Re: LDN for MS

July 14, 2003

Hi Janis

I have had MS for 26 years and have been on LDN for 5 wks. I was on

copaxone and that was making things worst so I got off of it/. I am doing

great on LDN. I know that my spasms are better. I take tegretol for the

spasms and I even forget to take it. My body use to remind me to take my

tegretol but now it doesn't. I think that in time I will be able to get off

of the tegretol. You may have trouble finding a doc to prescribe it for you

but don't give up, there are other ways.

Good Luck

Marie

----- Original Message -----

From: " jmklou " <janis@...>

Sent: Monday, July 14, 2003 12:02 PM

Subject: [low dose naltrexone] LDN for MS

> Today, I'm going to try to convince my neurologist to prescribe LDN

> ... he's been trying to convince me to start one of the abc drugs, but

> so far I've refused them. I've had RR MS for about 29 years, and this

> year has been about the pits with spasticity in my legs.. I know I

> need something and I'm hoping LDN will do it for me

>

> Thanks for this group.. great stuff here

>

> Take care,

> Janis

>

March 29, 2010

I think perhaps it might be because most folks have a neuro managing their MS, and like I did, want to give their neuro the first chance? Of course, when she said " no " , I spoke with my Family Practice doc right away and got things moving. I saw my neurologist last week and informed her that I was taking LDN. I believe she should know that, whether she supports the decision or not. Both my neuro and Family Practice doc also know what supplements I take. I'm not sure about neuros having more restrictions? At least here in the US, they don't (although they might try to make you believe they do), and depending on your insurance plan, sometimes only certain specialists can prescribe certain meds. As far as which doc to approach, I guess you never know until you ask!

On 29 March 2010 09:16, lucretia1419 <lucretia14@...> wrote:

Why do people always want to talk to their neurologist, when a general practitioner is more likely to listen about and prescribe LDN? Neurologists have more restrictions on them (and are better sales people for the big expensive drugs) Why not read up on other people's experiences and go to the GP straight away? Most people are being brushed off by their neurologists although there are some good ones, apparently.

Silvia

>

> I am currently on Avonex and will be talking with my neurologist about LDN.

>

March 29, 2010

I agree, most of us have one doctor who tends to manage the majority

of our medications. And so far, my experience has been neurologists

are rather medication happy. Mine dragged me through a list of drugs

before we moved to a pain clinic/pain management approach. Of course

their approach is medication heavy too. But I should get my TENS unit

later this week. And yes, I have done ample quantities of PT.

Now I plan to try the LDN for my ulcerative colitis - not the things

that led me to the neurologist (pain from congenital fusion in neck

and multiple disc ruptures/bulges from a car accident) - but I think

my internist would be more open to LDN than my neurologist would be.

Although apparently, from the list of doctors I was sent there is a

doctor at my neuro's clinic who prescribes LDN but only for MS

patients.

At this point my hope is I have a positive response. I can take that

evidence to my doc - my internist who I have as the focal point for my

health management. Hopefully my next colonoscopy will also show said

positive response. My doc will become a convert (smile) and from then

on I can get regular scrips for which I can get flex fund

reimbursement. The vitamin/mineral/fish oil supplements are out of

pocket so it'd be nice to have something reimbursable.

Now if anyone read this far. Have others who are not taking LDN for

MS seen changes in their vision? I was getting ready to do my yearly

eye appt and get some new glasses but now wonder if I should hold off

a little bit.

Jaxi

>

>> >

>> > I am currently on Avonex and will be talking with my neurologist about LDN.

>> >

>>

>

> ------------------------------------

>

March 30, 2010

Jaxi,

Regarding your vision question, I had the very same question on this

board last week. I have been taking 4.5 mg LDN for 2 full weeks now for RA, and

both my long-distance and near vision have improved a bit. Prior to taking LDN my

near vision seemed to be getting a bit worse and when I see my optometrist in

May was going to ask him to adjust my mono-vision script ( right eye is

stronger so dominant eye and left eye Rx is decreased down a full power to

focus on my near vision) Was doing ok with this mono-adjustment for several

years until about a month ago (before LDN)

On LDN, I don’t need my reading glasses to see computer screen

and can see at a distance better while driving and also can read better

w/o need for reading glasses.

Can anyone explain why vision would improve with LDN?

Thanks

Pat

From:

low dose naltrexone [mailto:low dose naltrexone ] On

Behalf Of jaxi

Sent: Monday, March 29, 2010 2:51 PM

Cc: low dose naltrexone

Subject: Re: [low dose naltrexone] Re: re: LDN for MS