Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Back when my daughter started LDN she was told it should absolutely NOT be taken with any INTERFERONS or OPIATES. I remember one gal taking it with AVONEX who got really sick. My daughter had to wait 10 days after stopping Betaseron to get it all out of her body before taking LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 I was on Rebif for a year. I felt awful every day especially the day after a shot. I forgot what it was like to feel good and just accepted it. I got worse on the Rebif and took myself off almost 3 weeks ago. I am now taking LDN and feel great. I still have bad days but nothing compared to what it used to be. My quality of life has improved tremendously!!. Take your time and make your decision so you have no regrets. Also , Rebif slows progression only about 30% as do the other ABC drugs. I thought long and hard before I stopped and have no regrets. Good Luck KIKI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 I was on copaxone and stopped two months before getting on the LDN. I wasn't doing good on the copaxone anyway. Marie ----- Original Message ----- From: " gusmerlo2003 " <gusmerlo@...> <low dose naltrexone > Sent: Thursday, July 24, 2003 4:07 PM Subject: [low dose naltrexone] LDN and REBIF > I've been taking LDN for almost 3 weeks. I notice less fatigue, but > much more muscle spasms all over my body. I'm taking 4.5 mg and > considering lowering the dosage to 3.0. > > I was starting REBIF a couple of weeks before I started the LDN. I > was feeling better in general anyway. I don't know if it was due to > remission or the shots. Anyway, I'm still on REBIF which I have no > adverse reaction to and LDN which started the increased muscle > spasms. I am considering giving up the REBIF. This is very scary. > Is there anyone else who is also taking any ABC drugs with the LDN, > or used to and stopped? > > I'd like some feedback. Thanx. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 I was on Copaxone for six months and the progression was bad enough that I was noticeably worse off after six months. I stopped Copaxone shortly after starting LDN. I feel better than I have in a year or so (since my bad attack last November when I could no longer walk and was then DX MS). Through hard work and a proper mindset I am nearly normal now (the LDN helps). My hands and feet are still numb (hopefully they will come back in time). ----- Original Message ----- From: noclue915@... Gusmerlo@... Cc: low dose naltrexone Sent: Thursday, July 24, 2003 5:52 PM Subject: Re: [low dose naltrexone] LDN and REBIF I was on Rebif for a year. I felt awful every day especially the day after a shot. I forgot what it was like to feel good and just accepted it. I got worse on the Rebif and took myself off almost 3 weeks ago. I am now taking LDN and feel great. I still have bad days but nothing compared to what it used to be. My quality of life has improved tremendously!!. Take your time and make your decision so you have no regrets. Also , Rebif slows progression only about 30% as do the other ABC drugs. I thought long and hard before I stopped and have no regrets. Good Luck KIKI Quote Link to comment Share on other sites More sharing options...
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