WOW!

[Guest guest]

I didn't realize how many e-mails and questions I received when I

posted about my daughter. I think it's wonderful. I started to

answer each one personally, but finally decided to post the answers

to some of the common questions.

It was a patient of Dr. Bihari's who told Mel it couldn't be taken

with interferons and I believe the LDN website states about taking

it with opiates. The way I understand it is that the interferons

tend to suppress the immune system while LDN modulates it. It was

very obvious to us that Mel's immune system was extremely poor while

on Betaseron(she got every bug that went around) and very strong now

on LDN (she's hardly ever sick).

Dosage? She started on 3 mg. and stayed on that dose quite a

while. When she felt she was starting an exacerbation, she called

her pharmacist and he recommended increasing to 4.5 mg and her neuro

rx'd it and she was fine in a day or two. She's been at 4.5 mg ever

since.

She has never had any problems with stiffness with LDN. Before LDN

she started a lot of supplements including calcium and magnesium.

There was a lot of discussion on the procarin board about using

magnesium to combat stiffness. She follows the diet and supplement

recommendations of Elaine Delack, the inventor of Prokarin. Her

diet is high in saturated fat and she does well on it. BTW, she's

thin, with a great figure.

Prokarin keeps her fatigue and heat intolerance at bay. LDN has

stopped her attacks and progression. When we really started to see

major improvements in her strength and mobility was when she started

to work with a personal trainer(15 months ago). He husband says

this is just as important medically as any of her meds. She goes to

him every week and the results have been miraculous.

Stop LDN for a day or two? NO WAY!!! You couldn't pay her to do

without her LDN or Prokarin. In fact her company changed insurance

companies and they don't pay for either drug. She's thinking about

starting a family, but is terrified of having to stop either drug.

I hope this helps and answers most of the questions. I don't mind

receiving questions at all, but some I'll need to the the answers

from Mel herself.

[Guest guest]

Glad to hear you are feeling better.  Just wondering why you had to stop taking

Xolair?

From: lurkitty117 <scruffy@...>

Subject: [ ] Wow!

Date: Wednesday, June 25, 2008, 11:42 PM

I got my Xolair back yesterday after miserable months without it. I

fully expected that it would take some time to kick in, after all, it

originally took four months to have any affect.

I injected last night, and this morning, I could breathe! My peak

flows are twice what they were the day before. My stuffy nose is

clear. I actually walked two blocks without using my rescue inhaler.

I'm not 100%, and I'm not going to start tapering my prednisone for a

couple of days just in case this is some sort of placebo effect.

I wonder if there has been a study of what happens when you go off and

back on. I'd love to know how it worked so fast.

(Thanks for the encouragement for my last post. I have been

self-injecting since I started on Xolair four years ago. My former

insurance company wouldn't allow it, so I had to have them send it to

my Dr. and go pick it up. I much prefer having it delivered to my house!)

I can see a light at the end of the tunnel. With Xolair before, I got

to the point for the first time in my 49 years that the only other

asthma medicine I had was a rescue inhaler I used perhaps once per

week. I actually had one expire before I could use it up!