referred me back

to the neuro, didn't want to have any of it.

I emailed a group member on this site, and he gave me the name

of the doctor that prescribed to him. I called today, but the

office was already closed. I will call again Monday. Neuro has me

on neurontin for the pain, but when I take the full dose which stops

the pain, the fatigue is unbearable. I hope the LDN will stop the

progression of the MS, and hope I get the benefit of less fatigue.

If it helps with sleep, I should see some real benefit, as a

good nights sleep is an exterme rarity. I'm always tired, just

don't sleep well, and rarely more than 6 hours at a time. If I go

to bed early, I wake up early, if I go to bed late, I still wake up

early. No matter how hard I try, I can't get 8 hours, my body won't

allow it. Will post with my progress with obtaining LDN..

Everyone just keep pluggin along, don't let the MS get you down. If

LDN is the answer, I think we will all soon know. There is always

hope. We are stronger than MS...............Blueswede06