Profile

[Guest guest]

our son was extremely healthy and had his first ear infection around 3.5 yrs

old.

He regressed around 18-24 mths - lost most of his speech.

Blood tests showed (initially) a very high lymph count.

And he's anemic

doris

land

>

>

> Message: 1

> Date: Tue, 23 Jul 2002 23:04:29 EDT

> From: MMacGregor@...

> Subject: DD doesn't fit profile

>

> Hi

>

> I'm very interested in , but my daughter doesn't seem to fit the profile.

> She

> didn't have the rounds of ear infections/antibiotics as in infant - in fact,

> she's only had two in five years! She rarely gets sick. When she does

> though, she's sick!!!!!

> I'd like to know if anyone else has a kid who doesn't seem to fit the profile

> improve

> on the protocol.

>

> Margaret

>

>

[Guest guest]

Confidential Page 1

04/24/03

The following Profile is on Philip Spencer.

I am a Free-Lancer, a High-Lighter of MS Issues who works from home.

I have been living here for 12 or more years; I luckily bought my

home at the right time in Dublin's south side, on the edge of the

Dublin Mountains that surround this great City.

I've chosen to remain safe inside my home for various different

reasons but mainly due to the fact that illness keeps me from

partaking in Society in a normal way today.

A way has to be found to not pigeonhole an MS diagnosed person but to

include the individual and learn from him or her.

I received a diagnosis of MS (Multiple Sclerosis) back in 1989 and

started my own business Spencer Antiques Ltd, along with a younger

brother and employed another three plus more staff over the years

until eventually I had to close due to my illness MS, that was after

working in Camden street for ten years dealing with the public as

general manager in 's, an entertainment complex and having

dealings with the " Dunne " family, Dublin's first main heroin problem.

I am originally from Limerick and was employed first in Dublin out on

the Long Mile road for four years before going on holidays to Donegal

and never returning too work there in 's Wholesale again.

I have been a Wheelchair (Wheeler) user for approx. 6 years and have

been ( " Out There " ), as I like to say maybe 20 times over the past 4

years.

I shop online and bank online and communicate online.

I was the first to join the MS World site and put Ireland on their

Web-site map, the first to set-up a Web-Site Chat-room for Irish MS

People, to try and enhance communication and to help look for an

explanation of the development of this illness amongst us all. (7000

approx.).

I set-up a web-site to highlight MS issues and spent most of my time

Online Supporting other MS'ers and educating myself regarding MS and

wondering what exactly I had picked up.

So far we know what MS does or is supposed to do (Breaking down the

immune System) but we don't know " Why " .

The Medical Profession do not cater for the " Why " area, they treat

the symptoms, solve the problems their way, with drugs of various

descriptions, slowing down the symptoms but also slowing down the

person in my view, maybe even killing the person but slowly doing it,

the disease has been

known about for 200 years.

Is it just my paranoia to have my attitude, I wonder about taking

Cannabis sometimes but I don't think so?

It is a way of benefit in the Medical field today to elongate

anyone's life with MS and is also a benefit in cash terms to the

Profession in a big way.

I sacrifice lots and go through my bad days here, you have no idea

how tormented a mind can get when your afraid to get into a

comfortable armchair and you are afraid to fall asleep.

I tend to try and explain the " Why Area " for my own mental state and

ease of mind and the longer I live alone the more I figure things out.

I for some reason had to find an answer to this question " Why " , it

plagued me.

As far as I am concerned I have come up with a good explanation for

me.

Our reaction (Our Immune System break down) if so is an ancient

survival in built technique.

I had an experience about 15 years ago where, through healers, over

from London teaching, got rid of my limp and my so-called MS

overnight, it lasted two weeks.

That perplexed me for 15 years, I thought that it was I causing the

illness.

I had forgotten something though; I had forgotten to stay in touch

with those around me and had ended my contact and returned to work.

I know now, that was the mistake that was made, 15 years ago.

How did I do it back then and can I do it again?

Today I have to use a wheelchair to get from A to B, I've been using

one for 6 years approx., I haven't been able to take one step for

four at least since the flight to Australia.

After I arrived in Melbourne, Australia, during a Cyber affair where

things had gone badly wrong onboard a flight, I was handed a scooter

to transfer into, a large reverberating chair to sit in, went to a

Zoo, experienced a butterfly house, met a very strange baboon like

creature with a red and white stripped face, that gave me a strange

look, and so on, I was so far away from anything I knew.

I ran from the lack of understanding from my girlfriend,………me…….run

in a wheelchair?

No ….. in my head.

I panicked when I realised what an upbeat job I had now to cope with.

Love was not strong enough, safety and survival was more in my mind.

The panic set in.

I phoned an Irish friend and stayed with him and his wife for 1 night

and morning, maybe two nights and rang the MS Center for help, I

arrived at 2 am in bits.

I phoned her that night only to be told that she would come and pick

me up,

I said wait till morning and she phoned back 15 mins later telling me

not to come back.

I didn't go back and left for the MS Society where I stayed for a

week and then got transferred to another place for about 2 months.

All I know is that I had to be totally open to being healed and that

happened to me with 22 witnesses in the room, I growled, I shook, I

sweated pounds, I made noises, rose up on the back of my neck, I

released lots of what, stress I suppose, I don't know really and I `m

afraid I won't have the strength to do it again now after six years

in a wheeler and at my age and physical condition.

I now believe my family is in some way to be involved in my healing

process, if there is to be one!

Or else!

I was knocked down when I was ten, knocked of my bicycle by a car.

Basically bad concussion and a cut and broken finger on my right hand

side.

Car hit me on the right, I wanted to go fishing with my friends down

the river in our favorite place by the sewage pipe outlet.

I had broken out of home from being locked up for being bold, can't

recall what I was supposed to have done but that's the way things

were back then in the 60's.

First known symptom of MS.

Working in 's Wholesale out on the long mile road, Dublin, when

I was 20 or there abouts, I sat down to write up a report and

couldn't move anything for maybe seconds, can't remember, maybe 20

seconds, went home for rest thinking that I had hurt my back.

What if I was misdiagnosed?

What if all this could be reversed?

What do I feel?

A fight is always around with my diagnosis.

I fight to survive.

I fight to explain this illness because as far as I am concerned this

illness is not understood at all and could be cured if the right

understanding was in place.

Philip.