Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Terry, I'm glad to hear there is no insomnia w/LDN as this seems to be the only side effect at times... anyway good luck to both of you and give it a couple months as it has taken me 5 weeks to start feeling " balanced " again. My walking is still the same -- challenging, but other than that I have an increased energy and no more " slept on " feeling in either hand every morning! My strength seems to be back in my right hand and I recently started playing blues guitar again (I have been playing since my teens and was in a band as recently as a year ago but stopped due to my schedule and because I kept dropping my pick from my right hand). So anyway, that seems to have cleared up nicely. I started doing the histamine patch last weekend and haven't really noticed anything other than it feels like I was stung by an insect where I've been applying it (could it be the histamine in bee stings that helps MS'rs?). Speaking of bee venom therapy (aka BVT) did anyone know there is a MSAA funded scientific study going on? I'll post it at the end of this message, in case anyone is interested... I had no idea... anyway take care to everyone and I'll just say that if this disease has taught me anything, it is to not waste *any* time (thinking I'll do it later), and to enjoy every single second of every day... I hope you all feel the same... Life is a precious gift we should not take for granted... imho. regards, Phil On Fri, 30 May 2003, terrysixx2003 wrote: > Good morning everyone, just want to let you know that my wife has > been taking the LDN for one week and she isn't having any side > effects at all. I'm sure it's to early to tell if it is helping her > but i will keep everone posted, > Thanks Jo for the nice welcome , and you are right the posts have > been very few these last few days but i'm just waiting for someone to > say they have good results. > Larry , i'm sorry to hear you are having problems and i hope you > can get rid of them and find out what is causing it. I know you were > really excited about LDN and i just hope things gets better. > I hope everyone has a good day and a good weekend and stay healthy. > also i would like to thank some of the people here like Phil for > helping me get the information i needed to get the LDN for my wife. > > > MSAA Funds Scientific Study Through a $375,000 research grant, MSAA becomes the first MS organization in the country to release funds for the human scientific study under FDA-approved guidelines of honeybee (Apis melittin) venom therapy as a treatment for MS. The Phase I study, being conducted at tom University Medical Center in Washington DC, will examine the safely and tolerance of honeybee venom extracts as a possible therapy for patients with progressive MS. The study began on August 9, 2000 under the direction of ph A. Bellanti, director of the town Medical Center's Immunology Department. Progressive MS patients are receiving two injections per week of honeybee venom extract for one year. Each study participant is undergoing monthly evaluations for safety and tolerance of the treatment. Progressive multiple sclerosis clients have few treatment choices, some of which are expiramental and pose serious health risks. In recent years, thousands of MS clients have reported siginificant symptom relief through the alternative practice of bee venom therapy (BVT.) For centuries BVT has been practiced in many eastern countries including China, Japan, and Korea. The therapy involved repeated stings from honeybees to various parts of the body. BVT is practiced by MS clients and by those who suffer from arthritis and other degenerative diseases. MS clients engaged in BVT receive 25 to 30 honeybee stings per session, and average more than 3,000 yearly stings. Under these conditions, it is impossible to measure how accurately how much extract is delivered, or how safely the the stings are being administered. The study will determine does-response relationships by giving known quantities of honeybee venom in calculated increasing doses. " With so many people stinging themeselves, it's very haphazard. By performing this study, we hope to give some level of scientific basis for dosage and potential side effects, " explains Dr. Bellanti. " We came to this study with bee venom because of the widespread use for the treatment of MS. As far as I am concerned, there are two kinds of research: good research and bad research. Good research asks valid questions and is conducted using proper methodology, " he notes. " It's hard to argue with preset biases. As scientists and medical professionals, we need to keep an open mind in order to help our patients. In the beginning I thought it was a little strange. But after researching it, I found that there are definate immunological changes the body undergoes after bee venom therapy. So I thought it might not be so far-fetched. How do we find out if it really works, unless we investigate it in a scientific way? " If Phase I of the study proves promising, Dr. Bellanti hopes to work on a second phase double blind study, where some MS patients receive bee venom and others receive a placebo. " The best outcome would be that bee venom therapy could become a safe alternative treatment for progressive MS patients, " says Dr. Bellanti. " We are very excited with the prospect, but we don't want to give a false hope. While we hope it will be efficacious, we have to wait and see what it shows. 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